Ampyra not working the best for me. Makes me more sleepy on the weekend. That is only taking it once a day. Definitely helps walking when taking those potassium pills.
Dr Terry Wahls reversed her MS through diet (deficiencies). She was wheelchair bound, tried every modern medical treatment, then found the natural cure. Do the research. Our healthcare system has been corrupted by greed.
Interesting that your video metions nothing about the possibility of leads migrating, or pain from infection. Those were my two major concerns. I had a consultation with my Urologist where I asked at least twenty questions which she addressed for me. At first I had decided to go with Axoincs, but she persuaded me that both brands were very similar. The remote of Intrastim has been improved considerably. I would say that being comfortable, and confident in the abilities of one's surgeon is important to me, because to have Axonics I would have had to go to a different Urologist, one who was not recommended by my Oncologist, so therefore an unknown quantity. I love my Oncologist to death, so decided to go with her advice, because she has never steered me wrong!
Thank you for your update Maria. I have a request for another video. If you are on Social Security Disability, can you tell us about your experience please?
It’s lovely to see you again, Maria. I’m glad you’ve found meds that seem to be keeping things in check, and a PT routine which works better for you..good effort 😊
My symptoms haven't changed, but there have been effects that I've noticed. My sleep has changed. I sleep harder. I dream now, when before I never really drempt, now I have longer dream story lines, if that makes sense. That's really what I've noticed. Not much change from the tysabri.
Maria you have a progressive disease. When i was 30, after 7 years diagnosed, i was about where you're at - I'm 46 now, i've had it half my life. i tried various meds, healthy diet, exercisee but it has still progrssed. What info do you want from a spine MRI, it will only confirm you have MS. looking back i wish i had not wasted time fixating on trying to stop the inevitable. just enjoy life
I know this is 2016 and im on tysabri and this is my 3rd infustion and I love looking at your videos the week of my treatment I feel bad but two weeks before the treatment I feel great that crazy but thank you for your videos
Unfortunately, your are now "progressing". It is not that you are going backward, rather, progressing/traveling further down the road of MS. Tysabri, if it is working for you, (just as with any other of the MS-specific drugs) simply slows the rate of progression that otherwise *would* be occurring. Similarly, any off-label drug usage, if it works at all, will be not have all that much different outcome. Doctors are rather aloof and/or nonchalant because they really can't offer anything more. But, you are still young (30 IS young), beautiful, sexy, and wonderful.
Awesome to see you!! :) I hope you do keep making videos! I've had a lot happen to me :( so have not been up to doing a video. I should though. Thanks for making this. I'd like to be inspired again.
+George Kafantaris Capslock man, take it off. No, not everyone recovers. As you get older, you get old. When you've had your immune system attack you for so long you get scar tissue. RU-vid is just stories of people, we don't claim to be doctors.
lord you're so beautiful both inside and out .. would love to know how things are going with u now .. I felt a little weakness on my left side and I started searching MS , then I saw u //
IF THIS WAS CURE I WOULD DO IT TOO..BUT DOESNT MAKE SENSE,MORE BLOOD,,,WE NEED SOMETHING TO GET RID OF BRAIN LESSIONS.. LESSIONS ARE SCARES THAT DONT GO AWAY..
HI Maria! I know you got this done quite sometime ago, but I am curious to see how your doing with it now?.. (I start a trial in Aug.) I am pretty nervous, but sure in hell want to have the sensation of having to PEE again and knowing when I have to! I too have retention, cathing absolutely is terrible, but not the end of the world I suppose... Any who I hope it has been working well with you!
well, it has worked for a bit for me. I got it because I couldn't pee, Now I cant stop peeing with it! lol I know that sounds silly. I couldn't start a stream before, now I have incontinence with it. If i turn it off, I go back to not being able to start again. so, with all of that, I wear some pee pads and that has seems to work for me. If you want some more information, e-mail is the best way to get a hold of me. MissMaria86@gmail.com
Maria Christodoulou HI Maria! I got my stage 2 September 29th. It has been working for the most part for me.. I also couldn't pee on my own before.. I have to go in and get reprogrammed because I've been having these strong urges to go, but actually can't then.. So hopefully with the reprogramming It will work like it did at first. :) I actually haven't been peeing a lot.. which I am like WHATT.. because the comparison to before it's literally crazy.. I feel like I hardly pee.. or that I don't empty all the way... Glad you found so way to work with it. A little frustrating, but at least you can pee! LOL (are you still cathing?) Anywho, Maybe I will email you! Always nice to have someone to talk to about it!
Hi, thanks for sharing your experience! Although I know Interstim is widely used, noone wants to do a video. I can figure out why. I am scheduled to have the trial in about a month. Which I'll be counting the minutes since my bladder symptoms have gotten worse in the last 6 months. I plan on doing a video for the interstim experience and also regarding the baclofen pump I have. I got that 3 years ago but never posted videos. So, if you see this, wish me luck!
I'm doing fairly well. Today I just happened to be super, duper tired but I'm sure I've just over done it the previous 2 days getting ready for a rummage. Other than that nothing really new happening. How are you?
That was the trial. My story is a weird one, my doctor doesn't even really know what to do. I got the interstim for retention, but now I wet myself at least a few times a week. I'm looking for the right program for right now.
