What evidence do you or they have? I have it and went to the doctors. They didn't do anything except make thousands off me and then I realized rhey were playing me to make money off me and said I had nothing! They were just running their regular tests Pre Covid! I used to ride 26 miles just before Covid and now can't walk the dog!
Ah I was hoping this was to help people assess whether or not they had it. Though that is the reason I'm watching, and might not be the most common reason this video is watched.
Could you please look into the relation between increased cancer cases and Covid and the Covid vaccines? I keep seeing these claims and I'd like to hear someone credible talk about it.
Dianna aka Physics Girl has long covid for a few months and it's heart-breaking to see someone so energetic and positive in her videos to be bedridden and suffering so much. Her family and friends have posted some tweets and videos with updates on her condition that illustrate how terrible this illness can be. Stay safe people
@@InfiniteNallidge What Diana actually said is that she tried to push through a COVID infection and keep up her YT output but then crashed from the effort - hard - and has been very ill since. Whether or not that may also be partially due to vaccination in her case is not been commented on by her or her team as far as I know. Personally I had no issue with Astra Zeneca (not Mrna) but was really ill for 2 weeks after my 1st and only Pfizer and Covid infections since then have affected me more badly than before. Just my experience.
Just sharing here in case it might help anyone: After a bad covid this summer I felt my digestive system had been affected. I couldn't tolerate some greasy foods, and alcohol suddenly made me very sick. My doctor told me my covid infection probably left me with a destroyed microbiot. I took high quantities of pre- and pro-biotics during two months, and was extremely cautious with my diet (lots of veggies, no sugar, few carbs, only healthy fats like olive oil)... Everything is now back to normal.
Same, alcohol is a major offender, causes severe crashes the day after. I think it's the histamine. Try a low-histamine diet PLUS pre-probiotics. I still have to solve it.
Same here @64 Used The Same As You Did And Added Alot of raw Garlic daily ,Doing ok so far 4 months flu like COVID ..Will not have not vaccinated...have good days rough ones .rest and exercise eat right ...
Thanks for bringing up medical gaslighting! I don't know if I even suffered LC or still do, but I relate to mental fog for a few years now and doctors telling me I'm stressed. This is not only happening in countries where you pay for medical attention. I live in Spain and medical assistance is a right, paid by the state. Still doctors treat you with contempt too often.
I’ve suffered from brain fog for decades as one symptom of cPTSD, but have had to self-diagnose the underlying issues because the psychiatric institutions in the country where I live said they suspended diagnosis services due to an excess of demand and are now only offering therapy. I don’t want to pay outrageous prices for therapy that isn’t based on a thorough analysis of the problem… but this is where we are right now. And too many of the people working in the therapy industry are just doing it to keep making a living for themselves because they happened to pick that route for higher education, not because they’re necessarily committed to understanding and addressing the actual issues of individuals. It’s essentially just another racket. Good luck to everyone who’s (still) trying to figure this stuff out without professional support, all while battling the adverse effects on daily life and basic survival.
Yep, this pandemic has shown me that, no matter your healthcare system, doctors absolutely hate a problem that they don't know how to immediately fix. 😑
The worst thing about long covid is, even if you get someone to listen, you still have extremely limited options for recovery. Doctors don't know anything about this, and don't seem to be seeking information.
Well, there are studies, but most doctors are just not set up to handle unique cases. If there haven't already been research doctors that have figured out treatment paths to follow, most doctors just don't have any idea what to do. Answers will come over time, but right now, it's just too new and the data doesn't exist.
@@timogul It's really important for the LC patients to keep pushing for more research to be done, no matter what country you life in. We've been through this with ME/CFS, after 60 years or so we still don't have treatments because some people completely derailed research so their own little niche(psychology) could profit some. You're sort of lucky that you're with so many and a lot of people with LC have experience as a researcher, so can quickly see the flaws in studies. Doesn't mean you don't have a fight on your hands though, on top of having a life-ruining disease.
I had meningitis at 4, barely survived. Life-long worsening chronic fatigue syndrome. When I read the list of Long Covid symptoms, except for those relating to lungs, it's dot for dot the same. Post viral syndrome need to be acknowledged more widely and studied! Turns out covid and meningitis and a host of other illness that attack the brain use the same pathways in the brain. I don't think it's a coincidence when afterwards so many develop similar symptoms, especially the central nervous system disorders like dysautonomia. Cheers and thanks for talking about it! The more research is done, the better chances for all the other post-viral syndromes without solutions out there.
I'm 76 and had meningitis as a child. Covid 12 months ago and have had a list of symptoms ever since including dropping off to sleep for up to four hours in front of the TV after lunch. I've often wondered if some of it was meningitis related.
For ME/CFS the initial damage (in the case of Long Covid - lung damage), is irrelevant. It's the continued disease state without known etiology that comprises me/cfs symptoms.
Curiously, I got the anaphylactic shock to prevent seizures following brain surgery. All this happened prior to Covid was announced. Everything in life is a mystery.
Thank you for presenting this. I have served on the board of directors for the Solve ME/CFS initiative for a decade and my wife has had ME/CFS since 1995. Solve has completely embraced the Long COVID community including significant support for the Long COVID Alliance. Short of a cure or treatment we seek a bio marker to catalyze much needed research. Yes, many improve over time but for others it is a chronic condition that only gets worse with time. The cost to individuals and to society is extraordinarily high and warrants a more significant investment in research.
Hi! Thank you for serving on solve. I wrote my own comment on my experience and research in to longcovid/ post viral fatigue. I'll share it here, maybe it's something you'll find interesting, maybe not. "Disclaimer: Personal story and hypothesizing, should not be regarded as medical advice. I suffered from long covid, a.k.a. post viral fatigue, and simply did not get better. To make a long story short, it turned out to be a one carbon donor deficiency. The one carbon donors are a set of nutrients that serve as the drivers of the metabolic complex "one carbon metabolism". They are Folate/vitamin b9, cobalamin/vitamin b12 and the amino-acid methionine. Folate and methionine are cyclically metabolized and connected by a cobalamin dependent reaction called methyl group transfer, forming the complex as a interdependent whole. Other nutritional cofactors for enzyms in this process are the minerals copper, zink, molybdenum and the vitamins riboflavin/ vitamin b2 and pyridoxine/ vitamin b6. I addressed it through some dietary changes and supplementation, and got better. My hypothesis as to why this happens is as following. Covid, or any virus, needs to leverage this system to meet the demands for replication of it's DNA or RNA, as it is required for the synthesis of the molecules bases; nucleotides. More specificity the base thymine. Then, with covid being a novel virus it would have more time to replicate before sufficient immunological adaptation would occur to halt the infection, leading to overall greater depletion than a familiar virus, explaining the prevalence rate being higher for post viral fatigue after covid then flu viruses for example. Another process that meets these criteria are pregnancy (higher demand for DNA synthesis), which would explain the prevalence being higher in women. It's also worth pointing out that a deficiency of these nutrients has matching symptoms with post viral fatigue and provides a mechanistic reasoning for them. Some examples: The system is involved with energy metabolism through atd > atp regeneration by roles in providing phosphorus donors. Involvement in Neurotransmitter metabolism by providing the universal methyl group donor sam (s- adesonyl methionine) and the cobalamin dependent myelin synthesis pathway( a nerve insulation fatty acid) explains neurological and psychological symptoms. Impaired glutathione metabolism (the "master antioxidant", protecting our cells from oxidative stress, which is naturally ocuring as a byproduct of all reactions involving oxygen.) explains pain and inflammation. Glutathione requires the folate cycle to be regenerated." Research in to intrecellular levels of the one carbon donors could be used to check this. A baseline for a specific cell type would be needed to be established; for example red blood cells in afflicted individuals could be compared to a healthy control group. P.S. I've been recovered for quite a while know, so this is written from memory and there might be some technical errors.
Obviously you haven't done any home work on vaccine injuries. I'll help you. ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-FRyaJr85qL8.htmlsi=CsjzLzZTM5oFW0km
A man I worked with 40 years ago and his wife had ME/CFS symptoms for months. He was eventually diagnosed with "chronic EBV" which at least got him insurance coverage of his treatment. After a year or so he was okay in everyday life but his tower climbing days were pretty much over. Long COVID may finally get ME/CFS research the support it needs but what a terrible price to pay. Thank you for being there!
@@sebastianboredal7486 long covid is bullshit. It's vaccine injuries. Don't listen to these liars. You have to have rocks for brain ns to trust anything coming from these unaccountable criminals.
I had nearly all of these symptoms for months. Someone told me I had long covid. Turns out I was in an emotionally abusive relationship and shortly after I left it, cognitive functions were better, heart palpitations dissipated, and my digestive problems were vastly improved. Perhaps I did have long covid but getting away from soul crushing stress is what made things turn around for me.
That makes perfect sense to me. I would believe you had what seems to be a variety of Long Covid - injury "mild" enough that you can do a lot of things without trouble, but that become worse - maybe much worse - when anything makes part of your life harder.
