MY FIBROMYALGIA STORY - how and when I was diagnosed with Fibromyalgia 

I work part time and barely scrape through, but they are very helpful and understanding. I have fibromyalgia for about 18 years, and I had to quit a well paid job as the stress was really triggering me. I always thought I was just a spaz and useless, but got diagnosed at 41. Thank you for your wonderful vlogs, especially for a guy having this horrible journey 😢

I love your openness and authenticity. Thanks for sharing 💜

Very much relate. I’m so sorry you’re also dealing with this chronic illness. We are not alone! “Gentle Hugs” to you.

Such an emotional story. Sending love my friend! Thanks for spreading the word 🙌.

Thank you for sharing your story in such detail. I relate to the diagnosis part a lot. I was diagnosed 7 months ago after going to doctors for 3 years. I didn't suspect fibromyalgia for all those years because my main issue was weakness (or let's say fatigue), but it was so extreme that the pain was not even that important. I was always very pain tolerant, but it just got worse, so I realized it might be fibromyalgia. I searched for a doctor who specializes in it because I live in a small country, so no wonder why so many doctors whom I visited for 3 years didn't even know fibromyalgia existed. I went to the doctor (2nd rheumatologist, because 1st one didn't suspect it) and she straight away diagnosed it. I really didn't want to hear it, I hoped it was not it because I knew it's for the rest of one's life and there is no cure. I felt bad, so so bad that I kind of got into a depression for some time, my fibro even got worse just because of knowing I have it and there is no way back. Overall my health improved since then, but it's not an easy job to fight with not only the symptoms but also knowing you are limited in this life. Also, another part I really related was pushing oneself... and in fact more and more stress, whether physical or mental, just makes fibromyalgia worse. One thing it taught me was to relax and I think that's what fibromyalgia is about. I was born into a very hard working family who stress themselves out even more than I ever did and I know for myself that psychological and physical stress was the ultimate cause for my fibromyalgia, so now I finally give myself permission to rest and relax. I needed to literally learn it, because constant pressure was the norm, and it should never be. Resting is absolutely important for everybody. Again, thank you for sharing, it's good to hear stories, it makes you feel less alone.

Amazing journey! You are a champ. Many people give up. Hope many can learn from your inspiring videos.

Thank you so much for sharing your story. It’s been really hard because I got sick with a viral infection, and then out nowhere start having weird symptoms extremely fatigue, chronic pain, I couldn’t even moved, lightheaded it’s been awful. Run like a 10000 different test, everything came negative. When to different doctors everyone keep saying that they were nothing wrong with me,it has been very lonely journey. But finally I found a rheumatologist doctor and we was able to diagnose and figure it out what I have. I was so reliefs to figure it out to finally know what’s going on with me, but at the same time was scary because now I have to adapt to my conditions, change my life the perspective of my body, knowing my boundaries and patience with my body. Like I said it’s been very hard because I use to be super active, strong and know it’s very different …thank you once again for sharing your story it giving me hope knowing that 🙏🏻🙏🏻 💜💜

Thank you so much for sharing your story ❤. I can relate (different diagnoses), but a lot of the same symptoms... I don't know how you did it, having and raising 5 children! You are an amazing woman!!! Your story is truly inspiring. I never got the chance to have kids, considering every doctor told me to never get pregnant, so I didn't... I'm finally on my path to healing now, but it's a little too late, considering I'm 41. But I definitely want to do something to help others who deal with chronic illness as well. Sorry for the rant! Thank you for sharing, and God bless you!

Thank you for sharing your story. I think you are brave and courageous for doing so. I have had Fibro for at least 30 yrs. It started with a being thrown out of car accident miracle I lived! Drs at first told me it was in my head. But one day I found a pain mngt hospital that gave me a diagnoses of Myofacia pain syndrom which today. Fibromyalgia. It was so liberating for me as I knew I wasn't crazy 😜 I have 4 grown children ( love being a mother ) After yrs of meds and going to a bunch of specialist I have really good doctor today. life is better getting off Meds. I take CBD, Hydrotherapy, Wim hoff breathi ng, I eat foods that don't inflame me and natural remedies. I still get loads pain but with self care My faith in Christ and fighting it in my mind I still am alive ❤️God bless

Wow. Sooo much of what you said resonated with me. I struggled for 10 years with horrendous symptoms. I grew up in an emotional and physically abusive household so had the trauma from that but I also presented signs of hypermobility. The past trauma and hypermobility ticked the boxes for Fibro. Like you I dreamed of a big family but could physically and mentally only have one child. I genuinely felt that's all I could manage another child with being so ill. Major props to you for having 5 and making it through with the living hell that is fibro. I hope you are well and thriving today. Thanks for sharing your story.

