The term “affinity group” is used as a bringing together of people who share some commonality. TMA believes in creating safe spaces for communities that share more in common than their myositis diagnosis. Safe spaces can provide a break from judgment, unsolicited opinions, and having to explain yourself where there is no understanding. They allow people to feel supported and respected. This is especially important for people of color, members of the LGBTQIA+ community, and other marginalized groups.
Affinity groups play a vital role in ensuring an inclusive environment where all are valued, included, and empowered to succeed and are part of TMA’s commitment to amplifying patient voices and health equity and access. Our affinity groups also serve to help the organization create awareness and connectivity in communities where the groups have natural membership. The ability to effectively participate in this increased advocacy and awareness building is essential to TMA’s mission. Increased awareness of myositis has the potential to lead to earlier diagnosis, more effective treatments, and improving the quality of life for those who live with myositis. TMA and our affinity groups also advocate for patients through educational and media events, as well as advancing legislation that removes barriers to accessing the best myositis care.
We invite you to learn more about TMA’s affinity groups and how they are being successful in engaging our community of patients, care partners, family, friends, healthcare providers, and industry partners! See below for information for each group and check our events calendar to find and register for an upcoming meeting or email TMA@myositis.org.
6 сен 2024
