Mind Blowing Facts About EDS! 🤯 (That You Probably Didn’t Know)

Подписаться 3,3 тыс.

Просмотров 6 тыс.

50% 1

Mind blowing facts no one tells you about EDS and you just have to find out along the way 🙃
Thanks for watching! Xxx
My Instagram: @stelasulzdorf
stelasulzdorf?u...
Get to know me: My EDS Story
• What is Ehlers-Danlos ...
#EDSLife
#EDS
#DisabledLife
#Dyspraxia
#LackofSpacialAwareness
#TemperatureRegulation
#Allergies
#MCAS
#MastCellActivationSyndrome
#Autism
#OCD
#ADHD
#Neurodivergent
#MyMobilityAids
#Flareup
#Gerd
#EDS
#EhlersDanlosSyndrome
#EhlersDanlosSyndromes
#LifeUpdate
#HealthAndWellness
#HeartBlock
#Sickness
#Vomiting
#BabeWithAMobilityAid
#EhlersDanlosSyndrome
#EhlersDanlos
#HypermobileEDS
#MobilityAids
#HypermobileEhlersDanlosSyndrome
#ChronicIllness
#invisibleillness
#lupus
#AutoimmuneDisease
#disability
#dysautonomia
#LymeWarrior
#LupusWarrior
#Arthritis
#HyperMobility
#GoingOutWithDisability
#GoingOutWithChronicillness
#DisabilityVlog
#ChronicIllnessVlog
#SpendTheDayWithMe
#Epilepsy
#Seizures
#Fits
#AutoimmuneEpilepsy
#PoTS
#DisabledRU-vidr
#PoTSSyndrome
#MECFS
#ME
#BeightonCriteria
#BeightonScore
#MedicalHistory
#GeneticTesting
#EDSdiagnosis
#FlareupDay
#Physio

Опубликовано:

25 май 2023

Ссылка:

Скачать:

Готовим ссылку...

Добавить в:

Мой плейлист

Посмотреть позже

Комментарии : 50

@stelasulzdorf Год назад

Leave your questions about Neurodivergence for Kiril here ⬇️

@taniamorken4566 Год назад

Wow, this has answered so many of my why questions. I have MCAs, Pots, histamine intolerance, asthma, after a bout with Covid is what triggered it. However, now I'm wondering if I could possibly have EDS? Is there different types of EDs? Like I'm not bendy like you are but I don't have muscle mass. I've often wondered why that is and if my muscles are lax it's made me think, can my inside organs also be? I've wondered if this is why I got Pots?

@stelasulzdorf Год назад

@@LittleonesmicrosanctuaryThank you for watching my videos and sticking with the channel! MCAS is soooooo difficult to diagnose. Most doctors diagnose on a symptom basis because of this, but honestly if you have EDS I’m almost certain you have MCAS too. Thank you for sharing this with me. I hope my channel can provide a bit of help for you. I can most definitely ask him this! Thank you for your question 💕

@stelasulzdorf Год назад

@@taniamorken4566it’s highly likely you have EDS. Have you tried doing the Beighton test at home? It’s really easy to find online. If you pass the Beighton test, I would suggest going to your gp and requesting a referral to a rheumatologist 💕

@stelasulzdorf Год назад

@chrissulzdorf456Thank you always for your support!! 🥰

@vohndamiller4120 4 месяца назад

My daughter has been diagnosed with H EDS. It’s the hyper mobile type and we were told that that type it was not genetic and she was tested. It came back negative for EDS.

@MeowlodieHL 9 месяцев назад

I forget how to legs sometimes too. My poor hips are magnetized to door handles as well.

@analarson2920 Месяц назад

Oh yes and cabinet knobs.

@LeTrashPanda 16 дней назад

Check out the term "dyspraxia" to see if it fits.

@zoewilhelmina917 Год назад

I've been diagnosed with hEDS/ and Autism within the past year (I'm 29 years old, been a rough couple of years lol). I've been watching a lot of your content and I love it so much! It's been really helpful just watching content and listening to other people's experiences with EDS and POTS. I can't wait to see you and your brother discuss neurodivergent things 🦋💗

@stelasulzdorf Год назад

Thank you so much! That really means a lot to me ❤

@carolrothauge6615 Месяц назад

HSD have the same variety of comorbidities. The only difference is that they don't meet the specific criteria on the diagnostic checklist. There are EDS & HSD can both be hereditary or spontaneous. They're working on updates to the 2017 criteria called the road to 2026. Thank you for sharing all of these. It's always amazing how many things can be affected and the different ways they can manifest.

@Naw-hj8gc Год назад

So glad you mentioned the autism link!! Not many people know about that

@Truerealism747 9 месяцев назад

Highly comorbid nits the collegen.affects the subconscious mind am sure that's why we have fantastic memory

@13fyrefli 3 месяца назад

I just commented that when I found out and looked into it, I found out I’m autistic and it’s actually a relief to know why I am the way I am. It’s easier to be kind to myself knowing.