@@meyousex I hope you are doing well now and sorry I haven't seen your reply sooner. One of my hobbies is reading various scholarly articles on topics of interest and one in particular may be of interest to you. It's a peer reviewed ncbi article titled "Psychological Stress and Mitochondria: A Systematic Review" done in 2018. Here is one sentence excerpt from the article "Nineteen studies showed significant adverse effects of psychological stress on mitochondria and four found increases in function or size after stress." that somewhat summarizes what to expect. Take care and wishing you good health and happiness.
Thank you for covering this. If you develop MECFS not only are you going to suffer immensely without any real hope of treatment, but you will see an ugly side of humanity that healthy people never will.
Brazilian Neurologist here. Contracted COVID five times during the pandemic, working in the ICUs. I have mithocondrial disfunction because of COVID. And I'm one of the lucky ones. Saw it all, from COVID alopecia to COVID ungueal dystrophy on the toe. Till this day I treat the poor chaps that have long COVID. No cure in sight, but I have some success with vortioxetine, sulpiride, l-carnitine, biotine and coenzime q10.
Low dose naltrexone has helped many of my LC friends. Covid caused an EBV reactivation (confirmed with a test for EBV EARLY ANTIGEN D AB (IGG)), and for me LDN plus high dose valacyclovir brought me from fairly bedbound to almost 100%- lifting weights, exercising, etc. Within 36 hours I was feeling significantly better.
Thank you Sabine for bringing this under the attention. As a father and husband of two long COVID patients I can really appreciate it. Having become a bit of an expert on this by necessity, I can say that I found your video accurate and well balanced.
@Skovy1961 Most LC patients are from the pre-vaccination era. My loved ones did not get LC after a vaccination, but it can happen (although that is even more rare than developing LC after an infection).
My son was 16 when he got covid in 2021 and he's been sick since then. He couldn't finish school after being an honor student. He didn't even have a severe case. I almost died at the time after covid-related pneumonia and I have struggled too, but he was formally diagnosed. There was no help for him with our horrible US state insurance. He had 8 weeks of PT but that was about it. He's so out of it all the time now he says its dissociation. I wish I could help him. We are doing the exercises but it's exhausting and he often struggles through it. He's just so weak and it's stolen his teen years. All his friends moved on and went to all their proms and dances and he's just gone through test after test, repeated labs and brain scans with allt hese specialists and all they can come up with is long covid.
Oh yes and they did try to make out like it was psychological and they prescribed medications that made him a lot sicker. The daily nausea leaves him so depressed but it's even worse when he can tell the doctors don't believe him. But I knew.
Also the Long Covid Alliance isn't really that helpful anymore. Mostly just tips on applying for disability help, but my son was already turned down twice because they think he can work, even though he can barely make it across the room and forgets everything minutes after it happens. It's quite distressing. He had so many hopes and dreams and plans for his future. Now I have to beg him not to end it all. He said it's not worth continuing to be this miserable.
@@cs5384I'm so sorry for both you and your son. I wish I could help in some way. I got long-covid, got sick march 2020. After the 2nd mRNA shot I improved somewhat, it was a clear improvement but I was not 100% healed. I hope mRNA vaccination will help your son too. I had symptoms getting better from when I got sick all the way until today, I'm not 100% as before I got sick march 2020 but alot better and can live nomally, albeit more tired. Lets hope there will be more treatments in the soon future. I have taken total of 5 shots of mRNA vaccin, in accordance to my countrys health care reccomendation. Long covid got clearly better after 2nd shot. And somewhat better after the 3rd, 4th and 5th shot I believe. At first I got worse a few days, like normal symptoms of vaccine, but nothing even close as bad as when I got sick. The symptoms were similar to when I was sick, but much less and gone in a few days. This happened all 5 times I got vaccinated with mRNA. My second infection also had similar symptoms as first infection and vaccines, but lasted longer than vaccine symptoms. I'm thankful the vaccines exist. I wish you both the best and improvement of long covid soon. I wish I could give more help. Please take care.
I'm 22, trying to finish college, and was extremely healthy and athletic before getting COVID 2 years ago, so maybe somewhat comparable. I'm still pretty messed up, with fatigue and neurological symptoms, but my general advice is look to manage inflammation with whatever means necessary. Experiment with different things. For me, ice baths, very consistent sleep schedule, carefully monitored diet full of vegetables, daily probiotics, light and carefully monitored exercise, and over the counter anti inflammatory drugs when needed have made enough of a difference to keep me just barely getting by. Also fasting and supplements have helped. Turkey tail mushroom, chaga mushroom, vitamin E, vitamin K, and tons of cacao (raw beans made into a drink). Those were the ones that helped me, but I hear different people have had luck with different things. Another weird one is drinking water with semi fermented lemons in it. I saw someone mention it on Reddit, thought it sounded suspicious, but it was easy to try so I did it, and it helped. I have no idea why. Basically I fill a plastic gallon, cut a lemon in half, and leave it in the water overnight, then drink that over the next day, and reuse the same lemon for a few days. Some herbs that are good are thyme, rosemary, licorice, and lavender, for when the neurological symptoms are too strong. I would make them into tea. Look into the feedback loops involving mental state, activities, and inflammation. Routine definitely seems to play a role in mitigating or worsening symptoms too.
They don't know, but they are 100% sure that is not the mandated experimental procedure. I guess the fact that the excess death is highly correlated to the country procedure uptake % is just a "coincidence".
I was hospitalized with long covid in 2021 before the vaccine was available to me. After two CT scans, an MRI, more blood tests that I can shake a stick at; the neurologist shrugged his shoulders, told me "there is no physiological cause to your symptoms", strongly implied that I had munchausens and sending me straight to a psychiatrist who then told me that this isn't a psychiatric disorder.
That neurologist should have their license revoked, that is not on the symptom list for Munchhausen's in the first place. What a quack. Just because a doctor can't figure it out, that is not the end of the diagnosis.
So sorry, thank goodness it is accepted more now, and more and more doctors are learning about it. Coincidentally enough lots of them got long covid, couldn't work and that kind of woke them up to the fact it's real. The ones who could have come back armed to the teeth with knowledge and the urge to help their neglected patients. Best of luck Joel, keep up the research and guide your care yourself as best you can. There are plenty of doctors out there now and you can telehealth with them if they are not in your town/country. Help is out there. Best of luck to you.
@@jassenjj Indeed, this is why I advocate so highly for patient self-education. Doctors don't know everything, and medicine is so compartmentalised that it used to be very hard to find help. Being thrown in the too hard basket really hurts, I know. The best I could do was believe that if they couldn't give any explanation other than hypochondria, I would dismiss them as simply noy knowing what to do. Doctors feel like they have to have some answer. I've never been to a doctor who simply said, "I don't know, let's see if we can find someone who does". Their egos are way too big for that. Unfortunately, they don't understand the damage it causes though. I'd much rather an "I don't know" than being accused of it being in my head.
@@jeffmcdonald101 .. You are correct. I dropped out of the medical system here in Canada and diverted my studies into medical science. .. I have other degrees and have been doing applied science for 50+ years. .. Professors John Campbell and Brett Weinstein have the best people in these fields being interviewed on their podcasts. .. Study up. I'm 74 and have experienced improving health over the last 5 years. .. Of course, I had the omicron, like 99% of the population. My natural immunity beat it in 4 days. It was so mild that I wouldn't have noticed it in normal times. Sabina has no idea.
I was diagnosed with chronic fatigue syndrome in may of 2021 after 7 months of testing. I still suffer from it today. I failed 8th grade because I was too tired to do school work. Nearly the same thing happened last year in 10th grade. I could not attend school because I was so tired and nearly failed. I’m very worried about what colleges will think about my gpa. I was a gifted student and excelled in school, but now it’s hard to even do the simple things.
There are many avenues to a degree and further education, places like the Open university for instance offer part time online based courses that be helpful for ppl with lots of things going on in their life.
I feel for you. I have two sleep disorders that sometimes take turns kicking my ass. While you are at it, get a sleep study done. The fatigue from a sleep disorder could mimic chronic fatigue. I was one of those guys who did not exhibit any symptoms. I would have told anyone that I didn't have trouble sleeping. I just became easily fatigued, and didn't know why.
My mom had chronic fatigue and what helped her was acupuncture, herbs and diet. She went from sleeping all the time for like 5 years with constant tests being done on her. After a few months of acupuncture etc she was back to being normal.
