Dr. Greg Davis of The Center for Excellence in Women's Healthcare in Chico, CA explains Interstitial Cystitis in detail. Visit his website at www.gldmd.com
An antihistamine at bed time has been a life saver for me as I hadn’t had a full night’s sleep without pain and getting up to pee at least 10 times a night.
I have probably watched two dozen videos about Interstitial Cystitis, and this is the best by far. Great information presented in a way I can understand what is causing me so much pain. Thank you so much for this video. I only wish Dr Davis could be my physician, too!
Although this is a old video. This has been THE MOST informational explanation I've ever gotten. Everything he is saying....it's right on the money. I seriously feel so much more informed. THANK YOU!
I was diagnosed with this disease in 1989. There was really nothing available except for DMSO which I had to get weekly treatments. I still deal with this still to this day. Thank you for this video.
Wow, I was also diagnosed in 1989! I thought I was the only one at the time. I was a 12 year old little girl at the urologist with a bunch of elders. My bladder was stretched a few years later after failed medications. Nothing has ever helped me. My symptoms are no different from 1989. 😶
@user-eg4sq8dn1h Unfortunately, yes. Learn as much as you can and try to manage your symptoms. And know that you are not alone. Support groups might be helpful. IC is manageable, but it takes a lot of work and knowledge. If one doctor does not help you, seek out the opinion of another. It is usually urogynocologists who are the most knowledgeable; but even then you need to do your own research and keep up with the latest information. I wish you the best of luck. This is not an easy path to be on; but you can do it.
I’ve read so many articles and watch so many videos and this is the most simplified video I have come across …I would definitely say the diagram helped a lot with his explanation and I have a way better understanding of the condition. THANK YOU🙏🏾
This is an excellent discussion of IC subtype 2: bladder wall driven. Please know, however, there are other potential variants of IC such as Lesions, Pelvic Floor Injuries, Pudendal Neuralgia, and CSS (using the Payne Phenotyping system). Tragically, in 2018, Elmiron has been linked to severe eye disease according to researchers at the Emory Eye Center. Patients are transitioning off of Elmiron and/or looking for other bladder coating therapies such as Hep/Lidocaine instills, Bladder Builder, CystoProtek, Cysto Renew, etc.
Thank you very much, Dr. Davis, for this in-depth and easy-to-understand explanation of IC. I believe I have suffered from this for many many years without any help. Luckily, I found a uro-gynecologist in my area who I am hoping will help me. You sound like a wonderful and caring doctor and you have given me much to hope for. Thank you again.
Dr. Davis has given me so much hope! I have been having all these symptoms for 6 months and can not even get in to see my urologist! I did once and he performed a cystoscopy in his office and it was so painful! All he could tell me was that it shouldn’t be painful, so it probably was due to urethra being narrowed for some reason . I wish I could see Dr. Davis and be treated by him.
This is the best, most informative video I've ever seen on the subject. I learned so much. Thank you. About 20 years ago I had the cystoscopy without anesthesia -- promised myself I would never go through it again. My current urology practice will not do it under anesthesia.
Unconscionable that they did this without anesthesia! I’ve had IC flare for 3 years. My male urologist, male MD, and other male specialists have all been entertained and quiet delighted in my agony. I’ve been offered anti depressants numerous times for my “hysteria” until a female NP introduced me to the bladder treatments via catheter along with estrogen cream 4 weeks ago. Amazing response. I didn’t know about the antihistamine or Prelief. Thank God for this doctor sharing such vital information with women who are ready to give up on life rather than suffer such an agonizing life of excruciating pain and sleep deprivation.
