Finding out you have Motor Neurone Disease - rugby star Ed Slater | The Big Jim Show

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Listen to the incredible conversation between Jim Hamilton and Ed Slater on Spotify - open.spotify.com/episode/7sEv...
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24 авг 2022

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Комментарии : 88

@sampilkington5597 Год назад

My Dad has recently been diagnosed with MND. Words can’t describe how devastated I am. But listening to you has reminded me that staying positive is the most powerful thing you can do. Best of luck mate and best wishes

@perxxan5534 Год назад

Can’t even imagine how you feel man I wish the absolute best for him, you and your family. Just want to send positive energy to you and him no one deserves to go through this I’m sure he is a great man with a wonderful family. God bless you and your family from the bottom of my heart and please try your best to be positive and appreciate every moment and live life to the fullest with your family. At the end of the day that’s all that matters. Really wish the best for you man reading your comment broke my heart.

@paulrichards6894 9 месяцев назад

feel so sad for your dad.....horrible disease....hope 1 day they can find a cure

@thereisonlyoneway 2 месяца назад

search for Mark Manchester

@FRU.No.1 Год назад

Brave lad, quality player.

@cameronbeaton1006 Год назад

Stay strong Ed. Thank you for letting us into your journey!

@Drifty325i Год назад

Thanks for telling us your story Ed, honestly mine was almost identical, ex rugby player, same age, same symptoms, similar testing (allot of different specialists) same time frame. I failed all of the tests, had allot of atrophy in my hands, then had a lumber puncher done (horrible) time went on and I was sent to another neurologist for another opinion I was extremely lucky in that I didn't actually have MND, I just have severe cupel and carpal tunnel on both sides. I'm feeling for you my man, keep positive and do what you can now. I went full throttle on living when I first was told ive likely got it

@hmq9052 Год назад

Why are rugby players getting it though?

@isyt1 Год назад

I’m going through the diagnosis myself as a previously sporty bloke in my late 40s. Atrophy in right hand and very weak pincer grip along with big reflexes and also fasciculations in my calves. Neurologist says it’s likely MND but they have to see some progression first to get a formal diagnosis. I also want to go full throttle on living but I’m waiting for that diagnosis as I don’t want to get in to more debt etc if it turns out to be nothing. In the head burying in sand stage I suppose Great yours has turned out to be carpel tunnel as that’s treatable. They said I don’t have that as I don’t have any sensation changes in the hand. Anyway, What an intelligent, cool and rationale guy he is. Hadn’t heard of him before tbh. And I’m going round checking my grip every day too lol. It’s all very relatable

@stevenclark1973 Год назад

@@isyt1 Hope you're ok bro...

@stevenclark1973 Год назад

@@hmq9052 It's not just Rugby players bro... it can come to anyone at any age. Lost my dad a couple of years ago with it... never touched a rugby ball in his life. For me, it's the worst debilitating thing you can ever get. It's cruel. If you get cancer you have a chance... not with this at the moment. Thoughts and love sent to anyone who has this or any friends or family with it. Let's hope they find a cure for this sharpish.

@anthonylodge7516 Год назад

It tends to afflict athletic people more than others. Not much more. But there is a higher incidence.

@thegreatbrankoni 8 месяцев назад

What a wonderfully articulate and honest man. Never heard of him before. Well impressed.

@marksheehan8026 10 месяцев назад

Hey Ed never heard of you before this interview.. Ive got you my prayers .. healing n peace n wisdom mate Ps 23..

@simonbennett6235 Год назад

Ed, you are great speaker .I’m sorry you have been diagnosed with MND .My mother had the same . If you want to do a sponsored walk. Let me know. A Gloucester supporter.

@loveanimals969 Год назад

Heartbreaking. It must be horrific when you are told it is MND. God bless.

@markwt2680 Год назад

Kudos to Jim for a brilliant interview. 3 mates having a good laugh but a super serious part handled with love, honesty and caring.

@nicprince4198 Год назад

Stay strong and Stay positive mate. Best wishes!

@paulpretorius5040 Год назад

All of the best to you my friend. You are an inspiration to the world. Greetings from South Africa 🇿🇦

@johnilbehonest Год назад

I'm sorry to hear, nd sorry ur going through it.

@lydiamoore142 Год назад

Prayers go out to you. My brother had it, and amazingly, he was able to talk well to the very end. Talk to Jesus. He really does listen to you. He did me, and healed me from needing a heart transplant, to healing my own heart.

@31415926535ism Год назад

Very best wishes Ed.

@stephenmyers4319 11 месяцев назад

Im 33 as well. haven't been diagnosed yet, had blood test done, and all came back good. Booked in for an mri next friday on my head and back. I know deep down i dont have much time left. Every day gets harder and harder, day by day i feel my self getting weaker. I find my self loosing balance and tripping over at work im struggling to climb up and down the ladders. Muscle's shrinking, constant twitched though my body. Its going to be a horrible way to go with our brain still working but the body shutting off i just think thank god its me an not any of my friends or family. Im not so worried for myself but more so that my 5 year old daughter will grow up thinking "wish my dad was still alive" its that thought that really nocks me about. Been lucky enough to raise her by myself the past 4 years just hope i get to see her first day of school. Its sad there's no cure yet. Good luck brother

@lesleymaclennan7899 6 месяцев назад

Praying for you 🙏🏾❤

@pam164 Год назад

I have BF and had it 34 years I was so worried when my muscles all over body started twitching and Doctors didn't take me seriously as I was 27 at time. Thank god it was just FB I still twitch everyday but I ignore it. So sorry for this man and he is so young.