Hello! This is a helpful video. Thank you. I was born in the mid 1900s. I have had fibromyalgia with major depression since about 1992. I was diagnosed in about 2017 and I am learning more. Knowledge is very helpful to me. Fibromyalgia in me has lead to many other chronic illnesses, RLS, FC, I am also ADHD, autistic and I am a survivor of trauma too! The trauma caused the fibromyalgia. Listening to people who know what it is like because they are fellow sufferers is comforting for me here. Thank you. Bess in UK

Thankyou for sharing your story in such detail! I can relate to so much of this myself, although I have lupus and CFS. But also migraine and DDD. My mother has fibromyalgia though and her experience before diagnosis was very similar to yours! I 100% relate to what you said about being a high-achiever and always pushing yourself before your diagnosis (as you know from my channel's content lol). I love that you're sharing such valuable info with others! We need more voices like yours in this space. Keep creating! You're changing lives!

Thanks for sharing your story! I feel you!

Hello Nice to meet you New Subscriber here from Amman Jordan 🇯🇴 My friend suffers from this condition so thanks for the information It makes me more compassionate toward her and others with Fibromyalgia

I was "diagnosed" with fibromyalgia around 2005. I was on pain killers, anti-depressants, anti-anxiety medications, and others for 15 years. I finally saw a naturopathic doctor. They found high levels of heavy metals. They also found that some of my tissues were very fibrous and tight...esp. my fascia. I detoxed from heavy metals, fluoride, and calcification with boron, organic cilantro, fulvic/humic acid (Black Diamond powder), C60 from Dr. Darrell Wolf. I'm off all meds. I still have muscle pain due to scoliosis and a herniated disc, so I do fasciablasting. I use a power plate and light weight lifting. I do meditation and grounding. ❤

I usually don't comment on videos, but your video was so inspiring...I have fibro and I have other mental and physical diagnosis as well...And it's very possible I have a couple more diagnosis that have been missed...I almost don't want to find out cuz it's just more to deal with...I'm not trying to sound like I am feeling sorry for myself because I figure it could always be worse...But as you know it's hard...Real hard...You are very strong...Keep doing what you're doing...You are helping a lot of people...God bless you...

I was finally diagnosed after the third child. My symptoms got very bad with motherhood and with the sleepless nights. I became unable to walk or use my hands. I did not stop until I found a final answer. I was completely handicaped and unable to sleep. It has been two years of diagnose and I finally accept it. All tender points are tender and all symptoms are there, plus additional horrible pain in unpredictable places at unpredictable times. What a life.

I just watched your vlog about flare ups - I’m so glad somebody knows how I’m feeling - I haven’t been diagnosed yet - starting blood work on the 13th - this has been on going for years so I really hope they can rule out what it isn’t and I finally get a diagnosis ☺️thanks for the vlog hugs xx

Great story . I can totally relate. As a child I was always sick and my mom would alway say it’s a shame your always sick. 🤕 I wasn’t diagnosed until 27. I’m 30 now. I was at peace when I found out. Because I knew I wasn’t crazy . I’m in pain non stop and never have any energy

I have Fibromyalgia and that’s just one of my chronic illnesses, it’s tough, everyday is a challenge.

Your story and mine…wow our stories are weirdly similar and some opposite stuff too! I’m also weird! Sick from birth. Took years to put things together. Was told when I was little that I had hypoglycemia and asthma. Then when I was 35ish Fibromyalgia then at 50 Postural Orthostatic Tachycardia Syndrome. Im weird! I found you through a short! You cracked me up so I subscribed. 🦋💋💕

I always had hay fever when I was young but developed wide spread pain when I was 15 and I felt so tired . My dad was bad tempered and my mum had a nervous breakdown and became mentally ill . I am now 59 and still have it .

You are not weird. You are unique. ❤

You are not weird. Anyway I was just diagnosed two weeks ago…and for the past 4 days I have been so sick..I was searching for some kind of answers , and found you. I don’t want to watch the newest one….I need your input…so maybe I won’t feel like I am Crazy . .

so well done for talking .i have both m.e .and fibromyalgia list goes on, ware else can i follow you,mark

Thank Goodness I'm Not Allergic To Pets!

I don’t have Fibromyalgia but definitely suffer abdominal upsets very easily after eating out and being in the cold

Hi love your logo has a spelling error fyi! Ty so much for the information, makes so much sense now

Mine is genetic, then I got tonsillitis and strep throat at same time. Got bad abscess, then had to get tonsils out. Also had problems with with employee in church as well. After I recovered I didn’t have my regular energy. Before would go on walks go all day. Also was going througH MENOPAUSE. MY ENTIRE life changed.

