Long Covid vs ME/CFS | Why There's Much We Can Learn From The Similarities 

Very astute observation

I’ve had cfs for 25 years, also had covid in March 2020 and got MUCH worse and haven’t recovered - basically long covid on top of cfs. It feels a lot like just a worsening of CFS but with some specific differences, like chest pains, which I never had with regular cfs. I developed CFS after another virus, Epstein Barr, so I suppose something about my immune system makes me predisposed to these conditions from some viral infections unfortunately.

100% right. I'd much prefer to put my head in the sand and wait than to associate it with me-cfs. I wish well to these people, but it is not necessarily the same thing.

@@alexandrecouture2462 The thing is, sticking one's head in the sand never gets you anywhere. Not claiming it's the same thing, but there is a very distinct and large overlap, just as there is with Lyme. Different pathogens may lead to similar disease patterns. Ignoring these patterns means ignoring existing research etc. Starting from scratch means missing all that existing research, instead of building on it and expanding it. It's throwing the baby out with the bathwater. And shooting yourself in the foot.

@@andocobo I've had cebv...chronic epstein barr virus since 2007.....after 14 years felt better for 13 months then got covid in March 2021...17 of not feeling well like a bad cold/flu....then for a week thought I was better then after that IT HIT ME HARD.....And now it's 9 months later and still bad and not working.....If it wasnt for covid I truly believe I'd still be better.....I AM SO MAD AT THIS COVID IT PUT ME BACK IN HELL

I'm so sorry to hear this K. I have a similar story but i've only been severely ill for a few years. It sounds like you may also have CCI/AAI. I've gone through the diagnosis route and hit a dead end with neurologists laughing at my scans and diagnoses, and telling me I just need to talk to a therapist to fix this ME/CFS thing. I don't think anyone hates the medical community more than a chronically ill patient.

I was just diagnosed with long Covid syndrome and it's a mess. But I hear your heart and pain you've suffered and wanted to share these with you; John chapter 1, verses 1-14, and Revelation chapter 21, verses 1-5. Be blessed!

@@desireoverpain Thank you, RJ. I was born with Congenital Scoliosis and have EDS so CCI/AAI is likely (plus ME/CFS so there are many things possible). I'm tired of trying to get accurate diagnoses. The only reason for wanting them was for the correct treatments - but I'm too worn out for those now too - unless it would be a quick fix, like medication. Anyway, I've only shared about all/any of this for the past couple/few years but think I should stop now as mentally I'm giving up - and that doesn't help anyone. But I do appreciate you being there.

Hello K, I hear your hurt.I am a 36 yr old women who has had a lot of mental,emotional and physical traumas.I have MS and am going through long Covid currently. Some days like today I am so weak all I can do is lay in my bed listening to things…I don’t have enough energy to watch them. I saw your comment and I wanted to respond to you. I want you to know I only have the strength to type this by the grace of God.Jesus Christ is the great physician lean on Him he won’t let you down. John 3:16-18 1 Corinthians 15:1-4 Jesus loves you. Blessings to you.

I was lucky that my CooL AF doctor handed me my entire file before they digitised the records. He said do want you want and return it (with a wink). So I removed all the misdiagnosed psych nonsense. When I go to my latest doctor I keep the issues concise and act like I'm part of the solution. I always say 'Look I know it's not your fault that the medical establishment failed to inform you on ME/CFS..." I offer to send him quality research and he likes that. Make their job easy, Remain sane, if we don't moan or be demanding they pay more attention. However if you get a non believer, firmly threaten to report them to the medical council or disability commissioner. That makes them pull their arrogant heads in!

It’s a pleasure Masoud!

Thank you Dee! Best of luck in your recovery.

@@RUNDMC1 Thank you Gez and you too of course 🙏🎅☃️

Fingers crossed for you Wendy, that’s great news!

