Congrats Izzy 🙂 you’re such an inspiration 💙 I was diagnosed at 19. 26 now. Had a major relapse last year, experienced every symptom going (literally). Also started Lemtrada in August & i almost feel like me again.
I wish this would happen to me. But I've got PPMS, so no recoveries and no relapses. Just a steady worsening of my symptoms. It makes me feel hopeless and I often have very dark thoughts...
Hi Izzy. I have a few questions for you. My boyfriend was diagnosed with aggressive sm in January. Since this time he has 3 projections of the disease. Next week (11 march 2019) we are planning to take lemtrada. He is really scared and we are looking for people who took lemtrada and how they are living years after that. Do you know more people who are suffering from same type and longer time after medicines they are full ability?
Hi Oliwia Rosenbeiger I have RRMS. I took lemtrada last August have second half this auguat. I know it’s a scary treatment, the effects of it did worry me but as my neurologist said to me, bloods and urine must be done every 28 days, If something shows up, they are treatable once the are caught on time to prevent complications. In the last 6 months I feel fantastic. I was completely paralysed, unable to drinks chew swallow along with a million other things and now I’m like a new person :) my advice would to be to nourish the body as much as possible! Seen as lemtrada reboots the immune system i know eat fruit and veg like they are going out of fashion! I also take cbd oil. I have done a lot of research on it and I think the benefits outweigh the risks. My MS nurse told me one of her patients on lemtrada has been relapse free for 7 years now. I hope your bf is ok and I wish him the very best of luck with his treatment :) x
