My mum had a brain hemmorhage a few weeks after my birth, she survived, she couldn't do some things like basic math and her writing became worse but she survived and stayed for 18 years, she was an amazing mother and my father is an amazing man that stayed with us❤ Sadly she had a second bleed and died, I miss her so much. Seeing this beautiful woman's story is heartbreaking and hits me hard. I hope her son will have her for many more years than I had❤
Love & Prayers to this Incredible, Courageous & Inspirational lady and her family. My mother suffered a large brain hemmorage late April 2021, and her recovery has been nothing short of a Miracle also.. I took off work to see her through recovery, , and wouldn't change a thing.. God has given her to us, , just like Jo, for a reason. ❤
Thank you for this documentary. I would love a followup. She is an intelligent woman, that will provide the world with something amazing. Dr. Scott already gives me life.
PinkFurryHat I wrote my first single about memory loss for charity then suffered a subarachnoid haemorrhage this January. It’s so ironic and frustrating.
My heart goes out to you Dr Jo..i had a hemorrhage stroke a year ago Sunday exactly a week after giving birth to my beautiful lil boy.. and altho i didnt not suffer any disability with my speech..but my whole left side was paralyzed. With many hours of rehab i am currently able to move my arm and leg and walk without any assistance..God has given us a second chance of life to enjoy our babies..you are truly an inspiration..keep fighting!!!!..sending my love to you💖
She is just an incredibly strong minded young lady and I am sure that she has made a lot of progress with her health since this was produced. We need a follow up of this episode please
Vanity Rae I'd like to think most people wouldn't just abandon their loved ones simply because they've lost their voice..... That's absurd & really sad that you think the complete opposite....
I've been watching these docs for a few days but this is the one that made me subscribe. What an incredible family with such a powerful bond..I definitely cried watching this. I sincerely hope things improve with time for Dr. Jo and her family.
I had my AVM burst just over 10 years ago, I still have some limitations. Jo you are an inspiration to me to keep on going and keep the strength up. All the best !
Esther Maina Tenya Iida I’m so sorry to hear that. I survived, barely but I did. Subarachnoid haemorrhage January 2018. And now I make music to raise awareness and funds to help people. I’d love to share my music with you, have a listen on my channel and let me know what you think. I wrote “who are you” for people like you and me. 💜. Love.
Wow shes so strong and inspiring. This channel is my new favorite youtube channel. Thank you so much for sharing the stories of these inspirational families.
My mom is right now at the hospital with brain hemorrhage. She’s a fighter but it breaks my heart watching her like that. She’s in the Lord’s hands I pray for strength for her and dirección for us a family.
Wowwwwwww...... brings back horrible memories as I had a brain hemorrhage myself at age 37 while I was 5 months pregnant with my second child...... it's been almost 2/5 years since then. I still consider myself a lucky lucky person that I have survived even though I'm still suffering from somewhat minor residues. I was completely a healthy person but one night things changed so much. It was a vein rupture type not clotting type of stroke ..... and until now there is no answer to why it happened. I'm just so glad that I get to be around for my children. 🙏🙏🙏 I feel for her and I know exactly what's she going through..... the good thing is that she has a wonderful purpose to live her life to the fullest and that's her child... Life is a BITCH ..... that's for sure. Take care Jo. 💗
What an inspiring woman and damily! had a small stroke caused by blood clot in my mechanical heart valve. While there weren't glaring effects, those close to me know when Im exhausted or stressed I can actually see the word but not get it out. i get so so frustrated. Seeing this amazing woman carry on and set goals reminds me how fortunate I am in the scheme of things and to ride the waves but never give up.
Something like this happening to anyone in any circumstances would be devastating...but for there is so many reasons it's particularly tragic for her. She's young. She's a mother. Her son was very young. She's a doctor. She was two tests away from qualifying for a speciality 13 years in the making. She has brilliant mind still completely intact she can no longer freely express. And from her perspective, it was all gone in an instant. She didn't get to prepare emotionally or logistically. On the other hand....she's alive and has a beautiful, loving family and support system. She is still present and inside, the same person she always was. I'm still early on in the video and this was posted 7 years ago, so I hope things are better for her now. If nothing else, I imagine there are so many ways the incredible technology we have now could be helpful for her personally and professionally.