@ Wendy Lorimer I am really pleased for you, has your GP ever done any blood tests for you ? do you know what your inflammation marker levels were compared with what they might be know

@@RUNDMC1 Thanks! It has been your information on taking the B3 etc. that has kept me going so a million thanks for that 😀

@@fjspicer1 Thanks! i haven't been near the NHS since May last year, I was totally dismissed as someone who had fantasized being ill. The best help has been from these videos. After the video about micro blood clots I started eating more garlic, that helped me massively when the Covid hit my lungs initially and seemed to help again.

That's great news. There's a sense that these conditions are like a switch stuck in the wrong position. Prof. Ron Davis has mentioned that the few ME/CFS patients who have recovered do so fully. Fingers crossed! My one recommendation is to keep pacing for a while even if you feel normal. My own sense is that returning too quickly to full speed is one of the ways these conditions persist.

What did you learn!? Are you fully recovered from LC now?

Thanks Judy!

@@RUNDMC1 God gave me another miracle of healing - and he used you to point me in the right direction. Cant thank you enough for your excellent documentaries and interviews. God bless ❤🙏❤

@@judymiller5154 What is that cure, treatment, miracle ? Thank you.

@@wildhorses6817 Wish I could tell you but not only is it complicated, its individual. Pray. Do your own research. Read books. Watch everything on this channel. Find a great doctor. Take care of mental health, stress, family and friends. Pray. Abstain from alcohol, sugar, refined over-processed food. Spend time in nature. Find people who understand, like the facebook page "Long Covid Support Group". Pray. For me, the key to my recovery was addressing histamines with a strict diet of only fresh-cooked beef and butter 2x a day for 2 weeks, (then trying only one new food a day ), multiple antihistamines and a ton of supplements. May God bless you with your own clear path to total healing ❤🙏❤

Are we there yet? Are we there yet..?

I can totally relate to that comment.

Me too! Crashes are shorter, gentler and further apart and I'm able to tolerate more and more triggers and exertion. I managed a 5k without any PEM last week! While the pathology is obviously physical, the most helpful remedy for me has been consistent meditation and breathing exercises (meditation has been scientifically demonstrated to regulate the HPA axis that is mentioned in this video).

@@samplayle1858 Sam, that is wonderful and inspiring. Congratulations on your first 5K post-covid! 😀😎

@@samplayle1858 that's pretty freaking huge!! A 5k never seemed possible to me, and long covid cements that fact :)

Very glad to hear you’re doing better Ella!

@@RUNDMC1 still following the same steps to recovery ; meditation , breath work , probiotics , movement and careful exertion , anti inflammatory diet , intermittent fasting, addressing deficiencies using supplements and pacing

@@EllaSloman how often do you have episodes of brain fog i have the same symptoms drowsiness unable to focus headache l m only three months old Recpects..

@@yesminaozturk5338 I had very bad brain related issues after I caught covid and I couldn't talk properly and my coordination and balance were affected . I hadn't been vaccinated in January and I had a heavy viral load. I also had pneumonia and really struggled to find my breath. I still have brain fog and can physically feel the frontal lobe part throb normally when I've been busy or im exerting myself . It has improved though. I guess the best price of advice I can suggest is to try and put in place some of the suggestions on this thread to give yourself a really good head start to recovery.

@@EllaSloman thank your for your courtesy to reply

Yes it’s such a shock. Can’t believe I was talking to him only a few weeks ago.

Thank you for watching!

Unfortunately there are way too many pitchforks around this subject - but it is a reflection of the way sufferers have been treated for so long (amongst other reasons)

So sorry to hear of your story Annie :(

@@RUNDMC1 many thanks for your kind words.

Thank you Sarah!

@@RUNDMC1 Still set on buying you a stiff drink and a belgian waffle? 😉, once we get to the other side of this situation. As I believe you're not that into Belgian beers..? Happy hols & warm regards Gez 🍀

I had Chicken Pox at the same time I had Covid-19. 67 year old male who had Chicken Pox at 6 years old.

