Trial by fire a film based on the rare disease (CRPS) 

Unless you live with this disease you will never understand the pain one feels. It is undescribable and unbearable. It's great to see films like this to help spread the awareness about crps. So much is unknown about this awful condition. Love to my fellow warrior's 💕

I was told by the Triage nurse in hospital that I’d had this condition for so long, I should be used to it by now.. I hope this film helps people to understand that this pain is real. We don’t want a pity party, just belief and support.

I hate that Dr's tell you that "it's all in your head", "it's depression, depression hurts", "your faking it or being dramatic". I've heard them all for 23 years. The pain I've suffered is not explainable to those who don't understand pain. It took finding a Dr that had broken his neck for him too finally say, " I finally believe that there is pain at the 10 level".

I've battled CRPS twenty years on August 20th, 2023. I've had dozens of surgical procedures, and every one of them were detrimental to my health, spreading the disease throughout my entire body. My organs are affected, and autoimmune disease developed due to the neurological damage that this disease causes. I now have Anaphylaxis attacks from "environmental causes"- anything can cause it. Essentially my soul is rejecting my body. To anyone battling this disease as well, I'm truly sorry. Please remember that you are not alone.

People can't understand unless they experience it. I can't find words to describe it or how it has affected my life. Thank you for this film. I am sharing to my socials. Literally, the only thing keeping me alive are dogs. Otherwise I would have no reason to stay. I rescue. Dogs need me. My rescue partners need me. I still have moments where I want to end it. But dogs. Always dogs. I know I will not get any treatment. I go to a new pain dr on Monday. I am not holding my breath. I will pray for your mom and all the warriors.

CRPS really is a disease that you truly cannot understand unless you have it. When I was 13, I had major surgery to fix a problem I had been dealing with for over three years. The problem had completely taken over my life, I couldn’t even go to school without spending hours in the bathroom. I couldn’t go out, I couldn’t swim anymore, anything. Immediately after the surgery I had bad hip pain that was radiating down my leg and up my back. Looking back, something that probably should’ve been a red flag was the fact that the pain was bad enough to keep me up at night even with all the pain medications I was (including iv morphine, oxytocin, etc.) Like that should’ve been a red flag but it wasn’t, I wasn’t thinking about it. Fast forward a whole year, I was still dealing with intense pain that had now spread all the way down my entire right leg. I had intense color changes, swelling, temperature changes, and more. No one knew what was going on. No one could find any reason for my excruciating pain. Then my foot turned in (like a club foot) and I was diagnosed with CRPS. I’m 16 now, and now the crps is in both of my legs and back. I spent over 9 weeks in the hospital trying to help me, and it did some, until it spread into my other leg. I’m doing better now, but I still use crutches for long distances. It’s horrible. Also, this is not really related but it bothers me when people pronounce it CRPS (crips) instead of C (see) R (are) P (pee) S (ess)

Wonderful job covering this devistating disease, but there were a few omissions which are glaring. Since this seems to have been made in 2016, and if that's accurate, it's makes sense that pain medication was never mentioned other than ketamine treatments. Fast forward till today, these poor people have had their pain medication taken away. Or, if they can find someone to write a script, the Pharmacies either can't fill (due to shortages,) or they opt not to fill. After seeing how much pain people are in, to deny them a pill that only slightly curbs the pain, is torture. Shame on our Government.

And ketamine hundreds per treatment, every day to start, takes hours, dangerous, and not covered by insurance! The only known treatment - not covered. Imagine a broken bone or any end stage pain not covered by insurance.

As a CRPS sufferer myself. I want to thank you for giving us a voice🙏🏼🙏🏼

After 2 decades my Dr said. U know I have 2 patients out of 25 who have this chronic pain like u. 20 years to have a fulfilled true confirmation I am believed. This pain has no obvious cause and is constant with variations of type and places and intensifies. It is hard for people to accept it especially in this drug addiction and abuse world. I never understood why pressing on someone’s arm with my finger didn’t hurt them. My husband tries to understand how I can have a tolerable or good morning and be screaming in pain within five hours. So to u fellow suffering people I want u to know u r far from alone. I pray everyday for a tolerable one and will include all of u from now on. ✌🏻😘😘🙏🏻

I don't have crps but my beautiful wife does, she is the strongest person I've ever known. We trust in Christ 💯 and know that all things come out to the good for those that love God and are called according to his purpose 🙏🙏 we're trying to get her ketamine treatment but we're in Yakima Washington and since the pandemic everything has changed in the medical system, we trust in Jesus and 18:10

I have CRPS after shattering my right leg. The pain was so bad that we had to amputate my leg below the knee. Unfortunately the CRPS has passed into my stump. The disease is one of the most horrible thing I have been through.

