King's Tale (Living with Beare-Stevenson Syndrome)

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King is the 21st person to ever be diagnosed with Beare-Stevenson syndrome. His Mom was told he would live for only seconds but he is now six years old. Although he is not yet able to speak, King's sister is happy to be his advocate.
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Опубликовано:

22 май 2019

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Комментарии : 299

@BLOVES 2 года назад

The siblings that come out of these special need families seem to be the most amazing humans EVER!!!

@manestage5403 2 года назад

And very mature!

@freedomofspeech766 2 года назад

Does the darling little King have a dad?

@mattbrown4651 2 года назад

What this channel, probably quite rightly, does is over egg the positives. My profoundly disabled sister broke every family member one way or another. All 3 siblings had / have some neurological issue. On top of that I've suffered 35 yrs of multi substance addiction, stemming from legit prescriptions. I challenge Chris to find me some positives in my life. Despite my personal negative attitude, I applaud Chris for the massive positivity and knowledge he spreads. Great work chap, the world could use more of you.

@mcmlxii4419 2 года назад

BLOVES ~Yes, they do! This precious little boy has a great family.

@aronlelenora9572 2 года назад

❤❤❤❤

@craigward7691 3 года назад

Nothing but good parenting and wonderful sibling love in this video......God bless all of them

@macobats 2 года назад

Wow, that's horrible that a nurse was negligent! Some nurses don't take their job seriously. She was being kind. As a nurse, you either take your job seriously or you are negligent! That being said, the love for this child is beautiful...

@chantellegattrell7073 2 года назад

Sadly some are in it for the money which is so heartrenching

@anthonylockhart6120 Год назад

@@chantellegattrell7073 exactly 💯 some of these people don't deserve to have a job in the medical field

@weetzybat 11 месяцев назад

Its one thing to be in it for the money but at least put in the work

@CCK28 2 года назад

I love how honest King’s mother is.

@NAprincess324 3 года назад

This had me In tears I wish every child could be born healthy but I’m so happy he has such amazing support from his family God bless this young man ♥️

@keona3157 2 года назад

Such a honest mother and the most well behaved compassionate children

@carolinamachado5919 3 года назад

Oh Gosh, what an amazing family! His sister has such a beautiful soul.

@DogMumsey 2 года назад

King was born to a QUEEN! That is one amazing Momma right there, her children are well adjusted compassionate and loving 🥰 Love this whole beautiful family.

@ktgoldielocks5187 2 года назад

YESSSSSSS a queen 👑

@mesleyraves9983 2 года назад

amen

@g0tsp33dr Год назад

@@ktgoldielocks5187 queen of terrible genetics

@Totalchaos0228 3 года назад

So someone's negligence cost him his ability to communicate how he used to...that's terrible!! You cant tell this mom loves her children with everything in her.

@WestinNReptar 3 года назад

Yeah this stood out so much to me--I'd actually like to know the details.

@laymere9905 2 года назад

you cant or you can cause by the look of it she does

@raydenbartley Год назад

@@WestinNReptar Chris probably was told the details. But negligent nurse is all we need to know

@icanbeyourgeniehowboutalad5158 Год назад

So he got brain damage pretty much from the lack of oxygen to the brain?

@thegulfcoastexperience 3 года назад

This is one strong family. King, you are blessed. Keep fighting lil man.

@rickysmoothshow2207 2 года назад

This is an amazing family. That little girl is so smart and caring, I love her and her love for her brother.

@rosemarys2465 3 года назад

This little boy is so very loved! Hugs! Such a great family!

@brendalg4 3 года назад

I wish they would go more into detail about a person's condition. The reason King has some of his issues is because a nursing facility didn't take proper care of him. I know they mention it but it is so little that people might not make the connection. Lack of oxygen to the brain caused him to have a heart attack. This happened because the nursing facility did not properly take care of him

@amandacharlebois9295 2 года назад

which is infuriating!!

@alexiz0013 2 года назад

Wow, that is horrible! Did they (or could they) sue?

@hencole 2 года назад

@@alexiz0013 They could and probably did, but it isn't going to make him better.

@nickrichrriicchh5890 2 года назад

Why do you think that?

