Living with Charles Bonnet syndrome | Nathan’s story

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Find the accessible version of this video here: • Living with Charles Bo...
In this video, Nathan tells us about being diagnosed with congenital glaucoma at a young age, how his eyesight deteriorated and what it was like when he started to experience hallucinations as a teenager. These hallucinations are symptoms of Charles Bonnet Syndrome (CBS). Nathan reached out to Guide Dogs and was able to talk to someone about what he was experiencing. He went on to receive our support and services and says that talking about his condition was the best thing he did.
If you’ve been diagnosed with uveitis and you’re looking for support to help you live actively, independently and well, Guide Dogs is here for you, every step of the way. We provide support for children, young people and adults. Visit our support page for more information on the different ways we can help you.
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If you’d like to speak to an expert who can provide information and advice for yourself, your child or a family member, call our Guide Line on 0800 781 1444
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Опубликовано:

13 сен 2024

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Комментарии : 22

@BlindGirlVlogs 2 года назад

I think hearing these encounters from the people who experience them are incredibly powerful. When I was losing my site I experienced very similar hallucinations and was Miss diagnosed with having a mental health crisis but actually it’s videos like this that raise awareness and educate people. to understand what the condition is and to be able to speak to other people going through similar experiences and issues. More content like this please. Thank you for sharing your story Nathan.

@GuideDogsYouTube 2 года назад

We wholeheartedly agree, Siobhan! We need to keep this conversation going and to help raise awareness about these life-changing conditions. Thank you for sharing about your experience so openly. ❤️

@blessedwindows 9 месяцев назад

Same😄

@BlindGirlVlogs 9 месяцев назад

@@blessedwindows Xx

@carriesewlike2267 2 года назад

Thanks for this. When my elderly mother first experienced this syndrome I didn't understand, thankfully I am learning and this is just the kind of material that needs to be out there.

@GuideDogsYouTube 2 года назад

You are so welcome, Carrie! Sending lots of love and support to you and your mother. ❤️

@d48248 2 года назад

Jeez going through similar issues with retina detachments and Aphakic glaucoma, don't know which scares me more total blindness or these hallucinations 😮😢

@GuideDogsYouTube 2 года назад

We're thinking of you, David ❤️

@BlindGirlVlogs 2 года назад

Hi David, thank you for sharing with us. As someone who had very limited site growing up and then lost all of my remaining vision at 16 it can be a very scary place but there is help and hope out there. There are also lots of different groups you can contact with people who are experiencing the same things you are and can support. Please reach out and chat to people. Take care of yourself. Siobhan and Guide Dogs Marty.

@d48248 2 года назад

@@BlindGirlVlogs I've been visually impaired all my life I'll be 54 next year. Went to specialist schools etc etc. But managed to have a normal life I guess. But now I'm unable to do my job and cross the road unless at a proper crossing and host of other facets of daily life being affected too. Its something I have to learn to accept I guess. Tha ha for you're words of support. Appreciated.

@d48248 2 года назад

@@GuideDogsRU-vid appreciated!👌😎

@BlindGirlVlogs 2 года назад

@@d48248 David, you are very welcome. I think it’s a difficult one because visual impairment affects everyone differently and not one size fits all. I completely understand where you are coming from with regards to various aspects of life, it can be quite challenging. I wish you all the best and definitely value your words to.

@Mulvers 2 года назад

Oh wow...

@GuideDogsYouTube 2 года назад

Thank you for watching, Jak. Nathan is incredible for sharing his story.

@daniela.m.d7655 Год назад

I got a centrum point but everything around it looks like im in a trip. Super weird glad im not the only one.

@GuideDogsYouTube Год назад

Hi Daniela, please give us a call (between 9am and 5pm, Monday to Friday) and speak to someone from Guide Dogs who understands what you're going through on 0800 781 1444. A member of our team would be more than happy to discuss how we can support you.