Тёмный

Let's Talk to an Adult with GMFCS Level 4 (Severe) Cerebral Palsy: Meet Rachel , Part 1 

Pediatric Physical Therapy Exercises
Подписаться 76 тыс.
Просмотров 25 тыс.
50% 1

Опубликовано:

 

21 окт 2024

Поделиться:

Ссылка:

Скачать:

Готовим ссылку...

Добавить в:

Мой плейлист
Посмотреть позже
Комментарии : 71   
@jamesivey246
@jamesivey246 10 месяцев назад
I love hearing stories from people like Rachel. It makes me smile and cry both at the same time. Seeing and learning how they've been able to overcome some of the most difficult obstacles in life and still able to do what they do, she's so strong, I can only wish to have the strength and integrity she has. Such an inspiration and I i hope to God that she stays strong and grows even stronger. Such an amazing woman.
@pediatricPTexercises
@pediatricPTexercises 10 месяцев назад
So happy you liked the interview. She is getting stronger all the time, even still!
@kristiannelson1851
@kristiannelson1851 Год назад
Wow! Rachel you are a badass! To have faced everything that has been thrown at you, head on, and yet still achieve a Masters Degree, and, want to spend to your life helping others...that, is the embodiment of real strength! Thank you so much for sharing your story! You are a true inspiration! Keep doing great things! I'll be rooting for you!
@pediatricPTexercises
@pediatricPTexercises Год назад
100% agree!
@bellevue260
@bellevue260 Год назад
As a parent of a grade 5 non verbal child, it is frustrating that people associate difficulty speaking or non verbal as an intellectual disability. Also, her story of diagnosis is not unique, it is more the rule than the exception. My son had a birth injury and nothing positive was said and we had to fight tooth and nail for therapy. Great series and its a pleasure to view this and see her story.
@pediatricPTexercises
@pediatricPTexercises Год назад
Thank you for adding your story and kind words
@AmeekPal123
@AmeekPal123 Год назад
She is very sweet, bless her. I had tears in my eyes watching this. Never take things for granted. I wish that human technology can solve CP, or at least minimize it greatly. I wish that I am powerful enough to help people like her.
@pediatricPTexercises
@pediatricPTexercises Год назад
You sound like an amazing person. I wish for more people like you
@dontgiveup8949
@dontgiveup8949 Год назад
Hi to everyone.My daughter is with CP level 4. She was born at 26 , Emma is an identical twin. Rachel you are a very special girl, a fighter 🤗☺️ Love from Ireland. Love your videos,Amy. Thanks for your work.
@pediatricPTexercises
@pediatricPTexercises Год назад
Thank you for your encouragement and your support!
@yunhee93
@yunhee93 Год назад
I'm learning so much about CP by watching your interviews.
@pediatricPTexercises
@pediatricPTexercises Год назад
Wonderful!
@WVgrl59
@WVgrl59 Год назад
My grandson was born at 29 weeks, with a PVL grade 1, and I watch all the videos and do the exercises with my grandson. It's just now 6 months old but has not been diagnosed. I just do all the exercises I can with him, including our hot tub turned down to 97°. 😊
@pediatricPTexercises
@pediatricPTexercises Год назад
How blessed your grandson is to have you
@melissabrock2505
@melissabrock2505 Год назад
Thank you so much for listing this. I have a 2 year old that was born at 27 weeks and had a grade 4 brain bleed. He is also mostly blind. It was very encouraging hearing Rachel’s story and gives me a lot of hope for what my son is capable of.
@pediatricPTexercises
@pediatricPTexercises Год назад
I love hearing that!
@HollerRC
@HollerRC Месяц назад
I was searching for Zach Anner to see how he’s doing and was drawn in by Rachel’s friendly smile. Thank you for sharing your personal story.