This story of Dr. Jo is really inspirational to me. Knowing what she's been through and doing what she can, to get back up on her feet is quite sensational. I send her and the family all my love and strength in her quest to make a full recovery. She's definitely going to be better. Props to Mr. Leon too. Kudos! Thank you for sharing your beautiful story. :)
Alas! I m not there. My beloved Mom suffered a brain hemorrhage and she has recovered a lot in a very short span of time through her will power. I promise this young lady will 100% recover provided people around her should never let her feel she had a brain stroke. Please ask her to lift her right hand, she can, and support her in her walk, motivate her to walk normally. She can walk like any other person. Her sensory and motor functions are normal. Aphasia?? She is fine. She will pick up soon. In fact you have to learn her language. She will regain everything.
I wish my mother could make it but she passed away because of brain bleeding I don't care WHAT the aftermath is All I wanted to is give her one last hug and say that I loved her and I couldn't help I couldn't I saw her die in front of my own eyes saying "mommy please wake up please I'm not ready for a life without a mother" I miss her so so much I'm in tears to write RIP she was my everything 😢😢😢😢😢
Josue Gonzalez I’m so sorry for your loss. My mom was diagnosed with a brain hemorrhage a week ago and I feel lost like there’s no hope. She’s my everything too 😢😢😢
Exactly same happened to me. Not long ago I couldn't write or talk but I knew exactly what I wanted to say, just couldn't get it out. I used pictures and emoji on phone.
amazing story very powerful and interesting story it must be very frustrating to not talk as well and not to think of a word to say but still want to Try works is very amazing woman
All the videos are amazing, thank you for them, and all the people who took part. I was wondering could Jo not try sign language? My heart goes out to her so much, I really hope things improve for them.
I suppose maybe she wants to go back to being a doctor which would require speech. Possibly the damage to one side of her body makes sign language to fiddly as well.
From listening to her, it sounds like she has problems with grammar and vocabulary, not just the physical part of controlling her mouth and tongue and throat. If it was just the speech itself, she could just write what she wanted to say (which would be easier than learning a whole new language).
+junbh2 On the other hand, who knows, maybe learning something new and different would help her, or maybe her memory for body motions might be less affected than her memory for sounds and speech.
I’m so sorry to hear that. I survived, barely but I did. Subarachnoid haemorrhage January 2018. And now I make music to raise awareness and funds to help people. I’d love to share my music with you, have a listen on my channel and let me know what you think. I wrote “who are you” for people like you. 💜. Love.
It's something that could happen to any of us. It's very scary. And me being in a similar field to her but I'm no doctorate level but I would really be sad like her when I was almost certified to work and this to happen. I wouldn't know how I would feel going back into the lab. I know that same love of this field. Work for me is fun and doesn't feel like work and the plus is I get paid for doing what I love. Most normal people can't say or remember the words for health sciences. It'll be very hard to say things like poikilocytosis again. But she at least said she remembers all she has studied. It's just remembering where those words go and getting her mouth to say it. I would love to see an update on her. I can see the progress already throughout this video.
