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MS Update: MRI, symptoms and progression 

Life of Seb
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A long overdue update on the past months, during which I had an MRI, new symptoms and important talks on my MS with my neurologist concerning progression.
To learn more about Multiple Sclerosis. Stay connected with "Life of Seb" Do LIKE, COMMENT, and SHARE. Don't forget to hit the SUBSCRIBE button and the BELL 🔔 so that you never miss any updates. Thanks for watching :)
To learn more about Multiple Sclerosis. Stay connected with "Life of Seb" Do LIKE, COMMENT, and SHARE. Don't forget to hit the SUBSCRIBE button and the BELL 🔔 so that you never miss any updates. Thanks for watching :)
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What is Multiple Sclerosis ❓
Multiple sclerosis (MS) is a potentially disabling disease of the brain and spinal cord (central nervous system). In MS, the immune system attacks the protective sheath (myelin) that covers nerve fibers and causes communication problems between your brain and the rest of your body. Eventually, the disease can cause permanent damage or deterioration of the nerves. Signs and symptoms of MS vary widely and depend on the amount of nerve damage and which nerves are affected. Some people with severe MS may lose the ability to walk independently or at all, while others may experience long periods of remission without any new symptoms. There's no cure for multiple sclerosis. However, treatments can help speed recovery from attacks, modify the course of the disease, and manage symptoms.
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⚠️ DISCLAIMER:
My channel is in no way supposed to provide medical advice or guidance and I do not claim any medical knowledge of Multiple Sclerosis. I merely discuss MS-related topics from a patient's point of view. If you have a serious medical condition, please consult your medical practitioner immediately. By using this channel you do so at your own risk. "Life of Seb" RU-vid channel accepts no liability in part or in full for any damages or injury caused by the use of any content provided.
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28 июл 2024

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Комментарии : 115   
@kenneho
@kenneho 2 года назад
My ability to walk was quite reduced starting last fall or so. Slowly increasing physical exercise the past few months I'm now almost completely back to normal. I hope the same for you. Best of luck.
@LifeofSebMS
@LifeofSebMS 2 года назад
Thank you!
@jeremywalters7949
@jeremywalters7949 2 года назад
I also have MS sir I pray for you deeply Seb I don't believe we have the same diagnosis but yet in the same week all together still have multiple sclerosis so as I continue to pray over you or pray for you sir either way it said please don't think I'm weird but I love you bro mind over matter spirit over flash victory over circumstance I don't have to repeat it to you because I see you already doing it
@danielklementi
@danielklementi 2 года назад
God bless you, Dear friend Sebastian, and protect you always on all yours steps. My big friendly hug ans best wishes from all the heart. Pray for you and know that you allways give us power to continue our life with all complications of MS.
@jeffreywilliams5093
@jeffreywilliams5093 Год назад
A fascinating thing about you, Seb, is that the calm, thoughtful way you share your thoughts is soothing for the viewer. At least for me. Your updates are important for us to know. Please be assured we are reflecting about you and life. Thank you for this gift.
@LifeofSebMS
@LifeofSebMS Год назад
Wow, thank you so much for your comment. Can't believe I am only seeing it now. Rest assured that I'll keep making them 🧡💪🏻
@turk223
@turk223 2 года назад
It helps me very much to watch videos like yours; thanks for sharing. I was diagnosed more recently - November, 2021 - and just had an MRI done in May. The previous one was in September. I also have no new lesions but feel worse than before; walking is more difficult and much more leg-pain. Such a rubbish disease, eh? Wishing you all the best.
@jnoble9032
@jnoble9032 Год назад
Monolaurine is helpful🙂
@tamaramadelin4831
@tamaramadelin4831 2 года назад
Glad you are taking care of yourself! It is so true that you must stay positive and try to not worry, but of course that's hard! I wish you the best and continued non progression!! My husband has to live with pings, pains and fatigue due to his type of MS, but I take care of him when necessary!! Thanks for sharing!
