Without My Parent's Help I Would Eat Myself To Death | BORN DIFFERENT

Подписаться 10 млн

Просмотров 8 млн

50% 1

SUBSCRIBE to Truly: bit.ly/Oc61Hj
CAMILLE, from Connecticut, lives with a rare genetic condition called Prader-Willi Syndrome, a condition best known for creating an insatiable sense of hunger in the individual. The craving is so strong that if left alone and with access to food, a person with Prader-Willi Syndrome could eat themselves to death. That means Larry and Camille’s mother Kim must create a completely ‘food secure’ environment, including padlocking kitchen cabinets and having an alarm on the kitchen door to stop Camille foraging for snacks. Camille’s sneakiness around food has earned her the nickname the ‘stealth ninja’, but despite her ever-present hunger, people with Prader-Willi have low muscle tone and burn calories slowly, meaning she is required to subsist on a diet of 1,000-1,200 calories a day. Larry said: “Prader-Willi syndrome is what Camille lives with, it’s the diagnosis she’s been given, but it certainly does not define her. She is so much more, she’s loving, caring, kind, compassionate, giving, if you have some sort of animal she’ll never forget the story you tell about them or the animal’s name.”
Videographer: Rajah Samaroo
Producers: Tom Midlane & Natalia Giorgi
Editor: Omar Gobere
Truly is on TikTok! / truly_show
Now you can watch our videos in Spanish!: bit.ly/Suscribirse_truly_ES
Click here to follow your favourite Truly shows on Instagram!
Truly - / trulyshow
Born Different - / borndifferentshow
Shake My Beauty - / shakemybeauty
Hooked On The Look - / hookedonthelookshow
Love Don't Judge - / lovedontjudgeshow
Beastly - / beastlyshow
Ridiculous Rides - / ridiculousridesshow
Dog Dynasty - / dogdynastyshow
For more amazing content, click here!
Beastly: / @beastlychannel
Barcroft Cars: / barcroftcars

Опубликовано:

27 дек 2021

Ссылка:

Скачать:

Готовим ссылку...

Добавить в:

Мой плейлист

Посмотреть позже

Комментарии : 6 тыс.

@truly-channel 4 месяца назад

If you enjoyed this video, we have a compilation here of more inspiring people living with incredibly rare conditions: ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-fFO5yH3wh7E.html or you might like our Born Different playlist for more videos like this: ru-vid.com/group/PLUkdT9ljJ1cbFTk10utsTb-RGsujT5bG4

@fatimapavon7787 3 месяца назад

🖤

@A_Fabulous_Killjoy 2 месяца назад

Ok cool 👍

@Ms-Islamova Месяц назад

it sounds so wrong when U put this comment on every video. I don't think anyone ENJOYS watching these

@AmaraGray-10303 Месяц назад

I have Prader-Willi Syndrome as well

@h.neubert8770 23 минуты назад

I literally came here from an Ozempic video. How it creates satiation. I know it’s a random connection but would this help with the desire to eat?

@nachomiranda589 Год назад

The fact that they kept her from getting morbidly obese (which is frequent for patients with Prader-Willi) shows how well they take care of her.

@eileensnow6153 10 месяцев назад

While it’s unfair for her to always feel hungry, it would be doubly unfair for her health to suffer as a result of obesity. Her parents are so selfless ❤

@marleyf8230 9 месяцев назад

@@eileensnow6153plus, even if they let her eat to that point, she would STILL feel hungry.

@SN-ig2ml 9 месяцев назад

Absolutely agree. These parents have done a fantastic job in helping her manage her condition(s) they would be a perfect couple to educate other parents in managing the condition and proof that if you do it correctly to the best of your ability and with the best interests for your child at heart then it doesn't mean that your child has to be obese like unfortunately the majority with pws are. I even love how they've encouraged her 2 siblings to understand and play their role in helping her aswell. They are all a class act and we can't forget their lovely daughter she seems such a warm kind young woman.

@hoflungdung111 8 месяцев назад

This sounds like.a hormonal problem. It seems to me that her stomach is constantly releasing the hormone grhelin to the brain and not stopping when her stomach has reached capacity.

@Nursegirlalexandra 8 месяцев назад

They should take care of her teeth. Dental issues can lead to a lot of other health issues

@joc4709 7 месяцев назад

I'm a dietitian and I've seen prader willi children rush across the room as soon as they spit some food or drink, and desperately rip open out of date food packets and drinks and guzzle them down in front of me. The fact that Camille is a healthy weight is a testament to how fantastic her parents amd siblings are at caring for her.

@curiousgeorge6921 5 месяцев назад

They should get hormone treatment

@darkiepoo8949 5 месяцев назад

i'm confused about how expired foods conveniently appear in front of said patients

@ayuubabukar6388 4 месяца назад

@@darkiepoo8949 You'd be surprised at how much food we waste, It doesn't register as food to most people once we consider them "bad". kinda like how dogs, even well fed CAN and do eat from the garbage/questionable sources.

@sinch4044 4 месяца назад

why are there random containers of expired food in front of all of your child patients 😂

@randomcow505 3 месяца назад

@@darkiepoo8949 dietitian, not a doctor, I presume they go to people's homes to help advise them on stuff

@JiraiyasWife Год назад

Wow, she's 23? I thought she was like, 15. I'm so glad her family is supportive of her and do what they can to keep her focused on other stuff.

@mslvc2011 Год назад

people with Prader-Willi are shorter than typical

@cjay1113 Год назад

@@mslvc2011 she looks younger in general

@Futurebound_jpg Год назад

Lack of sexual development is a trait of prader willi syndrome. She actually does have the physiology of a 15 year old or even younger.

@misskriss848 Год назад

She looks 11ish to me.

@lagopusvulpuz1571 Год назад

I thought she was 10 or 11 years old. Nothing wrong with her but she looks like a little kid. A 15 year old is taller & usually at least for girls more adult like appearance.

@juliannaziegler5192 7 месяцев назад

She went to my highschool! I never knew this was what her life was like! Thanks for sharing her experience with us!

@amethyst1062 3 месяца назад

What was this amazing girl pop like?

@A_Fabulous_Killjoy 2 месяца назад

Wow, she went to your school!? That’s so cool. What was she like?

@Broncofivepointslow Месяц назад

@amethyst1062 probably "like" a person or something

@All_will_be_revealed 4 дня назад

i doubt these people like to claim that they went to school or know these people when they really don't

@michaelh7527 2 года назад

Can you imagine what the world would be like if everyone grew up with parents this caring? It would be radically different.

@alyssa7974 2 года назад

Truly! I realized after watching many documentaries, many killers/felonies had a really bad childhood. With abuse & sometimes even sexual abuse I can't but think what would have happened if their parents weren't such horrible human beings

@arielxmoore 2 года назад

I can only imagine.😔

@gbecks3672 2 года назад

My husband and I are like this with our autistic son and I can’t help but think of the children who don’t have caring parents. I need a break from the news at times because of the horror I hear.

@ANITAACRUZ 2 года назад

@@arielxmoore Same here, we wouldn't need prisons 🥺

@filipinoamericanvlogger7449 2 года назад

Shes so lucky having loving parents because most parents will put their child in group home setting because of their child needs and constant supervision. Also, behavioral issues. I’m very familiar PWS I trained house staff how to work with PWS individual.

