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MND researcher Justin Yerbury’s fight to find cure | Australian Story 

ABC News In-depth
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In a span of six weeks, Justin Yerbury lost his mother, grandmother and aunt, all to the same condition - motor neurone disease. Now the world-renowned MND researcher is battling his own diagnosis while he continues to search for a cure. This is his Australian Story.

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25 мар 2018

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Комментарии : 75   
@sandrograndi6638
@sandrograndi6638 Год назад
just watching this after learning of your passing. Justin if wherever you end up eternally resting you read this I'm full of awe, admiration and gratitude for you and for your unflinching resolve to face your genetic enemy. You are Truly one of the most remarkable men i have ever had the heartbreaking pleasure to read about. I hope you rest in peace and that peace finds its way in the heart of your family and those who loved you.
@andymcgovern6615
@andymcgovern6615 3 года назад
I have survived 43 years with the ugly thing. Diagnosed in 1978. It has destroyed my arms, hands and shoulders. So far, my speech and swallow are not affected. "Yet,". If I am of any help to you. You can get in touch. Andy McGovern. Longest survivor in the world at the moment. (Since Stephen Hawking passed on)
@fourshore502
@fourshore502 3 года назад
sounds like your upper neurons were largely unaffected then for some reason they seem to be the most important ones since they are in the brain and control speech swallow and legs, the lower are in the spine. any theories to why you made it for so long? i think i have pre-als symptoms now, any advice for me?
@kityumcashcokityumcashco5740
@kityumcashcokityumcashco5740 3 года назад
Amazing!
@jimmiehines6563
@jimmiehines6563 Год назад
Curagious .
@jimmiehines6563
@jimmiehines6563 Год назад
Are you on a vent
@narellepipes927
@narellepipes927 10 месяцев назад
Hi how are you what are you doing that helped
@pattykochenower4222
@pattykochenower4222 3 года назад
Hope he finds the cure , his pure passion for this is amazing . Amazing man .
@SoloBench
@SoloBench 6 месяцев назад
There is hardly a cure for anything so why would there be a cure for this? People need to stop playing into the hands of the medical industry
@atheistmommy3710
@atheistmommy3710 5 лет назад
It will happen one day soon, we're getting closer and closer to getting the cure. Thanks to scientists and people like Justin.
@amberfoster8089
@amberfoster8089 5 лет назад
What a wonderful man and family. So heartbreaking 💔
@fredbiscuit...413
@fredbiscuit...413 Год назад
Hello from London, UK. An amazing man.... And I was so impressed by his Professor-Neurologist and his use of 'everyday' language about the progression and severity of the disease! My own brother-in-law is not suffering from Lower MND and the changes have been quick and life-changing. I applaud all the Researchers, Doctors and Micro-Biologists committed to finding a cure.
@richardblackledge7402
@richardblackledge7402 5 лет назад
Get behind this effort for the cure.We have to find it.We are losing too many people.
@AnEmmeni
@AnEmmeni Год назад
What a wonderful human being. RIP Julian
@Marc-io8qm
@Marc-io8qm 11 месяцев назад
It’s Justin
@shikhasaxena5062
@shikhasaxena5062 Год назад
What a brave man he is... Amazing Justin.
@VJRavi-ig8iu
@VJRavi-ig8iu 4 года назад
I lost my nephew recently due to rapid deterioration on MND. It was very sudden because of Cardiac arrest leading to brain damage. Very deadly disease. Justin's story is very inspiring to read more about this deadly disease.
@janewerikhe9528
@janewerikhe9528 Год назад
Oh dear may the cure be found
@clpr2023
@clpr2023 Год назад
Much respect Justin. Cruel disease. I hope you’re resting peacefully.
@florianwolf9380
@florianwolf9380 10 месяцев назад
Justin, I hope you were able to achieve what you had set out to do. MND is an absolute shit-disease, and while you were able to fend it off for quite a while finally it got you. Your courage, your enthusiasm for your research, and your indomitable spirit are your legacy for your team and will inspire them to continue your great work. You were and are a most remarkable man; fly high, and wherever you are please rest easy. Love, peace and hope for you wife, your children, and your extended family.
@madeleine8977
@madeleine8977 4 года назад
I knew little about MND. I am aware now, and will contribute what I can to help find a cure. Professor Rowe explained it perfectly. The puppet imagery was visceral so I won't forget.
@fourshore502
@fourshore502 3 года назад
thx. how is it going so far?
@jimmiehines6563
@jimmiehines6563 Год назад
Actually everones mnd is different
@GTschumacher
@GTschumacher 5 лет назад
A Great man !
@suecollins8199
@suecollins8199 Год назад
RIP Justin.😢
@anita5087
@anita5087 Год назад
Vale Professor Justin Yerbury
