Amy's Life why do you have a temporary feeding tube so long. I am a nurse and if someone need a Feeding tube they get a PEG tube which is permanent. That is weird that you have a GT temporary.
westberry1 I have a PEG-J now. I had they NJ for so long because we were trying other options first like gastric pacing and a surgical tube isn’t somthing to rush into! 😅😅
@@buccichola1487sadley she had a sever Heart faileur and was in hospital for the last 5/6 month, also she got sepsis and a lung embolism 😢 her family didn't say what was the exact cause but i gess her body gave up, she was fighting so hard with so much! Poor sweet angel 😭 Hope You are ok with your health and do not panic, everybody is diferent!
Even if she WERE anorexic or bulimic, (and I understand she's not,) that would still be ridiculous to say to someone. Telling an anorexic to "just eat it's not that hard", is like saying to someone with paranoid schizophrenia "oh just stop hearing voices and having hallucinations it's not that hard." It's absurd, ignorant, and rude.
Allison Linner it is really hard hearing that as someone with anorexia and had a feeding tube whenever people say stupid stuff like that I feel like I want to punch them in the face it makes me so angry that I’m not able to explain what I was going through and what I am still going through
Allison Linner Yeah, I agree with you! People have little knowledge about all of this stuff. There should be more educational campaigns to make people aware of the fact that there are such diseases. It’s easy to judge when you don’t know what it’s like to live day by day with such a disease. It’s truly sad how ignorant people can be towards others...
Lizards With Liz yeah and then you suddenly have a strong feeling to punch them in the face because of what they said... it’s pretty sad to see how ignorant ppl can be
Hey guys Amy just passed away after a battle with pulmonary embolism, heart failure and sepsis. She passed on 01/04/2021 ... we all loved her verry much.
lubna s thank you so much most people are just like eat be healthy but I’m the healthy one out of them and I just can’t absorb all my calories and nutrition from eating
I’ve had four tubes my longest was for two weeks and it’s so painful. I’m just so grateful that Amy got the stomach tube so she doesn’t have to deal with the nasal tube
I find it so unbelievable that people tell her "It's disgusting what you're doing to yourself. Just eat, it's not that hard." Because even if it was an eating disorder it would be just that /a disorder/ it's not exactly simple, it's a complex mental illness. It's just like how people with depression can't just "be happy" just because you tell them to or think they should be like that, it doesn't work that way. Anyways I really love this video she's such an amazing girl, bless her!
Vincent Elian Fay Rose Yeah, I have family with ED and it is really hard. ED is a way of coping for them, and it will be there for their whole life, or the majority
the number of times i hear "just be happy, its not hard".... makes me so angry and more upset. if it was a choice of course i would choose it!! i dont enjoy having depression!
yes!! i’m so happy someone understands that, as someone with an eating disorder everyday is hard, even if recovered. I’m not open about ed because so many people don’t understand or take it as a joke.
ED isn’t as easy as just eating. There is so much more behind it, behind the person with it. ED is a silent struggle with a voice that screams and is never silent. But know, you are not alone, you are worth recovery.
“Just eat it’s not that hard” that just made me laugh. Do people not realize how ridiculous they sound when they ask that? Her stomach is paralyzed so yes, it is that hard for her. It may not be hard for us because we have a working stomach.
samantha stroud Yes but people are saying that to her in terms of believing she has an eating disorder, they aren’t aware she has this condition. That’s what she was saying; that she gets people making those remarks with the belief she’s starving herself when she isn’t.
Laura Williams even saying that to a person with an eating disorder would be incredibly ignorant though, like saying 'just eat' to a stranger is just ignorant in all circumstance x
@@InvalidUserHandle ok. Let's make a mental illness comparison then. That's like saying to someone with anxiety 'just stop worrying about it, it's not that hard'. Are you going to get off your high horse now?
@Ron WIMBERLY that's so disrespectful?! To see your reaction?! Really??? Allergies could be small, Like a runny nose. But if it cause your death why would people do that? That's so mean!
@Carlie Jo My brother has a peanut allergy, and one day some kid at his school rubbed a trail mix with peanuts in his face. Luckily, it was still closed and he was fine. It’s just absurd!
