"the only thing we are faking is being well" that hit me so hard. i have been pretending and fighting against my body so hard for so long that i feel like i am just withering away
That hit me too, because you look well, people assume you are well. Not that you want sympathy, you just want a little understanding. As we aren’t reliable, it’s hard to plan outings and appointment of any kind. I don’t make morning appointments, as the pain effects my sleep. You just have to take it one day at a time, and do what you can.
@@wendyhannan2454 I am starting to look real unwell = lack of sleep, social interaction, Sunshine, movement/exercise and brain-fog. Sometimes I have to check numerous time per day what Day, month or even year it is. 🤨
It’s expensive to have this condition - that’s a powerful and vert true statement! I feel trapped in a body that doesn’t work and it’s a daily mental struggle that takes a lot of effort just to keep going and not give up. Gentle hugs to everyone dealing with this condition x
Hello Victoria. Thanks for your comment and sorry to hear you’re struggling. If you would like any support or advice do get in touch: www.versusarthritis.org/get-help/ We’re here to help.
betrayal of #Children the modus operandi of capitalism bloodthirst for money is the cause of #Fibromyalgia so money cannot resolve the misery. Free healthcare for free for eternity will certainly free you from #Fibromyalgia torment torture traumatization myofascial metastatic ligament Neuro-Muscular cancer. #Fibromyalgia Self-Help Cure Recipe: Sleep Yoga SWIFF TLC R&R DIYAcupuncture + Mental Health 7s, Marijuana Magnesium Lithium SSRIs SNRIs Tricyclics Antiseizure disappears like #Fibromyalgia chronic pain myofascial syndrome was never there.
I’m 62 and I have fibromyalgia. I got diagnosed when I was in my 20’s after it got triggered by a car accident. I have lived with the constant crushing pain since then. I AM NOT crazy and it’s not all in my head.
know what i say when people say it is all in your head? "Well of course it is, it is in our brain our brain i sending false pain signals.. everything in the human body when it comes to pain is just in your head, how ever it does not make the pain any easier"
To all the women and few men suffering from fibromyalgia please don’t give up and remain hopeful that you can find ways to understand triggers and flare-up’s to better help manage your symptoms.I have been living with it for about three/four years now. I have lost my career as a nurse due to this debilitating condition. Fortunately I’am blessed to still have both my mom and dad to help me when I cannot get out of bed for week’s on. God bless all of you.
I was diagnosed with Fibro for over 25 years. I had the test in the Doctors office with the pressure points etc. Since I went Carnivore and got rid of all the carbs, sugar, frankenfoods, it is gone. No more pain, nor more fatigue, no more brain fog, memory etc. No more Gerd. No more high BP or BS. I sleep so good now I am even off my cpap. And if I had any doubts, all I have to do is fall off my Strict ketovore diet (mushrooms, avocado, garlic and onions are ok) and eat potatoes or veggies or chips and I am hurting all over again. So this is not just a one time thing. The last 8 months I have cured my fibromyalgia with a carnivore diet. Thank you Dr. Ken Berry. Thank you PHD community. Thank you Dr. Chaffee. Thank you Dr. Baker.
I also have it. I cut back on sugar and eat healthier and lots of water everyday with easy exercise and I feel less of all the symptoms! I’m 59 and doing much better..
I have all the symptoms that just recently appeared. I have not been diagnosed with fibromyalgia yet... I don't eat a lot of sugar. I eat healthy and always drink lots of water. I walk regularly. I don't understand why these symptoms started
I am 31 and I just have been diagnosed with fibromyalgia. With males it's less as common. I have lots of the same issues. How easy my body gets sore, I get very fatigued. Just doing normal activities. I get what I call ,tired headaches. And some days just feel like I am in a fog, and can't think the best. Not everyday is like this, but when I do feel good. It's easy to overdo things to make up for lost time.
Basically you go through all kinds of blood test. And when the doctors can't figure it out ,and you have the same symptoms. For a while. Finally they will agree.If you have fibromyalgia. There is no definitive test for fibromyalgia. It's a long drawn out process. I hope you don't have it, and you get better. Being healthy is a true blessing!