Many in my area, including drs, have no idea what this is. I can see why the suicide rate is higher due to this disease. 😊

I have CRPS type 2. This is awful. Life changing. Some days I don't know if I will make it through the day.

It seems like the film has made an impact because my daughter's foot doctor said the words "CRPS", so we have now embarked on the educational journey learning all about it and what treatments she can get. I'm hoping we caught it earlier enough as it has been 7 months since her injury. She tore her brevis tendon in her foot and that is what has started her CRPS. She recently had a lumbar sympathetic block that might have triggered more pain at the injection site in her back, but we are hoping it calms down. She is done with her pain clinic for sure due to this. We are now embarking on the naturopathic route to see what is helpful. Thank you for this film.

So thankful for this film to bring awareness for us all. I really hope I can use the information he gave to find someone who will actually treat this. I do wish he would have actually filmed them during a pain crisis. We describe it all the time and people don't understand because they aren't seeing the person in pain, face contorted, crying out loud for hours at a time. I would have allowed my pain to be filmed. That would bring a lot more awareness.

I hate CRPS so much. It has taken away so much from me. Its bad enough trying to live with it but to battle workers comp on yop of it just to get treatment and medication has been a nightmare. I rarely leave my house anymore because im scared that workers comp would see me and use anything I do against me to not have to pay or take care of me. All I have now is my 2 dogs and a couple friends who help when they can. Otherwise everyone left me including my ex-wife. I pray we are able to get some relief.

I myself have lived with CRPS since 2014 I have made it my mission to motivate and help others It’s a horrible disease that NO one should have to deal with alone !

I suffer from CRPS, luckily it is localized to my left leg. I am now going in for my 3rd spinal stimulator. No one understands how bad it gets.

It has been extremely hard to watch this. I’m 66, thankfully I was diagnosed at 62 from a crushing injury……I don’t foresee a cure in my lifetime but I pray so hard that one day there will be a cure. At my age, I won’t have to suffer long thank you for trying to bring awareness to help others

Thank you ! There are so many warriors who don’t have the medical treatments they need nor do they have the support they need! Thank you for supporting your mother and so many more ! As a Warrior it brings tears to my eyes to know the amazing work u are doing !

Hey just want to bang a drum here. I was Diagnosed last spring with CRPS , and we all know what that means right hand swollen to the point I thought it would burst, felt like may hand was on fire lost all function in my right hand, went through the nightmare of misdiagnosis. Started some traditional therapy stuff but have been on biologics for RA for almost 20 years. I saw a study in Great Britain using a drug called anakinra (Kineret) injections. they were looking for human trials in GB. I called My rheumatologist because Kineret is approved for RA in USA so my Doctor changed my biologic to Kineret and last month I graduated from physical therapy and symptoms have vastly improved, (I GOT MOST OF MY LIFE BACK). It took several weeks but dramatic difference. Anecdotal yes but also being a pastor I believe that FAITH in my God has made an incredible difference, the power of prayer, but the use of Kineret has made a real difference too. shuts down inflammation response of glial cell?

I've lived with this for 35 years after an injury in the military. I've been through the gamut of disbelieving doctors, experimental treatments, inconsiderate family and friends,...you name it. It's hard to describe the pain so that people can even understand.

Heartbreaking I feel so deeply saddened Wasn’t really aware of this devastating condition Warm Hugs to all suffering with this horrible,painful disease

I've lived with "causalgia" -what it was called - 45 years ago. I was 24. I'm now 69. It has spread but esp since covid. Cytokines and inflammation. If it seems worse since covid or long Covid, you aren't alone. I now have it from the waist down. Ribcage, colon, larynx... This year, I realize I've been in pain every second of every minute of every day for 45 years. Wow. And I still wonder a lot if its real. How can I live with so much pain and still be alive. I've never met anyone else who has had it for 45 years - suicide disease. And like most others, I've tried several times. Depression is lifelong. A dr told me once decades ago that no one can live in constant severe pain and not be depressed. It has gotten very surreal. I watched the movie long ago, I will again except listening to talk aboit CRPS makes it hurts worse. Autonomic and sympathetic nervous system creates the connection. Like a yawn being contagious in a way.