@breeyerbury3191
@breeyerbury3191 5 лет назад
An inspirational man!
@applejellypucci
@applejellypucci 4 года назад
Someone said this was the 7th worst disease in the world, but I can't think of a worse one.
@californiadoll6273
@californiadoll6273 2 года назад
Just because this 1 is bad, doesn't mean it's the worst. There's other's way worst. There's 1 disease in particular that can't be tested for because there's no way to test it but people that suffer from it will get full body burn pain, described as being burned alive. The disease is so bad that everyone that's suffered from it has taken their own life due to there being no way to treat the pain of being boiled alive. (I forgot the disease name but im sure you can easily find it)
@mark-ish
@mark-ish Год назад
​@@californiadoll6273nope, it's just you who "knows it".
@mstarr4812
@mstarr4812 4 года назад
You champion Justin - you still have an amazing life x
@frontlinersaudi8076
@frontlinersaudi8076 Год назад
I didn't want to open the comment section, to read that he have passed away 😢😢😢. I can't afford to know that we lost a good man by this tormenting disease. Lord help Justin save other families please.
@jamesjones3371
@jamesjones3371 2 года назад
What a brave family people think they have probkems. This family had no choice but face MND head on brave and Amazing .
@mathematicalmuscleman
@mathematicalmuscleman 5 месяцев назад
What an Amazing Scientist!
@mstarr4812
@mstarr4812 4 года назад
...Cu ATSM: what is happening with this drug right now (2020) and how can I get someone on a trial.
@aliciam6725
@aliciam6725 3 месяца назад
I’m a chronic pain patient who cried this morning over my constant pain but it’s not lethal. I want to take those tears back. Who the hell am I with my little nerve disease?
@mohammedismail8127
@mohammedismail8127 3 года назад
my father identified with MND
@fourshore502
@fourshore502 3 года назад
stay strong, a lot of positive stuff happening right now!
@SanPot123
@SanPot123 2 года назад
My father too :(
@amberlynn8591
@amberlynn8591 Год назад
@@SanPot123 I am so sorry, how is your father doing?
@louiselunardon7097
@louiselunardon7097 Год назад
What a great human being, please read revelation 21:3,4, as this is a comfort to me that things that we as humans suffer, sickness and death will not always be.💖
@wuzhai2009
@wuzhai2009 Год назад
RIP
@margaretstaino6277
@margaretstaino6277 7 месяцев назад
Is Justin still alive
@vivi6121
@vivi6121 11 месяцев назад
OMG, horrible disease, if u have a dog or cat or any animal sick like that, u would eutanise it. Why do they let human to suffer that much. It's horrendous even to watch
@Chad121130
@Chad121130 4 года назад
I am so confused by this I’ve never heard of this in the US is it the same as ALS?
@ramachandransankar750
@ramachandransankar750 4 года назад
Yes,ALS and MND are interchangeably used
@Chad121130
@Chad121130 4 года назад
Ramachandran Sankararaman thank you
@karnemelk66
@karnemelk66 3 года назад
ALS is subtype of motor neuron disease.
@jimmiehines6563
@jimmiehines6563 Год назад
We R aye stupid worthless people in the Unized stats
@tonychorley4936
@tonychorley4936 Год назад
Maybe someone like Elon Musk could fund something useful like research into treating and perhaps curing diseases rather than shooting rockets into space.
@michaelgann8070
@michaelgann8070 10 месяцев назад
Justin is a legend. I had him in my class in Yr.7 in 1986. I left that school at the end of '86 to go to Newcastle Uni. I never forgot this mature, tallish year 7 kid who spoke to me about basketball. I went to his funeral at Wollongong Uni and bought his book. A fantastic read.
@aliciam6725
@aliciam6725 3 месяца назад
Would AI make a difference in these treatment-elusive illnesses?
@aliciam6725
@aliciam6725 3 месяца назад
If that’s a stupid question I apologise. It’s a genuine question - genuinely stupid question?
@DrumsBah
@DrumsBah 3 месяца назад
​@aliciam6725 I have expertise in AI but not neuroscience. I lost my father to MND. There is a possibility for AI, more formally Machine Learning and Deep Learning to assist in this space, indeed it already is. The biggest challenge is that these techniques thrive on data and MND, compared to other neurological conditions, is relatively sparse in data. But this is improving over time! Expect drug discovery and gene detection being low hanging fruit for these techniques, as well as using AI for earlier assisted diagnosis (critically important in MND) as well as the numerous ways that AI can assist patients with loss of function (e.g predictive text, speech to text, predictive sensors etc.)
@SoloBench
@SoloBench 6 месяцев назад
Why on earth would she have the gene when she's not genetically related to him
@DrumsBah
@DrumsBah 3 месяца назад
What are you talking about? That's literally his biological sister who was worried.
@hollydisanto9148
@hollydisanto9148 7 месяцев назад
🙏🫶🏻
@danniieem2840
@danniieem2840 11 месяцев назад
RIP
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