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Kay Garner - Member Story

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One of our members, Kay Garner, discusses her story and how cavernoma have impacted her and her life. Kay has a spinal cord cavernoma at T2, which caused C7 complete paralysis when she was 26.
A cavernoma is made up of abnormal blood vessels and can be found in the brain and/or spinal cord and looks like a raspberry.
1 person in 600, in the UK, has a brain cavernoma without symptoms (asymptomatic). This equates to roughly 90,000 people - enough to fill Wembley Stadium. A spinal cavernoma is rarer than a brain cavernoma.
For more information about Cavernoma Alliance UK, please visit cavernoma.org.uk/
This is a recording of one of our webinars given by our members, guests and medical experts throughout 2020.

Опубликовано:

25 авг 2024

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Комментарии : 3

@davidwarne1200 3 года назад

Thank you Kay for sharing your story. It's amazing how positive you've remained. My sister and I both have cavernomas and my spinal one was removed last year. For our rare condition it's nice to hear other people's journeys.

@eugenelevin7892 Год назад

Hi. I was very interested to hear your story. I had a bleed between T3 and T4 and they discovered it was caused by a cavernoma. The bleed caused me to have a very weak left leg and pins and needles in my right leg, also known as Brown Sequard Syndrome. My strength has returned somewhat in my left leg after several months. They are planning to remove the cavernoma to avoid a bleed in the future, which could paralyze me. I commend you for the strength you have shown. keep the spirits up.