I have full body CRPS and not enough people know about the horror it brings.

Thank you for this video and all your efforts to help people. I have managed the severe chronic pain, and other symptoms, of RSD/CRPS for 38 years (March,1985). It is a physical and progressive condition (as the damaged nerves still network with each other indescriminately spreading sensations... pain or pleasure). My lived experience has shown me (and other people) that it is wise to evade any invasive or other medicinal experiments on my body. They have either not alleviated, or (more often) they have exacerbated the symptoms. For me, dietary restrictions etc did not have any positive effect at all. Other misinformation continues to pervade with this condition. Fortunately, near the end of your video, the year 2016 was mentioned. Please display the publication date along with the credits, as is the usual practice. All the best from Debbie in Australia. ✌☮🕯💙

Your doing great job, my names jayne, iv lived with chronic pain every day following hysterectomy 30yrs ago, I was 33yrs old, was under pain clinic, regularly for 13yrs, now take pain medication around the clock. I'm 62yrs now. I'm on drugs amitriptyline and duluxetin plus cocodomols it's like putting a blanket over a mattress with a hole in it, the meds help ,but my spinal nerve damage pain goes through it all, sending love ❤❤ and hugs, to all pain sufferers out there, and Charles,can't put into words your care for all chronic pain sufferers. God bless you❤❤❤❤🙏 🙏 🙏 sfrom jayne walton, of bristol, England. Some Dr's don't believe , which is the worse thing. This pain is very real.

18 years I have had this in my lower legs. Keeping stress level down really helps.

Thank you Mr. Mattocks for giving us a VOICE . I was diagnosed in 2005 after many misdiagnoses - accused by doctors of drug seeking, hypochondria, and by my family of being lazy. Please fight for us.❤. I’m an RN, BSN , with a Masters in Research. You’ve inspired me to speak up; to start writing or possibly a blog. I’ll be praying for you- don’t give up.

There is so much more awareness now than when I was diagnosed 40 years ago! ✌😎

His poor mama.... she's more depressed then she was since the treatment didn't work. I know how she feels.... it's hard to live this life of pain all day and all night every single day and every single night.

Ketamine’s is the only thing that has helped me with CRPS. I have had 3 natural childbirths, cervical and lumbar disc replacement, pelvic operations from mesh all of which I have come through well considering. Once I fractured my wrist which was set Wout anaesthetic and left unaligned the pain was off the charts. It is very difficult when Drs don’t believe you. I had 1 Dr say I believe you have CRPS. he didn’t offer any pain management for it and I was determined to get my wrist aligned. I have had 2 surgeries realigning the wrist which allows my fingers to move now. Ketamine along with walking and Physio is the only thing that has allowed me to get some relief. It has been eye opening watching the Maya Kowalski trial who both Dr Hanna and Dr Kirkpatrick helped. It is the worst pain. I cried for hours each day and night. I pray I can continue to receive ketamine to keep me sane.

Wow! I had no idea. What a wonderful film. It has educated me about this horrific disease. Thank you

Thank you for creating this. I know I'll never truly understand the pain of this disease, but because of documentaries like this I am that much closer to understanding the conditions my sibling has to endure.

5 years with this horrible disease 😭 the pain is the worst I can’t walk but I consider myself a tough cookie I will continue fight this horrible monster …thank you so much for putting this together 👍 we need more people like you … Rip Hannah 🦋

OMG thank you. I've struggled with CRPD for as long as I can remember. In the beginning I had been told that I was lazy, mentally ill, and/or just anouther drug addict. More research needs to be done, its not nicknamed "the suicide dresse" for no reason. I know I have had thoughts about ending the suffering a few times.

My knee blew up fishing last march. Had surgery 2 months ago. Was diagnosed with crps resulting from the surgery a week ago. Still trying to cope with the fact im done walking and just in pain all the time.

