A brave lady with trimethylaminuria (TMAU) body odor appears on a UK TV show to be given advice about her diet. For more info on systemic body odors, see systemicbodyodo...
hi i'm Reynan from philippines, and i have the same situation, i diagnosed TMAU last 2012, and i really hate TMAU, that is the reason why i stopped studying, there are so many people judging me about my smell, some of them laughing and bullying me, that is why sometimes i can't stop my self to hurt the people who bullying me, because i'm thinking that i have to hurt them to stop them bullying me,,, but now i realized that violence is not the answer to stop them, all i did is ignoring them and just let them judging, laughing, and bullying me, because i realized that i can still do all what i want to do, and i can still enjoy my life with this life breaker 'TMAU' , and also i realized that i can still achieve my goals by helping my self to get up and still frighting for my future and make my dream come true, and i learned how to accept that this is now a part of my life, and i think GOD gave me this because i think GOD want me to be a stronger person, i know that no amount of positive thinking can solve TMAU problem, but by helping ourselves and acceptance is the only way to survive TMAU, i'm sorry about my english, i'm not good ni english language,,
I'm crying right now I didn't expect to watch this I'm not sure If I have this disorder but the systomps of having a bad odor that I been carrying for almost 2 years which affected my self esteem. But thank u for sharing ur story
I have noticed (and so has family members) that certain times, I have really bad onion, musty odor that can funk up a whole room extremely. My parents used to joke about it with me when I was four (especially my father) for having armpit odor. When puberty hit, it wasn't really a big deal until life started to get stressful and hectic. That was probably around 14/15. I never did anything about the issue, but now I feel that i should definitely change my diet because my diet is horrible. I thank those of you who have documented and made people aware of this or many would think they are alone.
i have the same issue. i dont smell myself and usually get clues from observing people around me. its very embarrassing and people can be so cruel about it. but i refuse to isolate myself. i usually get a fecal or skunky type smell.
We should all try and support each other. I am so saddened by the depression I'm seeing on here and what I'm experiencing personally. I've tried lots of things and currently am taking probiotics and cranberry pills, plus take b-complex after each meal for the B2. Wish me luck, I will be job hunting soon. Keep ya head up and keep praying.
I have this as well as all of you, ur not alone, I ml know what u all feel like looking over and seeing people covering there noses... Try to keep ur head up and never, ever let people bring u down, god has a plan for all of us, and it will all work out when the time is right, no sooner, stay strong... Ur not alone :(
fashionhistorylover I'm sorry you feel this way. Please know that God does love and care for you. No one understands more than he does. Jesus suffered more than anyone of us and he never sinned. Cast your cares on him because he cares for you.
Aira Castro We have to let this make us stronger, Ive been weakened but have decided to be open and completely honest with myself and others. This has taken the weight off my shoulders. Those sufferers know that weight which one feels you have to carry. Love for yourself is the key for psychological help.
Go look at the channel "the gut war", there you will find a link to a discord. There is a community of TMAU sufferers. If you developed it later in life you might be able to cure it, some people have.
Hey friends, we are doing wrong. We are letting our problem control our mental power although it cripples us physically. I have been down with this problem since long. There was time when I used to consider taking my own life because of social exclusion. Along the passage of time, I began to empower myself instead of waiting for people to understand my feelings. I know people do prick and pierce me , be it smelly or any other problem. It is pointless to expect anything from them. We can't let them rule us by getting affected from their unfavorable and humiliating reactions. These days, I keep motivating myself by patterning my food plan and feeling positive towards my environment. Why don't we befriend and form a group so that we fight together to overcome it?
I'm about ready to give up. I don't know if I have tmau but I have suffered from bad body odor since I was in middle school. I don't want to kill myself, I've thought about many times but I truly love my life its just this that I can't bare anymore. Help me somebody!
hey hope youre still fighting. I have bromhidrosis and it has affected my life drastically. Ive been unemployed for months bec of my odor and i rarely go out anymore. It's so depressing. Hope youre doing good.
