That's a lovely message for Dave, Amin - thank you. We're always here to support anyone with any sight condition on 03031239999 (option '3') or at helpline@rnib.org.uk.
@@aminafzal3376 Hello my friend, Yes im doing fine by Gods grace. There are times that i felt really down of my situation but im not losing hope. I know pretty soon we will be cured. Amen
Hello Dave I also have rp and I’ve been living with it for 10 years now maybe even more unconsciously, without realizing it. I know your struggle and your successes they can be hard at first but like you say modifications make it easier
thank you for sharing about RP with us all I believe it's easier sometimes to have other people who have the same disease to be that spark a positivity and to show them that we can do activities that we can do sports you just have to think outside the box. Thank you for sharing about RP with the song did you know that this month of February is RP awareness month just thought I would let you know..
I hope you are now benefiting or hope to benefit from the Voretigene treatment. If not, please see your NHS doctor and ask to be referred to an appropriate ophthalmologist who knows about this particular treatment.
How does Rp affect your ears? I've been having weird ear symptoms lately, they get warm and I get pain a long the outer edge of my ears too. I'm starting to worry it could be RP. I have other symptoms as well.