One solution I’ve found effective for fibromyalgia and a ton of other conditions is Bemer vascular therapy. I’ve been distributing medical devices for 15 years and this is the first I’ve seen that helps at the root level, the blood flow and toxin elimination. Eating right can help eliminate toxic buildup, however. If you don’t want to stop eating the foods you love, increasing blood flow and lymphatic draining by 30% will do the same. PEMF technology is incredible, it’s Star Trek healing L😆L Albert Einstein said "Future Medicine will be the Medicine of Frequencies" This quote is ringing through loudly now with Radiation therapy, X-ray machines, Magnetic Resonance Imaging (MRI) PET and CT scans, and ultrasound have all become commonplace and all fundamentally harness the power of different types of waves and their specific frequencies that occur in nature. Bemer has been studied extensively and found to increase the ATP of the cells by 20%, creating energy at the source of the cells mitochondria itself, no need for coffee, drugs, or anything else. No need to suffer any longer, if anyone wants help getting a hold of a bemer to try, I’m happy to help. 513-828-2277
@@AutomaticDuck300 One solution I’ve found effective for fibromyalgia and a ton of other conditions is Bemer vascular therapy. I’ve been distributing medical devices for 15 years and this is the first I’ve seen that helps at the root level, the blood flow and toxin elimination. Eating right can help eliminate toxic buildup, however. If you don’t want to stop eating the foods you love, increasing blood flow and lymphatic draining by 30% will do the same. PEMF technology is incredible, it’s Star Trek healing L😆L Albert Einstein said "Future Medicine will be the Medicine of Frequencies" This quote is ringing through loudly now with Radiation therapy, X-ray machines, Magnetic Resonance Imaging (MRI) PET and CT scans, and ultrasound have all become commonplace and all fundamentally harness the power of different types of waves and their specific frequencies that occur in nature. Bemer has been studied extensively and found to increase the ATP of the cells by 20%, creating energy at the source of the cells mitochondria itself, no need for coffee, drugs, or anything else. No need to suffer any longer, if anyone wants help getting a hold of a bemer to try, I’m happy to help. 513-828-2277
@@devindestafeno7869 One solution I’ve found effective for fibromyalgia and a ton of other conditions is Bemer vascular therapy. I’ve been distributing medical devices for 15 years and this is the first I’ve seen that helps at the root level, the blood flow and toxin elimination. Eating right can help eliminate toxic buildup, however. If you don’t want to stop eating the foods you love, increasing blood flow and lymphatic draining by 30% will do the same. PEMF technology is incredible, it’s Star Trek healing L😆L Albert Einstein said "Future Medicine will be the Medicine of Frequencies" This quote is ringing through loudly now with Radiation therapy, X-ray machines, Magnetic Resonance Imaging (MRI) PET and CT scans, and ultrasound have all become commonplace and all fundamentally harness the power of different types of waves and their specific frequencies that occur in nature. Bemer has been studied extensively and found to increase the ATP of the cells by 20%, creating energy at the source of the cells mitochondria itself, no need for coffee, drugs, or anything else. No need to suffer any longer, if anyone wants help getting a hold of a bemer to try, I’m happy to help. 513-828-2277
I made lifestyle adjustments that really helps me so that I don’t flare up so regularly. I started doing yoga daily (on off days really slow and a restorative practice), adopted a Mediterranean diet, started taking proper care of my mental health and go to physio when I need to. As I understand it, it’s different for everyone and you have to find what works for you. For me accepting each day as it comes is key and making sure your family and friends understand some days you will need a lot of support. ❤ Self care, self love and acceptance on the day you can barely make it up the stairs. Enjoying the day you can move with ease. Listening to your body and resting when you need to. This is what works for me and I call it my “medicine”. ❤
I've been in denial for so many years. I have just finally accepted that i have to live with this for as long as it takes. I'm searching for the best way to live with it.
Thank you for this🫶🏽 Praying for everyone fighting the good fight against this illness🙏🏽 We’re worth the fight💪🏽 I’m believing the Lord for my healing, until then, I will live life to the fullest within my limits🙆🏽♀️✨
I can’t believe how young you all are, I’m so sorry. I was recently diagnosed at 76 I’ve had it for over 10 years, as we all know it’s very hard to diagnose. My pain was always put down to old back and knee injury that I’d received many years ago, along with sciatica. It’s a horrid illness, and the pain is with you every day. When I think of young people, and kids with this, it makes me very sad. 😔 Take care every one, be kind to your self.💕
i’m 20 years old and have been dealing with increasingly worsening symptoms of fibromyalgia since i was 4-5. i was misdiagnosed in my home country and continued to be misdiagnosed in the US until i met with a new PCP who said my x-rays from 5 years ago did not show the other condition. he and my specialist are 90% sure i have fibro, and i’m hoping that this is finally it. a diagnosis is the beginning to make this bearable
laughter and taking the piss helps.... out of yourself....out of everything and everybody else....view it as something OTHER than YOU.... if you see it as part of YOURSELF - you are kind of connecting up to it.... had FIBRO since 1997....one day at a time....
