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Copperheads 5: The symptoms of Wilson's disease [CC] 

Wilson's disease Copperheads
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Video summary: the symptoms of Wilson's disease, broken down by organ (liver, brain, spleen, pancreas, kidneys, heart, parathyroid glands, reproductive system, joints, nails, and eyes)
Description box contents:
A. Accessibility
B. Where to find Wilson's disease Copperheads
C. About Wilson's disease Copperheads
D. Copperhead community rules
E. Music
A. ACCESSIBILITY
- All Wilson's disease Copperheads videos have Closed Captions (CC).
- All Wilson's disease Copperheads images have content descriptions.
B. WHERE TO FIND WILSON'S DISEASE COPPERHEADS
Facebook: / wilsons.dise. .
RU-vid: ru-vid.com/show-UCGeB...
Instagram: / wilsons.dis. .
Email: wilsons.disease.copperheads@gmail.com
New videos on RU-vid every Wednesday (WDay)!
New drawings on Instagram every Sunday!
Facebook updates every day with original content as well as useful resources from all over the internet!
C. ABOUT WILSON'S DISEASE COPPERHEADS
Hello Copperheads! My name is Cupri (that’s an alias I’m using to protect myself from possible health-based discrimination from future employers). I do not know yet if I’m a carrier or a patient of Wilson’s disease. I’ve been stuck in diagnostic limbo since July 2016; during this time, I’ve put my biology degrees to good use by learning everything I can about WD.
WD is a rare and complicated genetic disease. Most patients and their close ones are lost and confused because there simply aren’t any good resources out there that explain all the details in terms the average person can understand. I have spent so many hours of my life educating people, that I have finally decided to gather all my educational resources in one place.
WD is a autosomal recessive genetic condition that affects copper metabolism. Patients are rare (1 in 30,000) but carriers are relatively common (1 in 90). If left untreated, WD causes death in 100% of cases. Thankfully, there is effective treatment available, but it is still a difficult disease to live with! Especially because many doctors are not familiar with it and don’t know how to treat WD patients. The goal of Wilson’s Disease Copperheads is to change this by promoting education and awareness about WD!
Follow our social media accounts, join our learning community, and contribute to the conversation about WD!
D. COPPERHEAD COMMUNITY RULES
1. We do: educate and support all Wilson’s disease patients, as well as their relatives, partners, friends, loved ones, doctors, or anyone who wants to learn more about WD.
2. We do: love science and scientific evidence. If our videos or anyone in the comments says something you think is factually wrong, feel free to correct them, but back your correction with proper sources.
3. We do: try to answer all comments and questions posted in or sent to our official social media accounts (RU-vid, Instagram, and Facebook).
4. We do: ask you to write as clearly as you can, but also to not mock or insult others for their spelling and/or grammar.
5. We do: ask you to use language that’s respectful and suitable for all audiences; young people deserve access to information too.
6. We do: have an overall content warning for explicit discussion of:
- Physical and mental health problems
- Doctor and hospital visits
- Medical tests and surgeries
- Death
7. We do: allow you to discuss the details of your medical history in our official social media accounts if you want and if you are over 18. Please do not discuss the details of your medical history in public if you’re a minor due to legal concerns. Also, please do not discuss the details of somebody else’s medical history because we cannot confirm that they consented to you doing so.
8. We don’t: tolerate ableism, health-based discrimination, sexism, queerphobia, transphobia, racism, xenophobia, classism, or any other oppressive behavior.
9. We don’t: support eugenics (the idea that certain people or groups should not reproduce or should not be born).
10. We do: respect a diversity of religious beliefs, but ask you to keep religious talk to a minimum. Instead of “I’m praying for you” you could try “you’re in my thoughs”; instead of “God is with you” you could try “I am with you”; etc.
11. We do: let you know that if you don’t respect our community rules, you might receive a warning, your comment might get deleted, or your profile might get blocked (depending on the severity of the offense).