@@randolphwilliams2365 sorry to hear that. So you had the chicken pox twice?

Me too. Onset at age 20. Use CVS as an umbrella term but more accurate would be to call it post varicella rather than CFS which is a highly heterogeneous group. Varicella is a well known cause of disability, especially in adults. This is a post viral syndrome but few physician's have understanding of that.

Lance hi! Was your recovery from ME strictly focused about addressing the GUT and pacing? Glad you almost recovered! 😊 I am 24 years old, 5 months into it and it’s a living nightmare. Doing my best to gain the knowledge to improve. Thanks for your kind attention!

@@niccolowrld hi Niccolo, thanks for your comments mate. Main concentration was getting gut right , you know when your stomach feels right, cut out fats and dairy and some wheat. Lost 2 and half stone. Once I felt semi recovered I could start eating my previous usual foods. Definately no exercise. Listening to your body and working out best approach. Colour therapy helped too. All the very best in your recovery Niccolo, The plus side is you know that you have alot of determination which will help with your life going forward 👍 Kind regards Lance

@@lancemacdonald1819 Thank you so much for your kind answer and I am very glad you are doing better and have a second chance at life. Best regards, Niccolo.

@@niccolowrld Hi Niccolo, Just wondered how you are, any progress ?. I forgot I also cut out sugar, still don't have much . Kind regards Lance

Thank you Riham!

Thank you!

I think you are correct about the reductionist Traditional Medical paradigm being incorrect for the study of Long COVID/Chronic Fatigue Syndrome/ME/Fibromyalgia/Lyme Disease. Its inability to treat these afflictions has lead to the Psychiatric diagnoses that stigmatize patients. The Functional Medicine paradigm, which treats the Body as an interconnected ecological system of organs & microbiome affected by nutrient deficiencies, pathogens, and environmental toxins, is a much better approach. Dr. Mark Hyman discusses Functional Medicine on his RU-vid Channel, and treats patients at his UltraWellness Center. I find the association of diseases like Long COVID with Autoimmunity interesting. Hyman often discusses how autoimmune disorders initially arise from a Leaky Gut, which allows foreign proteins or pathogens to directly enter the bloodstream, bypassing the digestive process, and cause a dysfunctional Immune System response. Similarly, a Leaky Blood Brain Barrier has been proposed by others as how these proteins or pathogens enter the Brain, causing Inflammation that results in dysfunction of the Autonomic Nervous System, a proposed cause of Long COVID. If this is the case, any treatment of Long COVID and similar diseases must restore the integrity of the Blood Brain Barrier and Gut to be effective.

What is BC007, please??

Leave it with me Sami!

This is BC007 berlincures.de/pipeline/

@@RUNDMC1 I asked about this on Twitter and Berlin Cures responded. They would very much like to get in contact with the OMF. Could you pass this on to them, Gez? Thank you!

Thank you K - best of luck with your recovery!

Thank you Andreas!

That’s exactly it for me too!

Thanks for watching!

I know that feeling of trying to work out if you’re any better or not!

How are u today?

Hey Viktor, i might talk about it in a future film. Unfortunately I’ve had to cut out all of the stuff I used to like (coffee, tea, exercise etc!)

@@RUNDMC1 compounded ketotifen has improved symptoms for many of us with Mast Cell Activation Disorder.

M.E. is caused by coxackievirus. CFS is defined as having no known etiology. The cfs group hijacked the M.E. dx in the late 80s to try and legitimize their condition. Let me say it plainly: M.E. does not equal CVS. This is flawed logic and is like saying malaria equals dengue because both share the symptom of fever. The false equivalence has ruined M.E. research.

I agree, a lot of Covid long haulers may very well have ME/CFS. But a large section also doesn’t, for example people who are mainly plagued by blood clots and whose weird symptoms go away once they deal with the blood clots.

