You can donate to Lyla's GoFundMe with this link: gofund.me/8366...
TRIGGER WARNING - THIS POST HAS DISCUSSION OF SUICIDE.
This is Lyla, she has CRPS, or Complex Regional Pain Syndrome - a condition known as "the suicide disease," because the pain is so unbearable that many inflicted with this condition end up taking their own lives.
On the McGill Pain Index it rates as a 42 out of 50, that's higher than both childbirth and having a finger or toe amputated without the aid of anesthesia. In other words, it's unbearable pain and it happens without warning. Lyla has expressed not wanting to be alive anymore because the pain is so overwhelming. Her grades are suffering, her mental health is declining, and the entire family is devastated.
Lyla's treatment, if she's able to raise the funds, will cost $67,000 out of pocket because insurance refuses to cover it. Lyla and her family are breaking down financially, mentally, and emotionally while scrambling to figure out what to do next.
Think about that for just a minute… a rare disorder that is so painful that it causes many to take their own lives and insurance doesn’t bat an eye at it, even when a 10 year old has it AND the condition will get much worse and lead to major issues such as muscle atrophy into her teen years and chronic depression without getting this treatment immediately.
I came across Lyla’s story through a local St. Louis post on Instagram and decided to reach out to the family to see if I could make them a video to share on social media so they could spread the word about their GoFund me.
The treatment alone costs $67,000 and that’s not including the fact that Lyla’s mom, Heather, will have to temporarily leave her job, move to Cincinnati during the treatment, spending thousands on hotels, gas on trips back and forth, food… everything. They need closer to $75,000.
Lyla's dad, Derek, is a former Marine and special education teacher, Heather volunteers at The Mission Continues, helping veterans, and her sister Addison is such a compassionate person and wonderful older sister.
Lyla herself is an amazing person with a heart of gold. She cares so much about other people even while she's suffering through this. It absolutely breaks my heart to see it.
If you could find it in your thumbs to give a thumbs up on this video, give comments of support to Lyla (she will read them), and share this video so it will show it to more people, that would be amazing. If you’d like to donate, that would be even more amazing. The link to her GoFundMe is at the very top of the post in case you missed it, but I'll link it below as well.
Thank you so much for taking the time to watch this video, share it, send your support to Lyla, and/or donate. It means the world to Lyla and her entire family.
Lyla's GoFundMe: gofund.me/8366...
18 сен 2024
