I like your kitchen. I also had a stroke, And I also live in Portland. Now.my name is Jack.I had my stroke at 58 and am now 64. Never thought I would make it this far.
Hi Allison, I have aphasia that came with my fibromyalgia. The fibro was a somewhat slow to start process finally leading to having to quit my job and go on disability. At some point during this I had several things happen that mimicked a stroke. After an MRI there was no indication of stroke just white matter they couldn't diagnose and calcification in arteries and degeneration of myelin sheath. That's what my doctor told me. The other things that happened at the same time besides aphasia were inability to type, write and read. There may have been a few others but basically these were noticed overnight. I can't find these problems with anything but a stroke, there doesn't seem to be any connection with fibromyalgia. The is an issue known as "fibro-fog" where you just have a fuzzy brain, confusion, memory and speaking problems along with the notorious fibro pain and fatigue. I have had a pretty severe car accident with a mild concussion, a few falls where I hit my head, but that's it. I've had another MRI scheduled by a neurologist that read the white matter is increasing and the degeneration is too, but still no sign of stroke. He wants to do a spinal tap to rule out MS. Right now I can't remember why I posted my story and issues. At first I didn't know there was something called aphasia, my doctor just said, "these kinds of things will happen with fibro". Well 7 years later and I hope more informed, I have good and bad days with the aphasia. I love the days when I can speak well, I have started a RU-vid channel for gardeners with disabilities. I have to wait for a goo aphasia day to be able to film, and then sometimes I just go ahead and do it. I have told my audience my issues, but only a few are like me, so most forget I spoke about what's going on with me. This is a long comment to read and I apologize. It has helped me extremely just getting this out to someone and of all the videos, we seem to be the closest in aphasia, not age; LOL. I am a grandma of 8 and somewhere in my 50's. I hope you continue to improve and seeing your video I know you will, you seem like one of the overcomer types and that's a good thing. Good luck in your future and your improvements, you're a sweet person. Take care, Kim Vigil, California
Thank you so much for the video! My speech difficulties are fairly minor, but significant for a priest who's trying to give sermons. Thus far, practice, practice, practice, and it seems to be working - sometimes. :) Thanks for the encouragement!
Hi Allison! I am currently in school becoming an SLP and have a client who has aphasia. I have been talking to my client about self-advocacy and letting people know he has a hard time communicating due to his stroke. I was wondering if you could create a video about your experience with self-advocacy, tips about telling people that you have aphasia, etc. Thanks!!
Hi Allison, I'm taking a class regarding aphasia. It is really impressive how much you have improved since your stroke. I would like to know what type of aphasia do you have?
Great question Samantha! When I first had my stroke my SLP (speech language pathologist) told me that I have anomic aphasia. Finding the right word is still hard for me, but I have gotten better. What I'm noticing currently is the past and present tense. Also the he/she.
When "AVM" happened tu me som uv my family dedn't let bbl tak pictures or recurd me, en I tutally wis dey wuld hav, I culd hav put det stuf in my youtube Project (dank gudnes un persun gav sum pic durin my coma)!!! Aphasia cen be so tuf wen u get lust en da words