I had all this symptoms and thought I was becoming hypochondriac or crazy. I had my heart going crazy fast, becoming extremely tired while doing my moderate intensity cardio (I actually had to stop doing it at all). I went to the hospital for what I thought it was a panic attack and many test were done ECG, X-rays to check for heart size among other things like blood-tests, urine tests, the doctors found nothing so they ran a COVID test and it was positive. After that "panic attack" I've had a couple days where my heart go fast while I try to sleep and the anxiety keeps me from sleeping the entire night. It happened to me yesterday. I couldn't sleep at all at night, thankfully I slept for about 3 or 4 hours in the day 8am to 12pm. I also get extremely tired at times for very low activity effort like doing the dishes, picking up things from the floor, sometimes walking gets me crazy tired in 15 minutes and I usually walk at least 1 hour pretty much every day so I normally had a very high resistance for walking (I walk fairly fast, not turtle pace walking) I also have woken up wheezing for air and had shallow breathing. Thanks for this video! it really eases my mind to know I'm not just having some kind of psychotic break.
I assume your writing my biography. Every word so true describing the last two & a half Years. You forgot to say it just gets worse and worse wishing the last 2 (of 7 in total) miocardial attacks had been fatal. 5 years ago I walked for 3 days & nights no stop with only 1 bottle of water no food for over 500 miles. I could carry 2 bags of cement dust (real bags Not the gay woke woosy small hse bags). I lifted out my car engine Without a hoist by myself. I pushed at the boundaries of science & physics & electronics & engineering for 65 years. Now an email or comment like this, takes at best several hours and often, a week or more to wright & de-bug (maybe it shows how bad Samsung software has got!).
I have long Covid for more than one year, as I mentioned in another comment, and the symptoms are almost spot on as yours. Periods of moderate good health alternate with crashes and strong post-fatigue malaise. It is very annoying and when the crash hits, also very scary and panicking. I think the anxiety is actually triggered by the crash itself. Stay strong mentally, hopefully we will get to the other side of the tunnel!!
Imagine that; doctors not listening to a patient or outright dismissing them. I personally have witnessed multiple instances of this and 4 of those, "blown off" patiens/friends died as a result!
Just to help with the bit picture...your frustrations with actual doctors have a purpose...to make all of us easier to accept or happy to accept the new AI doctors and get rid of these incompetent human ones that you are all disappointed with. Stealing all of us in the wrong direction. 😂
Yep, I got covid in 2022 after living with ME since 2009. Loving their combined love child of long covid though luckily I’m not as severely affected as some so must count my luck really. Years of medical and family gaslighting are the hardest part in many ways, or at least makes it so much harder having to fight symptoms and illness but then also doctors and family skepticism. It’s can be a lonely experience, akin to complaining of some poltergeist attacking you. Thanks for the video, education and awareness are part of the treatment as much as drugs or therapies. 🖖🏼!
Gaslighting is NEVER "questioning someone else's experiences". Gaslighting is ALWAYS doing things to make someone doubt their sanity, usually so they appear insane to a 3rd party. That's what happened in Gaslight. The man in Gaslight did NOT QUESTION his wife's experiences. He manipulated her experiences, denied that her experiences were accurate, and made her appear insane to a 3rd party.
The original meaning of the word has been lost almost completely as it became popular. At this point it's just a fancy synonym for lying most of the time.
@@flagmichael Yup. He was manipulating the gas lights and then DENYING (not questioning) his wife's experience of the flickering/dimming, and, crucially, he did this so as to make her appear insane to a 3rd party.
Thank you Sabine for summarizing this so well! It seems that my employer, my friends and some of my family even have begun to ignore the ongoing risks both individually and societally that this virus whose origins remain unclear continues to wreak. I will be showing this to my supervisor and to my friends and family. Many thanks for your hard work on this and for your other videos and humour as well 🤗
It's not unclear at all. It's a darpa lab. This thing is an engineered combination of more pathogens and hits people where is their weakest link. If you add the marketed cure in the mix too, you actually make it alot worse. They covered all bases.
She’s also 100% vaxxed though That needs to be investigated too. There is some research coming out about igG4 antibodies being produced from vx in ation and having a negative impact on immune response Everything should be out in the open, and transparent. This was a global clinical trial after all with billions of participants
Manufacturer immunity, govt will not be responsible for purchasing 7x doses per person from the like like pfizer without real tests and the fall guys are going to be...the gp..that were supposed to recommend this and read the tests reports that were not available and still are not...and they are going to replace all of them by ai. From hero to zero for them. And from personal relationship with your doctor to a number in the system for the patient ( of he survives). All all of you still believe in the long covid tooth fairy
My best friend contracted Covid early, before vaccines were available, and spent 9 days in the hospital. He started improving just hours before he was scheduled to go on a ventilator, and came home a few days later. He lost 20 pounds. I have observed him ever since, and I can confirm he has deteriorated cognitively. Not severely, but he now does dumb things that he never would have done before and has trouble remembering things. For instance he repeats himself to me over the course of several days. He also acknowledges this. While anecdotal, I find this to be sufficient confirmation that long Covid is real.
I did see same happened to people I knew, one of them was my grandfather, and he passed away years be4 Covid, Did Covid exist back then and we didn’t know about it???
The cognitive problems are real I've suffered through that myself, I was thinking that I'd have to check myself into an Assisted Living Facility because I wasn't sure I could live at home alone anymore, yet, I was holding down a full-time job and commuting to work... It was 2022, last year, that I thought it was game over for me, Yeah... it's no joke. Fortunately I managed to pull out of it... I still get minor episodes now and then, but not to the degree it was. So I know it isn't easy to see that for your friend. You might ask what I did for myself, I can't give details because of YT rules... but I follow MedCram channel... they have some suggestions like the Sunlight therapy, and NAC, and other over the counter stuff... I also took fish oil to try and supply my body and my brain with DHA and EPA. Maybe that helped me? Also cleaned up the diet dumped all the processed foods... who know what it was that did the trick. Best of luck to you and your friend.
"before vaccines were available" If only you knew the true history around the Covid Psy-Ops. Also, those shots cannot, per definition, be called "vaccines" I'll leave you to do some research on that. I know it's hard to believe, especially when you're a scientist, but if you stopped watching and reading mainstream media stuff and opened your mind for a single second you'd see through all these events, the climate change hoax, Russia vs Ukraine, Isreal vs Palestine, the Digital Currency plan, the skies and clouds being sprayed with extremely harmful chemicals, and so on. Don't let them get you to believe what they say. It was all, as everything has been since the cosmic abandonment, planned.
I have been following you on Twitter for quite a while now, chiefly for physics. I contracted COVID in July 2021 and have been bedbound and housebound with a multitude of debilitating symptoms since then, it's basically disabled me. I was somewhat improving by late 2022, went from completely bedbound to housebound to being able to resume my studies (graduate classes 2 days a week), then I took MMR vaccine in early 2023 for relocating to Canada and it has reversed whatever improvements I have made and brought even more severe cognitive/brain issues and I have been back to bedbound since getting the MMR vaccine. COVID-19 isn't the only virus that causes long-term, disabling post-viral symptoms, especially ME/CFS, there are many other viruses that can also cause similar long-term symptoms. For example, Dengue fever and EBV. Post-dengue symptoms are very identical to post-COVID sequelae symptoms and even severe, both viruses severely affect the brain.
It's not always gaslighting any more. Realize that most doctors immediately jabbed themselves and their office staff. Next, they pushed it on their entire families. And then they pushed it obediently on their paying patients. So now there is an epidemic of guilt. Lots of broken spirits and minds nowadays.
Overworked and stressed drs has definitely caused a massive decline in healthcare quality, I wonder if the dismissal of symptoms is apart of that, or if it’s caused by other factors.
@@MauriceOfInfiniteAtrocities I would add dealing with an insurance industry that tends to pay as little as possible and the fear of lawsuits to the list. The motto may have become "the less I do or say the easier and safer it is for my practice".
Luckily in the UK, the people with the highest rate of long covid are civil servants. The very people who get the best sick pay and who are least likely to lose their job if they are off sick for too long. I don’t know any contract workers who get no sick pay and have the least job security who had long covid. Luckily it was not the other way round.
I have long (pun intended) suspected that self employment is one of the most effective methods of protection against long Covid. And not taking part in the drug trials probably helps too.
Who knows how many of these symptoms were really caused by vaccination? Only by examining the unvaccinated who had covid could you get an idea of actual long covid. I don't think most studies have been done on this group.
Or, we could look at the envelope of the vaccine statistics to see what fits inside. In the US the Countermeasures Injury Compensation Program (CICP) accepts and processes claims of COVID vaccine injuries. To date, 9,393 COVID vaccination claims have been filed, the product of 676,728,782 COVID vaccinations. That represents one claim for every 72,046 vaccinations. For reference, our life expectancy in the USA is 28,226 days. We could have 3 jabs a day from birth to death and have a 50/50 chance of a reaction serious enough to file a claim.
I suffered from long Covid for almost 8 months, but didn't seek treatment because I didn't think there was any for it yet. When I got hit, it was still so new in the US that no one believed it was here, so there weren't even tests available. And yeah, the first medical professional I consulted with dismissed my symptoms. The next day, the pandemic was declared.
