@@lifeintornadoalley if you can afford it, feel free to donate to their cause. If I could afford it I would. I hope they have good health insurance. If this were to happen in my family with our coverage, the most i would pay for any of it for the entire family is 5k every year. That is my out of pocket maximum on a no co-insurance no deductible plan. With the right coverage, the worst medical situations don't also have to impact your finances. Money isn't always the fix, and empathy should never be negated. Have a great day.
@@truthinlying6894 What could solve this problem is reading scientific publications about what cancer is and how it is described in scientific medical articles. It's written that cancer cells are result of Global Hypomethylation and it requires to take a lot of different nutrients to correct it. Just look up online Methylation cycle diagram
Had a friend whos 2 kids had this. Found out bc son was injured in a bull riding accident. Both had stomachs removed Daughter had double mastectomy at 16 yrs old as well. They both live life to the fullest. May Jesus be with your family.
Shut the hell up with your Jesus bullshit. If it really existed, it would not have allowed this shit to hurt their family. Your little invisible Sky daddy does not exist. Get over that crap. You are far too old to have invisible friends.
@@5cabron2 yes. These people are heroes. And please sit down when I tell you this. I’m going to give you news you won’t believe, but true. Spider man, Superman, Batman, etc, are not super heroes. You’re welcome 😉
Makes my problems seem so small... Y’all are robbing her of nothing. The ugly disease is robbing her, like it does so many. Y’all are trying to save her life. I’m so sorry this family is going through this terrible thing. I just want to hug them all.
There is no genetic cancer, its like saying there is a genetic diabetes 2. In fact, its more a metabolic disease. Cancer only consumes glucose… guess what most American’s consume glucose 3-7 times a day!! How about cutting that back because 50 years ago cancers where rare… now everyone is obese and cancer and heart attacks are common, strange, maybe its the excess carbs and sugar?
Darling Ava, you can live without a stomach but IT would be a worst world without you. 🙏🏻 Sending healing wishes to entire family. This too shall pass. "NEVER ALONE" is key.
I hate cancer, that awful disease, took my beautiful sister in law and then a year later took my mother in law. RIP Jenny and Marilyn, until we meet in heaven again 🙏
My Father’s family has CDH1 though it doesn’t manifest until age 70. My Dad sadly passed away in November 2021 at age 73. I also have the gene and opted not to have my stomach removed as it manifests later in life. There are families like this one, which is rare, where CDH1 manifests cancer in younger years, although this has to be the youngest I’ve seen. I’m a nurse and I have followed research around the globe. This family is welcome to reach out to me if need be. Stay brave and you made the right decision to remove your stomachs. Please reach out to me as I have extensive studies and access to ongoing research. ❤
you should reach out to them. contact the reporter if you can't find their contact info. the likelihood of them seeing a comment on youtube is pretty low.
Bless your soul and so very sorry for your loss. Praying for you, this family, and all those suffering with this.I hope you all can make contact and amazing things come of it.
I was born with a skin thing, it slowly takes over more and more over time. Puberty was a big time, the hormones. It's why I won't have kids. Visually... it isn't so obvious but I know once I hit 30-35 ish kids or not... it's over for me. Whatever. Wild though, to live with that weight every day, any kind of 'it is what it is,' situation.
I had my stomach removed too in 2014. I have gastroparesis and the surgeon's found cancer called Gastrointestinal stromal tumor which was malignant. Also known as Gist. My cancer was found very early. My pouch is the size of a half a cup. I also have a feeding tube. I've had a feeding tube since Jan 14,2014 but stomach was removed on October 22,2014. I hope this young girl will be able to heal and recover. She is precious and loved. She will feel so much better. The earlier the best. Don't wait. Get it done ASAP !!!
I really hope she sees your comment. I was a sickly kid and we didn’t know what I had. I felt so alone until I got a diagnosis 14 years after getting sick. About 10 years after my diagnosis I found a Facebook group for my disease. It would have changed my life if I had been given the opportunity to hear that life is not over just because my body is different. Hospitals and surgery are rough on youngsters.
If only she could find an online group with people like you she could relate to and help her know she’ll be okay that would help her feel more comfortable with things.
@@bigbird2240 it’s stomach cancer so she would die. They’re removing it so she’ll live. It’s a rare progressive type which means fast growing and deadly. How do you not understand that?
@@bigbird2240 no. This cancer spreads, and once it begins, it goes incredibly fast. Removing the stomach, while the cancer is contained, gets rid of all of the cells. Plus, at her age, she can adapt, much easier, and live a long, healthy, “new normal” life. Spread would doom her to chemo, much more pain, and the mortality rate would be very high. I have a friend who had her stomach removed, and she would be quite healthy if she’d stop drinking. Her alcohol abuse isn’t what caused her cancer (it’s also genetic), but it is what will kill her. I live with a 3cc stomach, and have since 2002, from gastric bypass. Stomach removal, in different forms, have been done, successfully, for decades.
@@ThatOpalGuythey “ aren’t helpful “to those who don’t believe, but those of us who serve an all loving, merciful , healing God, prayers are wanted because we’ve seen prayers work first hand. You don’t have to believe if you don’t want but don’t be sharing false information please. If you want Gods blessings and healings you need to be right with Jesus, right in your relationship with God and all will work out for His glory for you. Wanna know an even cooler miracle? Those of us who believe, who pray without ceasing…. God hears our cries and will even heal and help the unbeliever… usually ends out with that person believing in God after seeing His miracles. Prayers aren’t just “ prayers” they are literally a conversation with God.