@peterjansen5571
@peterjansen5571 2 года назад
Hi Sebastian, nice to see you. It's like I'm looking at a person who tells my story. My mri didn't change for 5 years. I am well familiar with the sleeping arm for 3 years now. Carpal tunnel syndrome was quickly out of the question because my whole hand sleeps and not only the little fingers. If I reposition my hand the feeling is gone. I am still able to walk more or less normal but my leg muscles feel like I worked out all week. It slowly progresses. I'm on a dmt but I'm pretty sure that they are useless in the stage of ms that I think I am in. I'm official rrms but I'm not sure when I am honest to myself. I keep exercising. More important than my dmt. It is what it is. Enjoy life and try not to bother too much. I cross my fingers for you that your problems are not ms related. Stay strong. You are a beautiful person. Greetings from the Netherlands.
@thecodydaniel
@thecodydaniel 2 года назад
hello seb i have PPMS got my first dose of Ocrevus back in January have been up walking since i go back on July 12th i hope i get the same result as the first time with just being able to move around more
@andrevanmarwijk8586
@andrevanmarwijk8586 2 года назад
By being diagnosed with caroel tunnel syndrome, my MS found out. I had the firste experience in 1997 and was tested forCarpel Tunnel Syndrome then. That wasn't it. So I went on if nothing was wrong. In the years after I thought it was becouse how I kept my arm during the night. I have this feeling now for thirteen years and an used to it. A human being is pliable and if you allow yourself to get as comfortable if one can with the knew situation, I can manage. Ntice and voice also the things that you like in other people.
@SpencersMSStory
@SpencersMSStory 2 года назад
Sorry to hear about the challenges but great to have an update! Hang in buddy
@LifeofSebMS
@LifeofSebMS Год назад
Thank you brother! 🧡💪🏻
@lisaborsch8933
@lisaborsch8933 2 года назад
You look like me when I am outside in the heat! Be careful when you start exercising because you can get the MS rash! It's very uncomfortable like the burning shin thing! I found this out yesterday!
@MM-sh7dk
@MM-sh7dk 2 года назад
Seb, your videos have been a great support and help to me, so thank you! You mentioned exercise. I agree it's definitely something that can help and also make us feel better. Wishing you all good things.
@angelaharris1112
@angelaharris1112 Год назад
That's great to hear. Both me and my 45 yr old daughter were recently diagnosed. I'm so glad I found you. Of course any new symptoms are alarming to us.
@LifeofSebMS
@LifeofSebMS Год назад
Welcome Angela! Best of luck to you and your daughter 🧡🙏🏻
@VeganSonja
@VeganSonja 2 года назад
My neurologist does the same, I get my infusion after 10 months approximately. Going fine! Greetings from Holland
@bastet5059
@bastet5059 2 года назад
My dear, I feel just like you. Ocrevus took everything that I am.
@dermlover1
@dermlover1 Год назад
What?