I’m sorry to hear you were dismissed. Along with others with similar symptoms. In medical dr and scientists defence, it is a complex and nuanced disease. And also, please remember, the doctors offices are FULL of people with fake symptoms and non issues. NOT saying thats what is happening to you. But there is still a lot of in their heads symptoms of all kinds of non existent disease. So doctors get cynical. I think it starts in grade school where kids flood the office “needing ice” for fake injuries. So doctors need to be better at weeding out the fake illness with real
@@Samson1981-ks4xc Absolutely as soon as it was available. It was rolled out to veterans' hospitals first, but that was still nearly a year after I came down with it.
Well this checks out, i caught covid earlier this year, and currently im 1 month into long covid, it sucks soo bad, i can barely stay awake, i have bouts of brain fog, lungs hurt from coughing, my sinus hurt from sneezing, if i get 5 hours sleep im lucky, my eyes randomly become sensitive to light and i ache alll over. And all i can really do is mask the symptoms a lil with medication, starts to wear you down.
If you have bad effects most of the time you have been vaccinated before. Or the other way around. But the combination is damaging for the body, especially for some genetic make-ups
Andreas Goebel, who I follow because of a study he led involving transfer of antibodies from fibromyalgia patients to mice (that proved pretty definitely it was an autoimmune disease) noticed certain similarities to long COVID and fibromyalgia patients. Performing the test using long COVID patients led to very similar results. These are still preliminary, of course, but I'd look into fibromyalgia treatments if you have long COVID. The symptoms based treatments are, at the very least, for the same symptoms. I also need to recommend the DNA tests for medication effectiveness for every chronic illness, regardless of which one it is, and before taking any kind of medication you will need to keep taking forever. Insurance companies approve them in the US because they save them a lot of money, but my own realization that I was part of the 0.4% that have a recessive gene combination that makes SSRI antidepressants do badddd things to my head 100% saved my life.
A lot of people hate her because she’s not gender affirming or pro covid That said, her primary criticism is technically she’s going out of her specialty but that’s an argument from authority
I'm a healthy athletic person and I've never been the same after Covid 3 years ago. I had gotten, unfortunately, the Delta variant, with lost smell but also memory loss and dizziness for 2 months. It gave me persistent tinnitus that has never gone away, that gets worse the more unhappy my brain is (like if I don't get enough sleep). And, additionally, my brain basically forgot how to sleep. It didn't matter how tired I was from not sleeping, I wouldn't be any more likely to sleep even under conditions of total exhaustion and tiredness. My sleep became something more like a light daydream and of course, that very seriously affects the quality of life. I still don't know exactly what went wrong, but they have found Covid in the brain in autopsies. My guess is there's some kind of CNS inflammation or dysregulation of neuro receptor sensitivity. Bizarrely, a regular MRI didn't show any damage to the brain, although it definitely feels otherwise. All of this has just become life now. 🤷♂ I wish they at the very least could identify what the very clear problem is. EDIT: Oh yeah and it damaged my immune system as Covid knows how to do. My white blood cell count is still around 2,000 when a healthy person can have up to 10,000. My Vitamin D levels were also flagged low, in summer, as a person who is outside all the time in the sun! EDIT 2: Oh and any kind of stimulation above normal, like video games, my brain/CNS also handles very badly now. I basically can't even play "fun" little mobile games if they're at all competitive because the heightened tenseness can mess me up.
Great, though harrowing, description, very helpful to read this. I’m so sorry for how much you are going through. I sincerely hope that you eventually get some relief.
Your symptoms tell me what you need. B6 in large quantities as well as zinc. B vitamin sustained release package. Berberine to reduce inflammation amongst other things. Butyrate for gut biome and mending the Kynurenine Pathway. Above average amounts of vitamin D. Plenty of sustained release niacin for a period. Q10, carnitine and Nt factor, omega 3 fish oil. Plus a diet rich in greens, protein
Thanks for your suggestions, they're valuable as I haven't heard of a lot of this and all I can do is cautiously explore and see if anything helps. These symptoms have been bizarre, but the one that seems at the center is my sensitivity and poor handling (almost dizziness/inflammation) to stimulus now. It's strange to get dizzy and cloudy just playing a tense mobile game like I'm having some neuroreceptor flood. I've been taking NAC, protein powder, creatine, Omega 3, a bit of trimethylglycine, and a daily vitamin which has some vitamin B mix. The one that makes the largest impact by far is the Omega 3, I (my head) feel a bit better after them. Protein powder also but via muscle recovery (I do exercise). The rest I can't feel any difference. I recently started 1000iu of Vitamin D and I think for a short period after I maybe also feel less "mentally inflamed". I heard more needs to be taken with K2 and such. I tried Q10 and didn't notice anything except that it (and this is weird but I think it is accurate) seemed to degrade my athleticism. I sort of lost muscle definition taking it so I stopped. Do you recommend a vitamin B mix or just taking preference to one in particular like B6? You also recommend trying to keep some presence of B3? I don't know Berberine, Butyrate, carnitine and Nt factor, nor have I read on the Kynurenine Pathway. @@paulharrisonadventuregearm5457
AI informed me "The Kynurenine Pathway is not only important for niacin synthesis but also has implications for immune function, neurobiology, and inflammation. Some metabolites in the pathway have neuroactive properties and can affect neurotransmitter balance in the brain." Oh wow yeah that sounds right up my alley. All those things feel impacted and awry. Online research mentions the pathway is related to "tryptophan metabolism". I do have L-tryptophan which I thought might help with sleep (it didn't at all), should I be taking that to help this pathway? Also NAD seems mentioned (related to B3) which I've seen recommended as a vitamin. @@paulharrisonadventuregearm5457
Thank you for this video, too many people unaware of this and so many suffering. Unfortunately, according to Al-Aly’s studies and a new one from the Canadian Statistical Agency, each reinfection increases your risk of Long Covid or health complications. Stay safe, wear high quality masks!
My hypothesis is that ME/CFS, Long COVID and Post Lyme disease = Mast Cell Activation Syndrome (MCAS) . Same symptoms, same triggers, same PEM and same Common Co-diagnoses such as Allergy, Asthma, IBS, Fibromyalgia, POTS, ADHD, hEDS, Migraines, PTSD, Multiple Chemical Sensitivity (MCS), Interstitial cystitis (IC), Temporomandibular joint disorder ( TMJ), Restless legs syndrome (RLS).... There are many medications that can make most people with MCAS better. Scientific articles at NCBI. • Covid-19 hyperinflammation and post-Covid-19 illness may be rooted in mast cell activation syndrome • Immunological dysfunction and mast cell activation syndrome in long COVID • Mast cell activation syndrome and the link with long COVID • Mast cell activation symptoms are prevalent in Long-COVID • Mast cell activation is associated with post‐acute COVID‐19 syndrome • Mast cell activation may explain many cases of chemical intolerance • The Emerging Role of Mast Cells in Irritable Bowel Syndrome • Mast Cells, Neuroinflammation and Pain in Fibromyalgia Syndrom • Mast Cell Activation Disorder and Postural Orthostatic Tachycardia Syndrome: A Clinical Association • The relationship between mast cell activation syndrome, postural tachycardia syndrome, and Ehlers-Danlos syndrome • Mast cell-mediated neuroinflammation may have a role in attention deficit hyperactivity disorder (ADHD) • The role of mast cells in migraine pathophysiology • The role of human mast cells in allergy and asthma • Substance P and mast cells: preliminary histologic analysis of the human temporomandibular joint • Evidence for the Role of Mast Cells in Cystitis-Associated Lower Urinary Tract Dysfunction: A Multidisciplinary Approach to the Study of Chronic Pelvic Pain Research Network... • Restless legs syndrome is associated with mast cell activation syndrome • Mast cell activation disease: An underappreciated cause of neurologic and psychiatric symptoms and diseases • Successful Treatment of a Patient With Severe COVID-19 Using an Integrated Approach Addressing Mast Cells and Their Mediators • MCAS: what is Mast Cell Activation Syndrome? - Online interview • The Role of MCAS in Long Covid With World Leading Specialist Dr Lawrence Afrin • Here's How You Treat Long Covid | Lessons From MCAS - Dr Tina Peers • Mast Cell Activation Syndrome: More than “just allergies”
@@sinopulence I've had a full set of covid jabs. Mix of platforms. My symptoms improved a bit after the first and third jab but was unaffected by the others.
@@mrpocock that was a rethoric question to make you think some more about the links...look into medical journals but not your usual lancet. European countries are investigating this more openly
Gaslighting. Great name for what i usually call in German "abwimmelmaschine" My observation is that the general practitioner's job in Germany is to ignore your health problems. Almost always i have to find a specialist myself. About 1/3 of the time there really is something. Rest is maybe overreacted? Or something they don't know? I got several rather light chronic health problems which i have learned to live with. The standard western medicine doesn't know everything. That doesn't mean that alternative medicine does know. Most of the time it doesn't look genuine. But there are some real alternative things out there. How do you find them?