Fibromyalgia is debilitating everyday can be different with your whole body. I have had fibromyalgia basically all my life. The pain started in my early teens and l am 65 now l was diagnosed with it in my 30s, l am so warn out with the pain and fatigue from it. I also have a lot of other debilitating illnesses as well life has always been such a challenge but l am an extremely resilient person and do try fighting it but does wear me down but l always try to do as much as l can in my day. You will never win or beat it. You just have to live with it. And faking being ok is part of it when you really are in so much pain. Fibromyalgia affects everything in your whole body it can be in different areas or the whole of your body it’s exhausting. I have Botox injections for my bladder. And have just found out that my asophagus when it cramps up is the fibromyalgia doing it the pain and cramping from this stays for half a day or more and the it is so sore from the cramping for days after because cramps hang on for so long and try to swallow hurts just tiny swallows and also burns in your throat and the chest pain and cramps these attacks when they happen l am so fatigued after them. These attacks can happen at anytime eating food or not drinking a drink or not it’s fibromyalgia that does this. It’s not my heart even though l do have a defibrillator in because l have an enlarged left atrium it’s not my heart that does this l have been checked for everything you can imagine. On top of all that l have both arthritises a large hiatus hernia looped over it’s self, l also suffer from diverticulitis, fluid retention, Gastric Asophagus reflux, thrombosis, depression, hyperthyroidism, iron deficiency l loose iron, l have lots of blood tests regularly to check everything am on lots of medications have lots of allergies. I really am so over my body. My kidneys also get checked regularly because medication can effect them, I am under specialist all that’s wrong with me. Medical cannabis works but it’s far too expensive.
I was diagnosed with fibromyalgia at 24. Working as a construction worker since 19yrs old I feel I had banged up my body. Had injuries i probably should’ve taken care of after it happened instead of working through the pain. But even before the diagnosis in my medical records it was just myalgia. And I was brushed off for years until I properly diagnosed. When I became 27 I came out pregnant and more and more I was experiencing flare up and just feeling horrible throughout the pregnancy. I’ve never had a day since without feeling flared up. I’m 42 now. I understood when she said no matter how ambitious or productive you are the body wants to do its own thing. I feel my fibrofog has gotten in the middle of my confidence in the workforce . Especially feeling irresponsible to keep a stable job. It can mess with my mind . Therefore causing anxiety and depression. I wish every single day that I’d wake up a brand new person. But I do also have nerves damage on my head and face called TN so if it’s not one thing it’s another. A headache is normal for me daily. But as long as it doesn’t get excruciating in pain I just deal with it. I’d love to find myself again …
Thank You for sharing I have been dealing with this since 2014 and I really think had it a long time before then. I do talk with my family about it because I always get negative comments whenever i do.
I'm suspecting I have it, it's in my family after all. I feel so seen hearing this, especially when the lady mentioned the shower. Such a small task yet it feels like climbing a mountain.
This worked in 2 days!!!!!!! (I suffered 7 hellish years.) Magnesium L Threonate (must be that specific magnesium), Benfotiamine (type of B1), Vitamin B6 and Vitamin D3. No Rx needed...all supplements. It helped my sister in law too. Pain levels went from an 8 out of 10 to a level 2 out of 10.
I suffer with it from my early twenties,but like all things in life it is getting worse in your old age ( 74 ) i feel brain fog ( depression) for years also.Join pain feet needles and burning, irritation, etc. Etc,had a diagnosis about twenty years ago but no help ...just take over the counter stuff as needed! 😢😊
I am 60 years old, I was diagnosed when I was 25 years old. It has been a rough road, I changed my diet & exersized regularly & was doing pretty good. I was a spitfire when I was younger & I try to help others if I can physically do it. I made the mistake of trying to help a person that was in a hoarding situation. I tried to go in & help but it was so bad it was unbelievable. Rat fecies everywhere & the garbage was all over, I went into the environment 3 times & after that my health went down hill so bad it is just scarry. All the pain & aches everywhere came back. My doctor put me on methaline blue to try to help my body get rid of the toxins but I am still suffering. Hopefully I can get back to where I was. It really scared me I did not realize ypur environment can effect you so much. Be careful all my fellow sufferers because your environment really effect you.
I hope you ladies have a good job , my mother worked two jobs for 15-20 years she now has her business for cleaning houses but she kept working so she could work up to get her papers because she was illegal she cleans houses for a living and it’s very back breaking work 🥺 my mother comes home everyday with great pain doctor said she shouldn’t work anymore she has fiber myalgia and arthritis 😣 , I’m trying to work up and get a good spot where I could send me mother to our home country so she can retire and never have to work a day again , I hope the same is done for all you ladies who have it
I find out I got that 2019 but the doctor said I had it longer but I got worse I can't walk it's so painful noone understand definitely people that don't understand it I'm on strong painkillers but don't always work I wanted ask want sort exercise can I do but on my bed as I can't stand my leg start shaking n pain me I keep get infection too it's really upsetting depressing I Cnt sleep too 😭 sorry to ask if anyone can help please be grateful
Thank you Diana for letting the world know that Dr emuakhe is just like Dr SEBI, and is truly a healer.i got cured after I contacted Dr emuakhe when I had an out break
I have become very suicidal due to it, I don’t have it diagnosed because my healthcare here is very horrible. I can’t stop thinking about assisted suicide.
Sorry to hear this. You do not need to face this alone. If you need support you can speak to our helpline visit www.versusarthritis.org/get-help/ or call 0800 5200 520 you may also wish to speak to Samaritans on 116 123 (free).
