Mom of Autistic Non-Speaker Shares About Advocacy & Finding the Right People | Full Interview

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Nikki shares her perspective as a mother of a non-speaking autistic child, from navigating healthcare and other related professionals, advocating for her child and others within the school system, and finding an autism mom crew.
This interview was conducted as part of a video project on the conversation around who is "allowed" to "speak for" non-speaking autistic people. You can find the overall video here: • Who Speaks for Autisti...
00:00 - Can you tell me a bit about you and your family?
00:15 - How well do you feel like you understand your child?
00:50 - How do you communicate with each other?
01:45 - Do you experience people telling you that they know more about what your child needs than you do?
11:51 - What resources have you found the most useful over time in learning about autism and your child?
19:41 - Do you feel as though you are your child's voice and why or why not?
24:06 - How do you feel regarding the role of autistic advocates in the world of autism?
38:16 - What do you think about the conversation around who gets to speak or advocate for non-speaking autistic people?
47:35 - Did you have any other thoughts or anything that you'd like to share?
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Опубликовано:

19 июл 2024

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Комментарии : 14

@StephanieBethany Год назад

Thank you to this wonderful mom for interviewing with me!! And also a special thank you to my Spinny Stimmy tier patrons, Philip Noah, Jack Varney, and Snowbird!

@TheCerealluvr Год назад

where can we follow Nikki on social media?

@magdalenapietraszuk7168 Год назад

Dear Mum, you are so wise! I listened to you with a great pleasure. You have been set on a journey you didn't ask for and you are smashing it. You are a blessing for your daughter and you truly look like you feel blessed by having her ❤️

@whitneymason406 Год назад

Love hearing from a single mom's perspective! Thank you both for this! 💞

@publiceyes473 Год назад

Cool mom

@peinzen Год назад

These interviews are so valuable. ❤

@gszhsdhxjd9809 Год назад

I miss the old style of videos that you made before all of these interview videos... Please don't stop making that type of content, because you're pretty good at it...

@SweetiePieTweety Год назад

Who are you to say my child is intellectually disabled ? Prove it ! 👍👍 Non verbal is no proof whatsoever! And yea, my son quickly figured out how to fail to stop the test. He tested the tester every time. I get it wrong three times they move on and I get out of here. But in a moment he revealed he could read the testers questions upside down because he gave the answers to the next question when she said if he got one right he could play with something he spotted in the room. Dude… but he didn’t talk. Eventually he did to get to do Lycra spinning therapy he thrived on tightly wrapped spinning then immediately apply headphones on to block all background and 20 minutes of online program speech = prize. Within weeks he was talking whereas regular speech OT no way. PDA Autism profile. Demand avoidance in all areas. So many potentials to verbal blocks. Tricky. And yes, I understand her position regarding a cure. Moms yes want all things better for their child. Moms want to cure all things for their child. Bring in that cure for the common cold and I’m in line for my child. The individual simply wants acceptance as they are…. autistic or snooty cold nose just love me as I am. ❤️❤️❤️ Respect to the mom and her child. And yes, it’s so sad we get all things thrown into the autism box vs seeking medical diagnostics for medical presentations of stems. Those seizures need answers other than autism symptom.

@Misshowzat Год назад

Working in childcare sometimes between 5-8 they have a lot of encouraging development, my brother's didn't really start until after he was on a natural growth suppliment (mannatech) but playing the 'use your words' games about what they were involved in can make a difference but sunglasses/transition lenses almost always make a difference because it reduces the excess input. I'm always so proud when I see parents comfortable with their child wearing headphones/glasses in public. All in all parents who are *listening* to their kids & fitting the program to them not them to the program are already doing an amazing job.

@Misshowzat Год назад

Ah, also I struggle with Autism & epilepsy & there are a number of times when I'm tired my jaw will get 'stuck' & I can only communicate with gestures til I rest. It's frustrating.