NO ONE should be denied cancer treatment and clinical trials because they have not reached the age of maturity. Our healthcare system is so messed up. My heart breaks so much, stay strong momma! ❤
among the MANY great things President Donald J. Trump accomplished while in office (which the MSM will NEVER tell the public about) is the "Right to Try" legislation, in which roadblocks and "red tape" are removed so that critically sick patients are allowed to "TRY" new and innovative treatments that may not yet have full legal approval. With nothing to lose, why not give patients the option to "TRY" every possible remedy, as long as they accept the risks?
@@marilyntonelli8832 I’d prefer you not call my extremely strong child “a weak patient” unless you were somehow involved in her healthcare that I’m unaware of. Thank you ma’am.
I'm flabbergasted that there are 400 others like her every year in the U.S. 😰 I thought children and teenagers only got leukemia and bone cancer. I'm so sorry they didn't catch this teenager's cancer in time.
I remember when you posted Jewel's story on the Hope for Stomach Cancer group. My son 21 was diagnosed the August before her. I couldn't believe how young your daughter was. I'm very sorry that you and Jewel had to go through this. She is now a beautiful angel proudly watching you bring awareness to so many about this awful disease.
oh such a similiar story xx my darling youngest son was 22 when he was diagnosed and eight and a half months later, still 22..he died in so much fear and pain..his death defines me..do contact me if you would love to xxx I live in Marrakech, I left Australia after Ed died and have a ooking school in celebration of my divine boy..he was a celebrated chef.. x
You and your other family members should be checked for H. Pylori infection. This bacterium is the cause of most stomach cancers, and it tends to spread in households. I am very sorry for your loss of your son.
Sadly our country spends the most on healthcare of any country and we have some of the worst outcomes. The money isn't going into delivery of care but administrative costs. We need to do so much better for patients. I am so sorry for your loss. I can't believe you were able to tell the story in a calm manner. I wish you and your family some type of comfort and healing.
I am so very sorry to Jewell’s Loving Mama, and her Family/Friends😢 Our children should not be having these types of cancers. So young and beautiful, Precious Jewell❤
I am so very sorry for your loss.. thank you for advocating for these young patients to get the care they need! I did not know they couldn't receive the same treatment.. praying that change happens soon!!
As a mom myself, I can't even imagine the loss of a child. It's hard to believe a child can get cancer when they haven't even been on this earth for that long. I'm struggling to understand God's plan & praying for awareness & research for pediatric stomach cancer. I am so deeply sorry for your loss. Sending loving energy your way.
I'm a former Marine and ii thought I was tough as nails, untill stage 4 tonsil cancer hit me. I promised the medical team that I'll put up the best fight I could. My cancer was rid from my boy heat and soul. Sorry for your horrible battle you and your daughter had to fight praying works, for me it did. Love Neal
So devastating that there was no health system, plan in place for Jewell. I hope the changes are planned for now and made soon for all those who don’t fit the mold of illness. I am so sorry for the loss of this beautiful girl who was so amazing!❤ She will always be with you. Sending you blessings and love!💕🙏🏻
She was so amazing and I know she is absolutely thrilled with the strength, courage and compassion you are showing. You are making a change. You are making a difference. God bless you!
Praying for the Sweat family. I'm so terribly sorry for all you've gone through. Children should not get cancer. I wonder if we will ever find out how this happens.
As someone else said, there are really no words. I am so very sorry for your loss, and I am sorry for the lack in our health system regarding cancer in children…and cancer in general. It really sucks. You are in my prayers.
I'm so sorry for the loss of your sweet daughter to such a devastating cancer. My husband died from 4 different cancers 2 years ago. My heart aches for you, dear friend. God bless you. Please accept my sincere condolences for your loss. Your daughter was so beautiful!
These Dr never ceases to amaze me how they over look so many cases and chop it up to be nothing. They need to be held responsible for miss diagnosing the patient and not taking then serious.
@@junedingler I definitely don’t doubt that. And they are a wonderful facility. I just thought they took pediatrics for studies when they had cancer. But the problem is, since they do drug trials, they have very strict protocols, and many times it’s difficult to meet the criteria.