@allyb3510 2 года назад

Take a moment to remember she's 23 yrs old. They've been adjusting and figuring out what works for her for years.

@elizabethcrossley6853 2 года назад

Imagine her out in the real world though.. just legit taking food from shops, off plates.. just hunger.

@landonjohnson4477 2 года назад

@@elizabethcrossley6853 uhh don't say that

@anemptyspace 2 года назад

@@landonjohnson4477 truth hurts doesn't it? Of course it's not her fault, it's her condition but it's still best she's being 'contained' cause she wouldn't last even 30 mins entirely on her own.

@Unveranosinmi 2 года назад

@@anemptyspace she didn’t choose to be born with that condition.

@upsydaysy3042 2 года назад

Most adults with her syndrome are morbidly obese and have serious behavioural problems. Believe me, these parents operated a quasi-miracle...

@noellec7211 9 месяцев назад

My cousin has this disease too. She was told shed never walk, never talk and wouldnt live till 5. Shes now in her 40's, walking, talking and an incredible sweet and sensitive person. She even has a boyfriend for a few years now. She also loves babies and kids in general, she LOOOOOOVES coloring with them and playing boardgames.

@Slytherin_101 7 месяцев назад

That’s Amazing! I love hearing that people, despite being different, can defy even medical diagnostics and live and grow up to be amazing people. Your cousin should be super proud. ❤

@chiarra644 7 месяцев назад

How does she manage it on her own? Did she get self control or does she have to have a caregiver to make sure she doesn't over eat? I'm so happy for your cousin though.

@noellec7211 7 месяцев назад

@@chiarra644 I dont realy know how it is called in english, as I dont know if its a thing in other countries. Its kind of like housing for mentally challenged People. They live on their own, but under care. They have like a supervisor/caregiver that comes by regularly. Like 3 times a Day or something. Or like 4 times a week, depending on the need of the cliënt.

@chiarra644 7 месяцев назад

@@noellec7211 Oh okay, where I live that's called ResCare and my sister actually worked there for a while while going to school to be a respiratory therapist.

@petert6925 Месяц назад

@@noellec7211what country is this? I work in a similar thing in Quebec, Canada. We call it respite centre if it’s temporary

@MsGinRoom13 7 месяцев назад

The look on her poor face is so… pained. She feels like she’s starving. I’m just so sorry for her and her family. That’s so… I can’t imagine.

@LeeLeeCRN 24 дня назад

She looks absolutely miserable. I know her parents take amazing care of her n she prob has the best life possible but it really must be a hard life. Such an awful condition.

@joparker9052 22 дня назад

I wish the families and care takers would alter the food they give them to not be all this hunger inducing fat free stuff. It ends up being kind of cruel, just making matters worse. At least giving them actual animal fat and protein wouldn't just create added, pointless hunger.

@joparker9052 22 дня назад

And I agree her parents are awesome. I just see the cereal, pizza, cups of fruit and I feel so badly for her.

@CandyFlossFluff 11 дней назад

@@joparker9052I think they're trying to maximise the volume of food she can get. Lower calorie foods means she can eat more on such a restricted diet. 1000 calories of meat/high protein foods would be much smaller and not give her as much stimulation as larger meals. The point is she will never be full or satisfied. Protein won't have that effect of "keeping you fuller for longer" when you literally cannot ever have enough. She cannot physically have added hunger, she's hungry all the time. Feeling like you're starving and being given a small steak on a plate might be upsetting rather than a selection of colourful food.

@uberalles2465 2 года назад

The dad is such an empathetic person great analogy "it's like hitting your thumb with a hammer and trying to tell yourself it doesn't hurt"

@JordanVoorhees90 Год назад

He might also be empathetic because this birth defect is passed down from the father

@666Etnies666 Год назад

Ikr, that’s such an understanding way to describe it.

@queeno9010 Год назад

Ik that made me image be it well and I felt sad

@bugeatbugs Месяц назад

Agreed. The way he described her condition with only care and not downplaying it at all made me so emotional. He is an amazing human being first, and a father second. That is the true nature of a loving father.

@MsBre7 2 года назад

I can’t imagine feeling hungry non-stop and not being able to satisfy that hunger. This girl is STRONG !

@ClaireDaly151 2 года назад

Me neither! It sounds like such a horrible thing to have to live with 😖😥

@psychedeliclizard8631 2 года назад

Yeah... I can't imagine it.. 😢

@pinkpugginz 2 года назад

horrible :/ wouldnt be surprised if a lot of the people who suffer from pws end up on drugd

@theeggbreadguy3799 2 года назад

That sounds like torture

@Tomoz92 2 года назад

Nope, she is not. That’s why they have to lock and alarm the doors. But there’s no shame in it.

@Neveronline2024 Год назад

I love how her parents are helping her and making sure she’s getting nutritional foods and giving her great portion sizes. It’s sad that she’ll be starving all the time and that she can end up eating to death if left with food. It breaks my heart, but I’m super glad she has help and support.

@adaharrisonn 4 месяца назад

It honestly seems like she's eating even less than she should/could be. I'm confused why they have her at a calorie deficit when they could at least be filling her up with an average amount but maybe there's some medical reason why she has to be eating less than the average person?

@brokenselena 4 месяца назад

@@adaharrisonn It was literally said that it doesnt only effect appetite but also muscle tone and how many calories she burns.

@adaharrisonn 4 месяца назад

@brokenselena yeah you're right, I totally missed that the first time but I went back and watched it again and I heard that bit so probably a normal amount would just make her gain. I'm actually the same way because of a thyroid condition haha

@abcdeeer 2 месяца назад

@@adaharrisonn another thing to consider she is more likely less active than the avg person. they show she going on walks but id imagine the rest of her time awake is under supervision and therefore not moving around as much. plus the meds shes on can mess with body weight.

@coffee_junky 7 месяцев назад

There are parents who can't even make the effort for their kids, and then there are these parents - just the polar opposite. Wow, what a strong family to help each other and Cam.

@kaylz4551 2 года назад

I could not imagine being hungry literally all the time. The fact that this girl still finds the joy in life while starving all the time is incredible. I can tell she’s a very resilient person.

@cgarcia3614 2 года назад

Ikr, I have terrible dips in my mood when I'm hungry (really bad irritability, physical and mental exhaustion, crying), although it's usually after a long exhausting work day, but still, I couldn't imagine feeling hungry ALL the time. Sounds very stressful for her.

@ignightroad 2 года назад

I don't have PW but I have severe dysphagia. I can't physically get food in me and most of my food is a liquid diet. I've never felt full. I don't know what that feels like. Definitely feel for this girl, it sucks when you starve every day of your life despite having food.

@satlynutz 2 года назад

ask any fatty that lives near you?

@AndyMandyBandy 2 года назад

Gosh, lots of people always complain that there hungry and they get angry, yet she has to deal with this all day. There all so strong.

@ajheartsong 2 года назад

And being limited to that tiny diet… that must be awful 😟

@PressedByASavage 2 года назад

Let’s take a second to honor how respectful the parents are to each other…it definitely starts there. Beautiful family.