The list of potential side-effects to the jab, published by the vaccine-makers themselves, is as long as your arm. Could it be that so-called post-Covid syndrome may, in some cases, be post-jab syndrome . . . ?
I have a friend who lost his job because of long Covid's dementia-like symptoms. Fortunately he was of retirement age, but it is not clear whether he will ever be able to drive safely again. It's a life changing issue.
Indeed! I'm hoping we get the cause(s) of all this distress sorted out. I suppose not enough people suffered from chronic effects of Lyme disease, chronic Epstein-Barr disease (mononucleosis) and the ongoing mystery of fibromyalgia to muster all the efforts these symptoms demand. It is a quiet tragedy.
I am so sorry to hear that, I myself have dementia like issues from time to time, I am 26 and it is very upsetting to be aware of. I have lived with grandparents who had dementia. I would never think to see similar qualities in myself now. Long covid has left a consuming shadow on my life. Wishing your friend all the best and for health to find him.
It's simple indeed but study for advanced herbalism is required: 1)Note down your symptoms; 2)Search for the naturalistic curings, vitamins, various curative fruits and vegetables, plants and herbs that can cure and defuse the afflictions; 3)Get tea, aromatherapy, spices, healthy foods recipes and herbal mixtures that heal and detox the body.
7:10 Thank you for mentioning (Multiple) Chemical Sensitivity or MCS. I suffered from this for 26 six years of my life (now cured). Very frustrating when I found doctors who actually believed me even these good ones would at best just shrug and not know how to help. It’s worse when friends and family would say it’s all in my imagination. I have wondered if long Covid would bring more awareness to MCS and similar issues. Thanks for the video.
@@4203105 Second this question!! Did it go away itself, or did you find treatment. It MCS is a subset of MCAS and as someone with MCS, MCAS, Dysautonomia, ME/CFS...I am rather interested.
@@kindlin The cause of the sensitivity is not fully understood as yet but thinking of it as an allergic type of thing is reasonable. As of now the best explanation coming out of immunology is that the section of the brain responsible for processing responses to airborne irritants such as strong odours, dust mites, pollen etc is inflamed and not sending the right signals. The brain region is called the olfactory bulb and is located directly above the sinuses. This neuroinflammation is also often coupled with instability of cells called mast cells which are responsible for the body's response to almost every source of stimuli we encounter in life. Chemical sensitivity is often coupled with other conditions, though it has a distinct enough presentation that it can be the only noticeable symptom and thus deserves a name. As for what constitutes a chemical in this sense, it's literally anything. Perfume, paint, car exhaust, new furniture or other products off gassing... the smell of freshly cut grass even. Pretty well all strong smells, but particularly ones that are actually hazardous. It's not so much that the chemical is causing harm, it's the overreaction the body has that is the problem (obviously excluding chemicals which are hazardous to everyone). It is an extremely life limiting condition especially when paired with other very serious conditions like mast cell activation syndrome, ME/CFS, fibromyalgia, long-covid etc. Long covid from the eyes of someone who has one or more of these conditions is completely unremarkable. I have had several of these conditions for 11+ years and when long covid became a thing it was very obvious that the symptoms, treatment and outcomes for patients would play out similarly... which it has. At some stage I expect that all these conditions will be linked and brought under one umbrella. Immunologists already treat all of them the same because they have the same underlying factors. The reason we don't now is because of politics and economics. Prior to covid, as Sabine said, many people with these conditions were dismissed by family doctors, given antidepressants and told to go away. Long-covid is not classed as permanent and is difficult to get coverage as disabled. The economic cost of supporting all these people fully is far too high and sudden for economies to handle so calling it long covid and pushing back the inevitable outcome of millions of people across the world being unable to work and needing disability support is enormous. Before long covid was a thing it was extremely difficult to find doctors or understanding from the public. As Sabine also said, it is something of a blessing to those of us who have been suffering from these conditions well before covid was a thing. Any virus can set it off, along with some injuries like to the cervical spine. If only we could have had this recognition without 1 in people on earth getting a horrible life changing illness. 1 in 100 is a lot when you think about it. Out of 8 billion people that would put the number of people who are having a rough time at 80 million if my math is right. That a LOT of people. P.s to anyone suffering from MCS... the drug Ryaltris can help damp down the inflammation in the olfactory bulb. It is administered by nasal spray into the sinuses as that is the closet it can be to the olfactory bulb. It is a cheap medicine and definitely worth a try. All the best.
Finally, someone is acknowledging my illness, ME/CFS! Thank you!!! I have been to doctors numbering in the teens. Gaslighting is real. I cannot tell you how important this video is to my community and to Long Covid sufferers. This will be shared!
Yup me too and boy did I get gaslit 😂 it was pretty horrible at the time 😅 fortunately researchers are taking CFS/ME a lot more seriously now, especially in New Zealand where I live which is fantastic so the more research on this the better, hopefully leading to a treatment 👍😆
The problem most ppl face are the Dr's who follow the poltical agenda. For instance, it's dar harder for a working class or poor person to be diagnosed with anything compared to middle class and wealthier ppl.
I have had CFS for over 20 years. What caused it, I do not know. My impairment was severe at first but did slowly improve over 2 years. But I never got back to my previous energy levels. I estimate that my impairment was somewhere between 40 and 50 percent. And had stayed that way for a long time. In that time the medical profession has been unhelpful to say the least. Many doctors dismiss CFS altogether. And a few doctors do try to help by checking for causes for those symptoms. But there is only so many heart tests and blood tests you can do and they are mostly negative. So I gave up on doctors being able to help. Since then I have become worse with age and I estimate my impairment at about 60% now. That means I have to be very careful what I spend my energy on. And many people do not understand CFS and expect me to do normal things that I simply cannot do. I tire very quickly with physical activity and have to rest constantly throughout the day. Brain fogs with tiredness is common. And if I do too much, 'crash' is real and can be distressing. My legs in particular do not function well any more. So I am spending more time sitting down, which I figure is not a good thing. My governments welfare system has abandoned me. And I live on very little these days. But at least I am still alive and my brain still sort of functions. So don't feel sorry for me because there are others much worse off than me.
My hypothesis is that ME/CFS, Long COVID and Post Lyme disease = Mast Cell Activation Syndrome (MCAS) . Same symptoms, same triggers, same PEM and same Common Co-diagnoses such as Allergy, Asthma, IBS, Fibromyalgia, POTS, ADHD, hEDS, Migraines, PTSD, Multiple Chemical Sensitivity (MCS), Interstitial cystitis (IC), Temporomandibular joint disorder ( TMJ), Restless legs syndrome (RLS).... There are many medications that can make most people with MCAS better. Scientific articles at NCBI. • Covid-19 hyperinflammation and post-Covid-19 illness may be rooted in mast cell activation syndrome • Immunological dysfunction and mast cell activation syndrome in long COVID • Mast cell activation syndrome and the link with long COVID • Mast cell activation symptoms are prevalent in Long-COVID • Mast cell activation is associated with post‐acute COVID‐19 syndrome • Mast cell activation may explain many cases of chemical intolerance • The Emerging Role of Mast Cells in Irritable Bowel Syndrome • Mast Cells, Neuroinflammation and Pain in Fibromyalgia Syndrom • Mast Cell Activation Disorder and Postural Orthostatic Tachycardia Syndrome: A Clinical Association • The relationship between mast cell activation syndrome, postural tachycardia syndrome, and Ehlers-Danlos syndrome • Mast cell-mediated neuroinflammation may have a role in attention deficit hyperactivity disorder (ADHD) • The role of mast cells in migraine pathophysiology • The role of human mast cells in allergy and asthma • Substance P and mast cells: preliminary histologic analysis of the human temporomandibular joint • Evidence for the Role of Mast Cells in Cystitis-Associated Lower Urinary Tract Dysfunction: A Multidisciplinary Approach to the Study of Chronic Pelvic Pain Research Network... • Restless legs syndrome is associated with mast cell activation syndrome • Mast cell activation disease: An underappreciated cause of neurologic and psychiatric symptoms and diseases • Successful Treatment of a Patient With Severe COVID-19 Using an Integrated Approach Addressing Mast Cells and Their Mediators • MCAS: what is Mast Cell Activation Syndrome? - Online interview • The Role of MCAS in Long Covid With World Leading Specialist Dr Lawrence Afrin • Here's How You Treat Long Covid | Lessons From MCAS - Dr Tina Peers • Mast Cell Activation Syndrome: More than “just allergies”
I recall in the 1980s there was a big medical backlash about Chronic Fatigue Syndrome and fibromyalgia - that one in particular was scoffed at a lot. I suppose after studying medicine for a decade one feels that anything they had not heard of didn't exist.
I had COVID before the 1st vaccine was developed and had long COVID after that. I have had less severe COVID symptoms with 3 more infections. This latest variant was the most mild but still have brain fog, fatigue, and occasional arrythmia
This video would've been the perfect opportunity to raise awareness (and ideally money) for fellow science RU-vidr "Physics Girl", who is currently suffering from a particular horrible case of Long Covid.