I suffer from this and I just discovered that including cilantro(dahnia). Parsley, helps a lot. I'm using certain essential oils as well. This is a horrible condition and so anti social that causes depression...God help us
I have this too for 5 years and I dont even eat meat or anythin...i really love fruits and soup too..and I take a shower a lot but lot of people makes fun of my smell and I cant make frnds couse of that!! I need help couse its hard
Hi I am from Philippines. I have the same problem too. I am suffering from depression for almost a decade bcoz of this condition. I never had have gone to any test but I suspect it's TMAU.
I sits really sad for me couse I have body odor for 5 years n I thought it wass my foult n I took shower a lot..people made fun of me n I cried a lot too...i need help!!!
I know this video is old, but I hope someone sees this. I believe I have this, and it has gotten worse the past few years. About a year ago I tried using baking soda and it totally cut out the smell. The only thing is over time my body got used to it, and now it doesn’t work as well. But it helped me very well for almost a year so it’s worth a shot!!!!! I also spray a fresh scent under my arms like freshwater lavender. I’ve found that some deodorant scents like vanilla make it smell so much worse, and that more fresh scents can hide it more
You have TMAU not because you are dirty, you are just lucky. : At home or in your personal & private space let the odour out freely, don’t control or block it. And in social situations use deodorants & antiperspirant (commercial/regular ones, if u r not comfortable with chemicals on products, don’t worry occasional use is fine, also try using natural deodorants like soda, apple cider vinegar, alum bar or powder, lime/lemon juice etc whichever is available at your place. For now Take them as solution/cure to the problem provided by God. At this stage it is not yet 100% curable. Just hang on a little longer. Also research more about the cause, what’s going on, what’s wrong, what is it etc....it helps when you have more knowledge about it ! PS: Forgive my English !
patrick ohere never give up man. I thought about the same thing as u dude its not worth it just cope with it as best as u can and go to the right people for help. Your not alone
You can still go out even you have this just ignored them there reaction there coughing stare in comment i know your pain this disease is destroying my life for 16 year in there is nothing i can do about it just to live with it
I have this disease i have only recently heard of tmau.life is really hard atm.My partner has just lost her mother and i couldnt be there for her.i tried bt when her family were all together i could see all thier faces turn and twist in my presence
I know how ridiculous it feels when doctors turn indifferent towards this problems. They step back and easily turn away from their responsibility. They could make it a case study if they have failed to diagnose it with all procedure they have had so far. I can't help condemning few doctors I stopped by for my own diagnosis. What is so shameful about them is they embarrass us by symbolically questioning our sanitation. I have lost hope. Still, I have been googling the victims of this problems and been following what's been suggested about food plan.
גם לי יש את המחלה הנוראה הזאת . ביקרתי בכל כך הרבה רופאים והם אומרים לי שאין דבר כזה.אבל האנשים לידי אומרים לי בפנים. לי יש את המחלה הזאת עוד מילדותי. אני נשואה עם ילדים. מאד קשה לי ,אבל אני לא אתן לאף אחד להוריד אותי למטה . אני לא ביקשתי את המחלה הזאת. אני כל שבת הולכת לבית הכנסת. את יכולה לתאר לך מה אני עוברת. אני ממשיכה להגיע לבית הכנסת כל שבת. וזה עכשיו 9 שנים. האנשים לא רצו אותי שם וכולם דיברו עלי רע. עכשיו הם היתרגלו אילי. אני היפ קתי לאכול לחם ודברים מחיטה. לא אוכלת דגים ,בשר לא מוצרי חלב. מאחלת לך כל טוב . הרבה בריאות .
Me too. I went to 35 Dr. Do not what to here . For me I stop milk and I eat Gluteen free Bread. No meat no fish . And all that I did all by my self . With no help from the Dr. But still it's ther. No body going to put me down. I did not ask for that. I ask my self y. I am good person.