Thank you for making this video. After breaking both ankles at work i developed in my right ankle and leg people dont understand it. 18:42

Rest in Peace Hannah 🦋🕊❤

I have suffered from CRPS Type 2 for almost 20 years, and am still learning about it. So thankful this documentary was made to help educate others on this devastating disease.

My best friend has it and they are the strongest person i know i hope one day that they find a good doctor that can help them go into remission i just hate seeing them in pain and to you guys who have dealt with the same or even worse conditions you guys never give up and you are not alone ❤

(ALL CAPS AS IAM LEGALLY BLIND) I HAVE HAD FULL BODY RSD/CRPS FOR 35 YRS. AND I DID KETAMINE TRAILS , I HAD A FULL BAG OF KETAMINE OPEN ON BOTH ARMS & WHEN I FINISHED N I CAME TO I STARTED SCREAMING AND MY ANESTHESIOLOGIST STOOD WITH YEARS POURING DOWN HIS FACE SAYING "THERE IS NOTHING MORE I CAN DO" SO I LAYED THERE SCREAMING FOR 5 HRS. UNTIL MY DR. RETURNED , & THERE WAS NOTHING ANYBODY COULD DO. I LIVE FOR MY CHILDREN, GRANDCHILDREN, GREAT- GRANDCHILDREN. THERE'S A REASON THEY CALL IT THE SUICIDE DISEASE- THERE ARE NO WORDS TO EVER EXPLAIN THIS HELL

Thank You for getting this out again Charles. Found out yesterday I have fatty liver stage 2 with multiple tumors in my liver. I don't drink. They don't know if it's related to CRPS. Any thoughts?

My journey/torture began on 1 May 2017. Please do not remove this video. People, medical aids, our “employers” have no idea and dont want to understand. The only people who have an idea are those who see us struggle every day. This is worse than cancer. At least with cancer theres treatment or an end. Thank you for this video 🌸❤️

I have been living with CRPS now for 13 years, I had the Ketamine infusion, and it did nothing for me either. Over the years like others I have lost so much. Even most of my family members do not believe me and have since disowned me. If it wasn't for my son and my best friend, I do know where I wouldn't be.

This is heartbreaking especially in children. I’m 69, and I’m in constant pain and have been for 21 years.

R.I.P. Hannah Grace ❤🙏

Ive had CRPS since 2008, bilateral upper extremities. Blessed to have had early diagnosis by a wonderful, knowledgeable physician Dr Michel Oliva Lubbock Tx. His treatment is individualized and his heart, soul is compassionate. Please make more films for awareness- no child or young person should suffer and go undiagnosed.

Thank you Charles truly for the CRPS movie I have crps after having 2 fusion back surgeries the crps is on my right leg lots of pain daily but hope and therapy keeps me going doctors told me I was making it up I was lying but in reality they just didn't want to help me thank you Charles for bringing awareness to CRPS

God Bless this Man, who created the film to BRING AWARENESS to this Debilitating disorder I have from sustaining a work related injury of shattering my ankle. The ignorance of the fellow employees, the management team who think it’s fake and that I’m crazy is extreme. Even everyday life, friends and close family CANNOT UNDERSTAND. We MUST bring more AWARENESS TO THIS DISORDER as others get more attention for.KUDOS, for starting this AWARENESS CAMPAIGN, hopefully TREATMENT and CURES can be found instead of on a shelf of non-existence.

Please see Sally K Norton's book about oxalates, TOXIC SUPERFOODS.

This docu had me in tears, due to having it in my right Achilles & my left ACL & Meniscus for about 7 years now. The pain is something I dont think i'll ever adjust to the pain.

I can’t get help. I have tried since 2016. I give up.