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6 мар 2018

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Комментарии : 20   
@truthfreezeJIL
@truthfreezeJIL 5 лет назад
Awesome presentation!
@MayasDream
@MayasDream 4 года назад
You are AMAZING!
@secondhandwildflowers2315
@secondhandwildflowers2315 6 лет назад
Lucy's mom from IG. Thank you for helping us explain this to our family
@wilsonsdiseasecopperheads7355
@wilsonsdiseasecopperheads7355 6 лет назад
Secondhand Wildflowers thank you for all you do 🧡🧡
@MultiSunshine1
@MultiSunshine1 6 лет назад
Excellent work Cupri! wish this was around (many moons ago) when i was diagnosed.
@wilsonsdiseasecopperheads7355
@wilsonsdiseasecopperheads7355 6 лет назад
MultiSunshine1 thank you, that makes me feel so good and useful 😍
@listenup987
@listenup987 3 года назад
Wow thank you for posting this video. I wish this information was available when I was a child. I was always laughed at for being uncoordinated/having trouble with speech. I have had most of these symptoms my whole life. People always think I am daft, or ditzy sometimes drunk/on drugs because of the coordination - despite being decently well read - the wires just don't connect. I will be seeing a functional Dr soon.
@usamausama9994
@usamausama9994 Год назад
Are u diagnosed with wilson disease
@fahimahmed5948
@fahimahmed5948 3 года назад
informative 👍
@tncaufield9487
@tncaufield9487 6 лет назад
Thank you so much for these videos, please keep them coming! I just discovered them. I have all of the symptoms of Wilson's and how...I spent last spring in the hospital with liver failure and renal failure after having had neurological symptoms for some time (loss of balance, parenthesia, anxiety, etc.. Also anxiety and periods so severe hysterectomy was advised. My eyes have visible rings around the cornea and pupil and I am going to have a slit lamp evaluation tomorrow. I'm very nervous about it. Your videos (I've only watched 2 so far but I'll definitely see them all) are extremely comforting.
@wilsonsdiseasecopperheads7355
@wilsonsdiseasecopperheads7355 6 лет назад
Tncaufield hi there. Thank you for sharing your story. I see from your other comment they confirmed KF rings and copper deposits (not sure where... is it in the liver through a liver biopsy). So have they diagnosed you with WD? How are you feeling? I hope your health improves soon 🧡
@ProgrammingP123
@ProgrammingP123 3 года назад
How are you now?
@elenaserban5267
@elenaserban5267 Год назад
Thank you for you work. My daughter my have Wilson. Could you please tell me where should I look for the spreadsheet? Thanks!
@CornishPixie1991
@CornishPixie1991 5 лет назад
Thank you so much for the detailed information, you are well spoken! I just had a blood test to check for it. I have edema, slightly elevated bilirubin, hair growth on my lip, rings in the eyes, weakness(can be hard to climb stairs or even wash my hair), I’m gaining weight yet my measurements are getting smaller so I think the edema is making up for the weight loss, I’m always angry for no reason, optometrist found sunflower cataracts and rings on my eyes...I’ve been ill a long time and no one knows why. I approached he doctor with all this which led to the blood test. Can Wilson’s also show as fatty liver? I was diagnosed with mild fatty liver even though my weight is low and I don’t drink...I also notice when I touch kitchen knives or do dishes I break out in a horribly itchy rash. I wonder if it’s from the copper.
@wellnesspathforme6236
@wellnesspathforme6236 4 года назад
I recommend you look into the work of Morley Robbins. He has plenty of interviews up on RU-vid. Morley's research has revealed the key is active ceruloplasmin status.
@everevolving286
@everevolving286 5 лет назад
Have you noticed many if any RH Negitive O Negitive individuals with this disease?
@royalragamuffinlifecoachin9979
Thanks :) Im in the process of possibly being diagnosed is it deadly
@matthewsobkowski1286
@matthewsobkowski1286 3 года назад
Yes it will kill you. U need to go on zinc acetate!
@tncaufield9487
@tncaufield9487 6 лет назад
I tested positive today for KF rings and copper deposits.
@wilsonsdiseasecopperheads7355
@wilsonsdiseasecopperheads7355 6 лет назад
Tncaufield hello, I replied in your other comment. I’m sending you lots of strength!
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