@steviestevens1247
@steviestevens1247 2 года назад
Great to see you back. I was missing you xx
@skogul89
@skogul89 2 года назад
Glad to see your update! Just wanted to let you know, I got diagnosed with RRMS last month and confirmed this week, starting medication treatment next week. I saw some of your videos during my initial days of diagnosis and I have found your way of sharing your story and experiences with MS has really helped me. It helps me nuance my perception of what it means to live with MS and I genuinely appreciate you sharing with such honesty and openness. I’m sorry if you are in a scary phase right now, wishing you all the best from Denmark. 🙏
@LifeofSebMS
@LifeofSebMS 2 года назад
Tak for de søde ord. Det er godt at der er nogen der kan få gavn af at se mine videoer. Og ja, jeg er selv dansk 😉 så hvis du har spørgsmål eller har brug for at tale med nogen vil jeg hjælpe dig med glæde ❤️🙏🏻
@skogul89
@skogul89 2 года назад
@@LifeofSebMS Tak Sebastian! Det er stadig ret nyt for mig. Jeg prøver så vidt muligt ikke at tage sorgerne på forskud, men selvfølgelig kan jeg godt mærke at hvert trin i processen der gør sygdommen mere konkret rammer mig mentalt. Medicin opstart i går (mandag), det bliver noget af en tilvænning at skulle stikke i mig selv - jeg har aldrig været så glad for nåle. 😅 Igen, tak for at du deler! ❤️
@skogul89
@skogul89 2 года назад
@@LifeofSebMS I øvrigt, ville lige nævne at jeg også oplevede varme, eller “glød” som jeg kalder det, som en del af mine MS symptomer. Det opstod i mit højre håndled som en svag varme, der over tid spredte sig op gennem armen mod skulderen og ud i hånden. Efter noget tid eskalerede det til en form for let sviende smerte, hvorefter det aftog igen. Det var en del af mit andet attak, hvor det fulgtes sammen med føleforstyrrelser på samme arm, i højre side af ansigtet og så nedsat finmotorik i venstre hånd. Gløden er netop en underlig fornemmelse, fordi det ikke rigtig føles ligesom en feber eller varme fra træning. Og det kan ikke rigtig beskrives som smerte, for det føles bare varmt og ikke ømt eller jagende. 🧐
@LifeofSebMS
@LifeofSebMS 2 года назад
Uh ja, det er en udmærket måde at sætte ord på hvordan det føles. Jeg ville sige at det ikke gør ondt som sådan, men det er ubehageligt og giver mig lyst til at ryste det væk. Heldigvis er der ikke kommet andre symptomer ovenpå, men jeg er meget opmærksom på om det udvikler sig yderligere…
@johanandrew4590
@johanandrew4590 2 года назад
Hi my name is John I was just diagnosed with MS about 6 months ago and I don't know what a relapse is like I know them my Ms is one of a kind so I'm just reaching out to you for information because I have lost they used to my left arm and left leg and sometimes the right side of my body feels like 50 lb of blood they have me on Ms medication it works sometimes and then there's times where I can't move I know the heat really affects me so I try to stay cool I really appreciate your videos and I hope to hear back from you sometime God bless you and buy it for now
@JL-iu7fk
@JL-iu7fk 2 года назад
I have never gotten a decent experience with DMT. You're welcome to ask me anything I will soon have lived more of my life with MS than without it.🤗
@Mags-bi6id
@Mags-bi6id 2 года назад
Good to see you again. Much love
@mkc0005
@mkc0005 2 года назад
I'm glad your current medication seems to be working. It took 15 years and 6 different meds before I finally found one that truly works (Lemtrada). Now I've been activity free for the last 4 years and some of my old lesions have actually shrunk. I still feel pretty crappy but at least there's no new activity. After 19 years of diagnosis I feel I owe my ability to be ambulatory to the fact my doctor was willing to move on to a new medication at the first sign the current one wasn't working. Also my willingness to take some risks (I did 2 different experimental drug trials) and continued search for better alternatives. When I was first diagnosed I had no hope to be in the condition I am now but stayed the course and remained on some type of DMT the entire time. The advances in MS treatments since the mid-90s are remarkable and likely to get even better so stay positive and keep up with your treatment.
@LifeofSebMS
@LifeofSebMS 10 месяцев назад
Yes!! 💪🏻🧡
@britsluver
@britsluver 2 года назад
Heya lovely. Glad you’re ok. I recently broke my elbow in April a second time and doing physio to get back some movement
@LifeofSebMS
@LifeofSebMS 2 года назад
Hope you have a quick recovery buddy!
@britsluver
@britsluver 2 года назад
@@LifeofSebMS thanks. It's getting there
@anthonyghantous3052
@anthonyghantous3052 Год назад
I'm so sorry to hear that... I love you bro!❤
@LifeofSebMS
@LifeofSebMS Год назад
Thanks man 🥰🧡
@anuruddhakodithuwakku431
@anuruddhakodithuwakku431 2 года назад
Appreciate your great strength 💪💕
@LifeofSebMS
@LifeofSebMS 2 года назад
☺️
@bettyjones3276
@bettyjones3276 2 года назад
So good to see you & the update. Stay positive & hang in there.
