Living With Chronic Fatigue Syndrome (CFS/ME) - 11 Years Since First Symptoms 

haha wow what happened at the end. i hate editing software. rip me. what the ending is supposed to say: "but just be aware that they may need to take more breaks, they might be out of breath, just please don't call them "unfit" or "lazy", it's very very hurtful. anyway, thank you so much for watching, i will be back soon with more videos hopefully. let me know what you would like to see in the comments and as always guys i shall catch you later."

She finally named the McRestauraunt that she previously couldn't name for certain McLegal McReasons

It's been a long ass time since I've watched emma, idk why

I remember watching your original CFS video and commenting something about how I might have CFS even though I also have depression. it turns out I have lyme disease! that video definitely helped me keep pushing for a diagnosis. I just had a feeling that something was off. thank you emma.

I have CFS too, early diagnoses (being a young child) and it’s just kinda comforting to see someone with a platform talking about it. I’m 20 and still struggle with it despite having it for like 17 years. Thank you for spreading some sort of awareness about this illness 🖤

Tell your partner that we think he's amazing, God bless him, sending you tons of good vibes Emma ❤️

My mum has ME and it’s hard to watch someone change so much. 10 years ago she was able to go out cycling with us, worked 16 hours a day and took us on day trips all the time but now she is in the house 24/7. When she goes out she can barely stay out 3/4 hours without being knackered. Very hard to watch!

I've had depression-related fatigue since middle school, so I relate with you a great deal. It's the one symptom that doesn't seem to be helped by medication or anything that (apparently) helps other people (healthy eating, exercise, sunshine, bedtimes, etc.). My doctor basically told me I just had to live with it. It's really hard, especially when my day job is not what I want to be doing with my life, but I need it for money and I have no energy outside of it to work on my career goals.

wow I can totally relate! I was diagnosed with chronic lyme disease when I was 18 years old. same exact symptoms. I had to drop out of college. I lost all of my friends because no one could really understand what I was going through. At the time I felt like my life was falling apart. However now at 24 I am happy that I have learned so much about my body and myself. We are Warriors!! we can do this :)

TIP: Say "developed it" instead of "contracted it. :) (That's what I say about my Type 1 Diabetes).

I hate how some people are like You don’t have anything your just being lazy, I used to fall asleep in school it was embarrassing the teachers thought I was faking to try and be funny and told me of constantly and even my friends who knew about what I had thought I was being lazy and even my own parents when they tell me to get up and be productive and stop being lazy they don’t realise that I would if I could I had change schools because I was embarrassed that people had seen me fall asleep I was the sleepy girl I left school early on many days throughout the week all sorts of things walking up stairs makes me tired it’s good to know someone I love watching I has this and can relate

you’re genuinely one of the most honest genuine people on the internet and you deserve so much more appreciation 🥺

I'm so glad you have a partner who helps you so much. Knowing someone has your back like that would be such a comfort. He's a good egg.

No way! I was JUST checking an hour ago if u posted something new, in case I missed or didn't get notification, felt it by my heart, love you

Emma! It's really important call it ME or myalgic Encephalomyalitis (I know it's a pain). Part of the reason the illness is so stigmatized is because of the name "chronic fatigue". It makes people say "Yea I get tired a lot too" which then leads to people thinking we exaggerate our symptoms. Fatigue is certainly PART of it, but post exertional malaise, severe pain, debilitating cognitive issues, and sometimes FULL immobilization. That being said, I'm so glad a bigger youtuber like you talk about ME and get the word out. I was diagnosed last year but have had symptoms since 2017 after a really bad bout of mono. I was also fully vegan and working out 6-7 times a week (mostly cross fit and weight training for hours at a time) and I just got worse and worse until I couldn't move and was bedridden for nearly a year. I'm getting "better" but I can't exercise, I've just recently started being able to sit upright for an hour at a time but I need to rest after and I can't clean, cook or walk for more than 10-20 min (absolute max). It's REALLY hard and I'm proud of you for hanging in there. Also, if anyone wants to know about it the movie "Unrest" on Netflix is extremely informative, and may even help people out there with finding out what a family member or friend may be suffering from, without knowing what is going on! ❤

I've had CFS/ME since my young teens and I still remember seeing your first video about it. It made me feel so much better knowing someone with a large audience was talking about it. It also helps to see you have still managed to achieve everything you have and not let it stop you.