@akashambatwamiller6924 2 года назад

They are nothing short of amazing

@PressedByASavage 2 года назад

@@akashambatwamiller6924 Agreed🎯

@gray6678 2 года назад

Agreed

@sincerelyolivia_0 2 года назад

And the brothers!

@Considerthisplease 2 года назад

ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-t2sMJMXDiH4.html

@deborahmulkey1627 7 месяцев назад

I took care of a 20-year-old young man in a psychiatric unit with Prader Willi's syndrome. We had him there to help him lose weight in order to qualify for a kidney transplant. Eventually did the get the kidney transplant, and then sadly died in the intense care unit of sepsis. He was behaviorally really difficult to manage. So kudos to these parents.

@moonfiend9259 7 месяцев назад

I can see from the look on her face how much she's having to go through with this type of condition. I can't imagine. Especially feeling hungry constantly. She seems really sweet

@miketyson9540 7 месяцев назад

Makes one question why were here and if there is a god does he hates us. Makes my suffering seem small also.

@Castellano-Enrique 3 месяца назад

@@miketyson9540there's no god but there's the truth of suffering that needs to be understood

@charlestannehill7537 3 месяца назад

Why wouldn't that new weight loss drug ozempic work on her? Or another medicine blocking the hunger hormone ghrelin? If the effect is just to suppress appetite? Edit: I believe this would relieve her hunger pains and the feeling she's starving.

@TheCarlScharnberg 2 года назад

Never seen someone with PW that has been this thin. The parents are clearly doing a great job in controlling her food intake. Poor woman.

@candicewatson5508 2 года назад

I was just about to say that

@thisisstrange4641 2 года назад

Just commented the same thing. I'm impressed by her parents.

@rggtrsdgtw 2 года назад

I agree

@Peachsnowcone 2 года назад

Yeah I don’t blame the parents of other PW children unless its insanely bad, but yeah it’s actually pretty amazing her parents care that much

@stefdiazdiaz7067 2 года назад

The mother should apply those methods to herself, also get rid of seed oils and other junk that puts you on a torpid metabolism.

@itsjustme...1559 2 года назад

When she said "it's hard feeling hungry all the time, it gives me anxiety. " that broke my heart. What an amazing young woman and wonderful family. They are all very blessed to have each other. I wish them all nothing but the best.

@kittycaruso50 2 года назад

Yeah same. I couldn't imagine my food being locked away from me, and that's without her condition. Can't feel good at all even though it's for her own good it still has to be traumatizing.

@itsjustme...1559 2 года назад

@@kittycaruso50 I agree, it must be horrible. I'm so glad she has such a wonderful family to help her as much as they do. Be well and stay safe.

@RuffyColada 2 года назад

This really dives deep; feeling shame and compulsive/impulsive eating.

@itsjustme...1559 2 года назад

@@RuffyColada I can't even imagine what this feels like. I wish everyone dealing with things like this nothing but the best and healing. Be well and stay safe.

@Considerthisplease 2 года назад

ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-t2sMJMXDiH4.html

@janellchavira916 Год назад

Shes so innocent..her parents are angels .godbless their family

@katycooke3635 Год назад

These parents are amazing. The fact that her weight is controlled and they are able to help her through the emotional / mental struggles that come with Pradeep Willi is amazing. Such dedication and love in this family! Bless you guys!

@Plaksa2004 7 месяцев назад

But she's 23.. doesn't seem that she works.or can live on her own, what happens whe parents die or get old and sick?

@spikebubbless 7 месяцев назад

@@Plaksa2004she has two brothers who can help her.

@joyandpeacefullaughter5307 2 года назад

This is a part of parenting a lot of people don't talk about. They only look forward to the playing with cute babies and ticking off a part of their goal. While we all pray for healthy kids who become successful, you might have to deal with a "sick" child for the rest of your life. You'll be the adult for the rest of your life. You might have to support your child/children for the rest of your life. It's not something you go into without being prepared and emotionally mature. Parents who still support their adult kids wholeheartedly deserve praise. 😢

@cxmyla 2 года назад

Indeed! It's funny (in a bad way) how we, as parents, never expect our child to have a diagnosis, we're never prepared to care for a chronically ill person, but I think we should start thinking about it.

@alezandradavila2581 2 года назад

Yes I’m sure there’s family who will take her in though

@HIGHqualityEmma 2 года назад

Exactly god bless these people who put effort into supporting their children or people they love !

@bangervlogs8751 2 года назад

Very true. My son received two diagnoses on Dec 16th. I'm still trying to process it all... The future can be very scary looking that's for sure.

@rosibelrodriguez1916 2 года назад

Thank you for this. I have 2 children with Asd

@thatclaudiakid 2 года назад

Poor girl. I thought she was about 12. Her parents are doing a fantastic job keeping her healthy. Then again, what parent wouldn't? That's their baby and they need to do what they can.

@claire4664 2 года назад

Not every parent would. Its not as obvious as it seems

@Kat-zi2tb 2 года назад

My birth parents

@user-wl4od9ml3x 2 года назад

uhh not every parent-

@MelB868 2 года назад

I thought she was 8 and she looks very underweight to me

@user-cnfan 2 года назад

@@MelB868 same

@Nok112 Год назад

I was starved literally until the age of 6. My grandparents and my aunt adopted my sister and I. I started hiding food to ensure I had some for later. My grandparents called me a liar and sneaky for doing it and punished me harshly and did punishments to try and humiliate me. They were not like theses parents at all. Many years later I was able to cut them off and I have a healthy relationship with food. Very thankful their daughter has great parents.

@janettaylor1943 2 месяца назад

Don't let your childhood destroy your future.

@janettaylor1943 2 месяца назад

@@Nok112 Yes,I fully understand as I too was abused.What I was trying to say was that to not allowed the past to negatively affect the future.I needed emotional help and didn't even receive that from the authority and adults around me.

@LL-pt4sl Год назад

Not the stealth ninja 😆 It's really fantastic they have a lit of humor considering the circumstances. The family support, love and compassion is really beautiful to see. Thank you for sharing this story. I had never heard of this condition.

@lemonythicket1406 2 года назад

It must be so hard for them to limit her access to food knowing that she’s so hungry all the time. It would break my heart. They all seem to love each other so much.

@nutmeg0144 Год назад

Yeah. If only other parents would have this discipline with their obese children

@elizaflower4762 Год назад

I know, I thought the same thing! Especially when they said she was digging food out of the trash. That just broke my heart! 💔😔

@TheHothotheatlive Год назад

Can she eat shirataki noodles or something with zero calories, to fill her stomach up?

@susanferretti5781 Год назад

@@TheHothotheatlive It wouldn't matter. The stomach fills, but the brain doesn't work well enough for them to know. People with the disease will really eat until they tear their stomachs and die.

@susanferretti5781 Год назад

@@nutmeg0144 It's not about discipline or obesity. It is a disorder that people can die from.

@mw4140 2 года назад

My cousin has this. When she was younger she would actually break into the neighbors homes and raid their fridges, cabinets, and garbages. I feel for any individual who has this condition as well as their support system. As a kid I couldn’t wrap my head around why she would do that, but as an adult I understand better about what she was dealing with.