M.E. is caused by coxackievirus, CFS is by definition unknown etiology and long Covid is well, caused by Covid. It is one of many post viral syndroms. Therefore m.e. doe not equal CFS and long Covid is not cfs or m.e. malaria is not dengue just because of similar symptoms. Etiology. DEFJNES disease.

Great to hear you’re coping better!

How are u now?

@@shaft657 slowly improving. Feels very slow but I can't complain as moving in the right direction.

Great to hear that... happy for you... hope soon there will be sucess story posted here... keep going in right direction

Thanks Laura!

Thanks Nicole - hope it works for you!

@@RUNDMC1 I'm cautiously optimistic but after 9 sessions, I've gone from average daily 02 levels of around 88 up to 99-100%. So it is doing something. I'm just not sure what yet.

Best of luck with your recovery

Me2...how is your dr treating it?

Hi there - I've been diagnosed with having coeliac disease due to having long covid . What a pickle we're all in .

@@deethompson3592 how do you treat that,diet?

@@stormshadow9026 Hi there - You have to eliminate anything that contains Barley Rice Oats or wheat from your life , it can be found in lipsticks sauces drinks and all kinds of foods. Alot of the symptoms are just like ME/CFS too. I no longer recognise my life like most of us long haulers. I hope things begin to improve for you Storm - it looks like we both have life long conditions now from Covid 19 doesn't it 💔🙄

Hi Erika - we did talk about that, later on in the video! And I agree :)

@@RUNDMC1 Oh sorry, I missed that part. Well now you see how important you are! :)

Thank you Pauline! If I find more info on the HPA axis effects I’ll let you know!

It’s your cortisol cycle…normally cortisol is at its highest in the early morning to wake you up. It should be at its lowest at a reasonable bedtime. The best way to find this out is through a 24hr saliva cortisol test where you’re given 4 sterile tubes that you spit into at specific times of the day. You freeze the tubes, mail them back for analysis, and they send you a report where they chart your cortisol levels for you. Overall, cortisol levels are on the low side in both LC & ME. The pattern might show, for example, that your cortisol levels are highest when you should be sleeping and lowest mid morning.

@@JulienArbor What's the best way to normalize cortisol cycles?

@@paulineroberts1815 Hi Pauline! First you need to find out what your cortisol level is and its pattern. It takes time and a lot of work to address Adrenal Insufficiency (aka Adrenal Fatigue or Adrenal Exhaustion) and it’s important to learn whatever you can about it. Also make certain that your thyroid is working properly since there’s a close relationship between the adrenal and thyroid glands. My cortisol was low (not so low that I had Addison’s Disease, but I had severe Adrenal Fatigue/Adrenal Exhaustion) and my pattern was pretty much opposite of what it should be. I had to set up a schedule for myself and stick to it, which was really hard for me because I had always been a night owl. No eating after 7p, in bed by 9p, take up meditation, stop all stimulants (very hard to quit caffeine), avoid all unnecessary drama & stress, make certain that you don’t have any nutritional deficiencies and take supplements to maintain, eat whole foods, take adaptogens (herbs that help you deal with stress & support the adrenal glands), make sure to incorporate a lot of quiet time and time for the things you enjoy into your life, bombard your senses with pleasurable things…listening to music, smells you like, soft, comfortable clothing, relaxing baths with epsom salts, massages, etc. In some ways I was lucky to have it when I did because this was pre-internet (yes, I’m old 😉) so I didn’t have the temptation of social media, but if I did I would definitely stay away from it. I also took up taiji and other Daoist arts…gentle, soothing exercises rather than anything that too taxing. I discovered that there’s a window of time right around my bedtime that I get really sleepy, but previously I had been pushing myself to stay awake past that window and would then get a second wind and be up until the wee hours of the morning. If I go to sleep during that window I feel much more rested and wake up pretty early in the morning. The same number of hours of sleep isn’t the same if it’s done later at night until later in the morning or into the afternoon. You also don’t want to eat anything within a few hours of sleeping because even though you may be able to fall asleep, your body is still working hard to digest your food so the quality of your sleep isn’t as good. I also worked closely with my doctor who’s a traditionally trained internist, but also has extensive additional training in functional medicine. He prescribed a low dose of hydrocortisone which I took for a while. It gives your adrenal glands a bit of a break so they don’t have to work so hard and can heal. At that time there were very few doctors who were willing to prescribe hydrocortisone, and I don’t know how it is today. You used to be able to take a glandular OTC called Isocort, which was similar (but not as potent) to taking hydrocortisone, but they no longer make Isocort. I believe a few supplement manufacturers distribute whole adrenal glandulars or combinations with adaptogens, but I don’t know of brand names. Ideally you want sheep adrenals followed by bovine. With hydrocortisone I just felt a bump up in energy…nothing very dramatic. But it was enough to help me with the crippling fatigue and exhaustion, and allowed me to do more than I had been. The trick here is not to overdo it, which is incredibly easy to do. You get excited that you feel better and you want to make up for all the things you’ve been missing out on or had to put off. That’s the trap you have to avoid or you’ll be back to square one if not even worse. I’m losing steam myself, but feel free to ask me any questions you have and I’ll try to answer you. I remember first learning about Adrenal Fatigue/Adrenal Exhaustion and thinking that there were some things I just wouldn’t be able to do. Ha! This illness definitely shows you who’s boss and you can either do everything required to heal it or keep getting worse. It’s very humbling.