I've had anxiety my whole life, and when I was around 13-14, I started suffering with depression. Those two things together, and all the stress they've put on my body and mind, have caused me to suffer from CFS. I'm 23 in September. It's so dibilitating. I love that someone with as many eyes on them is actually talking about it. Thank you, Emma. This is so relatable for me, because people just don't understand CFS, and to hear someone talk about it so cadidly, and talk about so many of the things that I put myself down for on a daily basis.

As a cfs sufferer I love seeing you talk about it. We have so little representation. I’m really glad that you are gradually improving.

I got CFS after a reaction to going under anaesthetic after an operation, I was diagnosed a year later - I’m at about 55% well but my energy levels are increasing! I’ve started my RU-vid to help spread awareness for CFS. Thankyou for using your platform for our needs, it helps us not feel alone 💖

As someone who struggled with CFS for 15 years, and had amazing parents who fought tooth and nail for me back when it wasn't as widely recognized, I just want to say thank you for talking so openly and honestly about the condition. A lot of people still don't know about it or understand it so it makes me happy to see the attention you've helped bring to it. All the best, keep fighting, it does get better like with me

Well done you for getting the energy to talk about it! My husband has FMS and often struggles with the brain fog brought to explain. Just look after yourself Emma. Always sending love to you. I love how happy you are in yourself- much love to Davey too! ❤️

me: ooo a *new* video patreon: lol u thought-

Thank you for releasing this video, I remember watching your original CFS video years ago. Recently I’ve read several reports of “recovered” covid patients developing CFS/ME. The information/journey you’ve had documenting this illness is very valuable to both new patients and those around them trying to understand the chronic illness. Hopefully the new diagnoses will also lead to further research into CFS due to the increased awareness. I had never heard of allergic reactions causing CFS though I do not doubt you; I did also read that from 7%-13% of people who contract infectious mononucleosis or Glandular fever end up developing CFS which is a terrifying statistic. I hope more research is done on penicillin reactions soon as well since a good amount of CFS sufferers reported symptoms appearing post-allergic reaction to the medication. Thank you for this video and your insight Emma

I was diagnosed when I was 16, I'm now 24 and I relate to this video very much and you sum up our struggles so well, thank you for that! Hope you're doing well at the moment☺

I have CFS (11 years diagnosed) and Fibromyalgia (7 years) and honestly heard it all "lazy" "You just need more sleep" "You need less sleep!" "Wish I could laze about in bed all day sleeping!" "it's alright for some!" "I'd love to not work!" Actually makes me scream, especially the work part - I did work with CFS, which led to another illness which then resulted in having Fibro too, so now I cannot work a normal job because I'm not reliable. I can't tell you how I'm going to feel in ten minutes, never-mind commit to a job - even part time! "You have to work 10-2 on Friday!" ... Friday rolls around and I'm still asleep in bed because my body hasn't heard the alarm and I need to sleep. I have had alright GP's but when I went to the pain specialist he straight away judged by appearance. Didn't say a word to me, didn't let me speak just straight away "DIET AND EXERCISE!" Up until a few years ago I was eating mostly a vegan diet - I am now allergic to raw fruit, veggies and nuts, where back then that's mostly what I ate. My diet, okay it could have been better with the right fats, protein etc but it was pretty healthy. My pain and fatigue never changed. I did exercise, which is HELL! Straight up hell when you're in ridiculous amounts of pain every single moment of every single day, I continued it because I was told "It'll hurt at first but your body will get used to it!" - it never did, it was much worse, in fact I went into a flare up and was in bed for MONTHS afterwards. Diet and exercise may help some which is great but I hate that that is the first thing people (Not just medical professionals) think. I'm not the thinnest person out there (Allergic to all the healthy foods and also have coeliac disease and GF food is disgusting for fat and sugar), but I have been thinner, I have exercised, I have eaten healthy, the pain and fatigue I get from those two conditions are no worse now that I am bigger, my diet is unfortunately unhealthier and I can't do more than a 100 steps at a time because PAIN! It's just the same, so I'm made up if these changes DO help people feel better but I wish others wouldn't judge and assume they know. Especially doctors who judge you as you walk through the door, instead of listening.