@CamilaSaurus 2 года назад

Oh wow, I had no idea this was a thing until now. That sounds so hard 😕

@Pipipipoopoop 2 года назад

@@CamilaSaurus go to hell

@tobydior7040 2 года назад

@@Pipipipoopoop bro what?

@Someonebetterthanyou5 2 года назад

@@tobydior7040 he is fighting with everyone in all the comments idk 😐 he doesn't have a life and is bored 😑 probably a 8 year old who thinks he is cool cuz he said "hell"

@tobydior7040 2 года назад

@@Someonebetterthanyou5 lol what a weirdo

@azmakhan1415 Год назад

It's so sad that she feels 10 times hungrier than regular people yet she has to eat ONLY 1000 calories per day.. The LEAST amount of adult recommend calories. When I was DIETING with around 12-1400 calories I used to feel like I was STARVING. So I just can't comprehend how she feels every day. She is so brave!

@nousernamefound.7 Год назад

I dunno how fat u were dude bit i eat about 1000 kcals a day and i am never hungry. Like…

@fiorecati8162 Год назад

She might need less because of her stature and in general condition, I doubt her body reacts the same to food than the body of someone without the condition

@alex73217 Год назад

@@fiorecati8162 lower muscle tone. Similar to down syndrome. Less muscles - > less calories needed

@LovelyLittleLillies Год назад

Any parent can now fake this medical condition for their kids and underfeed them until they become emotionally and mentally stunted.

@iwannaleave7504 Год назад

@@LovelyLittleLillies that's not the way it works there has to be a diagnosis and treatment. Obviously the possibility of someone using this for child abuse is horrifying, but with prader willi you need to be extremely careful about your intake

@haileycleveland5188 Год назад

I am so happy that she got the parents she did. They seem like wonderful people especially the dad with his empathy and positive outlook on “negative” things.

@josepha3805 3 месяца назад

Hell yeah abso lutely

@emilycheek3077 2 года назад

This dad seems very educated with his daughters illness. But also exhausted. I'm glad he's spreading awareness, but it breaks my heart. It breaks my heart this girl feels this way ❤️

@RONPEE-STINGER 2 года назад

It's all your fault Emily

@onemore7632 2 года назад

@@RONPEE-STINGER this made me laugh way harder than it should, just what the f**k lol

@katharinafriesen6954 2 года назад

@ Bill vosby Bad day at the office?

@zombieluka 2 года назад

@@onemore7632 I did a double take and cracked up laughing lmao

@jamesron5625 2 года назад

@@RONPEE-STINGER m dead xD

@latinabeeotch417 2 года назад

My mother had a colleague who’s son has this condition. He’s also autistic. His mother worked so hard caring for him and making sure all good was locked away. But she was a single mom and she was at her wits end. He ended up being deemed legally incompetent by the court and was able to move to an assisted living facility that specializes in his conditions and he’s doing amazing. His mother visits him every single day without fail.

@user-wt6hw5mi5q 2 года назад

That poor mother. So glad she got help.

@MintyUniverse0 2 года назад

If you cant handle the possibility of a severely disabled kid you shouldn't have kids

@morganhigginbotham8371 2 года назад

@@MintyUniverse0 Yes, I'm sure everyone with a child is mentally and physically prepared to carry the burden of not only raising them alone, but also dealing with an extremely rare genetic condition that makes them disabled for life. So instead of getting help from people that know what they are doing and know how to help their family overcome the biggest obstacle of their lives, she should have just taken care of it on her own. You know... because once people become parents, they're no longer human. Got it.

@Yes_587 2 года назад

@@MintyUniverse0 don't forget that she was a single mum. It would be difficult enough for a couple to deal with, let alone a single person.

@gracedaly9717 2 года назад

@@MintyUniverse0 oh piss off 🙄 as if her child in a facility which can skilfully cater to his condition whilst the mum is growing old is ‘not caring for him’

@khanp2420 9 месяцев назад

The fact that she's not obese is a testament to these parents amazing parenting and patience 🙏💕

@doot2997 Год назад

I experienced bottomless hunger after anorexia and it is honestly the worst feeling ever. I can't imagine having to live like that for the rest of my life

@sarareiss6523 Год назад

I went through that too. Am going through it.

@hotcheetosqueen5841 Год назад

@@sarareiss6523 i hope you get better and recover. Remember that even though i dont know you i want you to be ok. Wishing the best

@kbear2112 2 года назад

I’ve know this family for most of my life and babysat Cami for years. The whole family is as nice as they seem, and cami is the sweetest most gentle spirit I’ve ever met. My favorite memory of her is bringing my newborn son over to meet her, she cradled him like he was a porcelain doll and was so focused on making sure he was okay and didn’t need anything ❤️ She is so incredibly gifted in so many ways.

@lulu_achoo 2 года назад

Wow she sounds so precious. What was it like to babysit her? Did she have any favorite toys or things to do that would distract her from her hunger?

@lulu_achoo 2 года назад

@@mitchbarredo3990 didn’t say she wasn’t a nice girl I can see she is a wonderful girl and wish her nothing but the best. I just want to know more about her.

@lulu_achoo 2 года назад

@@mitchbarredo3990 my mistake. RU-vid notifications will say someone interacted to this comment section. And as a selfish human error, I assumed it was referring to my comment specifically. I also wasn’t trying to come off as combative I apologize for that as well. :)

@absolutelyridiculous6743 2 года назад

She's so lovely!!!

@MissIngrilicious100 2 года назад

Kbear..she is such a precious person, you can definitely see through her❤❤❤

@NPitts-cw3oe 2 года назад

I broke when she looked at her parents with gratitude and sadness and thanked them for taking care of her. Despite her appearance at her age she has the intelligence to understand that they are making a sacrifice. She also appears to recognize the love and devotion. It touches my heart...God bless them in all they do

@LightningFox7 2 года назад

Well yes of course she has the capacity to understand that.

@redlupo6193 2 года назад

@@LightningFox7 Hello and a very Happy Healthy New Year! Camille's self-awareness, intelligence level, and appreciation of her parents' fine care are by *no* means the case for every patient. Other vids here on Prader-Willi Syndrome can show you another and more terrifying side of what can happen.

@ragathnor326 2 года назад

How old is she

@hannahbull 2 года назад

@@ragathnor326 23

@Considerthisplease 2 года назад

ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-t2sMJMXDiH4.html

@tsarmi9864 7 месяцев назад

I have had a client with prader-willi syndrome. A cute 8 year old boy. He always told me that he wanted to run away, but he couldn't run away from himself. When I took him to the park for some R&R therapy, and he would pretend to run away from it. I had tears in my eyes watching him "run away".

@kyleegabby8883 7 месяцев назад

I have food addiction and used to be morbidly obese. When I was trying to lose weight and overcome my addiction I used to think about how children with Prader Willi syndrome had to experience constant hunger and it gave me a greater perspective to overcome my small discomfort in comparison to what these children suffer.

@chiarra644 7 месяцев назад

I literally just now told my husband about how I will no longer complain about being hungry. I also have a food addiction, I am on Victoza to help with my appetite issues. Went from 338 lbs to now 273 over the course of 2 years.

@kyleegabby8883 7 месяцев назад

@@chiarra644 Great job! Keep up the good work! Nice to see someone doing it slow and steady rather than in an unhealthy manner that is how you get long term success!