@stjernoga
@stjernoga 2 года назад
Happy to see you again, keep on taking care of yourself, lots of Love from Sara 🙂💪
@LifeofSebMS
@LifeofSebMS 2 года назад
Lots of love to you too!
@AuntTooters
@AuntTooters 2 года назад
Seb, thanks for the update! 💙
@carnii4613
@carnii4613 2 года назад
Found this channel, much love to you, 28 diagnosed since 24. Not been to the mri in years, inflammation rates in my blood are always high though. MRI last showed brain and spinal lesions (30+ each side of brain and 15+ in my spine. Feel alone with the disease, but I stopped taking tecfidera 2 years ago.
@JL-iu7fk
@JL-iu7fk Год назад
Please try not to feel alone! You were chosen became you're strong enough to handle it. Every DMT has given me the more problems than the MS itself. I'm twice your age. Sending you virtual hugs💖
@carnii4613
@carnii4613 Год назад
@@JL-iu7fk 💯
@capitalpulse1
@capitalpulse1 Год назад
Thank you for creating these videos. I’m brand new to this condition. I had an attack towards the end of November, was initially dismissed and had two MRIs and several meetings with a neurologist to confirm my condition. Currently awaiting approval from our medical system for support for the infusions ( some of it financial). So hopefully I can start this next month and ideally go back to work (been on sick leave since it happens. The attack has calmed greatly, where now I feel no pain but a constant tingling in the palms of my hands and feet as well as some tingling around my left eye that makes it difficult to see out of that left eye in low light. Sorry to ramble but I am often scared and trying to fight feelings of tiredness and strength but doing a lot of body resistance exercises as well as eating a lot of ginger and daily vitamin B and D supplements. Please keep posting as I know of no one else with this, and while I would not wish this on anyone, hearing someone who can voice my anxiety with it does help 💪🏼❤
@LifeofSebMS
@LifeofSebMS Год назад
It’s weird to say welcome to the channel Darrell, but I do thank you for sharing your experience here. Stay strong and do let me know if you have more questions 🧡🙏🏻
@jsterling6805
@jsterling6805 Год назад
May want to check out ketogenic diet study for ms recently released.
@scottblyth5940
@scottblyth5940 2 года назад
Thanks for sharing. It helps to watch your videos and learn a bit more. Stay strong
@relledom
@relledom 2 года назад
Thanks for your video. I also have similar hand issues as you do. One problem might be that your muscles in your neck / shoulder area are too tight (in particular if you are working a lot with the computer). Perhaps some exercises for that area might help you with the symptoms. These are pretty scary, in particular for pwMS
@Aquamelli
@Aquamelli 2 года назад
I wish I had your positivity and perseverance. Stay strong....for you and for all of us. Thank you for the videos
@LifeofSebMS
@LifeofSebMS Год назад
🙏🏻🧡
@user-jw6fq4dp2x
@user-jw6fq4dp2x 2 года назад
Always nice to see you 🥰 i love your strength..it makes me try harder.. greetings from greece
@lauracarlson9260
@lauracarlson9260 2 года назад
TU for the update. Have been thinking of you lately. We seem to be on a very similar path. I am also on Ocrevus and elected to push my infusion to 7 months this last time and will do again so my next infusion is in January. In the US this will help with my out of pocket and over all medical expenses saving me thousands. I usually don't feel any "crap gap" that others do but started to feel it as I went to 7 months. Good you aren't experiencing ;-) I also feel this "progression" although my MRIs are stable. I can't stand as long, can't walk as far, have less stamina when standing/moving. Thankfully cognitively I am still strong with the past short term memory issues the main issue- I compensate with notes/documentation so still work a very demanding accounting/systems job very full time. When my Neuro kind of casually mentioned he considered me SPMS for the last several years (a few years ago!) I initially freaked out and went to Mayo Hospital (thankfully only a couple hours from me) for a second opinion. They asked some very good questions..."when was the last time you XX", and ran through a lot of activities like walked more than a mile, ran, rode a bike, etc etc and I realized I had been restricting my activities over the years to what I could do safely and comfortably. Clearly I was SPMS as I hadn't had any MRI progression but had physical progression. As I started to mentally accept this I look at the positive. MS is a progressive disease no matter what "flavor" we are diagnosed with . There is always progression. Just with SPMS there aren't sudden changes or "cliffs" that we may fall off at any time. That uncertainty really bothered me. When I made plans for a trip or an event I always thought - well I can "unless" and I realize it resulted in me making fewer plans. Now I can kind of project where I will be as it likely won't be much different from where I am. I eat well, live right, exercise and stretch daily so fight on all the angles I can and hopefully this is rewarded by slowing the inevitable progression. It increases the urgency I feel to do the things I've always wanted to do- which Covid has certainly gotten in the way of! like travel and see places- especially in Europe and my ancestral lands- which aren't in Spain but you never know ;-) Thanks for the update and hope to hear from you again soon!
