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MIGRAINES & CRPS 

The CRPS Network
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1 окт 2024

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Комментарии : 8   
@janayrose874
@janayrose874 5 лет назад
My triggers are perfume, cleaning products, lighting (even sunlight) , loud people. I take Sumatriptan (probably the generic name). If intake within 5 minutes of onset it helps me. I get them for 24 hours at times. Its hard to go in the world being so sensitive.
@TheCRPSNetwork
@TheCRPSNetwork 4 года назад
I hear of others that can't tolerate perfume either. That's interesting about the cleaning products. Do you have to wear sunglasses all the time? I'm sensitivitie like that too to sunlight.
@jasonpiper609
@jasonpiper609 5 лет назад
Nice clip. I've been up for 3 days w/blinding migraines. I've had numerous, extremely severe, head trauma throughout my 41 year history with chronic pain. I also broke my neck 3 times and have broken dozens of bones, most UNTREATED, hence they healed wrong, my neck injuries included. Majorly suffering over here. My CRPS has spread throughout my entire body. I hope you guys find some relief
@TheCRPSNetwork
@TheCRPSNetwork 4 года назад
Jason, I am so sorry to hear this. Have you ever been diagnosed with trigeminal neuralgia
@sarahnthetwins
@sarahnthetwins 4 года назад
Your stats are right on for me anyway. I started suffering from daily headaches & migraines in junior high school. That was my first experience with chronic pain. Then I got RSD when I was 33. I don't always know what my migraine triggers or break through headache triggers are. I lost my sense of smell when I was 28. But intense smells, good or bad, I can kind of taste in my mouth. It's hard to explain. The next time you are around gas, open your mouth and breathe in. Don't smell, just breathe. You might be able to understand what I mean. Anyway. many smells are triggers. So is chewing sounds (it's actually part of disorder called misophonia). Looking at screens too much (tv, computer, phone, etc). Continuous loud sounds. My head hurts really bad right now so it's hard to think, sorry. I enjoyed your video. I just found you and watched a few. I'll have to watch more later because of my head. Thank you for making them. I'm hoping to find one about the eye doctor.
@sarahnthetwins
@sarahnthetwins 4 года назад
I thought of another trigger, thanks headaches. Smoke, mostly smoke from burning leaves, but all types of smoke. Tomorrow we will start having a haze having over the city because of the CA fires. This won't be the first time it's happened. That has triggered my headaches before too. Just wanted to add that while I was thinking of it. I've had RSD/CRPS for 17 years so my thoughts are scattered alot and my concentration isn't that great. I have a hard time coming up with names. I have to stop thinking about things I want to remember to remember them. Kind of weird. I've had two brain scans so far to be sure I don't have a brain tumor. Kind of scary but it's good they are trying to be safer then sorry. I am always that 5% of the population that something is going to happen to. At least it seems like it. The list of things I've gone through and suffer from is long. It seems like many of us are like that.
@juliep3180
@juliep3180 5 лет назад
I've suffered from migraines for the past 10 years following a concussion. I was then diagnosed with CRPS 9 months ago following 4 hip repair surgeries. I have many triggers, stress being the #1. I think over the years I have tried every migraine medication, with little to no relief. I experienced 4-6 migraine days per week. About 4 years ago, my neurologist started giving me Botox injections in the face, head, neck and shoulders. I get the injections (around 35) every 3 months. Since beginning this I may get 2-3 migraine days total for the 3 months!! I was able to stop all other medications. It has truly been a life saver for me, and I highly recommend discussing Botox for migraines with your doctor if nothing else seems to help! Wishing everyone love and light!!❤
@TheCRPSNetwork
@TheCRPSNetwork 4 года назад
Yes, I agree. I was getting 3-4 migraines a week. I got botox injections and went almost a year with no migraines. I highly recommend it!
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