@chiarra644 7 месяцев назад

@@kyleegabby8883 Thank you so much!

@bdmbpm1467 2 года назад

She is fortunate to have been born into her loving, kind and patient family.

@Enthalpy-- 2 года назад

Or unfortunate ?

@niceuser1237 2 года назад

@@Enthalpy-- what do you mean by that?

@rbt-0007 2 года назад

@@niceuser1237 Probably meant that if she was born from another family she wouldn’t need to suffer from this condition.

@niceuser1237 2 года назад

@@rbt-0007 ooh 😬

@MariaMaria-sr8zg 2 года назад

@@rbt-0007 it is rarely inherited. It usually occurs randomly.

@Emily-ck9ji 2 года назад

This poor girl. I had no idea this kind of condition existed. Thank you for sharing this story!

@juliepepin3988 2 года назад

There's documentary about this condition on youtube. It's really sad, I remember one of the kids in the documentary ate 💩 from the cat litter box. Its disgusting but telling at the same time on how powerful their hunger is

@ann0y1n98 2 года назад

She’s a woman not a girl

@Emily-ck9ji 2 года назад

@@ann0y1n98 I'm aware - I tend use girl for anyone who's female and younger than myself, but I understand that it can be misconstrued as me saying she's a child. It's not my intention to be rude, it's just an old habit.

@Emily-ck9ji 2 года назад

@@juliepepin3988 Thanks for sharing! It's really interesting and really sad.

@ann0y1n98 2 года назад

@@Emily-ck9ji it’s okay I’m just trolling always

@EsperanzitaBonita 7 месяцев назад

It’s wonderful that her parents do all they can to keep her healthy, and even though they control her intake so she doesn’t make herself ill, they also make sure that she has her treats❤

@Glitterip 8 месяцев назад

It makes me so freaking happy when I see parents like this. Absolutely how it should be. Unconditional, beautiful love.

@GalaxyGal- 2 года назад

I couldn't imagine what it'd be like to feel like I'm starving every second of every day. Absolute torture. She's a strong woman surrounded by a strong family.

@lolnothxyt 2 года назад

And imagine watching your child suffering and troubled as if she's starving but you can't do anything about it

@DuckyAnimations02 2 года назад

Omg that would be amazing u could eat a thousand cakes and nit ever be full

@nishikigoi. 2 года назад

@@DuckyAnimations02 Imagine having a feeling of starvation 24/7 and not be able to ever satisfy your hunger? It wouldn’t be amazing, it would be horrible!

@DuckyAnimations02 2 года назад

@@nishikigoi. imagine the feeling of having the taste of a million muffins and cakes and choclate and never feel full

@nishikigoi. 2 года назад

@@DuckyAnimations02 Ok then kiddo, I hope one day you get Prader-Willi Syndrome, so then you get to eat all the food you want and NEVER get full :)

@lynnern57 2 года назад

I have a friend with a child that has PW. As if that wasn’t enough, another one of her children developed anorexia. She’s an amazing mother and both children doing well!

@katedavies5112 2 года назад

why r u demonizing eating disorders

@cuca_ 2 года назад

@@katedavies5112 whut

@pipilili6241 2 года назад

@@katedavies5112 uhh there wasn't anything in the comment which say that??

@freerealestate9637 2 года назад

@@katedavies5112 what, if you’re implying that eating disorders shouldn’t be demonised you’re a bit out of it. As someone who suffers with anorexia and has been in and out of hospital. They should be demonised

@liviemillie6455 2 года назад

@@katedavies5112 I have an eating disorder and the comment wasn't doing that. It is hard on parents to take care of a child with an ED, that's just truth. It's not demonizing them.

@maximilian9295 7 месяцев назад

What absolutely wonderful parents. Ill never know what that feels like, and as i get older the loneliness of never having any family member love you gets worse. However unfortunate she is, shes also very fortunate.

@Kittren22 8 месяцев назад

It is so good to see, that her family is so supportive, and she gets all the help she needs from them. It warms my heart.

@ccings27 2 года назад

This is so crazy, I worked with Cami for about 3/4 years at a camp she used to go to. She really is one of the sweetest people I have ever worked with, always trying to help others and make friends. I really hope you're doing well Cam! Proud of you.

@pretty3 2 года назад

Definitely she was a good camper i miss working there

@HogRoastLynn Год назад

Girl shut up lmao

@sappyk.d.c3188 Год назад

@j 🤣🥴

@Rainbowsandsprinkles Год назад

@j 🤣💀💀💀💀💀

@mattphilpott4759 Год назад

sorry but i kinda think your lying

@bmckin2011 2 года назад

I couldn’t imagine that pain. Bless her sweet parents. They are truly angelic and what parents SHOULD be.

@trezr40 8 месяцев назад

Remarkable parents. I couldn’t imagine how difficult it has been for them to find balance for their family but from an outsider perspective they seem to be achieving just that. The world needs more families like this

@noahcyrusmiley Год назад

What a difficult situation for her😢 I can’t imagine how does she feel when she’s hungry and can’t manage that hunger…

@BobbyDigital6411 2 года назад

When she says "It makes me feel really good that they take care of me all the time" you can just feel the love this family has for each other. I don't even see any genetic condition, I just see a supportive and loving family.

@snoopdoggthecertifiedg6777 Год назад

…you don’t even see any genetic condition, which is what this entire video is about

@Mallenaudrix Год назад

@@snoopdoggthecertifiedg6777 This comment is so wholesome I don’t even see the overt virtue signaling 🤣

@lunarialoonatic Год назад

@@snoopdoggthecertifiedg6777 i think they meant that it’s like she’s watching a video about a warm, loving family not about a genetic disorder

@amrita3000 Год назад

Exactly. Instead of feeling sorry for them, I am almost envious. These are the kind of parents we all deserve.

@belfry.bats.xx. 2 года назад

edit: wow, this comment blew up! just wanted to give a little update, miss eden is doing wonderfully. she just turned 8 years old a few days ago, and is doing well at school! i don't know much about her medications or specialists or anything like that, that's all stuff that my aunt handles. but from what i can see, she's a happy, healthy little lady :) my cousin has PWS. she's going to be 8 years old in april. when she got her diagnosis, it turned my whole family's lives upside down. it's the little things you don't even think about: leaving a snack out on the counter, or having a piñata with candy in it at a birthday party. my aunt and uncle have done an incredible job raising my cousin and teaching her to have a healthy relationship with food. she's so sweet and caring, and will talk your ear off about cats or horses. when people on the street see her, they see a disabled little girl. but to me and my family, she is more than her disability. she is our sweet little eden who rides horses and runs around outside and is full of energy and has the brightest laugh. she's more than her disability.

@JustAnIdiot 2 года назад

that sounds like an amazing little girl :)

@belfry.bats.xx. 2 года назад

@@skinconic ????

@karenyang9148 2 года назад

@@skinconic … I don’t know what you’re trying to imply here.

@alexh8732 2 года назад

I wish more people would see people with disabilities instead of a disabled person when they look at someone they don’t know . Your cousin sounds like a lovely girl with a very loving family . Best of luck to you all

@jenniferivory2536 2 года назад

Love this

@AMB_94 Год назад

Oh this sweet girl. I’m so glad she has the support system that she does. Even with the pain she must constantly be feeling along with her mental health struggles that steam from her original diagnosis, she’s still smiling so bright! You can tell her dad is all in 100% invested (and mom too, she just didn’t talk as much which is okay!) I appreciate this story a lot.