Thank you for giving us a voice and explaining everything that we sometimes can’t. As a CRPS sufferer myself I thank you so much ❤ How mine started was when I was 15, I was walking down the driveway where there was ice, I slipped and fell on my hip/back at the same time. The pain started in my right thigh for a couple weeks then went to both thighs and legs that hurts so much to touch. And now I’m 20 💔

I’ve had CRPS for 3 years now . I have been misdiagnosed by one pain management doctor and have had 4 unsuccessful nerve blocks . One physical therapist told me she didn’t believe I had CRPS . It’s a very painful condition with no successful treatments . I had to quit my job as a medical professional and walk with a cane. My life is nothing like it used for be😢

I’ve had acute on chronic pancreatitis since 1997, then had an accident in 2017. That was when the CRPS started. T has made my life absolutely unbearable. I too have had 2 spinal chord stimulators and had multiple nerves ablated none of which have helped. Life is just like hell in earth. The best part of my day is when I’m asleep. The rest of the time is being bed ridden. I can’t eat, can hardly move etc. This lady’s situation is very sad. Everyone has a story that is as desperate and upsetting. I admire everyone who is able to get up each morning and take on the next day. 🙏

My mom had this disease. She felt so alone because it was rare and there was only a small group that had been diagnosed at the time she was

I have nerve damage in my hands, i cant imagine the swelling or if it were to climb into the rest of my body. but hot damn, my dad has MS and i could be on my way, nerve damage is the one thing that brings me to my knees every time. They are on fire and ive heard you can feel how hot my hands get when i experience it.

I believe 2 of my 4 adult kids have EDS. It is a complex connective tissue disorder that affects multiple systems and causes pain in joints and muscles, causing a collapse of bones, crushing nerves throughout the spine and makes you go from active and healthy to mostly bedridden. I am trying to help my daughters get help. It is soul crushing pain. I am sorry for these people and their families. I can truly empathize. Both of my daughters talk about suicide. It is life limiting physically, mentally and spiritually. So. I truly truly truly understand. I am so sorry and pray and hope for all those in pain and all those hoping and caring daily for those in pain whom you love with your whole heart and soul. Hang in there. Hang in there!

I've had it for 26 years. And pray God will let me pass on. Suicide is not the answer, but it is tempting.

I have been fighting RSD since January of 2015. I have type 2. It hurts physically and is mentally exhausting. I’m currently fighting for disability. I am looking at 4 surgeries in the next few summers. I’m tired.

Mr. Mattocks, I hope that your mom is having a good day today. I had the pleasure of working with her in the mid-late 80s. I've always thought of her through the years as her inner beauty (not to mention how pretty she is) always stayed with me. Please tell Connie that Justine is wishing her the best.

Did she ever take Fluoroquinolone antibiotics like CIPRO??!!

I was recently diagnosed with type 2, after I rolled my ankle walking on uneven ground and it would not heal. Ankle was weak from having spinal surgery and nerve damage. I’m wondering if mine can spread

In a way, I can relate. I have fibromyalgia, and every joint and muscle is in constant pain, it never goes away. And for some of you numb nuts out there, don’t waste your time, trying to suggest that somehow a diet will cure it, or some weird nonsense.

CRPS - Thank you for giving us a voice and for taking the time to prove with scientific facts that this disease is real and that the pain is unbearable. I have spent years of my life living in pain, all kinds and tipes of pain. Pain that feels like a continuous stabing knife that never stops, pain like needles transpacing your flesh and bones, pain like burning your skin transpacing your flesh, pain like a heavy weight over your shoulder, and when the days are bad, pain that rises your blood pressure and takes aways your breath. Intense pain that gives you cold chills while the body wants to numb itself, and your mind is tired of feeling and wants to escape the sensory feeling. 😢

I've shared this with colleagues. My career as a nurse is probably over for now.

Crps 16 years. Had to have a mind split to survive it. To the ones with this I love you all, and hope one day we all become whole again.