My 'Force of Nature' cousin suffered from ME before it was properly recognised and diagnosed, and a long time before COVID. It's no joke, and the worst part for her was not being taken seriously for many years..
My sense of smell took more than a year to come back fully - I could smell some things accurately and others not at all, but strong tastes/smells would "imprint" onto my nose for several months after experiencing them, and many things I couldn't smell would instead reek of it. For example, I ate a breakfast sandwich with way too much egg, and I tasted egg white randomly for about 4-5 months. Another time I took a shift washing dishes for a pub I worked at over the weekend, and suffered almost 9 months of smelling used cooking oil in random places. Luckily I eventually recovered, but it was not fun...
In September 2021 I had covid and Delta was the primary strain going around at the time in the UK. I was not hospitalised and recovered at home but it was nasty. During the infection I had severe tinnitus in my right ear (unilateral tinnitus). I recovered from covid but the tinnitus is still there today although not as prominent as it was during the infection. I was advised by a friend who is a retired nurse to get unilateral tinnitus looked into as it is a concerning abnormality. I mentioned it to my doctor who acted very quickly. Examinations and MRI discovered I had CSVD (chronic small vessel disease in my brain) this raises my risk of vascular dementia and stroke. I have not noticed any cognitive decline but then ... would I notice it? I do not know if I already had CSVD and covid added the tinnitus or if it was the cause of both conditions. My doctor thinks the latter is a distinct possibility because covid-19 is a vascular disease.
Same here, about the same time. Woke up on day three of symptoms with fairly loud tinnitus in both ears. It has not gotten better in over two years, though my brain has gotten better at ignoring it, it is still ever present. When getting screened for the extent of the damage my doctor told me they are getting about five new patients every day with the same problem. It’s permanent damage from the cells dying. Not everything grows back once dead.
First off all I'm sorry this happend to you. I also have tinnitus (and fatigue). Can i ask how the doctor diagnosed this and what has be done to treat you. I'm from the Netherlands and my general practitioner is not impressed by my symptoms and basically ignores there relevance.
I can attest that since I had it twice, (when that was supposed to be impossible) it was a once in a lifetime experience each time. I know how i got it both times and from whom. It felt more like I was being poisoned than fighting an infection. The headaches and near deliruim were incomparable to anything I've experienced before or since. Another member of my household got it at the same time, both times, and had precisely the same complaints. I think something like this takes it toll, long term. Why exactly this was so bizarre for so many may never be fully explained.
So strange how it effects different people differently. I had it three times and each time the only reason I knew was because someone I was in contact with tested positive and I went for a test.
@@kebsis For me it was quite the fever for a few days, als a loss of taste that lasted for weeks (gradually recovering). And an elevated heart rate for a month of 2.
Healthcare = Non-medical bureaucrats deciding your treatment, and consequently determining your health outcome. Also, the hikikomori might have the right idea.
How significant is a 0.3% decrease in average brain volume? I suspected this is a measurement that can also depend on the person's hydration level, and I found this paragraph in the 2018 study "The Effects of Hydration Status on Cognitive Performances among Young Adults in Hebei, China: A Randomized Controlled Trial (RCT)": "Several studies have investigated the effects of hydration on brain volume and other changes of brain, which also gave conflicting results. Duning et al. [16] analyzed three-dimensional data sets at three time points: (1) before (baseline) and (2) after water restriction for 16 h, and (3) 20 to 30 min after drinking (rehydration). They found that after water restriction for 16 h, the brain volume had a decrease of 0.55% when compared with the baseline, moreover, after rehydration, the volume of brain increased 0.72% when compared with the baseline. Kempton et al. [17] used 90-min physical exercise to induce dehydration, and the results showed that acute dehydration could lead to the ventricular expansion, but there was no change in the volume of the total brain, which was different with Duning’s study. Nakamura et al. [18] found that the brain volume significantly increased by about 0.36% between the dehydrated and rehydrated states, but did not change significantly during the dehydration interval. The research, which was conducted among 10 adolescents (half males and half females), demonstrated that the dehydration, induced by thermal exercise, led to a significantly stronger increase in blood-oxygen-level-dependent (BOLD) responses during an executive function task than the control condition [19]. In a study conducted among 15 healthy individuals, the results showed that the brain tissue fluid had an decrease of 1.63% after fluids restriction for 12 h [20]. The conclusions of the above-mentioned studies were different presumably due to the confounding factors such as the different methods to induce dehydration, the different volumes of water intake, and the different intervals after water supplementation, which needs more studies with appropriate study design". So even if it is a statistically significant measurement, rather than being a direct symptom of long-COVID it might be the result of people feeling ill for a significant amount of time not managing to drink water as often as they normally would.
as someone with long covid, the exhaustion is a constellation of tiredness. Post-exercise malaise is horrible do something and up to three days later you crash. the pots is where your blood leaves your brain when you change position, stand fast, and pass out. dysautonomia is the hardest it affects the digestion system badly it causes weight loss. here in canada part of the diagnosis is you have had to have been diagnosed with covid.
my gp insisted it was depression] and said I should just forget about running ultramarathons, triathlons and mountain climbing saying my ambitions were beyond what normal people needed and I needed to just accept they were out of my reach
Another way to read it is your condition is beyond what a normal doctor understands, so you need to find an exceptional doctor. Doctors often try to pin their inabilities on the patient's abnormal expectations, but the reality is, the average medical abilities are rather limited.
Ditch him. Brainwashed gp by the system and scared for his job. He will be replaced by ai doctors soon.You deserve better. Look into "conspiracy " where people speak truth they are not allowed to say on tv
The gaslighting comes from the desire to not look at a certain medical intervention that a very high percentage of people with long COVID had injected into them.
Long cv and long vx are both real with intertwined symptoms. There is also research showing the negative impact of vx after infection. Just as real is trauma and the psychological damage for those who lost careers and homes for wanting to make their own informed medical choices. Just as real is the carnage to economies and livelihoods as a result of unscientific and draconian cv measures. Lastly, just as real is the censorship and banning of early treatments which could have avoided so much of this mess.
8:47 for those who don't know, Vinay Prasad is a notorious minimizer and is known for mocking *the concept* of air filtration in general. Several generations ago, he'd probably say the diverse array of symptoms of lead poisoning was "overly broad"
I first had covid in Feb 2022, and it was a breeze, light cold at best. Have had cognitive issues every since though, similar to chemo brain I had during ABVD chemo. Memory issues, forgetting simple words(Like instead of saying "it's in the fridge" I forgot the word and ended up having to say "it's in the thing that keeps things cold"), concentration issues etc.
@@Samson1981-ks4xc Nope, my Hematologist advised against it from day one, said to see what happens. Then once the heart stuff started to be talked about said to avoid it entirely since one of the chemo drugs I was one, adriamycin, was risky to the heart and doubling up the risk wasn't worth the benefit.
i remember that i was almost bedridden after either my first or second covid infection. I was incredebly sleepy for almost more than a month after my infection. I couldn't work and couldn't go to my studies. I slept more than 15 hours a day and couln't get out of bed because i was so sleepy. I was scared and very worried. Fortunatley, that went away after more than a month... I still suffer from exessive sleepines sometimes.
This happened to me as well, & I’m a young women without preexisting condition as far as I know. I have never been so tired in my life. I would get sleepy & have to immediately lie down & was sleeping many hours. But yes it seems to have gotten better
This is wonderful. I've had Long Covid since March 2020. You cover just about everything I have either had or heard of and you do it very well. Many thanks !
It's unbelievable that people who do a long COVID study without confirming that the participants had COVID in the first place, can still call themselves "scientists".
The studies I have read noted which participants had confirmed vs assumed Covid and separated the results. If I recall correctly, part of the issue was that many participants acquired Covid very early in the pandemic, before there were accurate tests, so these participants were included too, but as separate groups.
@@krakken- If the aim of the study is to determine the probability of long-term consequences of a SARS-CoV2 infection, then a grouping as described by you would have to result in two completely different probabilities.
@@markvalery8632 I am referring to 9:17. To find out which studies are included in those 46% you would probably have probably have to read the article she is citing from.
We're only just starting to understand the role of mitochondrial damage in a wide range of illnesses (including cancer). There still isnt a simple test your doc can do to 'prove' that's your problem, nor do i think there'll be one any time soon. Even if the test existed, making a diagnosis of mitochondrial damage doesnt mean there's effective treatment
Sadly, your comment ranks as optimistic in the realm of Long Covid. A glimmer of light is better, even if surrounded by more intense darkness. It will never be fixed if nothing is ever tried.
"Then you go to your health care provider with your well-prepared list and they'll surely be impressed" - or they'll think you're a hypochondriac and that all of these problems are just psychosomatic...