@brielleanyez7113
@brielleanyez7113 2 года назад
I have extreme pain in my right, hip leg and knee and I got stopped downtown because an officer thought I was drunk. I was just walking back to my car from going in the gas station and the officer was in the store and followed me out and Insisted I take a breathalyzer. I said, fine, you wanna waste your time go ahead, I have MS which I had to explain what it was. Like yeah, I know I walk like a drunk toddler.... 😭 Just going to print a Tshirt that says, no I'm not drunk, I have Multiple Sclerosis 😎
@LifeofSebMS
@LifeofSebMS 10 месяцев назад
Haha yeah we all need that 😝🧡
@ceedee2432
@ceedee2432 Год назад
Also thank you for the interval information with ocrevus!!
@LifeofSebMS
@LifeofSebMS Год назад
😊🧡
@Garpot
@Garpot 2 года назад
Hi Seb, my last MRI was pretty much the same no new lesions 'active' since my diagnosis 2 years ago. It wasn't until 8 months my walking has been getting worse. I have been using a walking stick when out. My team has put me on a physical therapy plan to help improve walking and strength. Started 2 weeks ago and since slow improve when walking in the house, but still use a walking stick when out. My doc mentioned that the year of WFH during the pandemic and little movement had to do weakness and stiffness. Hang in there fellow #MSWARRIOR!
@LifeofSebMS
@LifeofSebMS 10 месяцев назад
Yeah the lockdown was terrible for our MS 🙁🧡
@Garpot
@Garpot 10 месяцев назад
@@LifeofSebMS agree..hope your days have been going smooth as possible.
@Elphie3green
@Elphie3green 2 года назад
Hey Seb, good to see you again! I too get the warm/heat sensation in my shin... it's a very odd symptom like someone has poured hot water over the area almost.
@JL-iu7fk
@JL-iu7fk 2 года назад
It's not that odd if I'm feeling it too! It's awful but I'm used to it. I still complain but it doesn't make it stop but complaining helps me vent.
@LifeofSebMS
@LifeofSebMS 2 года назад
Hey brother, haha that’s exactly what it feels like 😆 mostly annoying but not too bad.
@yozr8195
@yozr8195 Год назад
Love u bro keep going
@LifeofSebMS
@LifeofSebMS Год назад
Sure will!! 💪🏻🧡
@investlikeawarrior
@investlikeawarrior Год назад
I’m sorry to hear about your waking :( I’m also having issues walking 🚶‍♀️ and getting with a neurologist soon. Your content has been amazingly helpful
@LifeofSebMS
@LifeofSebMS Год назад
Thanks for your comment! Glad you’re seeing a neurologist. It’s been a while now - how are you today?