I got diagnosed with IBS around the same time you posted your earlier video about having CFS and seeing you improve and achieve great things despite your struggles gave me so much hope that it would also get better for me. Five years later and I'm now in my 2nd year of uni despite almost failing high school because of my illness and my symptoms have improved so much. So thank you for being so open about your struggles and giving others hope that it does get better and that struggling with an illness isn't the end of the world.

I remember watching your first video about it, and going to my doctor afterwards, because I had the same symptoms since 2014. But he couldn't find what was wrong. For anyone thinking about going to the doctor because of fatigue, please remember to tell them about ALL of your symptoms at the same time, if you have other. I had symptoms I was a embarrased about, and didn't think had anything to do with my fatigue (cataplexy and hallucinations), which was why my doctor didn't know what was wrong. I finally went to a neurologist in 2018, and they could quickly diagnose me with narcolepsy type 1. There are medicin and lifestyle changes that might be able to help to some extent (unfortunately I didn't react well to any of the medicine).

I have interstitial cystitis which basically means I get “attacks” of symptoms of a very severe bladder and kidney infection (with no actual bacterial infection) sometimes for months at a time. It comes on so quickly that I can be sat at my desk right as rain one minute and the next I am doubled over in pain and need to get someone to drive me home. It took me 3 years and as many specialists to get a diagnosis which is relatively short compared to some other people (one doctor told me it was normal for women to feel pain and it was because I was sexually active). Because a lot of people don’t know about it and you can’t physically see it I do feel that people think I am faking my symptoms even though it means that sometimes I will literally spend days going between the bath and the toilet or I have even tried to alleviate the pain to the point where I have had actual burns on my abdomen from hot water bottles. It’s so great to hear you speak about your experience with an invisible illness as I know so many people that suffer and I think the more people that talk about it openly the more people are aware and can start to understand. Also the worst thing people say when I get an attack is “you need to drink more water/have you tried drinking cranberry juice” like I have suffered with this now for 9 years of course I have 😂

My mum has chronic fatigue syndrome and it’s definitely real and exhausting. You’re doing great!

Meanwhile in the land of insomnia, it can take me anywhere between 2-4 hours to fall asleep... Glad to hear it's getting better, energy-related disorders are no joke!

its crazy you still seem so happy and energetic in your videos. i would've never noticed.

So happy you’re doing better. There’s definitely a noticeable difference, you seem much happier with your partner and life in general. Wishing you all the best. 💓

I saw your original video in 2015, when I was 11. Now I’m 17 with a fresh CFS/POTS diagnosis after suffering for 2 years after traumatic events. I spent those 2 years beating myself up for sleeping all the time and failing school from memory loss. I remember you saying how you just though you were lazy, I resonate with it so much. All I can say is thank you. This gives me hope.

Thank you for talking about this! As someone else with CFS I really appreciate you spreading the word about it.

So lovely to hear that Davey has learned the signs to look after you ❤ I'm glad you have found ways to manage things a bit. I can't believe your original video was so long ago!

I hope science and medicine can learn and study more about this to help more people. I am a nurse and see people going though crisis when having worst CFS, it is so disheartening knowing there's nothing I can do to help. Which is my job. So I just sit and listen, so they can unload a bit. Make tea too, it's a British way to help anything. :)

I have CFS too. Got diagnosed last year. My brother has had it for years and had to drop out of school, I'm struggling to go myself. It's comforting to see someone that I look up to talk about this topic! Love you Emma!

Thank you so much for making this video. I am currently in the long process of being diagnosed, I am 24 and have been having symptoms since I was 17. I can never talk to anyone about it because they don’t believe it’s real - including doctors or people telling me they’re tired too. It’s so frustrating. It’s nice to know I’m not alone x

My mum has CFS since she was in her 20’s after having glandular fever. Doctors are so dismissive of it still and don’t believe it is an actual disease. I had glandular fever when I was 22 and it has taken me a long time to start to feel normal again and I do worry I have CFS. Just got to pass things and not over push myself. Brain fog is horrible but I find meditation helps a lot. Hope a lot more research is done and it is more talked about. Thank you Emma for talking about it. Stay strong xx

I remember an older video of yours I watched about CFS and after watching, I did some research into it because I had never heard of it before that video. I can't remember the name of it unfortunately but you are the reason why I was able to get an answer as to what is wrong with me. It was 2011 when I first developed symptoms and it wasn't until 2015 that I actually was able to see a doctor and get it diagnosed. So it's a bit late but thank you for making videos on CFS and what it actually is and even just letting people know that it exists! Even if you don't end up seeing this comment I feel better for having posted it :D

Yes, my husband notices when my "face falls down" and he often sends me to rest. I'm so grateful we have a 🚐RVan, so I can sleep in the back on our way for trips. Staying home all the time leads to depression cause there's no variety.

