Good job for sticking up for yourself. I hope the procedure works for you and thank you for educating us about your experience and your edge of humor :-)
So good to see you! I was wondering how you were as I went on a months long YT hiatus. Im glad that you are talking about this. I dont know if I might need it one day. I have such issues with retention right now. I dont know I guess I have a lot of other drs visits and mayve even meds to try - it's just been a rough summer. My dr wants to try betaseron. Kinda a little scared anyway. so nice to see you!
Maria!!! I have been away from the computer for a while, so it was so great to see a video from you. You look FAB girl :-) You handle everything with such grace and humor. very imfromative stuff. I hope your cooter is feeling better LMAO Love you much!! Andrea
lord you're so beautiful both inside and out .. would love to know how things are going with u now .. I felt a little weakness on my left side and I started searching MS , then I saw u //
I have to say that sometimes I'm afraid to watch videos from other MSers because I don't want to think that ANY of these things could happen to me! :-( I'm fairly symptom free for the most part but I know that could change at any time.... hell it could change tomorrow! So it's good that you are sharing your experiences... thank you.
Hi, thanks for sharing your experience! Although I know Interstim is widely used, noone wants to do a video. I can figure out why. I am scheduled to have the trial in about a month. Which I'll be counting the minutes since my bladder symptoms have gotten worse in the last 6 months. I plan on doing a video for the interstim experience and also regarding the baclofen pump I have. I got that 3 years ago but never posted videos. So, if you see this, wish me luck!
That was the trial. My story is a weird one, my doctor doesn't even really know what to do. I got the interstim for retention, but now I wet myself at least a few times a week. I'm looking for the right program for right now.
HI Maria! I know you got this done quite sometime ago, but I am curious to see how your doing with it now?.. (I start a trial in Aug.) I am pretty nervous, but sure in hell want to have the sensation of having to PEE again and knowing when I have to! I too have retention, cathing absolutely is terrible, but not the end of the world I suppose... Any who I hope it has been working well with you!
well, it has worked for a bit for me. I got it because I couldn't pee, Now I cant stop peeing with it! lol I know that sounds silly. I couldn't start a stream before, now I have incontinence with it. If i turn it off, I go back to not being able to start again. so, with all of that, I wear some pee pads and that has seems to work for me. If you want some more information, e-mail is the best way to get a hold of me. MissMaria86@gmail.com
Maria Christodoulou HI Maria! I got my stage 2 September 29th. It has been working for the most part for me.. I also couldn't pee on my own before.. I have to go in and get reprogrammed because I've been having these strong urges to go, but actually can't then.. So hopefully with the reprogramming It will work like it did at first. :) I actually haven't been peeing a lot.. which I am like WHATT.. because the comparison to before it's literally crazy.. I feel like I hardly pee.. or that I don't empty all the way... Glad you found so way to work with it. A little frustrating, but at least you can pee! LOL (are you still cathing?) Anywho, Maybe I will email you! Always nice to have someone to talk to about it!
I'm doing fairly well. Today I just happened to be super, duper tired but I'm sure I've just over done it the previous 2 days getting ready for a rummage. Other than that nothing really new happening. How are you?
Good to se you! I'm sorry about the Interstim, but the first part of your story is hilarious! Gawd, why don't people get MS? Glad this is helping...but take it easy when you're fooling with the settings! Look forward to the next video!