@heatheringram14 2 месяца назад

Thanks for your video. It's really helping me. My husband is in the process of potentially being diagnosed with MND, currently he's only at the MRI stage

@bigyin2794 Год назад

Not sure if this has been discussed, but how much is head contact, concussion, CTE etc, ie being a forward, being investigated as a risk factor for MND?

@stevenclark1973 Год назад

Brilliant video... spoken so well... total respect to you... dad had this horrible disease and I never knew what it was when I was with him when he was diagnosed after all those tests... until I got home and googled it. We're all with you on this.... they will find a cure for this or find something to halt it. Thoughts are with you friend... take it on... give it the two fingers and keep going. Hopefully a cure is just around the corner.....

@dabruscar Год назад

Best wishes Ed. Fight on mate.

@janiesusanedwards9651 Год назад

❤ he is doing so well for him safe I am so proud of him😊

@Bapi802 Год назад

There is any cure for mnd Or als

@mariussolomon5398 Год назад

All the BEST ED. 🙏🙏

@jimharries2070 Год назад

Stay strong brother

@phildavies9690 7 месяцев назад

I'm just a nobody whose been researching MND in the hope of helping a loved one. If someone is reading this who works in medical research could maybe consider if fertilizer like blue green algae ( sold on Amazon) plays a role as a neuron toxin. This lovely tough young fella might have come into contact through injury.

@denvik 4 месяца назад

how can i connect with you ? any insta / twitter or mail ?

@rugbyhub72 Год назад

Thank you Ed for sharing stay strong man 💪

@timwannell6477 Год назад

Best wishes Ed

@FFTsteel 4 месяца назад

Brother, love you. I pray for you and I hope you are loved to the end. I cannot imagine.

@rakoelie7581 Год назад

thats a strong human being

@sharonvisser3531 11 месяцев назад

Great interview Ed - Your story is almost exactly what most MND patients go through. This is a devastating disease. Stay strong.

@ashdrive Год назад

My sister has it, what a change within a year, hence seeing this video just to get as much info as possible.

@denisehadfield7995 Год назад

My brother got the diagnosis last week he has MND. I am devastated…

@MrSuperdave75 Год назад

I hate to think the amount of times i got head knocks in 16 years of playing rugby. I never got comcussed or at least I didn't think i did. Still, i was groggy many times.

@NinoNiemanThe1st 9 месяцев назад

What a brave man, balanced and realistic about his disease, but just getting on with his life. Total respect to him for talking about it! No prayers, Jesus or herbs, just realism.

@neil5006 Год назад

All the best Ed 🙏

@melaniebail Год назад

Be strong young man… that’s is the monster disease ever my heart is broken for your illness worst ever in this planet my dear husband had the same and up to today I can’t recover

@ShowBeard 11 месяцев назад

Good looking man.

@il3mendo 2 месяца назад

I unfortunately been diagnosed with a motor neuron disease 2 years ago. It s hard as hell. The major area which get affected are the lower limbs, achille s tendons, shoulders and neck pain. I wish you all the best.

@mriyke4719 2 месяца назад

How are you now

@il3mendo 2 месяца назад

@@mriyke4719 First of all thanks for asking. It s a struggle due to the facts that I found a balance with a pure and really limited diet and my social life collapsed. My health is great but emotionally I am not perfect. How are you brother ?

@iykegideon8199 2 месяца назад

I won't say I'm fine I have heard the symptoms for five years now but I have not been diagnosed breathing problems has been issue to me

@il3mendo 2 месяца назад

@@iykegideon8199 It depend, as we ll know everyone has a different side effects. I Just hope that you have been followed properly. Breathing issue can be a part of an allergy reaction, keep it in mind. 🤗

@matthardy5496 Год назад

❤ ed slater

@robz1471 Год назад

Love ❤️ ed 🙏

@NEGAN310 10 месяцев назад

I lost my father to MND in 2015

@derekbooth-yx4zs Год назад

A truly inspirational message from Eddie who sadly hit rock bottom. And he is well and truly loving the AA, meetings and helping others to understand there addiction then talking to them how they can get sober. And still go to AA meetings

@user-jv8nx8th3f 8 месяцев назад

I’ve had muscle twitching for about a year all over legs calf’s quads hand lip face arms there random but last in my calf’s longest I went to see a neuro and he said cramp benign faciculation syndrome. Still fear mnd to this day. But any twitches out there listen to ed he was twitching in one area and got weaker in that area random twitches arnt mnd you might twitch in leg hand shoulder all in one day. I don’t have any weakness 1 year in

@joshr920 7 месяцев назад

If you don’t have any weaknesses it isn’t MND

@leigh7507 11 месяцев назад

A fair amount of Rugby and NFL players getting ALS. Not sure if theres a link with heavy impact sports.

@rebekahsprlyan6982 8 месяцев назад

From my research there are some indications that high physical activity, as well as head injuries are linked to MND. There is still no one cause identified, it’s a horrible and complex disease

@barnbersonol 8 месяцев назад

"Going forward" one of those current buzzwords thay annoy tf outtov me.

@rogerward3390 Год назад

God love you 😍

@Frank-fi1fb 3 месяца назад

Twitching (even the 24/7 ones) as the first symptom of an MND is very rare

@shieldoflife2816 Год назад

There is a protocol that has slowed down ALS called the Diana protocol- there has been research articles and studies done- perhaps Ed can benefit- good luck and many prayers of hope to you Ed- 🙏🙏🙏❤️