@clintdawgjohnson 11 месяцев назад

This sounds so difficult for her to go through, but it's awesome to see what a kind and sweet young lady she is.

@nancymcnafferson3192 2 года назад

I can’t imagine how she doesn’t just run away and try to buy/steal. Great job to her parents.

@alisonmary1443 2 года назад

Exactly!

@alessandrac1940 Год назад

I wonder if she is on any meds to suppress her appetite

@bellasampson7398 Год назад

@@alessandrac1940 it doesn’t work like that, unfortunately. What’s triggering her insatiable appetite isn’t what triggers our hunger cues. I have a cousin with it. Hormones and ssris have been known to help other symptoms like anxiety. Prader-Willi is predominantly caused by part of the fifteenth chromosome being altered or deleted during conception. It’s not a Band-Aid fix at that level, it’s quite brutal honestly. Her parents aren’t exaggerating here, it literally dominates their every waking moment, it’s coming down from the hardest drug but knowing you’ll get to have a little hit every few hours, just not enough to feel better. Never enough. They literally would gorge themselves to death in a sitting if they could. There’s no such thing as being too full, pain from eating too much is less than the unquenchable thirst.

@lunarialoonatic Год назад

@@bellasampson7398 so if her anxiety levels were lower she would still overeat, right? Since basically her brain doesn’t know her limit

@leafy4142 Год назад

@@bellasampson7398 So will people like Cammy or your cousin ever be able to live by themselves or will they always need to be in care? Is this something they can dominate or will it always control them?

@doloresrodriguez6121 Год назад

My sweet sister had Prader-Willi syndrome. I miss her so much. She passed a year ago on the 30th of August at the age of 44. She had the biggest loving heart of anyone I know. My parents are superhero’s in my eyes for the loving care they provided. God bless you all and continue to stay strong and bonded.

@caoimhemccartan4917 Год назад

I feel so sorry for you, it must be heartbreaking losing her. Your parents are great people ❤

@kaylikesgrilledcheese Год назад

I'm so sorry for your loss you're also strong girl

@bensteed750 Год назад

Your parents are heroes. She was blessed to have them as are you. Best wishes

@prathification 7 месяцев назад

I wish I could give this entire family a big hug. It really puts your own problems in perspective. Such excellent caregivers.

@fishfinder6427 Год назад

I have a niece with the same disorder . She has developmental issues as well. My brother , her father is wonderful . Your daughter is blessed to have you.

@tiad2125 2 года назад

I wouldn't of guessed she was 22, she has a very youthful look. But to always feel hungry, or never feel satisfied from food..yes must be hard and I'm glad her doctors and family have a plan for her. Over eating makes you feel bad in your body, but never being able to feel full or like you've eaten enough even though it should be..I couldn't even imagine what that would do to your body over a long amount of time. Thankfully she has her family to help prolong her life and well being in the long run! I wish you all luck and continued success during your journey thru this!

@JoJo-zx9sc 2 года назад

The reason she doesn’t look like your average 22year old is BECAUSE of her syndrome, NOT because she just has a ‘very youthful look’.

@c1rcl3s 2 года назад

@@JoJo-zx9sc I thought she was about ten

@c1rcl3s 2 года назад

@@JoJo-zx9sc the other pws documentaries don't show very young looking patients. They all looked their age

@laylee8307 2 года назад

Mental torture.

@waimbuthia820 2 года назад

23!

@kirac.7368 2 года назад

Her parents seem to be doing a great job. It’s extremely hard for people with PWS to stay at a healthy weight.

@queenabk4219 2 года назад

This was my thought exactly

@tamara09090 2 года назад

But isn't 1200 calories too little for her size? It's the recommended intake for a 2-3 year olds. It just seems a little insufficient given that she isn't smaller than a 13-14 year old who needs more calories than that. 🤔

@stephaniesouth6073 2 года назад

@@tamara09090 Have you watched the video? Her father stated folks with PWS don't burn calories like most folks. That's most likely why she gets fewer calories. Also the average suggested calorie intake for an adult is 2,000. She's 23 not a kid.

@tamara09090 2 года назад

@@stephaniesouth6073 I didn't say she was a kid, I said she is built like a 13-14 year old, thus was confused as how 1200 calories could suffice her needs.

@gia9551 2 года назад

@@tamara09090 because she has PWS. They have low muscle tone and a slow metabolism. They literally need less calories than people without the syndrome, that’s why it’s rare to see people with it who are also at a healthy weight. 2000 calories a day would cause her to gain weight rapidly.

@jessidurmis Год назад

This family is so precious…I wish them all the best…they are doing the most they can to make sure she is healthy and happy

@jvoyles86 8 месяцев назад

My heart breaks for her and all with this syndrome. She seems so genuinely sweet and kind.

@BlazerT48 2 года назад

I've struggled with binge disorder and it was hard enough to deal with mentally. I can't imagine on top of that having a real physical hunger pain. She and her family are very strong and I wish them very well

@queenieburgers50 Год назад

Same here. Also some psychiatric medicine had made me always starving, I could eat too much but my stomach felt empty, I needed more. Couldn't sleep from the hunger. Miserable feeling. Poor woman has been through a lot.

@mango11119 Год назад

I'm still struggling with binge ed, it's been a year now it sucks

@theimprobableone8635 Год назад

@@mango11119 I struggled with it for a few years. It is rough and disheartening. The only thing that really helped was to stop trying to diet or restrict what I can eat in any way. At first that was scary, but after awhile I started eating healthier by choice and the binge episodes subsided. The weight came off without dieting. The binge episodes only ever come back if I try some diet, so now I just stick with intuitive eating. I highly recommend the book “brain over binge,” if I had just listened to what she wrote in that I would have gotten better so much earlier. I wish you all the best! You can get out of the cycle!

@jes6161 Год назад

@@mango11119 I hope you get better, I’m recovering from mine.

@wiriwiri1668 Год назад

The most disheartening part is that not many professionals are aware of these types of neurological and genetic disorders, and they often misdiagnosed the patient with the incorrect ED, which ultimately prolongs the process of helping them.

@TheBlairWenchProject 2 года назад

_when she said she liked having her jello, I smiled. I’m the same way. Small stuff like having my snack makes me happy. Im glad she has her parents to help her._

@Boxofcare666 2 года назад

Why do you write in cursive?

@TheBlairWenchProject 2 года назад

@@Boxofcare666 _sweetie that isn’t cursive. It’s_ *ITALICS* _and because I want to I guess. Idk_

@timeisslipping3124 2 года назад

Mm my little snacky snack 😩😫

@pabritova 2 года назад

@@Boxofcare666 Lmaoooo

@hihi-nl8qg 2 года назад

but why in italics

@cserd8734 8 месяцев назад

Wow what an amazing family… wishing you all the best and keep up the good work and unconditional love, the world needs more of it.