@pediatricPTexercises
@pediatricPTexercises Месяц назад
She is so engaging
@melissasasser9229
@melissasasser9229 Год назад
Hey Rachel, you're amazing! Congrats to you on your MSW! You are proof that we can do anything we put our minds to! I have CP as well (level 2/3) and have an MPH! I enjoyed hearing your story and think you would make a great life coach/peer mentor! I did not have an ounce of difficulty understanding you....for everyone out there reading this...understanding US is not hard at all, just listen, be a friend, and be supportive! May God bless you, Rachel, in everything you do. - Melissa
@pediatricPTexercises
@pediatricPTexercises Год назад
Thank you for your kind words. I will text this to Rachel
@tinaward3600
@tinaward3600 Год назад
Wow this is so interesting as my grandson was born at 27 weeks and had a grade 4 brain bleed on right side and a grade 3 on left side. I watch your RU-vid as trying to get in therapy is a nightmare. He is 15 months old and we have been trying since 7 months to get him even evaluated. I work with him everyday. Even though he “looks normal “ I’m not sure if anything has effected him I do know he doesn’t sit on his own or crawl yet. Thanks so much for all your videos!!!
@pediatricPTexercises
@pediatricPTexercises Год назад
You are so welcome. I I’m glad these videos are helpful for you.
@pediatricPTexercises
@pediatricPTexercises Год назад
Maybe this sitting playlist will help you ru-vid.com/group/PLAkJbMrHyKjMV5czJ3ZRd6JWW8Joh3qgH
@Harperable
@Harperable Год назад
❤ thank you for this video. My daughter has CP and CVI and its nice to hear and adult talk about their experience with cp since my daughter is only 4 yo and can’t tell me things yet.
@pediatricPTexercises
@pediatricPTexercises Год назад
That makes me so happy. Thank you
@HighTen_Melanie
@HighTen_Melanie Год назад
A really interesting interview and great series. Thank you so much Rachel and Amy. Looking forward to seeing you for the next part of the interview.
@pediatricPTexercises
@pediatricPTexercises Год назад
You wil enjoy this series!
@r.j.whitaker
@r.j.whitaker 6 месяцев назад
Blessings to you, Rachel. You are a force of nature.
@pediatricPTexercises
@pediatricPTexercises 6 месяцев назад
You are exactly right
@medicopter117ism
@medicopter117ism Год назад
Hi Rachel i have Cerebral palsy as well. How do you deal with pain and muscle spasms. Do you have any experience with Baclofen pump. What exactly wheelchair do you have? Take care and good luck😍
@pediatricPTexercises
@pediatricPTexercises Год назад
I let her know that you had these questions.
@sandralowery4618
@sandralowery4618 Год назад
I can tell the her mind is very good her mobility is affected
@pediatricPTexercises
@pediatricPTexercises Год назад
Her mind is great! But she is very physically affected
@PhysicalTherapistDelice
@PhysicalTherapistDelice Год назад
Nice video ,Keep on Rachel
@pediatricPTexercises
@pediatricPTexercises Год назад
Thank you!
@Zapatasurf
@Zapatasurf 11 месяцев назад
Rachel is so great!
@pediatricPTexercises
@pediatricPTexercises 11 месяцев назад
She is phenomenal
@anurishaasokan538
@anurishaasokan538 4 месяца назад
Racheal you are a strong soul ♥️
@pediatricPTexercises
@pediatricPTexercises 4 месяца назад
She is
@levinile7221
@levinile7221 Год назад
Go, Rachel!!! 👍👊🙌
@pediatricPTexercises
@pediatricPTexercises Год назад
Yes indeed!
@user-gk3kf3gz2t
@user-gk3kf3gz2t 7 месяцев назад
Piekna,inteligentna dziewczyna niepoddaje się,zasluguje na wielki szacunek społeczeństwa ktore ją otacza❤
@pediatricPTexercises
@pediatricPTexercises 7 месяцев назад
Absolutnie się zgadzam
@sandralowery4618
@sandralowery4618 Год назад
I can also dressed myself and brush my teeth and to the bathroom myself and no surgery.