Rest in Peace Amy. You are loved, missed, and always supported. Tom, you are an amazing person and I'm always here for you. Fight strong everyone, I believe in all of you.
I have Ehlers Danlos. Pots, and gastroparesis. I have avoided feeding tubes so far but am disabled. It's a daily struggle! Thank you for being an Invisible illness warrior!
Sean Knows Some people with gastroparesis can digest certain foods if their stomach is not entirely paralyzed. It is recommended that they avoid foods saturated with fat and fiber. It’s easiest for them to digest soups.
R.I.P you strong woman, you fought your best fight. i hope now you can rest, eat whatever you want, run, jump, move your fingers and body as you want to and most importantly that you can have all the good night sleeps that you didn't have. i hope now you are in a place where pain is not something you feel anymore. and i also hope that doctors stop saying everything is anxiety.
Its Amy's life. She has two channels, her daily vlog is where she shares her struggles with disabilities. She commented above with her daily vlog account.
Even if it was an eating disorder, you shouldn’t say something like that to someone. Someone with anorexia/bullimia has just as much as real struggle eating as someone with another condition that stops them from eating normally.
I hateee when doctors blame everything on anxiety, they did the same thing in my case and i ended up having heart surgery 😣. I hope you are doing great, you are so strong!! 💚💚
i’m a 22yo woman and two years ago i was extremely tired and in a lot of pain. the doctor told me that everybody was tired and that the pain was in my head, i just needed to sleep more. guess what ? cancer !
Just want to say this I am very sorry to the people reading this Amy has sadly past away on the 4th April 2021 I can’t even describe how hurt I am by this news 😭😞😞
She is truly an inspiration. I had to have a feeding tube in for about a week, and I couldnt talk, I would throw up, and just to touch the tube would hurt. To have a tube in 24/7 takes major guts. This girl is so strong💕
I'd like to report that since this video, Amy has had a few issues with her nutrition. She now has a surgical feeding tube and a hickman line (or broviac? Correct me if I'm wrong!) to supplement with TPN. Amy is such a cool person and she inspires a lot of people, myself included!
I was wondering that too. We tried the NG tube for several months with our 3-year old daughter. Switching to the surgical feeding tube was WAY easier and didn't get the stares and comments.
I’m a guy who had anorexia 2 years ago, I had a feeding tube for 7 weeks, the worst part was when they put the tube in, also when you feel the food going into you it feels wrong because you can’t taste it all you feel is the warmth or cold of the tube. Each time you breathe the tube would move and sometimes hurt as she said in the video. They are a lot worse then you think. The worst thing about the anorexia was when people jus told me to eat. Now I’m healthy and happy. Have a good day to all of you who read this comment(:
This was so relatable! I never followed Amy on instagram because, although I know she has gastroparesis the same as me, her photos really show off her tiny frame and I found myself wanting to be that skinny again, I thought she must love being so skinny. When I was so underweight I wore baggy clothes and was self conscious, I’m now almost at a healthy weight! But as a society its so engrained in us that weight gain is bad, so its hard sometimes. Hearing this has made me understand her more than I could from her photos and she seems like a lovely, kind and determined person. I might try following her, she is not responsible for how we react to her- we are responsible for our own reactions
Crazy to think Amy has heart failure and sepsis end of 2020, here’s hoping a better year for 2021 for her. She’s a massive inspiration and positive individual and light in the chronic illness community!
She’s amazing. An inspiration! But as a fellow POTS patient, I must clarify that POTS is not a heart condition. Its a type of dysautonomia, which is a disorder of the autonomic nervous system (ANS). Which basically means that I have a faulty ANS and it doesn’t do its job, especially when I’m standing upright. The main symptom is tachycardia upon standing. The ANS controls the bodily functions we don’t think about, such as heart rate, blood pressure, pupil dilation, bladder control, sweating, temperature regulation, blood vessel contraction, digestion, etc. So when you have POTS/Dysautonomia, the body fails to do these things properly. In POTS specifically, when you stand up, the ANS doesn’t tell the blood vessels in the body to constrict properly, so the blood pools down into the extremities and the heart has to pump blood faster to compensate. It’s a very uncomfortable, painful, debilitating condition. But even though the heart rate is affected, the heart itself is perfectly fine (unless you have a heart condition along with POTS) :)
Delilah Phillips amy doesn’t just have POTS, she has other heart issues also. In these types of videos its difficult to describe something so complex in a short period of time but yes she has other heart issues beyond POTS and you can learn more about that on her youtube or instagram etc 🙂
Delilah Phillips when you have a very short period of time to explain something complex you do it to the best of your ability, so that people without medical knowledge can grasp its affect. I know that if this whole video was for Amy to explain POTS course her answer would be different but she did what any of us would do to get a basic explanation in a few seconds.