It’s been so long since I watched Emma, but I remember being diagnosed with CFS at age 15 and feeling a little less alone when watching Emma’s videos. I nearly got my Villains CD signed by Emma at an HMV store but I had a massive sleep attack and had to leave. Three years on and I’ve been diagnosed with narcolepsy, I still listen to Emma’s music and can’t wait to start watching again 💖

This is very interesting! Thank you for opening up and telling us about it. I hope it gets better for you!

It was your first ME/CFS video that made me think OH WOW! and everything I had felt for the year before made sense! I’ve now been diagnosed 4 years and I’m doing a lot better but it’s 100% all about know what triggers it so you can stay away from it 🖤 if it hadn’t been for your video I wouldn’t have asked my GP the question

01:06 "can't take penicillin, or i'll come out in a rash"

Thank you for continuing to share your journey, it's been very interested to follow for all these years. I also get brain fog so it's comforting to know I'm not the only one. I'm glad you're feeling a little better these days 💖

I have M.E and watched this with my partner. I think it was really useful for him to hear someone else (someone he has watched in RU-vid for some time) describe things I have tried to explain myself, but in a much better way 🤣 getting into a relationship with health problems can be so scary, whilst I want to maintain as much of my independence as possible, there are times I do need some support, even if it is emotional. I think he now gets how much feeling understood with an invisible illness means and whilst we have a way to go, this has really helped explain more of the emotional impact of being ill, that I was struggling to get across myself. Thank you 😊

While exactly the same it is highly related. I have had fibromyalgia since I was 14 after a late lyme disease diagnosis. For several years it was unknown why I was always so tired and constantly in pain for no reason. I am 27 now and I completely understand. It is hard to explain why you are so tired from basic tasks or even doing nothing to others. I completely understand the struggle and no it can be rough. Remember though, stay strong and you got this!!!

I have CFS. Will have had it for 10 years this August. Mine was caused by the contraceptive pill. It knocked my immune system right down and I came out of it with CFS and a load of food intolerances. I'm nowhere near as bad as I was 10 years ago but I still need to sleep 8+ hours to function and still regularly need a nap if I can. I work in theatre and when we have to do 60+ hour work weeks I've noticed I crash harder than my team and I don't get my energy back in the same way that they do after a good nights sleep. I keep forgetting that the reason for that is my CFS! I really appreciate you speaking out about CFS and bringing more attention to it.

Brain fog is awful. Mine has been horrendous today. I cant work any more than 14 hours a week as I'm in so much pain and have so much fatigue. When in a flare I can barely walk

Thank you so much for making updates on this Emma. It really brings me great comfort to know I'm not alone with this condition and hearing someone else talk about it just as I feel, it really helps. Sometimes I can feel so alone with it I start to question myself and what I'm going through, then when I hear someone like you in the present talking about it it brings me back to the reality that it's not just me and it's real. I don't know if anyone else here feels like that? I really hope you continue to make more content about it if you can. Xx wishing you lots of big energy days :)

The connection isn’t with the penicillin reaction. It’s the Glandular Fever. That is the reason you have CFS. Me as well.

Just wanted to say what a kind, lovely voice you have. Great video that made me feel less alone

i've wondered how you were coping with cfs since the last vid. I have M.E, i've had symptoms for 7 years since i was about 13 and 4 years since i was diagnosed, 2 days after my 16th birthday. I have really down days thinking it's never going to go away. Yet i have also seen people around me improve so much with the illness. Wishing you all the best, from a fellow cfs/m.e sufferer

I've had chronic fatigue for a few years, and I'm only young. It's really hard, and watching this really helps, thank you. The mind fog and feeling like your body is going to collapse is daunting, its horrible. I'm also so sick of hearing, "You're lazy!" and "you need to get more sleep at night!" and something I hear alot, "Eat better and get some exercise!" it's all bs, that does not work. Chronic fatigue is not that, it, well, chronic fatigue.