My heart hurts for you and everyone going through this. My hope is that things change by sharing stories like yours. It’s so incredibly sad that our medicine system has so many policies or regulations that make it sometimes impossible to get the correct treatment or get diagnosed on a timely manner. 😢
Our youngest sibling Michael Joseph Pavic, beloved son/brother/nephew/Uncle/friend, died after. A 4 month battle with aggressive gastric smell cell neuroendocrine cancer. He will be 41 years young forever. There's so much more research, treatment options that NEEDS TO BE done. He was given an 11 month life expectancy. Sorry for your loss. There has to be better care, cures for gastric Cancers overall, including gastric adenocarcinoma
I am so sorry for you loss. My condolences to you and your family. May God give you the strength to carry on. Losing a child is very painful. My daughter passed away at the age 33 and she would be now 37 years old . It is hard to cope but I look up to God, to get me through the hard times. I lost my husband in 2021 he passed away of Covid. ❤❤❤❤❤❤
When she said that kids were not able to get the things that the adults are. That broke my heart. Kids should take priority and even if they don't fit neatly into a research box they should be given a chance. She was 16 two short years away from being an adult. This was not right.
I,m so so sorry you lost your precious girl ! Life can be a cruel ! I'm from the UK our National Health is suffering badly since covid ! May you find peace , my very best wishes! Sue . 💝💝💔
My Warmest thoughts, prayers and Love to you ❤❤ Rest in peace beautiful Jewell. I pray there must be a great change in treatments and how children can go on trial treatments too!! This far too devastating, words are not enough to express what I feel when watching this. I wish your message will reach awareness and hope for action in research.
I don’t really know what to say except she sounds like an amazing Daughter. You spoke straight from your heart. It will help to make the changes needed to fight these awful diseases. God Bless you and your family.
🙏 Deepest condolences to the families & friends of Jewell ... May Jewell be blessed to a better world & realm ... & be reunited with her loved ones in due time & place ... 🙏🕯🌼🌿🌍🕊
Rip beautiful girl 🕊️ you are free from pain on your earthly body . Fly high in paradise with the angels 💜 my condolences 💐 to her family especially her momma 🥺😔
In October 22,2014 I had surgery for my second feeding tube in 10 months because I have gastroparesis meaning my stomach and intestines are paralyzed due to diabetic neuropathy. During surgery my team of doctors were taking 85% of my stomach and some of my intestines out they found a tumor called gastrointestinal stromal tumor also called GIST. We had no idea I even had cancer. Plus it's a rare form of cancer for women. It's mostly found in white màles in their 50's and 60's and I'm a female and only 42 years old. I only needed surgery to remain cancer free thank goodness. I wish childhood cancers research was 100% funded by our government because 4% in really sad. I'm sorry for those who have passed on or who are fighting cancer now. Peace and love sent❤️🙏❤️🙏❤️🙏❤️🙏❤️🙏❤️🙏❤️🙏❤️🙏❤️🙏❤️
So very sad and way too young. I don't understand how it was showing no evidence of cancer but then when they were doing surgery it was there and too late. I'm so very sorry, she was beautiful. 🙏 🙏
It's diffuse stomach cancer, so it rarely shows up in scans for young adults as well. It is a huge problem in our community, and sometimes even that excludes patients from clinical trials.
I am so sorry about your tremendous loss. That’s so ridiculous to be denied experimental treatment. If someone’s prognosis is dire, then why are they denied treatment. It could have been a changer but because of the denial of this beautiful young lady her family will never know if it could of worked
We agree with you the trials for children are not there and we saw so many kids in the hospitals our son was 7 yrs old when diagnosed with cancer (osteosarcoma) and the protocol hasn’t changed since the 50’s it’s insane the chemo was hardcore most people get to go home when they get chemo we had to stay in the hospital 5 days every month 😭😭💔 and our Emgee handled chemo better then most of the kids but it did not kill the cancer it kept coming back 💔💔💔💔😭😭
I am so sorry for your loss, your beautiful young daughter was way to young to die from cancer but unfortunately cancer doesn’t respect age, even babies get this dreadful disease. Maybe one of these days they will actually find a true cure for cancer, I lost my mother to cancer when I was 35 and also my grandmother and my grandfather to cancer. I pray that God will give you peace in your heart and comfort you. 🙏🏻
Infuriating. 16? What is wrong with our healthcare system. How horribly helpless it must feel watching this happen to your child. I’m so sorry, momma. So, so sorry.