I have a daughter with brain injury from neonatal sepsis at the level of severe learning disability and delay as testing but it doesn't seem like the whole story, and a son with ASD, Aspergers/PDA, giftedness. Both have mixed cognitive stuff. Ability and challenging behaviour. Hard to know what they can and can't do. Same story for me. Developmental issues and higher IQ that I didn't find out about until later. Specific learning difficulties and extra time at A level, failed uni (now only one of six siblings without degree or career), diagnosis not clearly resolved as to questions of developmental dyspraxia or autism, though my GP once mentioned anoxia at birth (mum put it down to unnecessary pethidine), being floppy at birth, in special care. That GP was Ellen MacArthur's uncle, saw something slightly similar in me that I haven't lived up to. The uni support said they thought I could do anything, just not the degree at that time. Countryside management was too big, too emotive, and I struggled with statistics, mixed maths abilities in general. I grew up in perpetual confusion and conflict about my abilities. Though I still remember the educational psychologist saying the test score was higher than expected, then didn't even tell my mum, just within normal limits. My mum found it very hard and took against medicalization. Other experiences too added to it. Her frustration and pain and trying to sort it out in been head has been evident and I haven't always helped. But looking back the performance gap should have been obvious. But then I don't know what they could have done. Connecting with best practice and your known motivation and best is a whole other thing to knowing what the issues are in a general way, or indeed more specifics such as about articulation and word retrieval. I was frustrated that there weren't more opportunities for habilitation around for my daughter (who is now 13, and enjoys cookery and musical theatre and videos about lifts and how plumbing works) but I had severe long lasting postnatal depression while we were learning what the impacts was on my daughter. I tried to read three books a day. That was good. I think it had a good impact. I used to use my arms like parallel bars having a few documentaries about rehabilitation to supplement then advice we got from the physio. I used to beatbox phonemes at her to split the articulation from the meaning to make it easier, while also reading and having my pedantic pidgin-academic but jaunty way of speaking. The HV credited me within a lot but I also found a lot of things hard and blamed or questioned a lot. Still do. That's normal mum stuff. But more extreme in the circumstances. We didn't get a lot of provision we should have had and some people chase down everything or pay for it, but they were already highfliers maybe. They seemed very different, while in some ways, points of contact that ran deep. When she was basically walking and talking physio etc mostly rolled back, left it to nursery and school and us. It wasn't all done though. I wishn I'd pushed harder and might be denying been opportunities but concerned extra pressure would have been a cost too high for us, I don't know, but sometimes feel web stern about right. In the circumstances. For us. But there's an whole range of debate possible. The larger they get the harder it is. They argue. I get overwhelmed, they get overwhelmed. Reading with them is hard too: my focus needed especially, to balance their need to talk and ask questions and have a satisfying exchange there with on the other hand reading smoothly. Changing back and forth and all the frames of reference I find really difficult. And am sad at the changes. A long drawn out sad. Like a constant grief rollercoaster. I used to cry in sheer exhaustion at the end of a shift on supermarket checkouts and crashed out of that job before I had children. Perhaps I shouldn't have had them but I just wanted to be normal. My husband crashed out his IT job eventually, recently: burnout related to home, his mental health and general HR/management style type work strains together: so I need to think about a job. But it's triggering relapse signs in my mental health, just thinking about it. I have been quite avoidant so far despite superficial health and ability. Even though I can fill my head with vain dreams and entrepreneurial and activist spirit quite easily. I derive a lot of sense of meaning from online activism but that's an unstable satisfaction in some ways. I don't like to say, but my children and my faith as well,n where they perhaps shouldn't be unstable or my all though the opposite isn't arguable too. So I don't know what to say except tell my story and say hello with a wan wave of hello from another part of then frustration tree. You are valuable whoever you are and whatever you don't and don't do, and the overly grand and pressurising conclusion might be you're a potential role model that humanises brain based difficulty somewhat for those who don't get it, because people generally oversimplify and hate on the barriers that exist in functioning. Being a doctor who struggles to speak but retains a lot of intellect and knowledge is a potentially powerful story where it's often left to compost in obscurity because people don't know what to do, don't have time, but prefer stories involving aspirational achievement, hope, inspiration porn based learning moments. That's a reason for this video. You're allowed to fight that. Do look into disability politics if you haven't. Bewildering as it can be. I might give other useless patronising advice in lieu of being able to ask more details of the therapy programme. Like does it involve signed English, like Makaton. A more accurate range of gestures to support speech looked like they might be useful. There's lots of baby signing resources out there and it might help in your relationship with your son. There's different opinions about signed speech, it's sometimes controversial as if it would diminish speaking but the science behind it doing the opposite, I hear, is good. I know I am talking to a doctor (well, if this reaches you), married to a teacher, in the care of quality teams doing their best. But there's always devils and angels in the details of the climb that seem to matter quite a bit! Fight your corner. That doesn't have to mean climbing too high, it can mean being able to cling on. But I have had both the high achievement "go for it" advice and pressure and practical style interactions and the "settle for it" advice and style of interactions, neither quite satisfied or felt as healthy as they could be. People do their best. But we're just people. We can't all be superheroes. And that's OK.