@brendalg4 2 года назад

@@alexiz0013 I don't remember if they talked about trying to sue them. I would think if I had found info on that I would have put it in my original comment

@marcokat1 3 года назад

wow this family is beautiful. they all shine in such special ways.

@vielkadenerson2534 2 года назад

I'm impressed with the sister , she is so wise ,so mature for her age and the love for her precious brother is amazing ! the mom is so strong and so committed , God bless this extraordinary family !

@rudynewman2040 Год назад

The sister is just darling. So sweet and compassionate toward her brother. Even the little brother is kind and loving. And we all know this love and behavior has come straight from Mamabear!!

@kellanbellchamber6430 3 года назад

His brother is so sweet 🥺❤️"i love him because i love him" ahh so cute

@ticktokd1755 3 года назад

He not cute

@ticktokd1755 3 года назад

He is ultra cute

@ptrdshijfffjvddf 3 года назад

Ebony is such an incredible big sister!!

@janicewashington4318 2 года назад

She’s the best big sis ❤️

@miapdx503 Год назад

Beautiful inside and out! She's going to be an amazing woman 🌹

@kateeppolito4272 2 года назад

Wow this was so special to watch. King’s siblings are so full of love for him. And his mom is a handpicked mama for sure

@kathrynoneill5862 3 года назад

Precious little baby boy.

@jakecompton8733 2 года назад

The sister is so smart and kind

@wakingohiomama9110 3 года назад

Dear God bless your whole family King! That little girl is so intelligent loving and articulate!!!! GO MAMA BEAR I LOVE YOUR FAMILY!

@tammy3458 2 года назад

What a beautiful loving family. You can see how devoted they all are to each other❤️🙏🏻These thoughtful, sweet siblings are truly a rarity.

@tinkerbell1666 2 года назад

Queen mom has done an amazing, amazing job raising her children. They are so well adjusted and loving. What a beautiful family!! Mom your kids are awesome. Your daughter is so mature. God bless your family.

@vwlh8r 2 года назад

I love King and his family. It's so inspirational to see people who love each other so much.

@Monkey3328 2 года назад

I feel bad king really has a beautiful heart and deserves so much love

@robbyyn 2 года назад

"God gives his toughest battles to His toughest soldiers" - Here's to you, soldier mom! And to your amazing kids!

@brennanreidy6669 Год назад

Ebony is the epitome of an angel. She is SO mature and I'm so amazed by her speech and knowledge. She's so well spoken, and I can tell that their Mom is a stellar parent and teacher. They're respectful, loving, protective, all the traits a sibling could wish for.

@ingridisaviolet8498 3 года назад

Even though this condition makes day to day life a little more difficult I think King really brought this family together. 😌

@DeAnn909 Год назад

I love that they named him King. That's a cool name.

@bruceleesmilkytiddies Год назад

Fitting too

@susanpaul4752 2 года назад

Beautiful children...lovely mother who has taught her children well...beautiful family. Lucky King to have these loving family members.

@localgyakutenkenjitu 3 года назад

it puts things into perspective how good you have it when you see someone so young stepping up to the plate and doing so much for her sibling

@kimikae4170 2 года назад

I'm speechless at the beautiful sweet pure love this mother has for her sweet special son, and all her children..... And Kings sister is as precious as can be! WoW what a beautiful gem she is shinning like she does when she just looks at him even. And of course Kings brother is a cutie who loves his brother dearly. Such a lovely, loving, beautiful family..... If all families could have such a loving strong mama as King does, boy oh boy what a wonderful world this would be!oh Cheers!

@JackieHagge 3 года назад

Love to know how King and his awesome family is doing now

@MJJIllseeyouinheaven 3 года назад

Such a caring and loving family - a truly blessed family. I wish you all the best for the future! Greetings from Germany

@MD-lw4kw 2 года назад

most supportive real mother I've seen on this entire channel

@jennia4853 Год назад

I’m so impressed by the sister’s compassion and level of maturity. She is a beautiful soul.

@dawna4185 3 года назад

what an incredible family!

@elizabethyoungshoeboot9880 3 года назад

That's what love is for a family that is full of love for one another.