SUE THEM DARLING. LOOK UP ' MEDICAL ACCIDENTS' SUPPORT FOR PATIENTS WHOSE DOCTORS HAVE NEGLECTED/ AND OR MALTREATED OR MISDIAGNOSED - IN FACT ANYTHING WHICH CAUSED THE PATIENT PAIN OR SUFFERING - AS THIS IS A BREACH OF THEIR DUTY OF CARE REGULATIONS PLUS VIOLATES THE OATH THEY TOOK . MANY DOCTORS LOSE RECORDS ETC IF YOU COMPLAIN SO GET A COPY OF YOUR GP PLUS HOSPITAL RECORDS FIRST. MEDICAL ACCIDENTS CHARITY CAN HELP YOU EVEN IF YOU DONT WISH TO SUE. THEY WILL ENSURE YOU DO GET ACCESS TO THE RIGHT DOCTOR OR SPECIALIST IN ORDER TO GET YOU ON URGENT RELIEF FROM PAIN & MEDICAL TREATMENT THAT YOU DESPERATELY NEED. YOU SHOULD NEVER BE LEFT THE WAY YOU HAVE BEEN - IT IS WILFUL NEGLECT & CAUSES UNECESSARY PAIN & SUFFERING. CLEARLY YOUR DOCTORS ARE NOT QUALIFIED TO TREAT YOU SO YOU MUST SEE SOMEONE WHO IS WHO WILL TAKE YOU OUT OF ALL YOUR PAIN & SUFFERING WHILST THEY ARE INVESTIGATING AND EVENTUALLY HEALING YOU. YOUR PROBLEM IS COMMON AND EASILY TREATED IT IS SIMPLY THAT YOUR DICTORS HAVE NOT TAKEN THE NECESSARY STEPS TO PROVIDE ESSENTIAL CARE & ATTENTION. IF YOUR LOCAL A AND E WONT HELP YOU ( YOUR MEDICAL RECORDS MAY BE TAMPERED WITH OR JUST MISLEAD THEM & PREVENT THEM ASSESSING CORRECTLY) GO TO ANOTHER ANOTHER AREA. A AND E HOSPITAL EVEN IF YOU SAY YOU ARE JUST ON HOLIDAY OR MOVED TO NEW AREA - DO WHATEVER IT TAKES TO SEE A NEW INDEPENDENT DOCTOR OR SPECISLIST. INSIST ON ANTI IOTICS OR HOSPITAL ADMISSION TO STOP PAIN. THIS IS A TERRIBLE CASE OF MEDICAL MALTREATMENT BUT IT IS VERY COMMON, YOURE NOT ON YOUR OWN.
Thank you so much for this video. I have been receiving treatment for 5 months. The treatment I have received from my uro has basically mirrored the information in your video....but now it all makes sense. Yet to do the PTNS Thank you!! So helpful!
Dr. Davis is the best he understands all things related to Interstitial Cystitis I am grateful to to have him practicing in Chico........I........Thank-you Dr. Davis !
Wow! Thank you Dr. Davis! I wish I lived closer to Chico so I could come and see you as a patient. But you explained everything so well I very much appreciate it especially the anatomical model of the bladder and your diagram.
I have pain, urgency, and frequency. Plus i have burning, pressure, aching, retention. I have flare ups where all the symptoms intensify. All my urinalysis test results since my symptoms started show I have high leucocytes, when I never used to have any except when I had a UTI. I can't say I just have pain or I just have urgency, etc.... I have all of it every day. I know we're all different, but i haven't met many IC patients with just one or two symptoms, we tend to have quite a lot of symptoms.
I went on all fruit diet and raw vegetables, within 24 hours I felt so much better instead of going to bathroom every five minutes, the next day I could manage two hours Which was life changing for me. I am not completely cured but so much better. I suggest giving the all fruit diet no tea or coffee a try for 24 hours and see if it makes a difference.
Try ginger root juice and tumeric. Drink it 3 x a day for 3 to 4 days . Eat garlic and u will see a different. Add a good probiotic .bacteria, Lactobacillus Acidophilus, Lactobacillus Rhamnosus, and Lactobacillus Reuteri, which live naturally in a healthy vagina. Promote maintains this healthy vaginal bacteria, which is a key component of urinary tract health.and baldder...cornsilk helps too. I had to get on an anti inflammatory diet. Cut out all acidic food. Soy etc. At least for a few months. Then u slowly introduce those food back in and try to see what food gives you flare up. But I use d mannose.
Sir thank you so very much for this detailed description of what I have been experiencing. I have had two urologist treat me like I’m crazy and my oncologist refused to give me estrogen. Now that I am armed with this information I will fight for estrogen supplementation. THANK YOU SIR 🙏
I use a bio identical estrogen HRT for menopause. May I suggest you find an integrative practioner that is more specialized and understands the bodies need for Estriol & Estrodiol combined with progesterone, ( formulated at compounding pharmacies) to protect from Cancers. Your dr may fear the "cancer" issue because he/she has not been trainedor educated. Bio-identical mimics your bodies natural hormones and made from natural ingredients opposed to synthetic pills and patches. (which are NOT GOOD ingredients) Insurance doesn't cover it but as aging women it is essential unless you have Cancers that are estrogen driven. Look into Suzanne Summers books. I read "The Sexy Years" Lots of helpful info on female aging and the importance of Bio Identicals and how they play and intrical part in aging for multiple aspects of the bodily health functions. God Bless you in your journey and remission of IC suffering. 🙏💖🤗
You need to make sure you learn why your oncologist opposes you taking estrogen. Many types of Cancers can be driven with estrogen and destroy your attempts at saving your life. Please make sure you get knowledge on this. God bless you dear 🙏 ❤ 🙏
Excellent video! Thank you so much! I’ve been in agony from my IC . It seems like there are far more options available than I or my doctor are aware of. I live in Canada. They may not have all of these options available. I’ll certainly check into this. This doctor is a dream come true! If only I could see him. Because of COVID the hospitals here don’t have the clinics they used to have for IC patients.