@pediatricPTexercises
@pediatricPTexercises Год назад
Feel blessed!
@himanarasmiyas2592
@himanarasmiyas2592 Год назад
I try many physiotheary but no one give to good result
@pediatricPTexercises
@pediatricPTexercises Год назад
I am so sorry to hear that. Keep looking Maybe this playlist can help. I wish you and your son the best ru-vid.com/group/PLAkJbMrHyKjOdH92UyJNlOHbB_bIvOsnk
@RobertWells-o7p
@RobertWells-o7p 9 месяцев назад
Hey there you have a good day you’re beautiful woman
@pediatricPTexercises
@pediatricPTexercises 9 месяцев назад
I will let her know
@RobertWells-o7p
@RobertWells-o7p 6 месяцев назад
Hay there so how is she doing I would like to talk to her if it’s ok OK with her❤️
@pediatricPTexercises
@pediatricPTexercises 6 месяцев назад
@@RobertWells-o7p she does not typically speak to people that she does not know. But I will let her know.
@usaman7358
@usaman7358 Месяц назад
If this is level 4 (severe), what is my neighbor, 19, who cannot even speak (grunts only, some drooling) and seems far worse than this woman? Serious question
@pediatricPTexercises
@pediatricPTexercises Месяц назад
She sounds like a Level 5
@usaman7358
@usaman7358 Месяц назад
@@pediatricPTexercises Thanks, I just assumed a level 4 (severe) was the "worst". I think my neighbor understands far more than I initially gave her credit for but her caretakers have never said a word so I'm left with trying to figure it out as I engage with them when her and caretakers ride around the neighborhood in their golf cart. For all I know, she understands 100% of everything. I'm guessing the best way to interact is to include her in conversation and assume she understands. It's obvious she does understand things but is it 10%? 50%? 100%? Wish I knew.
@pediatricPTexercises
@pediatricPTexercises Месяц назад
Starting a conversation sounds like a good first step
@himanarasmiyas2592
@himanarasmiyas2592 Год назад
How to head control my child plz tell nd help me
@pediatricPTexercises
@pediatricPTexercises Год назад
Here is my head control playlist. Maybe it can be of help for you: ru-vid.com/group/PLAkJbMrHyKjNf7b1x0fPKdDimNNG2zfPj
@Harperable
@Harperable Год назад
😊 have you heard about the new robotic device called Trexo?
@pediatricPTexercises
@pediatricPTexercises Год назад
Yes. I saw it demonstrated at a Peds PT conference
@sandralowery4618
@sandralowery4618 Год назад
I don’t know why she was diagnosed until 18 months old I believe the earlier you are diagnosed the better change u have walking. That s very disappointing
@pediatricPTexercises
@pediatricPTexercises Год назад
Frustrating isn’t it
@londyndixon-lu3rt
@londyndixon-lu3rt Год назад
Nice reachel
@pediatricPTexercises
@pediatricPTexercises Год назад
She was awesome in this video
@hermanwhite2598
@hermanwhite2598 9 месяцев назад
I have 11 surgery
@pediatricPTexercises
@pediatricPTexercises 9 месяцев назад
That is a lot of surgery
@londyndixon-lu3rt
@londyndixon-lu3rt Год назад
Why you have CP
@pediatricPTexercises
@pediatricPTexercises Год назад
She said, “I had a brain bleed at birth that caused the CP. Basically like a stroke but at birth.”
@himanarasmiyas2592
@himanarasmiyas2592 Год назад
My child 5 1/2 old he is cp and mr child
@pediatricPTexercises
@pediatricPTexercises Год назад
I am so glad you found my channel
@rhondaphillips7471
@rhondaphillips7471 Год назад
As a. parent
@pediatricPTexercises
@pediatricPTexercises Год назад
???
Далее
Angry bird PIZZA?
00:20
Просмотров 7 млн
These Are Too Smooth 😮‍💨
00:57
Просмотров 5 млн
Living with Severe Brain Damage and Loving Sisters
19:26
Alfie's story
4:30
Просмотров 101 тыс.
Cerebral palsy: ‘Should I be fixed?’ - BBC News
10:16
A Day in the Life of Interabled Lovers
30:29
Просмотров 10 млн