Leave it with me!

@@RUNDMC1 Shaking your hand!

@@RUNDMC1 I hope you don't mind me asking, I am also from the UK and wondering who you have found that is willing to treat you with anticoagulants? I am more than happy to go private as I have quite frankly given up on the NHS. :)

Thanks Jenny!

Dr. Tompkins is quite new to the ME/CFS community research world. Dr. Nancy Klimas is one researcher who can speak on it after decades of research.

Best of luck to you in your recovery Diane

Thanks Jan. There may be some differences in trigger (viral persistence etc) but certainly many similarities in outcome.

It’s coming!

Very interesting Mike!

He’s referring to 2 different types of antihistamines - one blocks the H1 receptor, the other the H2 receptor. You can generally buy H1 blockers over the counter, like Telfast, Zyrtec etc., H2 blockers usually require a prescription. You can also get higher dose H1 blockers via prescription.

Hi Nancy, as someone who’d previously had PVFS for 12 months (technically ME?) - your description of ME with fangs is bang on!

I’m in the same situation, had CFS for 26 years and now also had long covid since March 2020. For me long-covid is very much like a worsening of CFS, good days now are more like what bad days used to be. There are a few new symptoms - chronic chest pain, chronic cough - but for the most part it feels like a general worsening of CFS for me. My capacity for any kind of activity has probably dropped around 70% below what it was with just CFS, which was probably around 30% of normal. I personally think the mechanism is either the same or very similar in both conditions.

Nancy Johnson your story is my story. Also had ME for 40 years and LC for 22 months. I,liked what you said that it is like ME with claws. You are so right. I am really battling. Luckily my husband has taken over the shopping and other things that I was able to do with ME but can't do anymore. I was 32 when I got sick and am now 72. Take care.

@@andocobo I believe you’re right about the same or a very similar mechanism causing both LC & ME. I’ve had ME for 30+ years and I believe the trigger for me wasn’t a virus, but instead a systemic fungal infection that set in after far too many antibiotics beginning as a kid through my teenage years and into my early twenties for chronic tonsillitis, then acne, and then chronic strep. My microbiome was destroyed when I was a child! The microbiome is being called a biomarker in both LC & ME.

So sorry to hear that - I relapsed again recently and it really is bloody awful

@@RUNDMC1 I greatly appreciate your honest and your candor. Your YT Channel has been one of answeres and solutions. Thank. Yes! It seems defeating at times, but if we stick together we can get to the other side of this. I hope that you are saving your notes for the great novel that you'll write about your experience.

How are u today?