It's interesting that it often hits high energy people. Active people

RIP Hannah Grace 😢💔

I know how she feels. We even have the same hair-do, chronic bed head

I need to share my opinion. Please don’t come for me. Type 2 now Stage 4. Diagnosed August 2020. This is a much needed documentary that I am grateful has been made and being shared. Truly grateful that it covers so much and involves actual sufferers of this unimaginable condition. That said, it’s my opinion that things were said that perpetuate what the documentary is trying to combat. That is that it is in your head and that you don’t want to get better. Side-note here: it being in one’s head makes no sense to me as you have clear symptoms you can see by looking at someone (bruises swelling wasting discoloration etc), diagnostic tests and even CT scans show it at work and/or the damage caused by it. The 2 things that stuck out to me, something about his mother’s treatments not helping her because “it’s in her head” now...I took it as=she’s suffered for so long she *thinks* the treatment isn’t helping. That’s just as bad as anyone saying before the treatment that it is in her head. And at the end about negativity holding back progress; that positivity in the mind results in positivity in the body. I agree with that in general. But CRPS/RSD is something that (1)all the positivity in the world makes little to no difference. (2)you try being positive after years of living in this burning hell, your life as it was gone, your life as it could be/future gone… I have remained positive or rather trying to acclimate to this “new” version of my life without being angry or rude or pessimistic in general. It’s how I lived my life before. Whatever is going on, keep going, get through it and do it with determination, gratitude, strength and joy because it could be worse. CRPS is that worse. After more than 4 years I’m wearing down to the “negativity”. Especially when I constantly hear “you don’t look sick” or because I (being positive! Trying to hold onto a semblance of my life before) smile and say hello, stop to allow for a minute of cheerful banter with a neighbor, that I am not in pain. I’ve not had a second without pain in literal years. It is maddening. Having to deal with people for instance having their dogs off leash creating a dangerous situation for me when I’m walking my dog (which is incredibly difficult but positivity!). The number of things that could happen to me from just my dog getting excited to play are endless, its usually stress fractures (shinsplints like), easily torn ligaments/tendons, elbow out of joint, bruises leading to swelling burning=more tissue, bone and nerve damage. The list of everyday life things we’d not give a second thought are now just no words...for how hard it becomes to remain “positive”. Perhaps the treatment is simply not working or not lowering the pain levels enough to feel relief. And then there’s the constant trying to manage the pain, the mental emotional physical exhaustion, and the constant anxiety of it spreading more, doing more damage, is this another treatment that could do that. I have intense anxiety with seemingly harmless tasks like taking the lid off a milk jug. Because months ago I dropped the lid on my foot and it felt like and reacted as if it’d been hit with a hammer including swelling & bruising feeling like my foot was crushed again. I could clearly go on. It just really bothered me that such insensitive things were said in an otherwise compassionate and informative documentary that in end could also make the documentary moot. It did when I tried to use it as an educational tool.

I wonder if the carnivore/lion diet would help. I had debilitating nerve, joint and muscle pain that resolved after 8 months eating carnivore.

I used to say I'm in remission but I've come to understand that I'm never truly over it. it tears your nervous system down every where hurts the smallest injury aches for weeks I'm just thankful that when the burning starts its when my foot is cold I just warm it up. but I honestly don't think I could handle it as well as I did when I had it full force

Thank you for informing the public and support this huge struggle.

Charles, thank you for giving a voice to CPRS/RSD. I was diagnosed with RSD 27 years ago. I have had Type 1 diabetes for 52 years, and I’m also a 12 year breast cancer survivor. I must say CPRS/RSD is the most difficult of these three. I have a spinal cord stimulator which helps quite a bit. I recently twisted my bad ankle two days in a row and it’s caused the worst pain I’ve had in years. No one that I know, family or friends, understands this. Extremely frustrating. I’m a half glass full person which helps my sanity.

thank you for this. not much is known about crps. i was diagnosed almost a year ago in my ankle/foot at 36. it has wrecked my life leaving me bedridden for a while i couldnt even feel the floor when i tried to walk. it was also spreading. i started going through a little known treatment and I am now able to walk again and going into remission. i know i will be dealing with this all my life, bad enough injury can set it off again so ill have to be extremely careful the rest of my life.

Thank you for having this video. As someone with CRPS - I constantly have so many struggles trying to explain my condition. This is the awareness the world needs to see. Thank you to each individual that was involved with this. Each of you are so brave, and appreciated.

I've tried ketamine therapy. The withdrawals are the cruelest.

Thank you for this film. I have RDS. One of 20 rare diseases. The most painful

Diagnosed with CRPS in December 2022 after a broken ankle. Thank you so much for this and I hope it brings the much needed awareness to this horrible disease.