No pelvic floor disorder mentioned? Also the worst part of IC is certainly the frequency at NIGHT. I have not slept through the night in over 8 years. It is pure torture!
@@kellie4225 ..kellie thanks. Mi home HOLLAND..mi engels not good..spanich..português.. Pijn pij pijn. Menapereira60@hotmail.com. PLEASE help mi.. I m very very crazy Crazy
Thank goodness for this video there’s no other video that has explained it in detail like this. Thank God 🙏🏽 I know have a better understanding of what’s happening in my body and what I can do to help myself 🙏🏽
Wow. Really informative. I wish I could get my urologist/ob-gyn/pain doctors to watch this and/or listen. I AM IN AGONY right now. Too far from Chico, unfortunately. But for me, oral Elmiron did nothing but cause my hair to fall out and my wallet to empty. Prelief does absolutely nothing vis-a-vis food. Nothing is helping but Narcotic medication. And, of course, exhaustion and depression from suffering from this for so long.
Mireille Faraj Hi Dear...I have suffered from Interstitial Cystitis for 14 years.I found something called Desert Harvest.They have an aloe vera capsule that has been a miracle for me.Elmiron caused my hair to fall out too,and especially hit me hard in the wallet.Explore Desert Harvest,it's worth a shot.
Best Comprehensive explanation I’ve ever heard. Thank you so very much I can’t thank you enough. I was taking Elmiron and and Bicarbonate of soda now I will get some Antihistamine
you are fantastic 👍 thankyou.the best ic video on here....u seem to have the best information and understanding of this debilitating disease..I have never felt pain so bad in my life tbh😢worse than childbirth 😬...I thought my gp was fobbing me off with estrogen pessaries but it now makes sense to why this lack of hormone can cause this.. I'm 53 and menopausal ..and it has been the worse 6 months of my life with this pain😧I'm so depressed and have felt suicidal😧
A warm hi from Italy. I have suffered from IC for almost 20 yrs. now and I have studied a lot throughout yrs. but thos video was God sent. Very helpful. Congratulations dr. Davis
@@susmateja ciao cara, ci sono dei centri specializzati che se ne occupano, ad.esempio Ospedale di Magenta (Milano), policlinico Gemelli di Roma, ospedale San Carlo di Nancy a Roma. Conviene andare sul sito di questi ospedali e cercare il numero del reparto di urologia, potranno darti dei nomi di medici. In bocca al lupo!
well more of a procedure- a hydrodistention, and then a nerve block in my lower back. I know some doctors would not recommend either, but it is the path i am on. Baking soda in water works best on the burning for me at least
I had this done 10 years ago and have had absolutely no positive result. My bladder has not gone back to its normal size. I’m in Australia and I wish I’d heard of this Doctor years ago. My urologist today says it’s regrettable I had that procedure done
Thank you Doc Davis. My urologist, Stephen Hightower, Head of Urology at LB Memorial, gave me Myrbetriq and booted me out the door. No explanation, no alternative treatments, no discussion, no volunteering anything. No wonder his appointment schedule was available. Who would go to this monosyllabic, uncommunicative doctor?
Careful about eating "anything you want" while using Prelief with IC. I've had severe, refractory IC for 15 years. I'm on disability for the 2nd time around because of it and it's ruined my quality of life. My diet is very, very restricted and limited or I wind up in severe, bed-ridden pain. I do take Prelief but never ever eat tomatoes, chocolate or any acidic foods such as this, even while using Prelief. Nonono!
GiGi, I agree as well. I have this condition, and chocolate (as much as I love it) is definitely a no-no. Also, caffeine is very irritating to me. As a naturopathic practitioner and nutritionist, I do believe diet is very important. However, I do find this video the most informative on the condition. I also think post-menopause should be touched on as that is when estrogen is lowered greatly. This is when I started having this problem.
Love the breakdown. It gives me an idea of what's causing the symptoms to try to address it herbally/holistically without the side effects of medication.