I am suffering from long covid symptoms from my 3rd bout with it in June earlier this year. I can't remember simple words when I'm talking, and my vocal cords have been kind of extra 'gunky' since then. It's harder to talk. It's also worsened my ADHD symptoms. It's far more noticeable. Upping caffeine or increasing the dosage on my meds has not been helpful. I get mentally tired faster anyway. It never goes away, and I just want to hibernate
I also remember I drank not long after I recovered, and the next day, I stuttered and had brain fog so severe that I couldn't construct full sentences or pronounce simple words. It was so scary, I felt like my brain was dying. And I got better in a few days. My husband wanted me to drink with him a couple weeks later and it happened again, but less severe. I adamantly refused alcohol for months and only recently said I was okay with it again. Didn't have that reaction this time, months later. It wasn't until recently that I put 2 and 2 together with my symptoms that long Covid seems likely the culprit, but with something that has such adverse effects, it's hard to really pinpoint the exact culprit(s). Like, someone who has a brain tumor could pin it on long covid. If you experience symptoms that worsen and don't improve, try to rule out anything else. Oh, and dear Covid deniars and vaccine conspiracy theorists, go snort a line of asbestos
@@Samson1981-ks4xc to quell yours and others' curiosity, I'll tell you, but in detail so that you may form your own opinions. In August of 2021, and a month or so later, I got the vaccine + a booster. I caught Covid in February of 2022. I came out of it okay, and I never lost my sense of smell or taste. My second bout was just a few months later - short and not super noteworthy, it was the easiest round. Never got vaccinated after that. It's tough to admit, but I was kind of focused on other stuff, so it just kinda left my radar. Then I caught it again, June of this year (2023) without having been vaccinated since 2021. And it was miserable. I DID lose my sense of smell that time, and it didn't come back for weeks. It's back now, but not as accurate. I smell burnt toast on everything that has a scent now for some reason. And I'm experiencing long covid. Many dizzy spells still, months post-infection. Fatigue that's putting a big ugly wrench in my productivity. I'm still keeping afloat by sheer willpower, but I'd be a liar of I said it wasn't there. It was too the point that I thought I may have lymphoma, but after evaluation, that does not seem to be the case. I've never thought something was wrong like this in my entire life. I'm healthy and active with a clean diet, and I get my sun. I don't drink or smoke. I haven't hit 'middle age' yet, I have some time before that. This should not be happening to me. Some days I feel like I have dementia. This is not normal. I'm thinking I should schedule another vaccine appointment. My first two rounds were tolerable, it was when I went a full year no vaccine that I got these adverse effects. It may be coincidental, sure, but it tracks with the data.
My hypothesis is that ME/CFS, Long COVID and Post Lyme disease = Mast Cell Activation Syndrome (MCAS) . Same symptoms, same triggers, same PEM and same Common Co-diagnoses such as Allergy, Asthma, IBS, Fibromyalgia, POTS, ADHD, hEDS, Migraines, PTSD, Multiple Chemical Sensitivity (MCS), Interstitial cystitis (IC), Temporomandibular joint disorder ( TMJ), Restless legs syndrome (RLS).... There are many medications that can make most people with MCAS better. Scientific articles at NCBI. • Mast cell-mediated neuroinflammation may have a role in attention deficit hyperactivity disorder (ADHD) • Covid-19 hyperinflammation and post-Covid-19 illness may be rooted in mast cell activation syndrome • Immunological dysfunction and mast cell activation syndrome in long COVID • Mast cell activation syndrome and the link with long COVID • Mast cell activation symptoms are prevalent in Long-COVID • Mast cell activation is associated with post‐acute COVID‐19 syndrome • Mast cell activation may explain many cases of chemical intolerance • The Emerging Role of Mast Cells in Irritable Bowel Syndrome • Mast Cells, Neuroinflammation and Pain in Fibromyalgia Syndrom • Mast Cell Activation Disorder and Postural Orthostatic Tachycardia Syndrome: A Clinical Association • The relationship between mast cell activation syndrome, postural tachycardia syndrome, and Ehlers-Danlos syndrome • The role of mast cells in migraine pathophysiology • The role of human mast cells in allergy and asthma • Substance P and mast cells: preliminary histologic analysis of the human temporomandibular joint • Evidence for the Role of Mast Cells in Cystitis-Associated Lower Urinary Tract Dysfunction: A Multidisciplinary Approach to the Study of Chronic Pelvic Pain Research Network... • Restless legs syndrome is associated with mast cell activation syndrome • Mast cell activation disease: An underappreciated cause of neurologic and psychiatric symptoms and diseases • Successful Treatment of a Patient With Severe COVID-19 Using an Integrated Approach Addressing Mast Cells and Their Mediators • MCAS: what is Mast Cell Activation Syndrome? - Online interview • The Role of MCAS in Long Covid With World Leading Specialist Dr Lawrence Afrin • Here's How You Treat Long Covid | Lessons From MCAS - Dr Tina Peers • Mast Cell Activation Syndrome: More than “just allergies”
People with these effects will have no problem to accept ubi and live in web3 in the virtual reality on their couch. Unfortunately they were rendered unusable for society, as they planned. 😢
My daughter is suffering from long covid. She hasn't been able to work for over 3 years now and all her future plans are on hold. Many of the symptoms, including brain fog and fatigue are pretty debilitating. She has had help but it's still not good.
My hypothesis is that ME/CFS, Long COVID and Post Lyme disease = Mast Cell Activation Syndrome (MCAS) . Same symptoms, same triggers, same PEM and same Common Co-diagnoses such as Allergy, Asthma, IBS, Fibromyalgia, POTS, ADHD, hEDS, Migraines, PTSD, Multiple Chemical Sensitivity (MCS), Interstitial cystitis (IC), Temporomandibular joint disorder ( TMJ), Restless legs syndrome (RLS).... There are many medications that can make most people with MCAS better. Scientific articles at NCBI. • Covid-19 hyperinflammation and post-Covid-19 illness may be rooted in mast cell activation syndrome • Immunological dysfunction and mast cell activation syndrome in long COVID • Mast cell activation syndrome and the link with long COVID • Mast cell activation symptoms are prevalent in Long-COVID • Mast cell activation is associated with post‐acute COVID‐19 syndrome • Mast cell activation may explain many cases of chemical intolerance • The Emerging Role of Mast Cells in Irritable Bowel Syndrome • Mast Cells, Neuroinflammation and Pain in Fibromyalgia Syndrom • Mast Cell Activation Disorder and Postural Orthostatic Tachycardia Syndrome: A Clinical Association • The relationship between mast cell activation syndrome, postural tachycardia syndrome, and Ehlers-Danlos syndrome • Mast cell-mediated neuroinflammation may have a role in attention deficit hyperactivity disorder (ADHD) • The role of mast cells in migraine pathophysiology • The role of human mast cells in allergy and asthma • Substance P and mast cells: preliminary histologic analysis of the human temporomandibular joint • Evidence for the Role of Mast Cells in Cystitis-Associated Lower Urinary Tract Dysfunction: A Multidisciplinary Approach to the Study of Chronic Pelvic Pain Research Network... • Restless legs syndrome is associated with mast cell activation syndrome • Mast cell activation disease: An underappreciated cause of neurologic and psychiatric symptoms and diseases • Successful Treatment of a Patient With Severe COVID-19 Using an Integrated Approach Addressing Mast Cells and Their Mediators • MCAS: what is Mast Cell Activation Syndrome? - Online interview • The Role of MCAS in Long Covid With World Leading Specialist Dr Lawrence Afrin • Here's How You Treat Long Covid | Lessons From MCAS - Dr Tina Peers • Mast Cell Activation Syndrome: More than “just allergies”
I´m so sorry to read this. I hope your daughter gets better and I wish her and you all the best. Did the vaccin result in any improvement for her? I had long covid myself for at least 2 years, I got somewhat better after my second mRNA vaccine and then slowly better over time, or maybe after fourth mRNA vaccin. Did your daughter have many symptoms during the first time of the infection? Has she improved at all from the first months from infection? I do hope and wish all the best for her. Take care. Best regards
I’ve had long covid in the severe category since I got sick in March 2020. I’m still going through cognitive and nerve pain issues and have a very low threshold for activity. The treatments you mention are nothing I or anyone I know from a support group ever received. Maybe those are clinical trial treatments? Maybe you have to be rich. I’m in Swedish health system. The gaslighting is real. Especially for us who got it first before people knew it was a thing. For the first almost a year, I was told I had the flu over and over. The main treatment I got was cough medicine for my persistent cough, but not being able to remember common words or sometimes halt mid sentence because my speech just malfunctions was brushed off. Exercise more. 😂
Thanks Sabine for the great video! I caught COVID for the first time about 11 months ago, and have been suffering from moderately severe persistent asthma ever since. As a side effect of COVID, I am now extremely sensitive to artificial fragrances found in shampoos and other common products. Recently, it was also discovered that I have chronic inflammation in my epipharynx (the part of the throat behind the nose), and there even be some kind of viral particles remaining there which are upsetting my immune system. I have begun treatments with an ENT, and hopefully my symptoms will improve over time.