I have suffered myself for 2 and half years, I feel you! ❤️

You have Chronic fatigue too I had no idea I’m 11 and it’s really nice to just know that someone I watch a lot has it to, I’m on a really good schedule right now

My wife also has CFS (and now fibromyalgia, which is related), since (guess what) she had glandular fever and was given amoxicillin because *the doctor didn’t think it could be glandular fever, because she was ‘too old’*. She was 40 at the time. And the kicker - you should apparently never have antibiotics like amoxicillin with glandular fever, because it has a bad effect on spleen and liver. My wife ended up losing her job (she was a psychology teacher) due to a management that couldn’t conceive of long term injuries (unless they were sporting related), and has struggled with mental health difficulties (admittedly only partly due to the CFS) ever since. All this to say - I sympathise with your struggles - they are real, but are too often dismissed by people, doctors included, because there are no measurable symptoms. In many ways, the average reaction to CFS is similar to the reaction to mental health problems, because there’s nothing obvious and visible to see. Hope your condition improves - 🤞for you that it does.

Thank you for being open about your struggles. The more visibility that CFS/ME has, the better. Mine is moderate, but I also have some pretty nasty comorbid conditions which make me quite a bit more disabled. It does look, slowly, that doctors are learning more and more about it - but there's still the struggle with it of even being believed in the first place. I don't think able-bodied people can really even conceptualize the concept of being ill *all the time*. They don't know how it feels, and I guess as a result, some just assume you must be lying. p.s. what you refer to as a 'fatigue attack' is usually called a 'crash' by the community, as far as I am aware :)

You are a warrior. It’s so hard to live with this disease. I only have long covid for 6 months now and it feels like forever.

I'm 14, my mum reckons I had glandular fever (missed the window to get it diagnosed). But I ended up in A&E twice in one week with what my doctors said was tonsillitis. I had to take a whole month off school because of how bad it was. I couldn't eat, drink, speak or do anything without hurting or feeling tired. When I recovered, I returned to school. Only for three days until I crashed and had to take another month off. I took a blood test two days ago (as of typing this) and I've taken nearly a week off because of how much I had done. My mum tries her best to understand, but only sees it as a problem when I've gone out. Only two friends know as they had to bring me to A&E the first time. This video has given me so much hope, thank you so much :)

Honestly, I had never heard of this condition at all! Thank you so much for taking the time to educate us about it.

I have a friend who developed CFS after having an allergic reaction to amoxicillin when she had Scarlett Fever. She had to go to a school for disabled or troubled kids since she could only stay awake up to 4 hours at a time. She's working towards a degree in accounting now at a college in Wales. I'm so proud of her for standing up for herself against the tutors there who insisted that she wouldn't be able to do it bc of her CFS. She's doing so much better now than when we first met 5 or 6 years ago.

I have fibromyalgia and suspected CFS/ME, I feel this so much. The tired never goes away, no matter how much you sleep

i was diagnosed when I was 9 years old and I struggled so hard with it - still do to a certain extent. I remember watching your video on your experience and feeling so validated and accepted :) thank you emma

I've been two years atleast since my first symptoms of CFS. I certainly had much worse days when the symptoms began but thankfully I'm appreciative of people like you who talk about their experiences and I can relate and feel less alone with this condition that even still, my parents don't understand. I'm thankful for your first video you made as it meant I knew what it was when I started recognising my symptoms

Thank you so much for making this and talking about it, I've had it since just turning seventeen and am now twenty it's so hard to talk about and explain what it's like 💙

I'm so happy to hear you're getting better with your disease. And I can't imagine what you have to come through to manage all things related to your music career. You are a good example showing that anything's possible, everything is in your hands and you just have to work harder. Thank you for sharing your experience, I think it's very important for people and especially for those who might have same symptoms of the disease.

Your original cfs video made me aware of it and was like a revelation to me! I had an allergic reaction to hair dye (face swelled up like yours) and that’s when mine started. It blew my mind and I’m so grateful for you uploading that I was diagnosed at 16 I’m now 20. It was a revelation to me and my family and changed my life and it’s because of your video so thank you

Dennis DeYoung of the band Styx contacted CFS after battling a bad viral infection that later led to a disorder that affected his trigeminal nerve that made him sensitive to light and sound. The issues got so bad that he had to stop touring for years. DeYoung did gradually recover and is back touring with his own band. I know of a few people that got CFS through a viral infection and it took them years to get anywhere near the state before the virus and they still have times when it just hits them, though they get rarer as time goes on. I hope you recover.

