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Interview 9 - Managing digestive disorders in patients with Sjögren's syndrome 

Arthritis Broadcast Network
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27 сен 2024

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Комментарии : 28   
@stephanieg2152
@stephanieg2152 Год назад
Excellent information! I'm glad this topic is finally getting more attention. I think gut health is essential for anyone with Sjogren's.
@kimduff4116
@kimduff4116 Год назад
I also found that staying away from night shade vegetables, especially peppers, has helped not only my Sjogren’s but my Fibromyalgia too. Wonderful talk. Thank you.
@draganabuha3928
@draganabuha3928 5 месяцев назад
It is not funny doctor-we really suffer. Personally for 29 years and I don't live I just survive.
@jillgreenaway9688
@jillgreenaway9688 Год назад
I lived in Ontario, in a major centre for 30 years and for 15 of those years was ill and unable to work. I have now lived in BC for 20 years and this summer received the diagnosis of Sjogren’s Syndrome. I made the diagnosis and paid for the bloodwork- ska positive.I have been seen by many many many physicians - I am now so ill I am planning admission to Longterm care. This disease and lack of adequate healthcare have ruined my life.
@deborahmcnaughton4394
@deborahmcnaughton4394 7 месяцев назад
In same boat 61. I'm so sorry . They've did me in too. O help o acknowledgement of just how debilitating it is 😢
@dianewristen
@dianewristen 4 месяца назад
THANK YOU SO MUCH
@berengereful
@berengereful Год назад
I get extremely bloated. Seems so random
@lyndaholloway5469
@lyndaholloway5469 Год назад
What can I do about inflamed gums and sores in my mouth. Thank you for the information in this video.
@JEBBY123IFY
@JEBBY123IFY Год назад
My gut has been a disaster and two gis can't seem to help at all! Giving me protonic was a bad idea! My gut doesn't work at all it just burns stabs hurts swells bleeds gerd and I'm so sick
@brendaf3132
@brendaf3132 Год назад
Giving up wheat and milk helped me.
@deborahmcnaughton4394
@deborahmcnaughton4394 7 месяцев назад
Same here
@fionabattrum7395
@fionabattrum7395 Год назад
Saliva has essential Enzymes in it ? I wonder the impact of this on digestion and quality of life
@adelaspahiu5669
@adelaspahiu5669 6 месяцев назад
I'm very sorry.I have the same symptoms 😢
@Dizzigoth
@Dizzigoth Год назад
Hi Where is the important link please? It said it would be in the comments but I can't see it. I'm suffering so badly with this. My stomach is so painful. I have now got what they call Watermelon stomach. I've gone gluten and milk free which has helped with my extreme flatulence.
@brendaf3132
@brendaf3132 Год назад
I have to be lactose and gluten free. I have started making my own yogurt and have gotten relief from the gassy stomach. The friendly bacteria in yogurt helps.
@xanadu1jw
@xanadu1jw 11 месяцев назад
Vitamin b1 helps with digestion a great deal.
@kathyouthere
@kathyouthere Год назад
Thank you for any info on this. I have Sjogrens and bowel dismotility. They wanted to do a colonoscopy but the 2nd dose made my disease flare and my face swelled. A lot of laxatives give me worse cramps and pain. I have tried a lot of different diets to try to help. Nothing seemed to help it. I stay off red meats and am careful about sweets.
@brendaf3132
@brendaf3132 Год назад
I have Sjogren's and can not digest gluten.
@daryllawrence9398
@daryllawrence9398 2 года назад
? p̲r̲o̲m̲o̲s̲m̲
@artists_lodge
@artists_lodge Год назад
What is your insta account called please?
@ArthritisBroadcastNetwork
@ArthritisBroadcastNetwork Год назад
Hi there, Cristina's Instagram account is: instagram.com/arthritisdietitian/?hl=en
@kristineanderson4983
@kristineanderson4983 9 месяцев назад
Too bad the comments aren't getting any answers.
@kimduff4116
@kimduff4116 Год назад
Where is your link?
@deborahmcnaughton4394
@deborahmcnaughton4394 7 месяцев назад
Im very sick very with sĵodrens & feel like im dying literally. I can not get help. 1. Graves disease 2.Sĵodrens 3. Small Fiber POLYNEUROPATHY NEUROMUSCULAR DISEASE too. But i think it's the sĵodrens doing me in big time. 5 Dr's & they don't even want to discuss it. 0 help. I've been bedridden- bed bound over 2 months. 15 lb weight loss. After i eat my body uses all my energy to digest and i literally can not hardly move- every inch of my muscles become over whelmingly complete exhaustion. It's so hard to explain. It's horrifying. Digestion- fatigued so extreme i literally can not hold my body - head up. I hv to prop up in bed all the time. I hv to eat small amounts so it's not as extrem.
@DanielleRadicanin
@DanielleRadicanin 6 месяцев назад
Same here. Pretty sure it is Sjogren in addition to dysautonomia.
@tanja9200
@tanja9200 4 месяца назад
Maybe the Coimbra protocol could help you. And gut bacteria, eg Mikroveda microorganisms
@DanielleRadicanin
@DanielleRadicanin 4 месяца назад
Do you have gastroparesis? Common with Sjogren's and dysautonomia.
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