Moving Forward with Cavernoma Treatments Webinar with Connie Lee 

Connie Lee is the Chief Executive of Angioma Alliance, our sister organisation in the US.
Connie will be talking about the current very exciting state-of-play with the development of new treatments for cavernoma. This will include the trials of medications to treat cavernoma and other forms of treatment too. She will describe what clinical trials are, and their importance for the regulation of medications as well. This is a fast-moving field of research.
A cavernoma is made up of abnormal blood vessels and can be found in the brain and/or spinal cord and looks like a raspberry.
1 person in 600, in the UK, has a brain cavernoma without symptoms (asymptomatic). This equates to roughly 90,000 people - enough to fill Wembley Stadium. A spinal cavernoma is rarer than a brain cavernoma.
For more information about Cavernoma Alliance UK, please visit cavernoma.org.uk/
This is a recording of one of our webinars given by our members, guests and medical experts throughout 2022.