@investlikeawarrior
@investlikeawarrior Год назад
@@LifeofSebMS I’m doing well thank you 🙏! I Hope your having a great day
@manuellopes5452
@manuellopes5452 2 года назад
Hey dude. Where are u in regards to Vit D.! Coimbra protocol worked great for me....
@pavlinajirankova7382
@pavlinajirankova7382 Год назад
Hi Seb and others, please have your digestion and gut microbiome checked to see if you have any problem. I have had lots of symptoms of ms over the past 6 months and even years prior to that, started as tingling in my arm, tingling lower legs and feet, slightly blurred peripheral vision, dizziness, sensitivity in bladder, fatigue, etc... I waited for my 'urgent' neurology appointment for 5 months. In meanwhile I've done lots of research about ms and connection with your gut health and I've decided to take healing in my own hands(didn't have much of a choice). I've had some specialized stool test and gut test done to uncover what is the matter with my digestion as I've had IBS for yours and never would I have thought that it could mess up so badly with whole body and even nervous system. I've found that I have sibo (small intestinal bacteria overgrowth) and bad gut dysbiosis. I'm now taking some antimicrobials to deal with it. My symptoms of ms have been slowly getting better/disappearing. I'm still sometimes experiencing buzzing feeling in my feet but it's getting less as my digestion improves. Recently I've been finally sent to have MRI for my brain and spine and they found nothing, which was a massive relief. There is a definite connection of ms and gut dysbiosis and I believe that lots of people can combat this scary condition by completely healing their gut and a healthy lifestyle. I read a few books by people who managed to heal from ms. Just wanted to say, don't give up and think you need to live with this. Investigate what is off with your body otherwise and focus on healing all aspects of your life which is not in balance. It's a long journey but I really believe it can be done. I started by googling people who overcame it and that gave me a hope. People like that are around, even if medical doctors will tell you otherwise.
@LifeofSebMS
@LifeofSebMS Год назад
Thanks for the tip 🙏🏻🧡
@isabeladara7119
@isabeladara7119 Год назад
🇧🇷 I love your videos, my boyfriend have ms! I wish you all good 🙏
@LifeofSebMS
@LifeofSebMS Год назад
All the best to you and your boyfriend 😊🧡
@vickypiushorts2591
@vickypiushorts2591 Год назад
Happy to see you again... How are you bro.
@LifeofSebMS
@LifeofSebMS Год назад
Hey there ☺️🧡
@MiraMate
@MiraMate 2 года назад
We really want to work with you and contribute to your multiple sclerosis
@JL-iu7fk
@JL-iu7fk 2 года назад
I don't know who is meant by we, but I've almost lived more of my life with it than with without MS. I'll try to answer any questions I'd love to contribute & be helped a little.
@MiraMate
@MiraMate 2 года назад
@@JL-iu7fk What do you mean? We means my brand, we want to work with Seb Anyway, thanks
@jnoble9032
@jnoble9032 2 года назад
I am curious as to if you are sensitive to electrical frequency from technology.
@eyeswideopen7777
@eyeswideopen7777 2 года назад
🙏🔥👏
@LifeofSebMS
@LifeofSebMS Год назад
🧡🙏🏻
@GIBKEL
@GIBKEL Год назад
Believe in yourself. I was diagnosed with tarsal tunnel syndrome. This was before my MS diagnosis. I have a lot of the same carpal tunnel syndrome symptoms but my money is on MS. Had a surgery for the tarsal and it made it 10 times worse. There was no reason for tarsal tunnel and I believe it to be MS. My foot has become a skeleton, and so painful. You are never heard, always given the bad news that nothing is to be done but when they see your MRI looks stable, they walk away feeling self satisfied, having checked there little box, while I weep. There has to be something better than this. If I honestly felt better in any way, I would celebrate even a small victory but I am feeling no better, only worse. I hope better for you.
@LifeofSebMS
@LifeofSebMS Год назад
Hey there, ask for a proper diagnosis with an MRI at the very least! 🙏🏻🧡
@wasim4996
@wasim4996 2 года назад
When your first symptom start you remember ??please tell
@peterjansen5571
@peterjansen5571 2 года назад
Take a look at his older videos. There is all you're looking for.