Good morning, I been through cracy years with this IC problem, I seen many Drs,ginecologist, urologists, fam Dr, and same thing,so what do you treat that problem please
my sister was diagnosed with IC 3 months ago and I have been doing all I can to help her. She is truly desperate and even has suicidal thoughts :/ This video was very helpful, especially when he ends up saying "do not despair". Such a kind human being! If we can get proper help, we will move the family to Chico, CA as a last resort to see if Dr. Davis can help us in this difficult case of IC :)
Alejandro Rivera I’ve had ic for 30 years now. Old picture. Got sick at 22, I’m 53 now. I’m sorry about your sister ❤️I’ve had the same feelings she has had. IC is comparable to bladder cancer pain without the cancer! So you can see how painful it is! It is #3 out of 10 worst disease to have. Be of support to her the best thing you can do for her! I had a great dr in the beginning but about 12 years ago my urologist said he couldn’t do anything more for me. That was it. I gave up on the Drs. He really hurt me by just saying bye. He wouldn’t even refer me to a pain dr until my husband had a conversation with him then he did. Pain management Dr. Sleep deprivation is horrible with IC. I wish your sister Hope and A better and pain free life 💕
Try not drinking milk and stay away from dairy products etc. It helped me within 3 days I noticed a difference. Don't know if it would help your sister. Drink soya, oatmilk as a substitute for milk
Dr i used my brother razor to shave pubic hair.after that i feel some sensation in my vaginal area. Like mouth opened.then after 2 days i have severe pain in bladder area and my legs and strong urge to urinate. My urine was clear and no smell.two days after took norflox pain has gone. But strong urge to urinate persist. Then i take urispas. Not effective. Then itake another antibiotic. Constant urge to urinate gone . But after 8 days of antibiotic. And taking fosfoe powder weakness is gone. But kidneys are producing more urine and little urine causes urge to pee. What is this sir . Ultrasond normal. My doctor have not conduct any urine analysis or urine culture.
Thank you so much Dr. Greg, I constantly experience pain and flare ups, affecting every part of my life. I will be talking to my doctor about these treatments to heal from this condition.
Thank you for the very useful video Dr. Davis. I have a very important question though which i couldnt find an answer yet although i am a MD and a IC patient. Why do my symptoms worsen especially at night/sleep time? I have mostly frequency and sometimes pain. Day time is not so problematic but the night. Could you please tell me why? Thx a lot
Im a 34 year old male.ive had ic for over 5years.ive had nearly all the medication you can imagen.I do believe the main causes for making symptoms worse are stress spicy foods tea coffee chocolate and alcahol.best altetnative for tea is peppermint tea as this helps keeping the body carm.Im not sure if there is any real cure for this condition but defiently things you can do will help your symptoms.Im not sure if this is a urology problem for males as its very limited to what a urologist can do for you once all checks and test have been covered and negative results for petty much everything.Ive seen so many urologists and unfortunatly its medication like nerve blockers that they offer.They dont solve the problem just make you feel like crap.so to beat this i would say keep natural remedys dont drink eat anything u know makes things worse and dont stop living your life.try stay relaxed as this does help.these are just my thoughts as its a condition i live with
I am in tears watching this. I've been a patient of Dr. Kenneth Peters for almost 20 years and NEVER has he or anyone in his office explained my condition to me like this and certainly never talked about healing or helping me not have pain. Do you know him? How can I get help like this in my area? Bloomfield Hills Michigan? please help
Dr you kept referring to Estrogen and its effect on the bladder, but you mentioned women specifically, what about men who are suffering? Does estrogen and it’s change in an aging male, have an effect? Also, you had mentioned about Elmiron directly injected into the bladder, what concentration is it “installed” in? Thanks, this video was very helpful!
What is the percentage Of having IC without frequency and urgency? The pain in urethra but it get worse once the bladder is full and after urinating? It started after urinating with time the pain has been escalated to after urinating as well.
Can estrogen work just in the form of birth control? I currently take Prelief, estrogen birth control, Claritin during day and benadryl and night and Aloe one a day/Marshmallow root tea.
Thank you for sharing.. do you do remote consultancy? Apparently if you are not in USA interstitial cystits doesn't exist. I have symptoms from september 1st this year and nobody mentioned it..
I have IC and also a blood clotting disorder called Leiden factor 5 deficiency so I cannot take any estrogen. Is there any options besides the estrogen?
Thank you! I’ve been suffering from IC for 30 years now! Picture is 11 years old, People think I’m not 53 years old. Nevertheless I wish you could refer me to a dr here in Ohio! It’s destroying my life and my husbands. It’s been bad everyday anymore!
I am surprised that the Dr. did not recommend Amitriptyline… this has a been a proven drug to help with IC cystitis. I had symptoms for about 5 years back in the 1970s. I was eventually on amitriptyline which was a tremendous help. I was on a low does for over 40 years. I quit taking it about a year ago and just got a UTI and my symptoms started up after the UTI. Maybe I will need to go back on the amitriptyline again for a while.