@grahamvandyke 2 года назад

I had a tracheostomy years ago and whenever I was in desperate need of suctioning it felt like I was drowning in my own mucus. He has a really incredible sister who's willing to do that all for him.

@queenettajones5510 2 года назад

Awwwww king is so cute 😊. His family really loves him.

@youcanthandletheheat 2 года назад

I love seeing how much these families love their special babies. The parents are amazing the siblings are amazing. Just amazing angels on this earth.

@debraholz9756 2 года назад

WOW So beautiful! What an amazing, loving mom and sweet brother and sister. Excellent parenting, momma

@zoesmith849 2 года назад

Lovely to meet you all! What a beautiful family. Thank you for sharing your love ❤️

@1Sarradd 2 года назад

Love and prayers for you and your family. I lost my niece to trisomy 18 who had a lot of similar needs. I was a caretaker for her. Your struggles are real and your love is real and thank you for doing this video to show the world that love is stronger than anything.

@lexiev1250 Год назад

I’m so sorry for your loss 😥

@TheElektra 2 года назад

I learned so much from that little girl just watching this. What a phenomenal sister and human. This family is amazing. Kids are so smart and loving and so is mom!

@ktgoldielocks5187 2 года назад

I really love & appreciate his mother's honesty about getting used to how he looked at first

@gerardnoles8273 2 года назад

I'm so moved and touched by kings story! Mom, sister and brother what a supportive family that can push as mom says a little more. Our children is our life and mom you are exemplifying that love that no one else can bear! Love you dearly! Sent with gentle effect! G.Noles Mesquite, Tx

@Sharonlee334 3 года назад

Such a special family! ❤️

@JasonBrockStick 2 года назад

Thank You for sharing King’s story :) You are helping open people’s Hearts ♥️Your families Love towards King is warming so many lives, King and others souls born here with such difficulties are here to teach us some of the biggest lessons. You are an amazing family.

@patricialambert1827 2 года назад

King, you are loved! You have a wonderful, loving family! Bless you!💕💕

@amandamorcan3330 2 года назад

You, beautiful lady, are an inspiration to all!! 💖 you have done such a wonderful job raising your children and have such a pure heart, as do your children... King is blessed to be part of such a family 🥰

@victoriap1649 2 года назад

Sending so much love to King and his amazing family ♥️♥️♥️♥️

@debraronan8389 3 года назад

God bless you sweet King. You are loved!! 😘❤

@cherylarmstrong5880 2 года назад

Wouldn't it be a much better world if all parents bought their kids up to be as loving and kind as these. They are a fantastic example for everyone to learn from, even though they have had to cope with negligence from staff who should have been more professional. This happens far more frequently than it should, my family included. God bless all of you.

@stephie7015 2 года назад

Wow!! What a loving family! Blessings!

@ScottBeck-hk2lq 5 месяцев назад

This young man's family and most especially his sister are just, wow. What incredible hearts with just so much love.

@blackcitroenlove Год назад

I love this young King. All the good things for him and his family

@BrooklynGirl Год назад

What a beautiful family. God Bless you all.

@lorettavogelgesang2490 2 года назад

God Bless You Precious King and Your Amazing Family...Thank You All for reminding us what pure love is...Divinely Inspiring Much Love 💖🙏🏾☮️

@MA-sk4fg 11 месяцев назад

The love that the whole family give to King is keeping him alive god bless you all.

@nondassteele9329 2 года назад

Lots of Love in this family from King to them and them to King. God bless you all Family...

@hyeena7290 2 года назад

And Ebony, you are a beautiful, young lady! A true angel.

@jesuscadena5673 2 года назад

God bless you King. Thank the family for being there for him every minute of the day..

@adamisaac4685 2 года назад

Love you guys so much! I am a musician from Madison Wisconsin. It’s been a pleasure meeting your little king. What a boy!!! My heart has definitely gotten larger. You are very blessed indeed. God does give his toughest battles to his strongest soldiers. I love you ❤️

@anuskasoares8276 2 года назад

What a loving family this little boy has! I can see that they want his best and that's all that matters. His mission on this planet must be very important.

