Truly recommend J-Pouch surgery! Do away with all the UC episodes, symptoms and medicine! I had my J-Pouch surgery in 2007 by Dr. Dennis Meyer. Excellent surgeon! My life completely turned around after the surgery. I may use the restroom a few more times than your normal person, but besides that, I am the same man before I was diagnosed with UC. Get the surgery. You will not regret it!
I am 75 and my pouch was 20 years old last year! I had my first surgery in 1978 when I had all my colon removed but not the rectum. Having developed dysplasia in 2000, I had the rectum removed and a Jpouch formed. I had an ileostomy as described, while everything was healing, and then it was taken down. I have had a couple of episodes of obstruction caused by adhesions but apart from that, I have had absolutely no trouble whatsoever with my pouch. I can eat virtually anything. I never have night leaks and everything functions fantastically. I worked at the time of my op on disciplinary hearings and in criminal courts, as the official shorthand writer (record keeper), and thus wasn't free to just pop to the loo without asking. But I managed all right, never had to ask for a break and everything worked like clockwork. When I had UC, I didn't know what it was like to spend a day without severe pain and it was pure heaven not to have any more pain and to feel well. I had my operation performed by Mr Al Windsor at St Mark's Hospital, assisted by Mr Ed Westcott. The whole team were amazing. Of course keyhole surgery wasn't around then for these ops and it's incredible that they can do it now. So thumbs up for pouch surgery and I hope everyone who's contemplating it will get on as well as I have - and I still work in my capacity as a Fellow of the British Institute of Verbatim Reporters!
I am very glad it worked out for you. I may need this surgery and I am quite worried about it and the potential for having excess bowel movements in a day, etc. Did it take practice to get used to it? How does it work for you, if you don't mind me asking?
@@jonathanmiller5232i also hve one. My pouch is 25 yrs old. This lady’s comment describes essentially my course. The first year and a half were brutal for me. I actually had to have a revision. I had several ball obstructions, was completely liquid/water all of the time, I had to learn how to be continent again, but it was possible with Keagle exercises and light exercise. I would say it’s definitely worth it but you’re gonna need a good amount of time for recovery. The incontinence that you experience improves overtime, but it doesn’t happen quickly. I eat pretty much, exercise and occasional bathroom pronto but I still do pretty good. it’s a brutal recovery and extended of time getting used to it so you can learn and adapt, but definitely worth not having chronic discomfort
I lived five years with a stoma. Life for me is so much better with a J pouch. It's not perfect, but it gave me my life back. Nothing was worse than having a bag leak while sleeping or constantly getting flagged by TSA when flying. Being said, recovering from the first surgery was brutal, but absolutely worth it. 😊
I wish I had seen this early on when suffering from UC because it really sums up all the fears and potential problems as well as the benefits of surgery. My pouch surgery was done in Bristol in 2003 by Mr Tony Dixon who was brilliant. Two stages and the second was to close the ileostomy. It took about a year for me to recover from some pain and frequency and now I feel very well and very grateful.
How are you?Do you have pouchitis?My husband has been suffering with chronic pouchitis since 4 years and recently had fistula also.Can you help me in suggesting anything about maintenance of pouch?
@@jayasree2033 Hi, I had mine created in 2004. I´ve had pouchitis sometimes and this depends on many factors, mainly on certain kind of food, so avoiding those kind of food (your husband will know what kind of food to avoid, if pouchitis is coused by them) would prevent pouchitis suffering. Although, once pouchitis appears my doctor prescribes me antibiotics (ciprofloxacin) for a week or so, and then disappears. Hope this can help.
@@rulotex Thankyou for replying.He is now under strict diet..eating only pouch friendly foods.He has ulcers in pouch which are not going.I just hope he recovers
Thank you for making this video. I agree on being mentally ready for surgery is very important, I got misdiagnosed 😞 . I had emergency surgery 5 days after being diagnosed with Ulcerative colitis. I didn't know at the time what was signing up for because I didn't want surgery 😕. Worst nightmare came to life having to put a sleep and being in more pain from surgery, no break for that. But I wanted to live and they gave me the option to save me and appreciate the surgeon that was wanted to save me, and stoma aren't that scary as they say, they are inconvenience at times but sometimes i think it was easier but mentally hard. I love my belly sleeps 💤
Interesting presentation. When I had my pouch created by Mr Nigel Scott at Salford Royal 20 years ago he told me the 'failure' rate for pouches was approximately 10 percent. Twenty years down the line the pouch failure rate is still 10 percent with a lot more pouches being done at a lot more hospitals.
Hello..My mother undergoes this surgery and doctor created an temporary stoma on stomach along with this there are 2 drainage from stomach.. Continues fluid coming in this drainage..can u tell me how many days it will take to settle drainage??
Thank you. Very informative. Got the pouch now the wait to take my stoma down, f&$x can’t wait. Yaaaaaay. Oh anybody reading this, at my stage, should watch out for dehydration. It’s a real problem without a colon. Drink isotonic liquids avoid caffeine. See you you on the flip side.
Could not agree more about the dehydration. I spent 7 months in and out of the hospital because no matter what I did I could not stay hydrated after having the j pouch created (but left closed with a temp stoma). Dehydration is really scary. Mine was so extreme I lost nearly 100lbs in 4 months due to it. Fortunately, my small intestine finally slowed down and adapted. Literally withering away like that is absolutely terrifying. Approaching 1.5 years since the j pouch was opened and my stoma reversed. Been doing fantastic since them.
How are you now?Is J-pouch well managed?Do you have pouchitis or any other complicatiins with pouch?Can you suggest me anything about pouch management?
I'm watching as I'm having jpouch surgery I've had the total colectomy a few years back. I'm excited and scared. I've been researching and I have the book. 💜
Had mine created in July 2020. While the adjustment to life with it took some time (and is still developing), it is absolutely better for me than a stoma.
I had one put in a yr. after my colon was removed, it lasted over 4 yrs. and I had pouchitis constantly, and so it was removed and I returned to the ostomy bag, doing better, still don't like this but j pouch was always causing issues , blockages, diarrhea, and dehydration, I had UC for 36 yrs. then colon cancer hit at 56, j pouches have a high failure rate if you are older, be careful
I wish I waited for my second surgery now because I didn't know that if waited it might have been easier now because of the infection but might be over soon give me hope
Sir my father underwent a surgery yesterday where they joined the ileum to rectum head to head. Earlier they were discussing of doing j pouch. My question is shall we still expect the same results?? Like 5-6 bowel movements per day or it will be more. Also suggest how much poop will be holded there as the rectum inside diameter must have been equal to that of ileum in order to join head to head. His rectum was all good. Also we could have opted a j pouch and sewd that to rectum in order to hold more poop and better quality of life??