CFS and ME are the same thing -just different names. Often the condition is referred to as ME/CFS. In UK, ME is the preferred name.

www.nhs.uk/conditions/chronic-fatigue-syndrome-cfs/

ME stands for myalgic encephalomyelitis.

It’s just the old haircut growing out! But thank you :)

@@RUNDMC1 haha, who cares, it looks good

This is awful. I’m so sorry Anson

I was just diagnosed with long Covid syndrome. While it feels like slow death, your situation seems like a much tougher issue but you sound strong. Check out the book of John, chapter 1, verses 1-14. And read Revelation 21, verses 1-5.

Steroids help with muscle wasting and certain steroids help connective tissue.

Anson, how are u today?

Very sad news

@@RUNDMC1 Yes, it's so sad. Suddenly he was gone. Mr. Tompkins was a very passionate and empathetic person. I think you got the very last interview with him.

Try melatonin if you can get hold of some

Well there aren’t really any widely accepted biomarkers, isn’t that part of the problem?

@@RUNDMC1 It's a huge part of the problem. I want a diagnostic test first and foremost. I think fundraising, and advocacy should be concentrating on that. Dr. Ron Davis potentially has that in the Nanoneedle with electrical impedence, but we need. to get it funded to find out. However, there is no diagnostic test for ALS either. But it is still researched, funded, and accepted as an illness. Ultimately, ME/CFS is held outside the normal rules of play in terms of how we judge it. That is also the problem. I would love to see you interview Dr. Ron Davis and Dr. Rahim Esfandyarpour (UC Irvine) about the Nanoneedle and its potential. med.stanford.edu/news/all-news/2019/04/biomarker-for-chronic-fatigue-syndrome-identified.html

I’ve not heard of that either 🤔

I completely agree David!

I and others will remember that all the credit goes to you and people like you. You are very important. I only hope that good people find you since the majority are the regular doctors.

He knows more about the subject than I do!

Not sure about IV fluids but IV glutathione has had good anecdotal reports

It’s still the same as discussed in this film: ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-sICD0Kn6pR4.html

@@RUNDMC1 thank you

Yes - asymptomatic cases can lead to long covid, and vaccination can do too in rare cases.

@@RUNDMC1 thanks Gez! I thought i was a rare case. Drs here in Chile are rather suspicious on long covid.. i made my own research and finally find a dr who supported me and we are looking for answers. In my case I am finding that every time I feel in highly emotional situaton, my body collapses with different symptoms abd i hsve to rest afterwards to become myself again. It is diffcult to the family to understand, the think thst is “my age”, “ my sensibility” or whatever and that leads me trying to not telling anything of what happens to me. It is a lonely issue. I am an artist and that has supported me better than anything. Have you heard of Dr,Loh, in USA, and her investigations on vit C and melatonin? Follow het on Facebook. Thanks Gez for your answer. I’be here. Be safe.🌺

Me, too. I completed the 14-panel cytokine test with a high score on the long-hauler's index. I trying to at least find some people who have been through this protocol to see what to expect. That would be just anecdotal, but better than nothing. I hear that 1600+ people have been treated but no published statistics about the results. If this works so well, why is there nothing in the literature about it? It would be "standard of care" by now. Not expecting 100% success, but I would like to know the odds before diving in. Does anyone know of someone who has been treated by Dr Patterson's protocol who is willing to talk about it?

@@bradsalz4084 I too received a high score and met with Dr Osgood. Next step is to pay out of pocket for a primary care Dr that can prescribe me miravorioc. They say their database is 12k patients and they are currently treating 2k. We know that most long haulers are getting better on their own so is their treatment really working? Also I read a lot about long haulers scared of permenant long term effects...we don't know but my opinion is that we will fully recover with no long term issues. Stay positive everyone.