@alanaazevedom 2 года назад

Absolutely lovely family! God bless you all

@22lyric Год назад

EVERYONE should have such a loving family! And his mom is such a warrior. Trying for EVERYONE, disabled, seniors, to get cameras in facilities to prevent abuse. And that started years ago. I can imagine it is even more needed TODAY. Hope facilities are changing! I LOVE KING! 🙏❤️

@mizushirokanon9174 2 года назад

Omg, such an awesome family! King is so lived, that is heartwarming! ❤️

@keeleehudson 2 года назад

What a beautiful family 😍🥰

@teacherbecca526 2 года назад

I'm thankful that God chose me to be his Momma. Yes, that's it right there. You are an amazing woman of faith. Thank you for sharing your story with us and giving such a beautiful perspective on what many would regard as a difficult situation. 🥰

@mylifefornick 2 года назад

Beautiful family! Patience and love 💕

@nonames8734 2 года назад

This family is so sweet

@ayceleijae 2 года назад

His siblings are so sweet!!! He’s got a great family! What a lucky boy❤️

@evonza4858 3 года назад

God continue to bless this little guy and everybody who takes care of him🥰❤️🖤💚

@HS-cf4lb 2 года назад

El Rey is a gift of God. Bless him and his beautiful family. I'm so humbled by this channel and all these kids. Lord please forgive me for every time I've complained about the petty things that I complain about and thankyou for bringing this gift in to my life.

@patricialewis-neal376 2 года назад

King is God’s child, and he’s Loved just like all of God’s children. He’s a blessing and very loved. God has him in his arms always. 🙏❤️🙏

@tylerlynch2796 2 года назад

amen

@glenda1385 2 года назад

His siblings just love him so. Awesome family :)

@Grimlock987 2 года назад

These videos make me emotional.

@starrrozmiarek3322 2 года назад

What an incredible family King has!!

@brandonlott1717 2 года назад

God bless them all. I have been humbled yet again. 🙏 praying for these families as much as the individuals. That they live a happy and healthy life as they can!!❤

@demijour1234 10 месяцев назад

King is so lucky to have such a loving family and vice versa, his family is so lucky to King. He brings such love and closeness to his family. This is my second time watching this and it saddens and angers me that because of one nurse who neglected to take care of King properly, worsened his condition. Sending lots of love and prayers and hugs to King and his family. ❤❤❤🙏🙏🙏🫂🫂🫂🤗🤗🤗💕💕💕

@everythingandmorepodcast195 2 года назад

Such an amazing family

@hyeena7290 3 года назад

King, you're the King!

@sarx100 2 года назад

This video made my heart melt . Big up the mum

@noellealissa2206 2 года назад

His sister just adores him! What a wonderful family!

@bellejourneelibre47 Год назад

King is adorable, wish him all the happiness with his sweet family 💕💕💕💖💗💗

@catenystrom6506 Год назад

What an awesome family for him to have, his mother is stunning

@charlenemock333 2 года назад

This woman has definitely raised her other children right as well. They are very respectful and loving towards their little brother. That is just amazing.

@goodboix3528 Год назад

Much love to the whole family. Big ol pack o' sweethearts!!!!!

@sirachvlogs5586 2 года назад

Wow, lovely mother and children.

@eaglecoeur 2 года назад

Such a loving family! ❤

@AleisterCrowleyMagus 5 месяцев назад

Hearing this poor child, who is blind and due to the massive brain traumas he doesn’t respond to anything, laboring so hard to take basic breaths, even when he has a trache and oxygen supplements etc, is just tragic. That labored breathing is very taxing on the cardio system and is definitely painful for him. Sigh.

@marikaperlman9404 2 года назад

The siblings & mother of this special needs little boy are incredible. ❤️.

@bornfree0507 3 месяца назад

I just love how much they love him!! Their little brother!!

@todknight3093 Год назад

It's amazing how these families are so understanding and loving and all are so humble 🤩. I believe that has humbled all of these families so much and it's so beautiful to see. May God bless and strengthen all of these extraordinary loving families and keep strengthening. I admire all these families. 💪💪💪😇😇😇❤️❤️❤️❤️👍👍👍🙏🙏🙏🙏🙏