Thanks for making this video and letting us know how you’re continuing to deal with this! I also wanna say that I’m so glad you have such an understanding and caring partner. I’m sure that makes the hard days actually manageable.

I hope you'll be okay 💗 take good care and sleep a lot 💕 you're amazing, sending loads of energy from France ❤️❤️❤️

That abrupt ending triggered my OCD 🤣 Love the video though, great message and looking forward to seeing more.

I don’t know if you’ll see this, but a while back I asked my school library if they could get your book in, and they have, your book is available in our school library!

I am so happy for you that your symptoms are improving over time, it's honestly great to hear someone with some influence talk about this illness. I got diagnosed after the same problem as yourself, had glandular fever and then a reaction to penicillin. Would be great to hear about how you handle your symptoms etc, I know it's different for everyone else but I know others with this condition also like hearing about how others handle it. The area I am from has a chronic fatigue support group which is so helpful but we cannot meet right now due to the pandemic. Like yourself, I am glad more research is being done finally. I was diagnosed in 2015 after having symptoms since 2013, it all started just before my GCSE's, passed luckily, but then got asked to leave the A-level course I was on due to my health. Having a partner who understands is a blessing too! I was unlucky to have my CFS creep up on me on our wedding day, so I had to leave our own reception early which sucked but most people understood.

when i first saw your video back in 2015 i immediately thought “that’s how i feel” but i had depression and didn’t want to think that it was the same. now, five years later, i’m in a much better place in terms of my depression but am still unfocused, exhausted, and generally worse physically than i should be given my mental state and the exercise i do. i’m gonna go to my doctor soon to talk to her about it 💕

wait oh my gosh?? i had an allergic reaction to amoxicillin years ago, and after that i had years of awful mental and physical health. i eventually got diagnosed with lyme disease, but even after i received treatment for it and mostly recovered, i have often still felt constantly fatigued and brain fogged. lyme disease often causes fatigue and brain fog, so i thought it might have turned into chronic lyme, but hearing about your experience makes me wonder if somehow the combination of my allergic reaction and lyme disease is something to look at. thank you for sharing your experience, emma!!

Hi Emma! I'm in the process of trying to get a diagnosis. Researching and clicked on this video thinking you looked really familiar. Then, I remembered the video you did with Barry & Ashens, the odd food combos. I think there were others, too just don't remember for sure. These videos are really helpful to those of us still struggling with this, but trying to get someone to officially recognize and name it! Thank you

I have multiple medical conditions that cause fatigue, so I'm exhausted almost all the time and, like you, can fall asleep at a moment's notice no problem, but doctors here in the US refuse to label it any kind of disability, so companies won't make accommodations for me, and I'm too tired to fight it. I just end up quitting jobs a lot because I'm too exhausted to keep going. I'm actually behind on my RU-vid viewing because I've been sleeping so much lately. :P Thanks for the update! I don't have CFS, but I have a lot of other crap (including a penicillin allergy, oddly enough), so I understand in my own way how you feel, Emma. I'm glad you're feeling better right now, and I hope that continues for you.

For me I contracted glandular fever at the age of 21, I just never recovered from the extreme fatigue. On top of that I got a whole list of new symptoms which left me unable to function properly at all. I knew I had M.E, I knew it. After dozens and dozens of blood tests and check ups and referrals I was finally officially diagnosed with M.E at the age of 25, just a few months ago. It's nice to have the confirmation and validation of a diagnosis, but it's bittersweet. I had a very bad day yesterday. Very very bad day.

we love you emma! you have come very far through the years and even if u think u have no one you have us. bad days are pretty shitty but you have got to have the bad days to have good days. thank you for being an inspiration to me and i love you and i will always love u and i will always watch you and support u as best i can. x

This first video really helped me realize my problem with chronic fatigue and my eventual diagnosis with EDS. It was so frustrating bc I didn’t understand why I felt like this but you helped me understand and feel better about my symptoms.