@barbwyre75 4 месяца назад

This resonated so much for me! I have hEDS, MCAS, and was diagnosed with adult ADHD. My son (also has hEDS) has OCD and my other son has autism and had an IEP (individual education plan) throughout school. My shoulder and my toes dislocate a lot and my jaws hurt even if I smile too much. It's crazy and validating to see someone else like me. 😂❤

@beverlyquigley6608 10 дней назад

Growing up I thought everybody got lightheaded and dizzy when you would stand up. Gen X kids you just suck it up and move on. 2012 my systems really got bad and I got diagnosed with POTS/dysautonomia in 2016 CC. My youngest his hyper mobile joints won’t get diagnosed. My middle son started passing out when he was 19. I think we all have a variation of EDS.

@Space_Princess 3 месяца назад

I RELATE TO ALL OF THESE! im 26 years old and autistic, adhd and dyspraxic myself and i have hEDS Im so glad im not alone in all this and im so so soooo glad it doesn't make me weird like others say. Its not all in our head Thank you are sharing this information with the world ❤❤❤

@breemorrison901 8 дней назад

I have to think about every single move I make as well! ❤ Thanks for coming forward with your experience. I always knew there was a reason why I never got into dancing or aerobics. 😊

@melissamorrison7677 Год назад

You have such a calming presence and are so inspirational! I love Juliette has a gun not a perfume. It's exquisite. Looking forward to more content.

@stelasulzdorf Год назад

Oh my goodness! Thank you so much 🥹

@melissamorrison7677 Год назад

@@stelasulzdorf 🥰😍

@AuntBeeDoesLife 10 дней назад

Man finding this video is eye opening seems you living my life 😮

@incurablyawesome2024 2 месяца назад

Thank you so much for sharing your story! I am going to share mine this week on my channel. Keep pushing forward, you got this!! By the way, the brain fog (for me) can be so embarrassing! And not being able to put on my shoes standing up! Oh, and walking into walls 😅 ! So many things to choose from 😂.

@thehollyannrose 10 дней назад

I’ve heard about the ab and pelvic floor thing but I had no idea that it was related to EDS lol.

@shannongreenwell1278 2 месяца назад

I have cEDS, Autism, POTS, CCI+ Epilepsy. Along with Migraines and they’re all spawned from my EDS, I was likely having seizures as a baby because my family would talk to me and I would just stare into space. I Thank you for sharing your journey with me. The Struggle is real but we’re all in this hot mess together!

@AuntBeeDoesLife 10 дней назад

I sneeze I cough I sprain my back glute and down my leg causes calf to Charlie horse

@AuntBeeDoesLife 10 дней назад

I have bursitis in both shoulders and both hips I have osteoarthritis, torn rotator cuff, I can't use my cane cuz it hurts my shoulder, elbow, and wrist, so no one believes I need my wheelchair cuz I forget I need it and take off without it same with cane I'm so forgetful I can't stay on task and I feel I'm bleeding internally in my hip joint from bone spurs and impingement syndrome femoracetabular kind fibromyalgia I feel I torn my it band....doctors look at me sideways when I say I'm in level 10 pain because my blood pressure is low 98/56 um blood work don't show I'm bleeding internally 😢idk what to do they send me home with instructions to return if I experience them and I came in and was leaving with same symptoms I'm just totally confused

@Kissnlife 3 месяца назад

You made it so fun! This kettle of awful..🐱🌿💚

@julie_uk_ Год назад

Hi Stela, have diagnosis of autism, ADHD, SpLd, Fibromyalgia. Several times over the years, ive approached my GP/physiotherapist about EDS - but always get turned away. I dont think i have hypermobility, but, i certainly have joint/fatigue/temp issues/spacial issues - how on earth do i get the correct assessment?

@stelasulzdorf Год назад

This is such a difficult question to answer, as I feel like sometimes it depends on how lucky you are to find the right doctor/ be referred to the right place. It took me over 20 years to get my diagnosis. Don’t give up and keep trying! One day you will get your answers xx

@Truerealism747 2 месяца назад

Hypomobility centre ltd ndon I had to go private at 43

@hmemichel 29 дней назад

Do you ever get confused as to which leg is in front when you are laying on your side? And end up kicking the cat you were trying to avoid? I mean how can a body forget which leg is which!?

@hmemichel 29 дней назад

OMG I sneezed once and my little toe popped out of joint and back in. I mean honestly!

@claire5399 2 месяца назад

I had 2 hospital nurses laugh at me by the way I crawled onto and into the bed . “ Do you always get into bed that way ? Yessssss. I’m 68 same way still 5…. Laughing at me 🤬

@emkphotography 4 месяца назад

Oh my gosh so true ribs are the worst vs any other joint 😩🦓🌻💖

@13fyrefli 3 месяца назад

If I barely put any pressure on my upper ribs, I will dislocate them. So painful.

@emkphotography 3 месяца назад

@@13fyrefli owch! I'm the same, you have my sympathies! Upper is most painful 😵‍💫 sometimes just breathing or exhaling does it lol it's weird how it flares at different times

@silentfriend369 5 месяцев назад

I speak with my doctor this month about the possibility of having ehlers danlos. I am 99% sure I have heds.

@Lionessliving 4 месяца назад

Don't waste time. Go private. Dr Brennan at inherited connective tissue disorder clinic in London. £350. Best money ever spent!!! Good luck on your journey.