y husband went through these things, he couldn’t feed or dress himself for a long time, but with chelation and Zinc treatment he began to reverse some of these things. He passed from cancer that had nothing to do with WD. I have total respect for anyone going through this disease.
Maybe for her it worked out well but for most patients they go to doctor after doctor misdiagnosed. It can be real hell because the doctors just treat symptoms and by the time you finally get diagnosed your liver is shot and need a transplant and you will never be healthy. This video makes the doctors look like heroes when some times they are but in most cases they do a terrible job and do a lot of stuff that are counter productive.
Edward Linne you're right. She's lucky and sounds like she was diagnosed early. I don't have the kayser fleischer rings.. That would have been a slam dunk diagnosis. My urine copper is three times the upper limit of normal but even with that info I might never find answers.
Ginta Ginaityte I had the genetic testing done and the specialist said that based on that I don't have Wilson's disease yet my urine copper is high and my ceruloplasmin was low. I'm so confused. I can't go on copper chelators either because I'd have to Wilson's disease. I hope there is another way I can get this nasty copper out of my body.
Ginta Ginaityte No I didn't have a liver biopsy. I'm no longer under the care of any doctor and can't find a doctor willing to take me on as a patient. My specialist called me in december for an appointment to tell me has no answers and said to find a new doctor. I may try a homeopath doctor though since I can't find a conventional doctor..😒
What were your initial symptoms.. i been getting weird abdominal pains n muscles twiches and cramping everywhere, specially my legs, been like 4 months already
I am 22 years old and have symptoms of this disease with the brown cycle around my iris. But no doctors in my country can treat this. please I need help I'm from Cameroon and I'm afraid
i had the same problems as you and was diagnosed back when i was 13 years old and now im 53 years old and suffering with arthritis today but you can take over the counter zinc for Wilson's disease and make sure its 50mg
@@subhayandas14 I take zinc for my Wilson’s and it works it pulls out the cooper my doctor told me and my sister to take zinc and it works the same as Penicillamine with no side effects And to answer you yes I’m fine and lead a normal life
Low ceruloplasmin, low serum copper, 41mcg/24hr urine copper, negative genetic testing, no KF ring (maybe he didn't see it). Low CPN and serum copper combined with my loss of balance, hand tremors, worsening slurring of speech and apparently I still don't have it. Thank you universe. I'm going to die now.
@@daansuierveld3623 Well, it looks to me Lyme disease. I had a positive IgM but negative IgG which is backwords for neurological impairment. I have a video if you want to look at it.
@@depressorfull sure! I have symptoms too. I study physical therapy and we were talking about neurologic disorders like MS ALS and parkinson’s disease. When we were discussing about the symptoms I saw that I have an actiontremor (both sides, left a bit worse), so I went to neurologist and he diagnosed me with essential tremor. But i’m feeling weird sensations in my legs so im hetting really anxious.
I got diagnosed a year and half ago yet they've still not started me on any medication and my mobility has been getting progressively worse. They told me there's no cure and to avoid foods with copper in and I'm expected to live another 8-10 years. So it treatment not a thing in the UK?
Get a second opinion! You should be getting zinc or penacillinomide or something like that. I am not yet diagnosed, but am going through the process to be. Been learning a lot, and yes, it’s treatable!
Please can someone linj me up with Dr Danny Bega. I have All symptoms of WD. And for years now no hospital have been able to tell me just discovered the brown cycle around my iris. And I'm afraid because I feel pains around right rips. I need help please
Doctors prescribe a combination of medications, and the zinc isn't just any form of zinc. The most important medication is Penicillamine, which is a chelating agent. This helps to remove the excess coper from the bottom and needs to be taken consistently for the rest of your life. The other is Zinc Acetate, which isn't as needed, but it does assist the body by blocking the absorption of copper found in foods you digest. Please see a doctor and get a proper diagnosis and then follow their instructions. If you're just taking basic supplements you bought online, the chances of you getting worse are extremely high. And then you are telling people what to take which is dangerous. Every single body is different, so their treatment is going to be different. And supplements aren't enough to fix the problem.
Hope you're doing well, my younger brother is suffering from this disease, he's been like that for 2 years now , immobility, no speech , etc ... And i am also a possible Wilson disease patients because i haven't had my test done yet... I am from assam too We all are with you and everyone who's going through tough times like this...
Where in the world can someone find some proper treatment for WD? My brother is suffering since 2009, we used to provide zincat the American drug, whic is also not available anymore. He's, somewhat stable now, however, is imbalanced as in body structure, face jaw shape has changed, which affected his speaking ability, close to an autistic now, as the hands and legs have changed shape and don't operate like normal human beings due to convulsion!! 😔
Keep giving him zinc for the meantime so he no longer absorbs anymore copper. That'd what I'm doing as I have WD and am having no treatment for it as I've not been offered any.
Simple Zinc Supplement, three times a day, works for the majority of WD patients as a monotherapy. Zinc both blocks absorption of copper and enables the body to eliminate it. Be aware of side effects such as anemia however, which can come from too little copper in the system as a result of the treatment.
Can wilson disease affect Women fertility? I have a friend of mine who had to stop her studies for 2 years as she's been hit by this disorder and showed similar signs highlighted in this video. Since 2019, she MIRACULOUSLY healed from WD, as confirmed by her doctor and lives a normal life. Now my concern is that what if that trouble has left side effects on her body, like being able to get pregnant or bearing a child until birth.
As far as my knowledge and research goes, unfortunately Wilson's Disease can't be cured or healed. However, further progressing of the disease can be stopped, as long as the patient regularly takes medication as described in this video
No. It's a genetic defect that you are born with. Both parents have to carry at least one copy of the gene to get it. It has nothing to do with your copper intake in any way. It has to do with the fact that your body struggles to eliminate it. Please stop making up things that take away from the actual proven scientific data.
@@sabrinabelk2575 I just got diagnosed with Wilson recently too. I think Im luckier than most with this disease because thanks to those great doctors, I found this out way earlier than normal to the point that I haven't even suffered from any of negative effects. So lucky.
@@centralunit100 how did they find out.. ive had tons of labwork for abdominal pain and muscle twitches but so far no answers.. ive a CBC and even a CT
@@edwardbrock3807 well at first I did some blood test and found out my ceruloplasmin level is lower than normal. Then went to do some genetic tests, when the result shows that I could have the disease, they sent me to an eye doctor to find the ring in the eye unique to the disease and conclude that I have WD. That whole process I just mention took like about a year, because the disease is so rare, most doctoc aren't train to diagnose it, I'm lucky I bumped into some one who knows.
The true identity of ZUL-KARNAIN (unknown to many) as described in an allegorical manner by God in Quran 18:83 is none other than SAMUEL ALEXANDER KINNIER WILSON, the founder of WILSON DISEASE. He was a NEUROLOGIST. A man with two horns simply means a man who studies and specializes in NEURON or NEUROLOGY in general. From the Quran, They ask you about Zul-Qarnain. Say, "I will narrate to you some of his history." (18:83) * English Gematrical Value (EGV) for SAMUEL ALEXANDER KINNIER WILSON = S(60) A(1) M(40) U(6) E(10) L(30) A(1) L(30) E(10) X(2060) A(1) N(50) D(4) E(10) R(200) K(20) I(10) N(50) N(50) I(10) E(10) R(200) W(6) I(10) L(30) S(60) O(6) N(50) = 6014061030 130102060150410200 201050501010200 6103060650 * 1883 6014061030 130102060150410200 201050501010200 6103060650 = 19 x 9913691611 0684895274 0007916326 3263710790 0053687422 66350.00 Peace from Elias.
