I have a TERRIBLE toothache rn, going to a dentist soon but trying this out, wish me luck

For me it’s heat and humidity

Thank you for advising that the WHO recommend Ketamine. I wasn’t aware of this information. Considering the WHO are a NON elected board of random epilepsy pushing their cause, I most definitely do not take their word for anything anymore. Very happy I’ve stuck with chiro to help my CRPS and not Ketamine.

400mg per day. It helps, but not nearly enough.

doctor wont call it oteoporosis, so is it cprs, or what?? no one seems to agree on the answers for my husband who is in terrible pain. they agree somewhat that his back discs are deteriorating but don't know how to classify his pain. osteoporosis, or cprs!!!

can you have this without injury?? can deteriation of the spinal discs be considered CRPS??

It is the pain always pain 😢 Yes and the people saying You look good. No I have pain. I can't do all the things what all healty people can do.😢

I have this and am 64 years old I've had it for a year now. It is very aggravating.

😂😂😂 I AM OVER IT SINCE MY FULL ROTATOR REPAIR IN 2022. I WANT TO GO BACK TO WORK SO FREAKN BAD, BUT HAVE BEEN DEEMED DISABLED AT 54..SO NOT COOL!! WHEN IT RAINS IT GOES OFF THE RAILS AND HAS NOW RADIATED FROM MY DOMINANT LEFT SURGERY ARM TO MY RIGHT SIDE WHICH CONSISTS OF MY NECK BACK AND ARM. I THOUGHT I WAS LOOSING MY MIND AT FIRST. I AM ON 150 MG OF PRE GABLIN MUSCLE RELAXER AND EXTRA STRENGTH TYLENOL. COME ON GOD PLEASE HEAL ALL OF US WHO BELIEVE YOU ARE A HEALER.❤🙏🏾👏🏾👏🏾. THE NUMBNESS AND THE TINGLING IN MY FINGERS IS NOT COOL ALONG WITH THE CONSTANT SWELLING IN MY LEFT WRIST. HOPEFULLY SSDI WILL BE APPROVED SOON MY DOCTOR WANTS TO INSERT SPINE STIMULATOR TO HELP ME WITH THESE ISSUES. AGAIN GOD BLESS ALL OF YOU WHO ARE SUFFERING WITH THIS AND YOUR PEEPS DON'T GET IT OR CARE TO UNDERSTAND CAUSE THEY THINK U R DOIN THE MOST OR BEING A DRAMA QUEEN OR KING ❤. THIS ISH REALLY DOES FREAKN HURT AND IM A PRETTY TOUGH CHICK😂😂😢😮😁💪🏾🙄🎲🙄🙄😭😘👀😡🤬🙏🏾💯. ALL THESE EMOJIS ARE HOW I FEEL DAILY!!

Thank you for all this good information! I just learned this morning, from the results of a thermograph, that I have CRPS (confirmed after searching for an answer for 20 years) with sympathetic dominance. In addition, I am recovering from Lyme disease and dysbiosis. It’s amazing how our body knows what it needs. I stopped physical therapy in 2022 because I knew it wasn’t the right kind. In 2022 my primary care worked a Gua Sha roughly over my legs (to try and wake up the nerves). I subsequently learned that wasn’t good for nerves. The neurologist I saw in 2022 said I needed to learn to learn to live with my undiagnosed neurological symptoms. On my own I did float therapy (sensory deprivation) at a spot near me. I’ve recently started using essential oils specifically for my parasympathetic nervous system. I completely changed my diet 10 months ago after being diagnosed with histamine intolerance. I started using a PEMF mat. I am currently working with a biomagnetism practitioner - so something else we can work on. Thanks again!

I loved all your advice, except the last one! "Watch shocking videos." For me, most of those videos seem to cause a startle reflex, which usually contributes to my pain level. But I also get startled easily, by unexpected sharp noises.

Is there any way to speak with someone.? I have CRPS both legs and I’m losing the battle any suggestions for a video group orCRP questions appreciate it. Thanks so much, Joe.

It must be nice having it go away. I have never been free of the pain in the 8 months since I injured my ankle. Not one day off. After a nerve block I had reduced pain and my foot turned cold and blue but I still couldn't walk on my foot or even do the physical therapy. I'm watching my leg waste away. I wish I would have fallen and broke my neck instead of injuring my ankle. Dead beats this living hell. My life has stopped. I am bed ridden because I have to keep my foot elevated at all times.

You have taught me to understand my body with CRPS . Thank you

Wow .. I have most of these triggers 😢

I have had several series of ketamine infusions in L.A. for CRPS. Can you please tell me the typical loading and max dosages for your infusions? Thanks in advance. I hope you are well.

I have CRPS and found the content of your video great. However, the music was distracting. I have sensory issues related to my CRPS and had a very hard time focusing on you speaking with that music in the back. I think it would be better if you found more calming music or better yet, removed the music. The only way I could watch was to mute your video and watch it with subtitles.