Chloe Print-Lambert Yeah, I mean I guess she could’ve said “...which affects my heart rate” or something. But as a POTSie, it’s just a big pet peeve when people refer to it as a heart condition, because it’s not :)
Delilah Phillips id never consider myself a ‘potsie’ as its a condition not an identity, but as someone with the condition who has been in the media spotlight a number of times you quickly learn that it isn’t always worth picking up on small wording issues, the great part is that it is getting recognition.
Jeffrey Chandler your welcome🙂 its good to ppl who wish others well and wish others love.. instead of hating and nit wishing good for others. Greetings from The Netherlands
Bless your heart, you are a very pretty girl this just breaks my heart and you are mature for a young woman and you seem to handle it quite well, i will pray for you that God will heal you and help,you. You have an amazing attitude.
I love her channel so much , I'm so happy that she's getting the recognition that she wanted for her illnesses. She is SUCH an inspiration. I actually am going to see my GI Doctor today and her channel actually helped me get past the fear i had of going. Thank you so much for your honesty.
Rip beautiful, i watched you for years and it brought me to tears knowing you are at your final resting place. I hope you’re at peace up there finally, without anymore pain❤️
Amy is amazing, I watch her vlogs all the time. I suffer from multiple autoimmune diseases, including Gastroparesis related to/caused by these autoimmune diseases. Every disabled or chronically ill person Ive spoken to has been harrassed/bullied by strangers, who make ignorant assumptions. It's extremely hurtful and isolates us even more than we already are. Those of us who have Disabled Parking Placards, we have to have a doctor's order for, really experience harrassment because not all disabilities are obvious or visable. Thank you making videos like this, for attempting to educate the public and for supporting those of us with chronic illnesses. Please continue to do so.
Very difficult to explain an illness, I suffer from horrible migraine headaches and when you say headache they only have a normal headache to compare and I always see the eye rolls like I'm just a big baby. Hats off to her for being brave and strong.
I’m with you. My migraines wipe me out and I have brain fog for a few days after. I can also get the aura migraines and those are the worst if not caught at very first eye flicker.
I’m so glad that you guys are working to inform people about chronic health issues and feeding tubes in particular. People can be close-minded or downright ignorant, but maybe this will help them understand what people like Amy have to live through every second of every day.
Honestly have genuinely had conversations with Amy and she has helped me through so much and i dont think ive ever known a stronger, happier individual that is poorly, she looks at life with the most amazing view and i think everyone should look at it the way Amy does!
Amy was the reason I have learned so much about my Gastroparesis diagnosis. She always inspired me to look on the bright side and this video is how I found her RU-vid channel. Thanks for everything Amy. I hope you’re in heaven enjoying all kinds of foods 💖
You inspire me so much to not be ashamed with my disability that I got because of a car accident I was in all I want to say is a big thank you for doing these videos
Omg that brought so many memories of having a feeding tube when I was battling cancer at 17 I am glad that stage over cause I applaud she can do it 24/7 and still be positive.