IIRC that is one area where there has been a lot of success against sequelae of COVID-19, retraining the nose to recognize particular odors. I wish you the best!
I've had chronic fatigue syndrome along with multiple chemical sensitivity for years. It is all because of the central nervous system being out of whack which is common in post-viral syndromes. I hope the ENT works but if it doesn't you might need to look at using less and less fragrances to try to stop the progression (which often happens). A trick I learned if you have issues with an overwhelming smell that seems stuck in your nose is to sniff ground coffee or coffee beans. They use that trick in the perfume industry when testing different smells. Really helps stop a coughing attack (if you are that sensitive). My brain's reaction to chemicals and fragrances is so extreme at times, yet I was the person who had every single product out there. The best is to try to reduce them as much as possible to avoid overwhelming your senses. What helped the most is we moved to the countryside and stopped using fragrance-ladder products. Icanbreathe masks sell carbon filters. That's the only way I can meet normal people who wear clothes with detergents without gagging or coughing.
Thanks for the tips! I am already using fragrance-free natural soaps and clothing detergents, and found that very helpful. One other thing I noticed is that even if something is unscented, it can still set off my asthma if it contains alcohol or certain other substances.@@CG_Hali
I retrained my nose and it did work, but after Covid my favorite perfume smelled like burning tires (when it actually smells like a dewey flower shop). So did many others. I worked really hard at remembering what it smelled like, and it got to about 50/50 when I could smell it again. Now three years later, I think I very thankfully have my smell back as normal, but it took almost this entire time@@flagmichael
@@klondike444 How is what I said remotely funny? You can easily look her up (she is listed as an "agenda contributor" for the WEF). The point is was making is that while Sabine makes some great physics videos, but... Anything health-related may have a strong agenda behind it. Notice there was no mention of vaccine injuries? Or use it as a control group? (these aren't vaccines, some very basic fundamentals here) What is distasteful is Sabine recommending people to get "vaccinated", when some other Sceicne RU-vidrs had some serious "long covid" (it is impossible to rule out vax injury, unless they're "anti-vaxxers"). Early on, it was recommended that pregant women get vaccinated; when pregnant women were explicitly excluded from the trials (some serious ethical issues there). Speaking of control group, TB is currently rising sharply (it's a mystery as to why). To be clear. I don't wish harm on anyone, nor am I laughing.
Thank you Sabine for presenting such an important topic. I have a lot of empathy for people suffering from chronic conditions which doctors don't understand, because the medical gaslighting adds another layer of suffering to their already difficult lives. My partner never had COVID but was hospitalised for 7 months after the 2nd dose of an mRNA vaccine and is now partially disabled with a list of symptoms which is very long-COVID like. And, no, I don't have anything against vaccines in general. Try getting medical help in this situation, it's virtually impossible 😢.
Long cv and long vx are both real with intertwined symptoms. There is also research showing the negative impact of vx after infection. Just as real is trauma and the psychological damage for those who lost careers and homes for wanting to make their own informed medical choices. Just as real is the carnage to economies and livelihoods as a result of unscientific and draconian cv measures. Lastly, just as real is the censorship and banning of early treatments which could have avoided so much of this mess.
@@khellstr -Only MAGA lie to their doctors; "I don't believe in Covid" then 6 months later when they can't breathe because of Covid, "I need to be admitted to the hospital because I can't breathe and I'm freaking out"... SMH...
If someone is “partially disabled”, they should’ve been able to get medical help, no matter the cause (and even without stating one) Anyway, condolences if it’s true, and get well soon
Medical Gaslighting! Thanks for giving that a name! My PCP insisted that I couldn't have an illness that he never learned about in medical school. I figured out what was wrong with me and what the solution was, but he insisted that was "IMPOSSIBLE" (that's him screaming at me) and he demanded I go on six months of Valium to rid me of the obsession that I was ill. I found a pediatric allergist at Children's Hospital who had seen my "new" illness before and could provide me with the name of it. My PCP was now in a bind. It was no longer my "obsession", I had a specialist who had diagnosed me. Sadly, his ego couldn't handle that and I fired him and got a new PCP who was eager to treat my illness. I quickly recovered with the right treatment. I often think about what life would have been like with a Valium addiction AND my original illness. I doubt I could handle both at the same time.
@@thedevilsadvocate5210I was diagnosed with non-celiac gluten sensitivity (NCGS). I stopped eating wheat, rye and barley. I use rice, corn and quinoa instead. My gut healed and my brain fog, sore joints and stiff muscles all went away. Today I'm fine as long as I don't eat wheat, rye or barley.
Viruses have always been able to leave you with chronic fatigue symptoms. Covid is not unique. Glandular fever seems to have a long recovery period. I actually know of more men that have had post-viral fatigue, but I realise this is anecdotal. My parents got covid at the same time, at the age of 68. My mum recovered quickly, but my dad aged 5 about years and is still not the same.
10 месяцев назад
It's unique in so far as it is the most prevalent and infectious disease of our times. How many people do you know who have had, say, influenza four times or more in a year? And the rate of long term consequences seems higher.
I got covid the day before yesterday (despite five vaccinations) and I know someone with long covid for over a year (also vaccinated). Stay safe folks!
@@adelinad3513 Yes, 5. That is the smart way to bet. The three of us in the family flew from Arizona to California and back last month. Our extended family of five from New Mexico joined us in Phoenix. All eight of us were fully vaccinated (last dose in early October) except one who is immune compromised due to an autoimmune disorder. Only the unvaccinated one caught COVID. The antivaxxers are not your friends.
Hope Diana (aka physics girl) is doing ok. Didn't hear from her for so long. I miss her videos. Everytime anyone mentions long covid her face comes Infront of me. Get well soon Diana science community needs you 🤞❤️
I guess I had a slight misunderstanding of what gaslighting meant. I thought gaslighting was when you tell somebody a lie that you know the other person knows is a lie, and you insist on it anyway.
That's a tactic of gaslighting, but it also includes trying to convincing other people that you're crazy. As a whole, gaslighting is trying to manipulate the information you give to someone and others in an attempt to devalue a person's perspective. The main goal is not to lie, but to devalue someone. It's one thing to lie to someone to get your way, it's another to try and completely undermine their self-esteem. Almost like murdering someone without killing them.
The definition seems to be changing because of misuse. Similarly to "snowflake" which originally meant someone who thinks they are unique and special, one of a kind.
As presented in the movie, that was the basis of the evil scheme. The wife knew she had seen the light dim, indicating he had turned on the light in his room, but he denied doing that.
My hypothesis is that ME/CFS, Long COVID and Post Lyme disease = Mast Cell Activation Syndrome (MCAS) . Same symptoms, same triggers, same PEM and same Common Co-diagnoses such as Allergy, Asthma, IBS, Fibromyalgia, POTS, ADHD, hEDS, Migraines, PTSD, Multiple Chemical Sensitivity (MCS), Interstitial cystitis (IC), Temporomandibular joint disorder ( TMJ), Restless legs syndrome (RLS).... There are many medications that can make most people with MCAS better. Scientific articles at NCBI. • Covid-19 hyperinflammation and post-Covid-19 illness may be rooted in mast cell activation syndrome • Immunological dysfunction and mast cell activation syndrome in long COVID • Mast cell activation syndrome and the link with long COVID • Mast cell activation symptoms are prevalent in Long-COVID • Mast cell activation is associated with post‐acute COVID‐19 syndrome • Mast cell activation may explain many cases of chemical intolerance • The Emerging Role of Mast Cells in Irritable Bowel Syndrome • Mast Cells, Neuroinflammation and Pain in Fibromyalgia Syndrom • Mast Cell Activation Disorder and Postural Orthostatic Tachycardia Syndrome: A Clinical Association • The relationship between mast cell activation syndrome, postural tachycardia syndrome, and Ehlers-Danlos syndrome • Mast cell-mediated neuroinflammation may have a role in attention deficit hyperactivity disorder (ADHD) • The role of mast cells in migraine pathophysiology • The role of human mast cells in allergy and asthma • Substance P and mast cells: preliminary histologic analysis of the human temporomandibular joint • Evidence for the Role of Mast Cells in Cystitis-Associated Lower Urinary Tract Dysfunction: A Multidisciplinary Approach to the Study of Chronic Pelvic Pain Research Network... • Restless legs syndrome is associated with mast cell activation syndrome • Mast cell activation disease: An underappreciated cause of neurologic and psychiatric symptoms and diseases • Successful Treatment of a Patient With Severe COVID-19 Using an Integrated Approach Addressing Mast Cells and Their Mediators • MCAS: what is Mast Cell Activation Syndrome? - Online interview • The Role of MCAS in Long Covid With World Leading Specialist Dr Lawrence Afrin • Here's How You Treat Long Covid | Lessons From MCAS - Dr Tina Peers • Mast Cell Activation Syndrome: More than “just allergies”