The biggest thing I want to say is it's not in your head it's real wish ya'll the best luck cause this is gonna be the fight of your life

Been living with this for over 30 years pain is all I know but I pray for relief every night and when I get up I go roof folks houses never stop fighting ya'll

You are good about the information on the oils, but how do you get the benefits, through inhalation, application to the skin, with or without a carrier oil, please help

9/10 would be a good score in a maths test.

So glad i happened across your video! My CRPS started 16 years ago. A few symptoms on your list are validating: like urinary incontinence issues, joint stiffness, increased sweating & autoimmune component. I have struggled with these but have been repeatedly told by doctors that the statistical chance of these symptoms being related to my CRPS are astronomically low (2 who are highly respected CRPS experts).

Brilliant Thank you Sending blessings Love and Respect 💜🙏🕉x

I am in Australia and have been battling ulcers that drs here who don’t understand CRPS don’t treat properly and don’t believe are connected. Would love any help anyone could point me to, I’ve become desperate lately 😢

Thank you for these videos. People who don't have this, they don't understand, I don't blame them I wouldn't either. We have a channel dedicated to this, trying to spread the word just like you.

I have crps 2 since 1985 by fallen on mine hand and i was 13 years old. Now i am 51 and it spread to my hipes. Thanks for the intwrview/video

I underwent prolotherapy and had great success. It's nonsurgical procedure that activates your body's natural healing process. I have it in my right foot/ankle and real bad days it spreads to my knee. I was bedridden for a couple of months prior to starting and after a few months and procedures I started weight bearing exercises and was able to begin walking again. I started nerve stimulation exercises not long after. I still have occasional issues but no where near as bad as it used to be. usually when I don't sleep well. It took 8 treatments for it but now it's under control and I'm functional

This is way too peppy with the music and nonchalance for THE SUOCIDE DISEASE. I wish it was my arm not my foot. Can't walk can't stand can't drive bedridden gained 60 lbs screaming in pain 7 years after injury. My toes are curled up. Hammerties. Here's to your catchy dance music. Wtf

It's difficult for me to hear you clearly because of the music.

Hey, I’m from Australia, I have Fibromyalgia that is wide spread. I have burning pain and sweat a lot. I can’t stand the heat and need the air conditioning on 24/7 at to as cool as it gets. I also have many other autoimmune illnesses which doesn’t help. But fibromyalgia isn’t just here and there and my body also feels hot internally but cold to touch. My feet are the worst and they swell and change colour all the time. I feel like some more information about fibromyalgia will help you a lot. Who knows I could have been misdiagnosed but time will tell I guess. I’m sorry to hear there is so many people suffering with these painful conditions. Keep fighting people, we are the strong ones

Lyrica was horrible

Yes its horrible acid reflux is horrible

Pain. Cold purple arm swelling in the hand and neck

Had one yesterday and am still crying.🤦🏻‍♀️👎

Taurine really helps me ran out for two weeks was miserable. Its an amino acid

You are providing information that is giving hope to a disease that is terrible and unless serious medical treatment begins within two years all that can really be done is treat the variety of conditions caused by CRS/Reflex Sympathetic Dystrophy. Example, if you can get a Sympathetic Nerve Block within 6 months to a year there is a chance of reversal. You are in need of help. Possibly mental health. Please remove your channel and get help for yourself.

I have CRPS and this was the dumbest video I have seen in all the years I’ve been researching RSD! Most people have constipation. When I was diagnosed CRPS was called Reflex Sympathetic Dystrophy and Pain Management was the Doctor who treated the pain aspect. But, it was always recommended that you have a Primary Care Physician who listens to you and often after a discussion will prescribe what you might need. But you always need a Gastroenterologist who either is knowledgeable about CRPS and knows it can spread to the GI system. It usually spreads to the GI system because real RSD originates in the Sympathetic Nervous System and Parasympathetic Nervous System then to the Peripheral Nervous System and Autonomic Nervous System. Mine has even affected my eyes particularly the right eye. So, do I have an answer. Yes and no. In 2012, I had a CT Scan and was told I was constipated. I tried a couple things and thought it was relieved but I fell and at the Emergency Room I was told I was constipated. Because I was now wheelchair bound and had trouble with personal care I was admitted and they put 2 suppositories in and after several hard stools they thought it was taken care of. I began putting on weight. My stomach was huge and I was over 200 lbs when normal was 130. Then, I was feeling mildly nauseous. I didn’t think I was constipated because I had weird looking bowel movements almost daily. But after a couple sips of a great soup I began throwing up in small amounts. At a different ER, the Doctor did a CT scan on my stomach and told me he had never seen such a bad case of comstipation. He told the nurse to give mmeral oil and prune juice and then a warm enema - not a suppository or those little bottles but the old fashion kind. In the ER I lost close to 40 lbs and I was admitted and the Gastroenterologist gave me Go Lytely so a Colonoscopy and Endoscopy could be done. A second tub of Go Lytely had to be given and I still wasn’t completely clean so they gave me 2 bottles of magnesium citrate to drink. When I was discharged I slim and trim having lost over 70 lbs of poop. I felt great and didn’t want to eat ever again. When I saw my Primary Doctor at UCLA, I heard the girls at reception say “wow, has he lost a lot of weight. I hope he’s okay. I wasn’t because RSD/CRPS had spread to my internal organs. For a good RU-vid video on this, you should talk about how this happens beginning with the functions of the Sympathetic and Parasympathetic Nervous Systems and have some kind of advice on how 8:23 this can happen and offer ideas for occasional relief.