I’m actually really glad to know you can swim and do things with a feeding tube! I’m very blessed to be in good physical health, but it comforts me to know people with feeding tubes and if I (heaven forbid) ever needed a long term feeding tube, I would be able to still do some active things
I can't understand people in the comment ... she does not have any of those eating disorders.. she has a gastroparesis which mean that her stomach is not working at all because it's paralysed..
i'm a nurse and I hate inserting feeding tubes in my patient's because I know it will make them uncomfortable. I hate inflicting discomfort or pain but it's something they need
Yes they are, I had a G-button whenever I was little, i guess it’s kind of like a feeding tube, and the day when they pulled it out I will never forget that’s for sure
Rest in peace, you will be missed, your awesome soul and positively will still be with us.. Tom, friends and family may god bless you and grant you strength ❤️
To the parents of Amy! I am so sorry to hear about your daughter Passing , she was a remarkable young lady . you were truly blessed to have her and her spirit will live on 🙏🏼 🌈
RIP Amy Lee Fisher. You were such an inspiration for me. Your story abf channel still is even after your sudden passing. I still watch your channel every so often. My own health isn't great, but your channel helps through hard times. Rest in Peace Amy.
Just eat? Yeah, that's what the tube's for. Makes eating easier. Invisible disabilities are just the worst. Personally, I have fun autism that leads me to fall apart frequently, making me unable to do basically anything but sit around, for a few hours at a time. It's not great, and most of the time I just get accused of being a liar, or that I'm just avoiding work. But I really can't control it and I can't stop it. Doesn't help that when i'm not falling apart I'm somewhat functional in most ways and even "smart". Of course, not being able to work on a moment's notice isn't exactly great for getting a job. Add in some other issues that are too complex to describe for a RU-vid comment with strangers and I'm basically going to need a caretaker for my entire life. Hopefully I can find someone who can do that for me.
I've thrown up all morning and it is the worst feeling. It literally scares me when I throw up because I feel like I can't catch my breath. I'm so sorry she has to throw up every day.
According to her bf, Tom, it was April 1st. You can see it on every news sight about her and on her Insta, Facebook, and RU-vids. I was devastated due to i have similiar problems. But, good news is we will see her again in Heaven when it is our time. Prayers go with her mum, dad, family, friends, and her bf especially. Our prayers are with you always.
Amy your awesome. I have Gastroparesis too and know how frustrating it can be. Some days all I want to do is eat but I really don’t want the side effects that come with it. I hope you know how much I appreciate that you are spreading awareness for Gastroparesis and EDS
I'm so scared. My 24 yr old sis my only sibling. Got diagnosed last year. Shes lost 100 lbs. Her body had sever reactions to all treatments and now all there is left is gpoem. But she needs a 4hr ges scan and she doesnt want to do it. Her body rejected the feeding tube to. She is trying to stay strong but idk what to do.
I also have POTS and Type 3 Ehlers-Danlos Syndrome (also called hypermobile type Ehlers-Danlos Syndrome) and I have had digestive system issues involving slowed digestion due to muscles not being strong enough to move food along at the rate they should, but not to the extent of having to need a feeding tube yet. RU-vid channels from people like Amy who explain what it's like to have to use feeding tubes or what to expect when preparing for different medical tests or treatments are honestly a huge help not only to me, but my other chronically I'll friends as well. I hope you have a great day Amy and thank you so much for what you do.
i was crying for hours earlier then thought to open youtube then saw this video now my problem seems to be so small compare to what you're going through im sorry and thank you you can conquer this!!
My girlfriend has Elhers Danlos too and that's really hard for her, she has constant pain in her stomach, back, fingerjoins and every time she eats It's worse (digestive issues) , she also have heart issues and has to have a lot of exams done for that soon . But she is fighting every day of her life, she is courageous and really never complain about that and I love her for that she's the boss. I may don't really understand what you're going throught (because I don't have that) but I know that's really hard and painfull and you're amazing and inspiring. Wish you the best ! (Sorry for my english I'm french so yeah might have quite a fews mistakes)
Bless you amy.... bumped into your videos because i'm so sick with gastroparesis and i'm scared of what's next. i'm glad she didn't let the haters get her down. what a strong woman and even an inspiration to me... rest easy sweet heart...
Omg my heart goes out to her 💔 this has to be hard to deal with especially with the feeding tube causing pain and blisters. She really does a have a great additude.... I hope they will find more ways to help her and people like her
Aaaaaggghhhhhh!! Amy you did amazing explaining.. You are amazing yourself.. Together we all need to spread the word, to get the word out there.. The hate and negative comments and dirty looks need to stop.. I love you.. I'm here for you..