@Elizabeth-mf3dn 7 месяцев назад

What wonderful parents. They love and protect her so well

@calamorta 2 года назад

That's crazy. Other people with this condition usually get overweight because parents don't have the strength to prevent their kids from overeating. Glad to see she doesn't seem to hate them.

@alwa6954 2 года назад

Not only doesn't she hate them but she loves them for it. She knows that they are saving her life with their actions.

@palomathereptilian 2 года назад

And many ppl with PWS are also overweight bc their metabolism is also much slower than the average metabolism (even compared to hypothyroidism), I've already seen some parents as caring when it comes to control their child's food intake (and ofc had similar resources) and they were still overweight bc of that really slow metabolism

@woundedsaint8684 Год назад

She thanks them for taking good care of her in the video. Hate is no where near that girl and her parents.

@ronniebattle1310 Год назад

@@woundedsaint8684 Encounter Ministries RU-vid page. (Mark Hemans)*

@lostpelican1883 2 года назад

The empathy is palpable here, you can really feel genuine compassion radiating from these parents. Patience, compassion, and real empathy are things that sometimes must be practiced, cultivated--- it doesn't come easy. But they're doin it 100% here, best wishes to Cami and her family

@jenniferallen4420 2 года назад

I agree they really are.. this family is wonderful. This family does radiate all those things and its no surprise that they are Christians. I could tell immediately by the way they act that they were christians. God is radiating from them its beautiful.

@lostpelican1883 2 года назад

@@jenniferallen4420 These are the type of christians I would want to meet (unfortunately that hasn't been my typical experience, but I wanted to give them an extra shout out). Religious or not they're a good example for everyone :)

@jenniferallen4420 2 года назад

@@lostpelican1883 well you know unfortunately as a Christian myself its rare to meet people that truly live for God. Most fall short myself too. But these parents are truly showing a love called "Agape" and its a love that comes from God. Its a perfect love.

@NallahBrown 2 года назад

So beautiful

@crystalriedel1011 7 месяцев назад

Sweet family . Poor Cami's voice shakes and I tear up 😞💕

@FatimaJae 7 месяцев назад

Thank God she's with a loving family ,caring parents, she's a beautiful young lady

@shavedparmesanprosciuttoan4317 2 года назад

Dude. When I’m hungry I am such a grouch. I can’t imagine feeling desperately hungry like that 24/7. What an amazing young lady expressing such gratitude for her parents, life, and jello! She can teach us a thing or two about strength and gratitude.

@RAINCLEARY 2 года назад

“It’s going to be difficult but it’s going to be okay” I’m a single mom/dad to a beautiful special needs ten year old. She has cerebral palsy & more developmentally delayed challenges. She’s amazing and has taught me more than any other human on this planet. I’m so proud of her and of this family! Thank YOU for reminding us it’s gonna be okay ;) xx

@RosieBrownie 2 года назад

You're doing so well💜 Parents and care takers like yourself are VERY VERY special and so needed in this world. I'm a special needs child and if it wasn't for my mom I would have turned out sooooo much worse ... I wouldn't even be able to have my own life. I just want to say that we appreciate people like you SO MUCH. Even though we often can't express in words, (I have selective mutism so I know how it is to be mute) we really, really, truly do understand and know how hard our care takers are working.... Every since early childhood 😥 You know why it's gonna be ok though? Because love is stronger than any disability or challenge And please take care of yourself, you're a strong beautiful worthy mom and I'm A HUNDRED PERCENT SURE your lucky daughter is very much aware of how much you've done for her already Don't give up But don't forget yourself sweet woman 💜💜💜💜💜💜 💪🏼💪🏼💪🏼💪🏼💜💜 💜💜💜💜💜💜 Also your hair is extremely pretty in your photo and purple is my favorite color!! 😊 Happy new year strong mom 💪🏼🎉

@pinkpugginz 2 года назад

so sad

@Keithyoung420 2 года назад

That's sad keep being a great mom and dad to that 10 year old 😊

@energeticrebel 2 года назад

God bless you and your daughter!

@candybar6475 2 года назад

@@RosieBrownie your comment was so sweet Bless you

@timetoengage_ Год назад

These parents are amazing. So understanding, compromising, caring, compassionate. Honestly there is not enough affirmations in the English language to describe them!

@joyajohnson2767 8 месяцев назад

Prayed for you all. Keep loving. Thank you for sharing. 💙

@sinfulbeauty0023 2 года назад

Give a shout-out to these parents for doing the most and the BEST for their daughter.

@annie482000 2 года назад

Hear hear❗👍👍👍

@gabrielleandrew542 Год назад

They are amazing . Of course ... with me ... if there’s cinnamon buns ... one will disappear ...

@teyaraquel1025 2 года назад

Cami is literally the sweetest person ever I went to high school with her, everytime I saw her or happened to have a class with her (we’re the same age) we always said good morning to each other.

@C0OKI3S Год назад

I swear on every single video someone would comment something like ‘I used to know this person once upon time’ 💀

@BrainsofaWeirdArtist Год назад

Mhm right

@DonJoeJoe745 Год назад

Cap

@Psilocybism Год назад

@@C0OKI3S a really good day to you too! Maybe because people can be really exited when they come on television and spread it around in their community? And its way more common tell your family and friends, not your enemies? Just a suggestion.

@user-mc5oh1xn2f Год назад

Sure bud, sure.

@joyporcella81 Год назад

Anaphylaxis to so many foods I can relate to this sweetheart. I know how it feels to have to read labels instead of just digging in. Stay strong everyone!!!❤️

@Cootiequeen 7 месяцев назад

She is so sweet! And she has an awesome supportive family advocating for her. ❤

@TheHi25002 2 года назад

I went to school with her and she has always been the sweetest girl ever! Knowing she has to live with this is so sad but her parents are so amazing!

@ladyAI171 2 года назад

Hello my English is not good why she's always hungry

@dunyasalem8850 2 года назад

@@ladyAI171 she has a syndrome where it feels like she is starving all the time. Her body will never feel full no matter what she eats and it can be extremely dangerous to overeat especially when you don’t know when to stop.

@ladyAI171 2 года назад

@@dunyasalem8850 god

@emmettdonkeydoodle6230 2 года назад

@@ladyAI171 She has an illness that makes her hungry

@bluebahama6310 2 года назад

I also went to school with her when I was younger as well. She is a very sweet person

@rae3126 Год назад

I have an eating disorder, and sometimes going like, three days in a row with only 800 calories can feel like torture. The people around me haven't really experienced it, but when you're truly starving it deprives you of compassion, logical reasoning, comfort... Very painful. They seem like a loving, nurturing family. Reminds me of my own. 🙂

@susanferretti5781 Год назад

I hope you are getting help for your eating disorder. They are so difficult to live with. My heart is with you.

@CakeAndShake Год назад

What is the ED called?

@sparkle0859 Год назад

I have had an ED too but I don't think it's fair for us to compare our situation to hers. Choosing to starve oneself isn't the same as being born with a horrible genetic condition that makes you constantly hungry. We choose to be hungry, she doesn't.

@aarons6935 Год назад

No you haven't.

@aarons6935 Год назад

@@susanferretti5781 Never suggest psychiatric help, there is zerp benefit to it.

@driskey82 Год назад

Poor baby 💔. These parents are AMAZING and deserve a medal! I can’t imagine how hard it is for everyone involved 💔

@madhuvanig 7 месяцев назад

what a beautiful family with so much visible love and support.