I have had my CRPS spreading from one leg to the other in just months...I would not wish this pain on anyone! And doctors seem to not understand how to treat it aside from giving me meds on top of meds, it took them almost a year to diagnose me. I'm considering treatment elsewhere since the US seems to not have the means for it...found this clinic in Italy and their doctors seem very knowledgeable, they say they have treated patients for more than 9 years. I have hope this might be it for me.

Arghh, I’d love to take this to the Orthopaedic clinic and the physio that didn’t believe that I was in pain. In 2018 I fell in the garden. Something seemed to snap in my ankle, my foot turned and I tripped over it. I’d cracked some ribs, broken my knee aka Tibial Plateau Fracture, sprained my wrist and ankle. I was in a full cast for months and when they took it off my knee was so painful but I was told that “your knee does not hurt.” I couldn’t bend my knee so I was sent to a physio. He told me to get to the end of the couch, he perched on the edge and pulled my leg over his thigh and tried to force it to bend as if he was trying to break a piece of wood. I screamed and begged him to stop but he said that I only thought that I couldn’t bend my knee. I said that he was going to break my leg again but he said that he wasn’t bothered and didn’t care. When the appointment was over he booked a double appointment and said that he’d have me riding a bike and my heel would be touching my backside. I was so traumatised I cancelled the appointment. I’d been referred for an EMG nerve conduction test, I had to use a wheelchair by then. The results showed perineal and sciatic nerve damage and that I would be unable to bend my knee and I’d got foot drop. I got another appointment with Orthopaedics and the doctor said that if he clenched his knee it would stick out like mine. Then he asked if I liked being in a wheelchair. I was furious and I told him what the physio had done to me and that the EMG test proved that couldn’t bend my knee. He said “NO IT DIDN’T” so I told him to look at my files then. He said he would. He came back , said, OK then, do you want a second opinion? I said yes but not with anyone in this department! I had to wait a year because of Covid. This bloke decided to put me back in a pot cast up to my knee to try to force my dropped foot back up. He said that if the pain got too much for me I could just say stop and they would. My leg used to swell up and my husband had to break bits off the cast because my toes were going purple and blue. I told them to stop as I’d had enough. This is the NHS in the UK. I’m now bed bound, can’t walk, weight bear, bend my knee and I have foot drop and I have unbearable pain 24/7. Now got a herniated disc bulge so I can’t sit in my wheelchair for long

bad sinus pain in Lancaster PA

Is there a test for diagnosis? What is it called? Thxs!

You are very soft spoken and unfortunately the background music was a bit loud. Other than that, some very good information.

I had my right leg amputated due to CRPS. Absolutely no regrets! It was the best decision I ever made for treatment.

Gabapentin and lyrica are SERIOUSLY DANGEROUS drugs! Ketamine? Seriously?

This was great, hon, truly. Ooo, I love the essential oils idea! I’m 4 days in of my 10 day Ketamine. Today’s pain increased which made the tears flow. Hoping for a better day tomorrow ❤ Will work on my mindset being more positive. Meditate and maybe some nature beforehand. All Will Be Well for us all! Thank you so much for videotaping your experience! You were great!

Also, i recently hear dogs barkjng incessantly in a store but they are not questioned. Service dogs don't bark in pubkic buildings, in fact, pretty much never. Just adding

Thank you for factual info exceot, your service dog (as opposed to ESA) can't jyst eleviate stress unless they are taught a specific task to ameliorate a symotom. I don't think alerting you when the person can use a doorbell works as a "service dog allowed public access." But comparex to SO much misinformation, esp online scams to get doctor notes, online registries, etc. Please don't feed these online scammees. Staples or any graphuc designer can make you one. Just download the text for the back, do it in word, print several, add dogs picture and take to staples etc for lamination. Thank you!

Why are you getting infusions and are the Ketamine?

I have CRPS in my right leg. I also have had that leg amputated. It has been spreading to my right side of my body. I get twitches in my hand and CRPS pain in a lot of my body.

I have diagnosed with CRPS for 4 years now (although the doctors said I probably had it for 12 years (since I broke both of my legs.) I have almost all of these symptoms) I finally had to have my right leg amputated (that was the one that was broken the worst) The CRPS has moved into my stump. It is also slowly moving into other places.