Moebius Syndrome 

+Catarina Zidde Just out of curiosity, how did you hear about Moebius syndrome?

I was browsing through this site and ended up reading this article about someone who has it: broadly. vice .com /en_us /article/ saving-face-my-plastic-surgery-at-age-13 (sorry i'm not sure about how to post links here in youtube comments)

I actually came across it because I am studying Optometry and I am being assessed on the different Cranial Nerves and their palsies

Chelsey Thomas I was curious and searched “the rarest diseases” and I searched up each one and on the list was Moebius Syndrome and found this video

I love you toooooo!

AndieofRU-vid Friendship goals!!! ❤❤❤❤

A gofundne page could be a good idea, actually.

Then I have to go public on fb. I just don't know :(

on the bright side, I bet you have much less wrinkles then a typical person your age?

From time to time, I do kind of hate it too. But sometimes when your caught up in something you like, you forget about it. You need to have some hobbies etc.

Hey! Find me on facebook.com/chelseythomas13 and I can connect you with people that have Moebius (if you want) and may even live near you, depending on where that is. :)

I agree.

I realized after I saw this comment that you had sent me a facebook friend request. I may have deleted it because I didn't recognize the name, but I remember your picture now, and you look great! What kind of corrective surgeries did you have? If you don't mind me asking.

Aww, thanks! I had 6 operations on my feet before I was 5 years old because I was born with Club Foot - and I had 3 major operations on my jaw to get my mouth to close. Originally I couldn't move my mouth hardly at all - which led to speech problems and drooling among other things but the operations and years of braces & retainers helped with that luckily. My eyes still will never work right or turn the way they should - but I've got glasses now to help me a little... I still have a lot of random minor problems that tend to go un-noticed by most, like my fingers curve weird, I have horrible vision, my left hip & shoulder don't work right, I have a heart murmur and odd chest wall cavity, and I still have an unusually small mouth with an upturned lip kids sometimes ask about... lol Overall though, it's not the worst thing to have I guess. I would love to talk to others with it, though - since being diagnosed I've been really curious and since it's so rare I can't even find anyone who knows about it let alone has it...

You are absolutely adorable though! It's nice to find another young female out there in the world also dealing with it.

On Facebook, look up the group Moebius Friends 2, and request to join. There are lots of people in the group that would be more than happy to talk to you, myself included. :)

BTW if you didn't have any surgeries you'd be fine.

That makes me miserable. I have it and I am very healthy and probably going to live a full life!

Hayley Gudson, what makes you miserable?

Thank you! I don't think of myself as disabled, because I've always been able to do everything I've wanted to do in life. :)

Chelsey Thomas Okay. sorry :)

Thank you! I've worked on my speech a lot over the years. I've learned to enunciate and speak slower, which improves my speech a lot. :) I was definitely nervous about putting this video up. Mostly because people just love to leave rude comments on videos, I'm surprised this video hasn't received any.

Honestly, that was my biggest fear too, the nasty comments. Surprisingly, I have't received any. You should definitely upload your video, and if you wanted to, you could disable the comments section so people cannot comment on it. :)

Thank you! :) Reading my lips would not be helpful, as they don't move in the way a "normal" speaker's due. But yes, I have worked hard at improving my speech. Aside from my hands, it's the thing I've always been most insecure about.

You rock, and this video rocks.