@aplanefliesabove 2 года назад

Camille's parents seem awfully stable and calm. Kudos to them and the brothers for creating such a calming environment.

@brianakelley123 2 года назад

These parents are so mature and level headed and caring, so happy she’s got them!

@malloryknox1637 Год назад

Good on the parents for being so diligent in her care. Most with this condition are grossly over weight because its so hard to keep them from steeling food but this girls parents have done an amazing job putting in the real effort to care for their child correctly.

@aquarianonymous982 Год назад

This literally makes me want to cry, protect this girl at all costs

@Cacophony314 2 года назад

5:08 I've never met a dog that didn't want to go for a walk 😂. This young woman is a sweetheart, I really admire her strength.

@IDontKnow-pf6en 2 года назад

thats what i was thinking hahahahaha lazy pupper!

@dustin628 Год назад

Ikr! It's probably cold out lol

@Cacophony314 Год назад

@@dustin628- So true!

@Catitalaratoncita Год назад

I’m glad you haven’t met my aunts dog. My cousin is very lazy 😭

@lowbeam627 Год назад

They were recorded that as b roll so maybe they did so many takes that the dog didn’t feel like being brought outside and inside again. Or maybe it was just too interest in camermen being there

@jennyrose9173 2 года назад

One of my closest friends was born with this genetic disorder. I can’t imagine what she goes through on a daily basis. She’s a warrior for sure! One of the kindest most thoughtful loving people I know.

@rexuisus2802 2 года назад

Has she tried GLP1 Agonists? They can nearly eliminate hunger and are well tolerated in PWS patients.

@jennyrose9173 2 года назад

@@rexuisus2802 This is some thing that’s brand new that I have never heard of. I’ll have to talk to her mother and see if she’s heard of this.

@edubble5003 Год назад

Do amphetamines nor work? Or diet pills like phentermine? They reduce hunger very intensity

@rexuisus2802 Год назад

@@edubble5003 The issue with amphetamines is that they can have unintended side effects. Whereas diet pills are often not well tested on children for ethical reasons.

@edubble5003 Год назад

@@rexuisus2802 ohhh interesting I never thought about that. Thanks for replying

@MrSnapy1 7 месяцев назад

Bless her heart I once went almost three days without eating during ranger school. I couldn't imagine feeling that way all the time trust me true hunger is a powerful feeling.

@sheenagriffith2635 7 месяцев назад

I would like to tell kameel she is not her disorder. She is a smart, kind, loving persons with so much potential ahead of her. Stay strong and keep fighting. Parents are doing a great job.

@erieli7871 2 года назад

I worked in several prader willii group homes about 15 years ago when I first started working in the human services field. It is incredibly difficult and these parents have done an incredible job. I feel like this is one of the most difficult disabilities to deal with because of how much you have to keep an eye out for things and stay on top of everything. Not at the agency that I worked with, but at a separate agency, 2 individuals with pws passed away because they went home to visit their families for the holidays and snuck away with large amounts of food and ruptured their stomachs. I cannot imagine never being able to feel full after having a meal and that is literally what these individuals deal with on a constant basis

@missnellie33 2 года назад

That’s tragic. I can’t imagine what it must feel like to be compelled to continue eating until my stomach ruptured. Very sad. Devastating for the families, I’m sure.

@LaraOlina Год назад

but what I don't understand is, the people affected by this must know that if they eat too much they'll die? or is it because of their mental disabilities like the father said, that they don't realize what their actions would do to them?

@carbonationcryptid4996 Год назад

@@LaraOlina It's that they feel so hungry that it overrides everything else. Feeling like you're starving and wanting to do anything to get food is a basic survival instinct that has kept humans alive. With this syndrome though, there's no full feeling, so you eat and eat to try and stop the starvation feeling, but nothing works, and then eventually your stomach bursts.

@kittenmimi5326 Год назад

@@LaraOlina if you're like really really starving would you stop to care to think rationally? What they feel is probably more like "If I don't eat now I'll die"

@sparkle0859 Год назад

@@LaraOlina dang you clearly don't know what it's like to have extreme hunger

@Trag3dyInV3nus 2 года назад

I can only imagine how this poor girl must feel. She probably thinks about food a lot. She looks like such a sweet person.

@2000firegirl 2 года назад

Woman she is 23

@cameronschyuder9034 2 года назад

@@2000firegirl To be fair girl can be used for both adult and younger females. There's not the same leniency as with "boy." Although there are adult women who would not like being called girls and that should be respected; there are also adult women that do call themselves girls interchangeably with women (eg, "girls night out" instead of women's night out). This is more common for young adults in their late teens/twenties, though I've seen some older folks do the same

@dinthevoidalspeck2582 2 года назад

@@cameronschyuder9034 calling an adult woman is kinda patronising and saying ‘there’s less leniency with boy’ just show sexism, also it’s different when women call themselves girls cause y’know it’s themselves. I noticed you didn’t mention how men often have a ‘boys’ night out as well so not just women. Also you calling women ‘females’ made me cringe

@hawaii3231 2 года назад

@@dinthevoidalspeck2582 omg get over it. It’s perfectly normal to call a young woman a girl depending on the context. I’m a woman in my early twenties, a while ago I had a check up with a nurse and she told me my blood pressure was “too high for a girl my age”. I was not bothered, young women are often called girls.

@dinthevoidalspeck2582 2 года назад

@@hawaii3231 i’m just saying that when strangers call women girls it’s kinda disrespectful

@greeranelson Год назад

What wonderful parents, and her brothers too! I’m so glad she has such a supportive family.

@NarnoldsMomma 7 месяцев назад

It's really wonderful how they've came together as a family and helped Camille with her PWS diagnosis! I'm glad to see they've been able to keep her at a healthy weight even in her 20s!

@camarojai6832 2 года назад

That’s something to live by “yeah it’s going to be difficult, but it’s going to be ok”….these parents are so strong for their babies. S/n: the puppy was so comfortable on the sofa

@Kb-gh2rk 2 года назад

I cared for an individual with PWS for a number of years and it truly is a very complex syndrome and can teach you so much. Her parents seem incredible and she looks so healthy. I wish them nothing but the best.

@lraine9199 Год назад

Poor baby. 😢 My heart goes out to her & her family. Be great babygirl!!!!

@cristianchavez1699 6 месяцев назад

Camille, you are a beautiful person. I am so sorry you have to deal with this but remember that you are strong and have some very amazing people in your corner. Take care and keep going, you deserve everything you want in life.

@_dreamscape 2 года назад

The amount of pain she has to live with… tragic. And yet she still smiles and shows gratitude and grace. Bless her soul

@CandyGurll2004 2 года назад

Bless this family. This young lady is so well-spoken. Normally people who have this diagnosis have a hard time expressing themselves without anger or high unstable emotions. Well done mom and dad. ❤️

@fireriffs 2 года назад

The mood stabilizers probably help a lot too. My sister could have used that. PW made her get angry very easily.

@jessrose4301 Год назад

There was a boy in my class in high school with this disorder and his mom came and ate lunch with him every day. Unfortunately, he was bullied for this. Sometimes I really hate kids.