So I just found this video and a bunch of others. I think I have fibromyalgia, i have all the symptom, all of them and some more. My blood test are perfect like I should run a marathon and hit the gym daily. My only "bad" exam is an ex ray of my spine that is curving due to the contraction of my muscle on my neck, in fact that is the part that hurt the most. Afte years a went again to my family doctor after I stumble upon an article on fibromyalgia. He said it's not a real, that I cannot be because it's not a diagnosis it's not a real illness. He said is because of buxism(grinding teeth) of course it's not I even went to the dentist which confirmed it's not. I felt deflated I don't really know where I should go to be heard. I'm tired to neglect all this pain and go on as nothing is wrong with me, but at the same time I doubt everything after years of being told I'm healthy and I'm just stressed. I really don't know what to do

My 51 years with fibromyalgia has been progressively worse. My never ending pain, inability to sleep and anxiety have made me a semi-invalid. I have suffered without any pain relief here 🇺🇸 due to the medical professionals fear of losing their livelihoods from Govt. I have been struggling with suicidal thoughts and doing my best to hang on as my husband is older and with Parkinson’s. I too am a type A perfectionist, very active, wanted too, and had 6 wonderful kids, we moved 23 times and are done. I experienced trauma and still deal with PTSD. All my babies were c-sections.

I have fibromyalgia n chronic fatigue syndrome, was diagnosed 20 years ago l now am 74 , every time l have a flare , l am not in touch with anyone or anything! it’s Terrible everything just mounts up as far as my house work , l stop going to Doctor became l was so sick l couldn’t even get dressed this stuff lasted on me several months sometimes, on top of it you have new symptoms , like pain in an area where you didn’t hurt before , another thing that’s happening to your body is your autoimmune disease is attaching itself , but the only thing that keeps yourselves from giving up is God l am a firm believer in Jesus Christ and the way he created me to be , strong with a willingness and stubbornness to keep going , it’s right that or die ,and l am also not afraid of death for l know l will have a spot in heaven thank yo Jesus Amen 🙏

Was wondering did you have aches and pains and hurt everywhere painfull getting touched burning skin symptoms very sore arms feet and legs all the time

I've has so much trauma I to have fibromyalgia do u have skin issues like prickling and itchy ??I also have awful anxiety x

What medication worked best for you

Would you mind sharing what meds you take to reduce flares?

I was allergic to oriducts perfumes etc at 3 long before seasonal allergies nall year round found out its oart of sensory processing disorder and autism i was also travel sick from 2 to

Have you thought of stop eating plant seed oils. Not easy cause it is in most processed foods these days. Im doing this right now an feel better slowly each week that passes.

I don't know what kind of fibromyalgia people have, but in my case I don't give myself permission to stay in bed, or at home, I've no choice... And I get worse every year pass, last year I still could go on my bike, this year is difficult even to get upstairs... All my body is collapsing, I'm constantly in dizziness, nausea and exhausted... I don't sleep, I don't eat much. Or I don't have fibromyalgia or certain people don't have, or is very different for each one of us. When you say 3 children, i didn't belive it, the pain and all of the other symptoms must been horrible 😢 and you went through again, twice?!! I can't even have sex or any exercise, is not just the pain in the moment is the pain carry and gets worse, till gets better, plus every day I noticed I'm more tiered, I do less, and I think, I do it tomorrow... that are the times I allow myself coz I've no choice.. Please share what medicine you took, or anything else that helps, specially the fatigue 😢 ❤ All my symptoms also started after a car accident and very stressful events, head impact, scan show nothing, first symptoms, difficulty concentration, ringing ears, shaking hands, 1 month later the weird pains, I vomited, fainted, more scan and nothing... In the last 7 years I managed, this last year is going down, big time. Sorry and thank you ❤

I can't bend my knees at this moment 😅😢 just cleaning the tops, ta bricando Eu quero aprender com vç, porque eu não estou conseguindo não, aqui in London eles gozam, e ainda dizem que eu não posso ter outra doença porque tenho fibromyalgia, imagina, eu estou neste momento trocando de médico, mas eu acho que apenas o endereço vai mudar 😅

Hi my friend...Trigger points are no longer necessary for a diagnosis of Fibromyalgia. People like me, may not have them.

Found out i wa diagnosed neurosthenia 1998

Fibromyalgia is difficult disease, but diagnosis itself is difficult----- no lab test makes diagnosis. Treatment is not easy either. Lot of psycho- somatic issues are there. Disease is life-long. Treatment is life-long----- and treatment is not curative. Treatment is symptomatic.

Im living in Holland have fibromilagia had a car accident and a whiplash🤣🤣