@@kfamilyvideos1 Exactly! You would expect people to improve over time even in the absence of treatment. What is required is a formal study where participants with similar cytokine scores and presentation of symptoms are assorted into two groups, one which gets the protocol and the other which gets "standard of care" which right now is not much. Then we can see whether treatment is worth the expense. On the other hand I cannot believe that they are doing harm, for if they did, state medical boards would be shutting them down as quackery. Have you asked for statistics on the 12K people that they say they have treated? Or at least names from that list of people willing to talk to us?

@@bradsalz4084 no I haven't asked.... My body tends to get worse when taking statins, niacin, fluvoximne, etc. They want to give me fenofibrate in place of statins and miravorioc. Given my history, I have a feeling I wont do well with those drugs which makes me consider that it may all be snake oil. I appreciate gez for allowing us to have conversations like this on his video thread.

@@kfamilyvideos1 Yes, it is great that we can have this dialog here, although I wish there was a more centralized place to hold these discussions about long-COVID, so we don't wait for video post to spark conversation. Speaking of Miravoric, another CCR5 antagonist that Dr Patterson was promoting was Leronlimab. It seems to have made it to at least a phase II trial and then disappeared from discussions without any explanation I could find. I don't know if it is all snake oil but we certainly need more visibility. Are there other long-COVID or ME/CFS researchers citing Dr Patterson's reseach? If not, why would it be ignored for so long? Are other long-COVID clinics using his test panel or copying his therapy? If not, why not? These are reasonable questions that need answers.

I would also like to know. My best guess is your body trying to get as much healing stuff to the parts that got hurt because of covid so healing could take place. 💐

Poor circulation due to sticky blood

@@RUNDMC1 how to fix that?

@@anna-marieeasmus7529 yeah I think it's in survival mode, trying its best to bring nutrients and oxygen to the organs, but what I don't get is why my great saphenous veins are still bulging 17 months into it. It seems something is still causing it to be dilated (?) and I wonder if the immune system has something to do with it? Viral persistent? Mast cells? Sticky blood/micro clottings like OP said or is it something else?

Probably something of everything. I am still bedbound after 20 months, so chronic or recurring infections definetaly for me. I had bloodclots last year and were on bloodthinners. I still had bulging veins. I had negative bloodclot test in September but bulging veins and other symptoms still persistent. 💐

Yes it feels like u have recovered, but next day it starts again again after some days it starts again

As far as I know this was his last interview. Very very sad.

@@user-rv7gd4fo6j and only when you're fatigued, etc?

I have not associated it with crash or not, but quite often my urine is very yellow, with a strong smell of cinema popcorn. I had that for many weeks 10 years ago when I had a food poisoning due to not enough cooked chicken in a restaurant.

@@user-rv7gd4fo6j I think it's when the body is running on tryptophan instead of glucose...and that should mean that you are not at your best.

@@alexandrecouture2462 mine has a different smell when it's very yellow too...and not much of any smell when it's clear and I'm fatigued. Gotta be something to that.

@@lgmnowkondo938 I have to confirm, but I think its like that for me too.

Somewhere in the book Fatigued to Fantastic.

The problem is definitely psychological. Doctors are too weak psychologically, to admit that they haven't got a clue. Inventing psychological weaknesses in the patients eliminates their need for them to confront their own.

@@robinhood4640 could not be more true.

@@christiangranqvist2350 Addressing the psychological weaknesses of patients has very controversial results. The eventual psychological weaknesses of doctors, which are likely to be playing a huge role in the suffering of many patients, needs to be addressed just as openly. They need to get over themselves, is the bottom line.

@@robinhood4640 that’s definitely part of the issue - I’ve had doctors do this to me dozens of times, literally just make shit up to save face. It’s appalling behaviour, but very common.

@@andocobo and they always get paid.

Haha, thank you for the compliment :) No - not wearing wool - why do you ask?

Technically anyone with LC for more than 6 months has it, I think!

Do try to sit in on OMF meetings when they come up. Impossible for Dr. T to get into depth on any topic. I read all the published works. ME 21 yrs. All the best.