Omg I don't understand why 1.it took awhile to figure it out and 2. 18 your considered a adult so 16 isn't that much younger.they should of been able to get her in a trail theirs so many. This is the saddest I've ever heard. So was the cancer originated in the stomach? How heart ❤️ wrenching for a parent to be told we opened her up but it was too advanced. What a beautiful young lady. She's all who loved her there Angel now. Prayers and hugs full of love ❤️ for her family. I can't imagine there pain.so sad 😢
Should've = should + have. Not 'should of'. ....SHOULD'VE been able to get her in a TRIAL. There ARE so many. (Plural) ..... YOU'RE considered AN adult... (you + are) Can't imagine THEIR pain. THEIR angel, now.... Basic English. Come on. 🙄
@@Toffee146 seriously? That's how u spend your time verses responding to the story? Pathetic but if that's the only way u can get attention. Then I feel sorry for u.
Oh, noooo, this is just too much. Her family must be so devastated, I doubt as a mom I’d ever recover. Knowing she was so sick and I couldn’t help her. 😢. Evil cancer, just evil.
I am so sorry for your loss. 🙏❤️Her only symptom was stomach problems? How long was she feeling off? I am only asking because I am dealing with something. It's not my intention to be rude. She was so beautiful and I am in awe of your strength
Something's not right with the world when we've got teenagers dying from cancer. Terrible. IMO, Jewell and other young people should go to the TOP of the list of the trials as they have more life to live. So sorry for Mama, I hope you are doing ok.
I thought that only in Russia people are forced to fight medicine for the lives of their relatives. It is not normal that people do not receive help from the state, but are forced to fight to get this help. I'm surprised that in America it's the same as in Russia. .We have a different level of development, a different standard of living. I have always considered medicine in America to be more advanced and accessible and innovative. It turns out that in America, too, medical care is not available. Very sad. Я думала, что только в России люди вынуждены вести борьбу с медициной за жизнь своих родственников. Это ненормально, что люди не получают помощь от государства, а вынуждены бороться, чтобы получить эту помощь. Я удивлена, что в Америке тоже самое ,что и в России. У нас разный уровень развития, разный уровень жизни. Я всегда считала медицину в Америке более продвинутой и доступной и инновационной. Оказывается, что в Америке тоже медицинская помощь недоступна. Очень печально
May I ask what her symptoms were when she wasn't feeling well? I'm so sorry..my teen is having stomach issues. Pain after eating and feeling full after small meals. Loosing weight . Tired..ty for your reply
@@junedingler Hugs to you, Mom. No one can understand the situation you and Jewel were in because they have not been there. I am sorry for everything you went through, and for your loss of your beautiful daughter. Sending you peace, hugs and so much love.
Trials have strict parameters to determine if they can go further and become a standard of care treatment. Her age Excluded her. Many other reasons exclude people from different trials all the time. It sucked Ams many specialists couldn’t actually be her Dr because she was a pediatric pay although many did consult on how to treat
😢 So Sorry for your loss. What we put in our body’s matter, Our Food is so highly processed it’s not fit for human consumption! It’s full of sugar& Carcinogenic ingredients.
How sad. It is sick that children can get sexual transition surgery but not cancer treatment options. What a beautiful girl and I am so sorry for her family.
That’s not what we’re here for.. this is about my child And stomach cancer. I don’t do the arguing thing using my child’s name when she has nothing to do with that.
I just can't believe because of her age they couldn't do more for her just because of laws. I thought being so young they would do everything that they come first. What about that st judes I wonder if they are restricted to not do treatments for them cause they are so young.
@@junedingler On their TV commercial they say no one is ever turned away. Just as I am texting this message there's a st Jude commercial on. Sorry she didn't wasn't able to get in.
Please contact Edwina golomback, I really have a feeling she would help you. Talking to someone in the same situation more or less, I think really helps. My heart is with you. I could not imagine ever having to lose my one and only son. I'm going to pray for you.