🥺 I pray for this family. Can’t imagine what they are going through. So many of us crying or stressing about the littlest things possible. They are literally fighting for their lives. 🙏🏽
Right, me stressing over an exam while they stress over their future. Also, sad part is that it would be really awful if they gave birth to kids who also get the gene, and would have to live without a stomach. I'd recommend such and many individuals who suffer from life altering inherited illnesses to seek out adoption, surrogacy, or such forms to have a kid in life that you call as your son or daughter. Other than that, I too am praying that the complications she'll face will be manageable and painless.
My daughter had a liver transplant and she’s 11 now. This story really struck home, and I can see the love and bravery in that family. Wishing them strength and victory ❤
As someone who was diagnosed with a rare kidney disease at the same age my heart goes out to her. Situations like this steal your childhood and it sucks. We have to deal with medical situations our whole lives because the older you get the worse your health gets.
@ifloatupwards hey, read your comments and said you have a rare kidney disease diagnosed at an early age. I’m just curious what is it specifically.? I also have a kidney disease which I also inherited from my dad. It’s genetics. Thanks.
This woman has the strength of a true warrior. Watching and supporting her entire family through such a horrific situation, feeling so helpless but also having to be the back bone.... good lord shes incredible!!!
i can sort of relate to her. i have rare esophageal disorder called achalasia. it’s one in a million kids and it all happened so fast. i’m only 14 and i was diagnosed when i was 13-12. i know God will lead me through this journey and i will be praying for this entire family❤️❤️
St Jude’s is the best children’s hospital in the world. She will get the best possible care there. I have made monthly donations to them, as have many others, for over 30 years, because of children like this. It’s heartbreaking, but she will survive and become an absolutely incredible adult.
@@kittybeck151 why is that the first thing you say? Rather than “I’m sorry for your loss” or “that must’ve been really hard”, you focus on being an embarrassing anti-vaxxer? God, you people have worms for brains
That sweet baby. She’s terrified, rightfully so. And mom, oh mom. Bless you. Like someone else said, just wanna hold them all. Angels wrap them in your wings and ease the pain and fear.
Don't you think if there was an all powerful "Lord" that it would have, should have, not even allowed such a thing to happen to them in the first place and that you begging the all powerful "Lord" is hardly likely to make any difference whether or not it cares enough to do anything? This is the long way of saying there is no "Lord" to do anything for Ava or anyone else. These things are down to chance and nature and, of course and most importantly, the doctors. I hope she makes it but if she doesn't I hope you curse your "Lord" for not helping her when you believe it could. I will just put it down to bad luck for a beautiful and innocent little girl who did not deserve it. If I believed that a "Lord" had anything to do with it then I would not put it down to luck anymore, I would consider it a malevolent action of a despicable being.
@@alwa6954 That is a very narrow view of God and humanity. Your argument says there can't be a God because we experience suffering, pain, and loss. If there were a true loving God, life would be great, right? Or maybe, if suffering is allowable at all, how much? What is the cut off? Where do we draw the line? Who gets to draw that line? What pain are you willing to tolerate to allow for the existence of God? You misunderstand God. You misunderstand people, and what they 'deserve'(?) Understanding the existence of God isn't about suffering, pain and loss, but the ability to come through pain and loss with greater understanding of our own fallibility, vulnerability as imperfect beings, so that we can have compassion, forgiveness and love for our neighbor; so we can support others in their times of need. To know God is to be able to arm yourself with that strength and protection against the trials of life.
Families like this deserve free health insurance. Why are we putting our neighbors through this kind of financial burden ontop of being sick? At least the kids surgery is covered by Saint Jude but still
I'm a mom of 3, my babes are 20, 12 and 10. 5th grade is hard enough without a life changing illness such as cancer. I'm wishing for the best outcome and speedy recovery from this family to yours, love from Oregon xoxo
I broke my leg when I was 18 months old, then spent the next year and a half going through multiple painful surgeries ending with amputation surgery just after my 3rd birthday. It is hard as hell to go through something like this for the child, and it may be worse for the parents, but you can get through it to the other side. Like my mom used to say, "Life is uncertain. Eat dessert first." Meaning, don't wait to enjoy life. Get what enjoyment you can out of life, even when there is a crisis.
Sending all my best wishes for you to heal and to be strong and to find a purpose to overcome this bump on your road. You’ll see there is a long life ahead of you.
I am sending healing energy to this beautiful family and for this strong 5th grader dealing with such a hard time. I am sending so much love. May you be blessed with bountiful health for the rest of your life.
My two young nephews have had major, pre-emptive cancer surgery... my heart, & prayers are with this family. GOD be with you all, & bless you with healing, support, & the resources to get through this.
Ava sweety...you're going to get through this....hold on to the Lord like an anchor......hugs to your mama as well. Mom....you will continue to walk through each day.....He's with you and I'm praying for strength for all of you. Keep looking up
Not sure if it is the same gene abnormality but if interested, look up New Zealand singer Stan Walker. He has a great video of his and his family’s experience with genetic stomach cancer and had to have his stomach removed as well. Pretty amazing story. All my best to Ava and her family 🙏🏻❤️
