MGUS 6 month check-up Q & A's

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Getting a chance to share some answers to questions about my MGUS condition.
• Inner Light by Kevin MacLeod is licensed under a Creative Commons Attribution license (creativecommon...)
Source: incompetech.com...
Artist: incompetech.com/
• Prelude No. 6 by Chris Zabriskie is licensed under a Creative Commons Attribution license (creativecommon...)
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Artist: chriszabriskie....

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1 окт 2024

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Комментарии : 18

@kimberlywilliams3008 6 лет назад

Hi I'm in Indiana and I was diagnosed with MGUS 18 mos. ago. I had a bone marrow biopsy to rule out Myeloma. The first recheck they did was at 6 mos. then when those labs were stable they let me go to a one year recheck. I just had that done a week ago and unfortunately my numbers were up and because of that I now must retest in 3 mos. in March. If my M spike is any higher I will have to have a repeat bone marrow biopsy. I'm praying that won't be necessary. I try not to freak out because I know the majority of people with MGUS will not develop cancer and I don't want to live in fear. It's hard I know, but hang in there and stay positive.

@livelikeyouareliving3581 6 лет назад

Hello Friend, thank you for the well wishes! I hope that all things are well with you and would be honored if you would keep in touch and let me know how things turn out? Until then (what I try to tell myself) live a regular life, be you and do all the things you would be doing. I hate doctors appointments as I mentioned before in some of my other vids, they tend to make me focus on the negative, so I really try to make an effort on being positive. If you need someone to just talk to, feel free to drop a line. take care!

@leelabrock4266 5 лет назад

hi I just got diagnosed mgus I been watching your videos 6 months now your best explaining everythink god bless you!!❤

@livelikeyouareliving3581 5 лет назад

Thank you for watching~ God bless you too!

@leelabrock4266 5 лет назад

iam seeing my endo right lnow going for scans now

@livelikeyouareliving3581 5 лет назад

Welcome back Lisa! I hope all went well? Please keep in touch

@lisavollaro193 5 лет назад

God bless you 🙏😇😇😇

@livelikeyouareliving3581 5 лет назад

Hello Lisa! Welcome back - I hope you are well. May God Bless you as well my friend :-)

@stephenrichards5386 5 лет назад

Did you get your actual numbers for Free light chains, IgG normal, IgG myeloma and Free light chain ratio. Knowing these will allow you to understand clearly how you are progressing. Maybe we can help to reassure you.

@livelikeyouareliving3581 5 лет назад

I'll look at my results and share

@stephenrichards5386 5 лет назад

@@livelikeyouareliving3581 Many thanks. It's great to geta second view. They say that all myelomas are different so we ought to be able to see how different. Chin up.

@zenfulkatoria 6 лет назад

Hi from Pa. I'm in the process of being tested. Tomorrow I have to start the 24 hr urine collection and the blood work for my heavy proteins.

@livelikeyouareliving3581 6 лет назад

Hello friend! Ahh - the wonderful urine collection :-) Well WELCOME to LLYAL and I hope that what I share is helpful to you. In the meantime, I do hope that you have good numbers from your test. I would love it if you shared

@livelikeyouareliving3581 6 лет назад

Hello Friend! I hope that all is well with your results