Kathy Bramley Tenya Iida I’m so sorry to hear that. I survived, barely but I did. Subarachnoid haemorrhage January 2018. And now I make music to raise awareness and funds to help people. I’d love to share my music with you, have a listen on my channel and let me know what you think. I wrote “who are you” for people like you and me. 💜. Love.
I just stumbled on this mini docu by complete chance and sooo glad I did! I too had a cerebral hemorrhage from an AVM at 10 yrs old. I work in in the medical field as a technician now and really feel the same way Jo does when it comes to reaching your fullest potential professionally pre vs post injury. Is there a way I might be able to get in. Contact with Dr. Scott?! Would love to write to her from one survivor to another! She's amazing!
ohgirl920 ohgirl920 I hope you manage to get in contact! Perhaps send a message to the Attitude RU-vid channel? Maybe they could help you get into contact :)
I found out last October that I have a 1.5 mm brain aneurysm. It's unruptured but can rupture at any time in my life. It's too small to fix it. But still in a dangerous area in my brain. My beautiful mom passed at 34 of a double ruptured brain aneurysm. So this is genetic. I'm a mom of 10 and just found out I'm almost 4 weeks pregnant with my 11th.
I had a cerebral hemorrhage in the back of me brain I lost me ability to see for about 3 years. At first I got up from bed and noticed something different. and around my first period I noticed something wasn't right in me head while I was lifting weights in P.E so after P.E i went to English and noticed my vision was distorted and while I was at lunch everything went black. The doers said had I been taken into care much later I would've been completely cognitively disabled.
Tenya Iida I’m so sorry to hear that. I survived, barely but I did. Subarachnoid haemorrhage January 2018. And now I make music to raise awareness and funds to help people. I’d love to share my music with you, have a listen on my channel and let me know what you think. I wrote “who are you” for people like you and me. 💜. Love.
I had an avm burst also... I suffered with aphasia for a few months and it's really really hard... However I miss my right side and my right vision the most.
Dan Crouch I’m so sorry to hear that. I survived, barely but I did. Subarachnoid haemorrhage January 2018. And now I make music to raise awareness and funds to help people. I’d love to share my music with you, have a listen on my channel and let me know what you think. I wrote “who are you” for people like you. 💜. Love.
Had a cerebral hemorrhage myself during nightshift on may the first this year, recovered physically really good except talking whats kind of hard frombtime to tome just like lubgs shut fown snd no air is there for forming words. Mentally is another thing ibget anxiety at night and cant sleep. Sry for bad typing, hand a bit shakey
i am sure she will succeed,but in the meantime would it not be easier for her to use an augmentation speech assistive device such as the dynavox V-5 or some alternative assistive device? i wish her all the best and much luck.
llih aidyl Well that shouldn't be as much of a burden if they truely loved her. They could very easily in the course of a month learn enough words to get points across much quicker - they don't all need to be fluent
Katlin Weeks She wasn't attempting to sign - just natural hand movements. Since my head injury I had a much easier time learning sign than english because they process totally different in your brain. One is pictures and one is actual sound and then speaking is adding one whole step compared to sign. She knows the words just can't get it out - making it into sign my help in the mean time.
I asked myself that question too, but when the husband said something about her not only losing the ability to speak but also losing the ability to use language in general, sort of made me figure it would be hard for her to learn sign language as well. But at the end of the day...I'm still not sure lol