i have it too, i was diagnosed at about 13 and im 17 now. my mum has had it since i was really little so they think its genetic. it sucks and we are both still battling with it. im glad somebody is speaking out and spreading awareness. ❤️

Funny enough I contacted glandular fever 10 years and after that I've never been the same. I literally can sleep for England. I'm permanently knackered and struggle to do the things I used to do. Thank you for sharing your story xx

Also oh my god That brain fog thing Jesus I've had that since I was so young And the eyes oh my god My eyes literally go grey and green and my skin especially my hands will lose colour when I get fatigued I hate it I look ill

My Girlfriend developed CFS as an after effect of glandular fever about 2,5 years ago when we were together for 1 month. It's way better in the last weeks than at the start. I try to help her as much as possible and be the best man I can be to make sure she can rest. But It was quite a journey for me to. I love this girl.

The actuall cause of my CFS is kind of unknown. But it got bad when I was 16 or so. Your video actually helped me towards diagnosis years ago. I saw it and brought it up to my doctor at the time and it started a health investigation for me that we found CFS to be a very logical explanation for. 5 years later, I am drained and sad that this will never leave me. The state I live in and the lawyers I've had have been no help with getting me disability for my CFS and many other things I struggle with daily. its very nice seeing you though, still kicking and creating content even 11 users in. Gives me a lil hope that I can keep it up

Thank you so much for sharing! I have been having daily health issues for now almost a year, and it's so difficult to deal with something everyday, that is out of your control. And it can feel so alone to deal with something like this. Wishing you a full recovery!

Haven't watched your videos for absolutely years but for whatever reason I stayed subbed. Always supported your career Emma, just fell out of watching youtube. I was diagnosed with fibromyalgia at the start of this month - June 2020. This has been a long waited diagnosis but having something that can't be fixed or cured is heartbreaking. I'm trying to remain positive but it's so difficult having an invisible illness. It's exhausting just dealing with the fact you can't do everything you wanted to do that day or you have to cancel plans and let everyone down again - I try not to make plans in the first place unless I know I can rest afterwards so even if I push myself to go, I can come home and not need to do anything else for the day

I’ve had chronic migraines for about 12 years now so I totally get this. It sucks to have to cancel last minute, but it’s definitely shown me who my real friends are. Glad to hear you’re improving :)

Thank you for speaking for me!!! Your video is so helpful to send to my family

Thanks for still talking about this. I have CFS and fibromyalgia. I was diagnosed 6 years ago. Been suffering with cfs symptoms for as long as I can remember but from getting glandular fever aged 19 plus strep throat, I also got given amoxicillin in a BIG dose and I had a reaction to it, it makes me very poorly. From this my fatigue got HORRIFIC and I kept thinking it was other things. I then got a severe kidney infection 6 years ago and was very ill. Amoxicillin given and got really sick from it, again. It was actually your initial video which helped me get diagnosed!

Omg mine started after an allergic reaction to penicillin! I never knew this was a thing. Wow. I've had it 3 years now. I also moved onto eating meat as well because my body demanded it. Wow, I'm so glad I've found your channel. x

thank you for talking about this emma

It's so good that your partner is able to tell when things are going to get bad for you! I'm glad you have him to help 💜

I have had cfs since they think I was 10 yen from my heart condition I’ve lived with all me life, Utd so hard to explainenleik saying I’m tired and people saying your lazy and if you don’t rest you end up in so much pain and just can’t even shower without going on oxygen, having to stop Shen your walking up the street. Thanks you so much for marking a video and spreading the word so more people will understand x

Oh my gosh! I was diagnosed when I was 9 and it wasnt well known at all. Now 5 years later, with mainly POTS symtoms, it's so nice to see more information (for lack of a better word) out there. Espessially by someone well known. Thank you 💕

I literally can wake up, be awake for 2/3 hours and feel so tired I could pass out and can sleep up to 5 hours at a time. I got out on iron tablets years ago and have done nothing. Changed my diet done nothing. Stopped smoking. Done nothing. My sleep is horrific. I have constant brain fog, can’t concentrate, terrible memory. Headaches etc the list goes on and I don’t know what’s wrong with me? I will go out for a couple of hours and have to come back and sleep for hours.

Aww ur boyfriend sound the absolute best that makes me so happy

This is so, so helpful and informative. So appreciate this Emma!