Imagine growing up with the knowledge that you will only live until your mid-teens to early twenties. It is a harsh rationale, but nonetheless a regrettable reality for individuals affected by progeria. Worldwide, nearly one of four million newborns are affected with this extremely rare genetic disorder. While aging at an incredibly fast rate, patients with this incurable disease are left with only one option: to enjoy their life to the fullest. Belgian Michiel Vandeweer, 19, suffers from progeria. Despite the limitations and the negative effects of the disease, Michiel tries to enjoy his life to the fullest, even though he realises that most people with his condition die around the age of 14. His condition forms no barrier between him and his dreams: being a DJ, getting his drivers’ license or getting a job. With this attitude, Michiel hopes to be a source of inspiration to everyone around him. His life is an immense challenge with an unknown outcome, but despite all the inconveniences, Michiel’s positive attitude in life is remarkable. Michiel Vandeweert is a nineteen year old Belgian suffering from progeria. Despite the limitations of his body and the statistics showing that he would only live till his fourteenth, it is impressive to see how Michiel is living his life like any other person of his age. This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at www.ted.com/tedx
22 май 2018