I had knee surgery in November 2019. 2 days after my surgery my leg was on fire 🔥! I could not put the ice pack on it as instructed. The oxycodone did NOTHING for the pain. Of course the orthopedic surgeon said it was “normal “ to have pain after surgery. I have had surgery in the same knee twice before and knew what to expect pain wise afterwards. But this pain was on a whole different level. Excruciating is an understatement. I was referred to so many specialists until a neurologist finally diagnosed me. Of course this was early 2020 now and medical appointments were very difficult to get. When the neurologist said there was no cure, I was devastated. I’ve tried everything under the sun. Nothing worked until Ketamine infusions. It helped a lot. Then my pain doctor stopped providing it because the patients couldn’t afford it and insurance didn’t cover it. No one else nearby offers it. 3 weeks ago I had a Spinal Cord Stimulator put in my back. It is helping to take the edge off the day to day pain but I’m not in a flair. So I’m hopeful it will help me when the pain is just too much.

My son in law has been diagnosed with CRPS for the last 10 years. He has just had nerve implants in his lower spine. We desperately hope it helps his horrific pain

Thank you Charles this film has been such a help explaining to family and friends crps

Been living with this horrific disease since 2004, after contracting covid in December of 2022 I’m now bedridden. CRPS is so much worse, now have blood clots, gastro issues, severe night sweats, daily headaches & more. Wish this movie was on streaming platforms. Sadly, any of us warriors will never get recognition, help with a cure or treatment options that work & don’t cost a ridiculous amount of $ (ketamine is cheap as hell but infusions are $1k & up) until someone well known gets it. If Obama or Swift got CRPS, we would be hearing about it daily. Don’t wish it on anyone but beyond frustrated that it’s been around since the Civil War & only main treatment option is pain meds.

💔RIP sweet angel Hannah Grace🌹🌈🕊️ xoxo

Thank you so much for making this film for putting out much needed awareness.I broke my foot in 5 places June 2003 and have full body RSD/CRPS. I was lucky in one sense. My primary Dr knew about this and was diagnosed within 3 weeks of my broken foot, but it didn't slow things down at all. It took off like wildfire and hasn't changed or stopped since. I've had stimulators, pain pumps, blocks, meds, and physical therapy. I began living in a wheelchair within the first year. I am walking with the help of a cane now. I have had lots of complications. I can understand and relate with everyone in this film. I am either right where they are or have been. I am still looking for some help and support. Thank you so much for this film. Soft hugs to all. Along with tears.

It’s 2024 and still no cure. From what I have heard Charles Mattocks is making another movie for us. #CRPSWARRIORS

My son has epilepsy, mesial temporal sclerosis,and an arachnoid cyst.. the drs barely understand epilepsy.. He is 4 hours away in college. I am worried 24/7..

Thank you.

I happened to have a legion on my ankle ( Where the majority of my pain stems from ) I was told I was lucky to get a diagnosis so early because having something else going on ment tests were run sooner.

Ty so much! I was diagnosed with Fibromyalgia in 2000. I knew deep down that something else was seriously wrong. I tripped so hard, working as a cashier this past April and I just now am able to go without my boot and crutches. I just really pray that Workman's Comp will pay for everything, because I was diagnosed with CRPS after I tripped at work. And I have it really bad too. I literally do stay in pain. Pain pills don't really help either. Anywho, I just wanted to say Ty so much!🙏🙏🙏🙏❤️

Was there a certain medication injected when they got their injuries worked on? Some commonality? Bacteria? Parasites? Prayers that they can find something to help! Maybe find the root cause. My heart breaks. Thanks for this video.

I had to look up what it was! Tried to see in comments, but nothing was found except the acronym. Not sure how I even got this recommendation but im glad i did. I pray they find help for all those who suffer this. Sounds like the pain is like if not worse than trigeminal neuralgia!

Thinking of Maya .

Newly diagnosed and in so much pain all the time. I have other disautonomia diagnoses as well which makes everything harder. Adding this to my already overflowing list of problems is absolute torture. I just want this leg off my body 😞

Maybe they DO know and they were told to be quiet about it. Just like lyme sufferers or those with fringe things like morgellons. I cannot imagine going through what those on the video are going through. I have had leg cramps and hurt my back where it was the most immense pain...but these people have it so much higher! 😢

Golden standard for severe intractable pain are opioid medicine. Less sude affects n its very effective.

Stumbled upon this film...thank you for bringing awareness to this monster. An insignificant fall with what I thought was a minor injury to my foot changed my life.I was finally diagnosed a few months ago, so Im early in my journey, but I feel as though I've had this pain forever.