Do you know any Doctors in S.Fl who treat like you do? Honestly your the only doctor who has a treatment protocol. Stuart-Miami do you know anyone who knows and treats like you do?
Thank you so much for this video. I've suffered with this for several years now and the pain is extreme for me. What kind of specialist should I see for this problem?
Thank you so much. I have learned more here today than the years of having this painful debilitating bladder problem. I do have something called Radiation Cystitis, a bit more complicated from radiation damage but all the symptoms are the same, plus a few other things going on. Recently a Dr has recommended Elmiron. Is there any updates on Elmiron? The side affects sound horrid. Is there any side affects from inserting it directly into the bladder?
Is the estrogen dependant trigone the same in men? I am on trt and took way too much a.i. and crushed my esterogen for two months and "coincidentally" had symptoms of interstitial cystitis
Which route do u you recommend estrogen - orally/vaginal/topical? Also is the bladder pain normally experienced described as an uncomfortable supra pubic discomfort/aching?
This is Soo informative. I have been dealing with this for over 8 years. It's been awful and has gotten worse over the years. I do wonder if it could be caused by my mirena IUD. Reason I say this is it started after having it inserted. Then after I had it removed last year and placed another one in there were complications getting it in and I have hurt even more ever since then. I constantly have bacterial vaginosis now and I'm just miserable in pain. I have been on Elmiron and it worked at first but now it seems to not help either. Let me know your thoughts if you don't mind if you think it might be from the Mirena IUD. My doctor says it's not but he also couldn't figure out why it was Soo hard to put it in either. Please help if you have any suggestions anyone.
I've been suffering from pain for the past 3 yrs, it gets worst near my period. I am praying we'll find something that works for each of us.❤ God I am asking this in the name of Jesús 🙏
Thank you very much for this video. Gosh I wish the doctors in the Netherlands would be this informative. It seems they are not as informed here about I.C.. i have endometriosis as well, thus the aim was to lower estrogen. This explains why I have now all of a sudden developed I.C.. I wonder if I can ask for the ‘bladder cocktail’ to be made here?
Dear doctor! I have a really bad case of trigonitis that cause me enormous pain. My urologist told me, that he saw soor on the trigon area, so his thinking about a yeast infection in my bladder. I took fluconazole but didn't work, now I'm taking itraconazole and I feel a major improvement, but it's still pretty bad. Diet plays a major role in flares. Will I get better, completely healthy or I have to live the rest of my life like that? Can the trigonitis heal after the candida is gone? I'm scared that I might have ureaplasma or mycoplasma infection, even though I got tested for them from the cervix area and I was negative for all STDs. I'm also taking birth control pill for PCOS. Trigonitis makes my life miserable, I'm been depressed ever since, nothing works for the pain
I take oxybutynin and hydroxyzine for pain and sleep. I also have totally eliminated coffee from my diet. Coffee, chocolate, carbonated drinks and alcohol are issues for me. I drink Kava tea. I also do special stretches taught to me from physical therapy. I hope there will be better treatments in the future. I am not sure what causes IC, but I did have a lot of pelvic procedures in the past. I have allergies that I never experienced before.
I feel so bad for you. I can relate. I've been on oxybutynin as well, but haven't taken it since I just was diagnosed (after 10+ years of suffering and trying to find a doctor to help me). I just had a cystoscopy with bladder hydrodistention and see my doctor tomorrow for two weeks follow-up. I am still having the same symptoms. I have been on the IC diet for about two months now (not religiously I will admit), but still have the same symptoms. I am interested in seeing what the doctor has to say tomorrow. I have tons of questions. I hope there are some better treatments for us, too.
If all the doctors were like you ,and see the whole picture and explain us why and how things work this world would be perfect. I put the pieces together in my case without a doctor telling me why i developed IC, i have a L4L5 L5 S1 buldges and now im sure thats affecting IC nerves around that area ...its bad luck specialist just told me to work out strength my abs and that's it ..o know is not the cure and now is moving to other organs....but i will try all the advices thanks
i suffer daily with the pressure of burning and pain i get so bad i run for a hot cloth or baking soda water and it takes a couple hrs before it finally lets up its worse since i had a bladder splint to hold the bladder tube up iam so discusted because i cant do anything ive also had a hyssterectomy a full one
Can I ask if anyone has had relief when in high pain if they lift their left leg to the chest ?? If anyone can explain why this helps me as I have pain when emptying my bladder once it is empty the pain will only release if I drink enough to fill to capacity and in between lift my left leg to my chest or Indian squat