@hououinkyouma6063
@hououinkyouma6063 2 года назад
Personnaly, as far as I can remember I used to get the symptom of not walking straight at the age of 15, diagnostic of ms was at my 18, im now 23
@wasim4996
@wasim4996 2 года назад
@@hououinkyouma6063 are you on any medicine ??
@JL-iu7fk
@JL-iu7fk 2 года назад
1st symptom I never felt like I fully recovered from Mono at 14. Then I was 16/17 and I started seeing bright white strobing in my eyes. The eye Dr. asked if I had been hit in the head or anything. He said that I had a vitreal detachment but my brain would eventually filter it out and I wouldn't see it anymore. It was almost a decade before I was in an accident and the MRI showed multiple scaring leisions indicative of a demylimating disease. If I had only known it was a sign, life would've been so different.
@JL-iu7fk
@JL-iu7fk 2 года назад
@@hououinkyouma6063 Things can get better. I was told I wouldn't ever be able to walk without assistance, AFOs, arm crutches or in my wheelchair. I told them I didn't believe that, I wasn't worried about walking by the grace of God, I was going to dance.
@isabeladara7119
@isabeladara7119 Год назад
My boyfriend have this sensations it’s call neuropathic pain, please tell us more about this, he still in Coimbra protocol
@LifeofSebMS
@LifeofSebMS Год назад
Thanks for the suggestion 😉🧡
@ceedee2432
@ceedee2432 Год назад
Can i ask how long have you been on ocrevus for? Ive researched that progression with mr activity may not change but new symptoms can still arise. The neuro system is very complex. Prayers up for you🙏🏾🙏🏾 recently diagnosed MS warrior
@LifeofSebMS
@LifeofSebMS Год назад
Hey there, as of today it’s been almost three years… and indeed, I have had new symptoms 🤷🏼🧡
@courtneycarone
@courtneycarone Год назад
I have rrms and have a battle
@LifeofSebMS
@LifeofSebMS Год назад
Hey there, what do you mean by battle?
@bhlom4135
@bhlom4135 Год назад
Dude.... i would love to bombard you with questions . How can I get in touch? Im thinking of getting away from Ocrevus
@LifeofSebMS
@LifeofSebMS Год назад
Hey dude, sorry for the late reply. What have you decided? 🙏🏻🧡
@kendregab7328
@kendregab7328 Год назад
What can you do to help tame symptoms as you await for your neurologist appointment? I have a consultation on May 18 but I am experiencing a lot of symptoms with this flare. I had another one that was reported in 2016 of some symptoms of muscle weakness, joint pain, muscle twitching and a few others. Now I've been experiencing those symptoms plus more since March like numbness in my face, near sighted ( need my glasses more than usual) joint pain, warm feeling in my face and joints, tingling in my arms, face, legs, pins and needles in spine and throughout body, prickling feeling on my skin after a warm shower everywhere the water touched, spine and neck pain, problems walking( not everyday but some days better than other) trip over my feet sometimes when walking , some tighness in ribs/ chest and electric shock feeling in my waist and groin area. The other day I got numb from the waist down while eating dinner. I stood up and was still numb while I was walking around my house for a good half hour looking to see if my body was moving but couldn't feel anything. I was really close to going to the E.R. but slowly gained back feeling throughout the night. It was scary. Now I'm having eye sensitivity and I can feel my eyes as they move with some eye pain. Can anyone can give me some advice to help tame these symptoms/ give me any advice till I can be seen on May 18 I'd greatly appreciate it 🙏
@LifeofSebMS
@LifeofSebMS Год назад
Hey Kendre, as you still have three weeks to go, I’d recommend you do as little as possible these days and try not to worry too much. Adopt a very wholesome and peaceful lifestyle, trying to meditate and practice yoga daily as well as eat as healthy as you possibly can. Turmeric are good anti inflammatories that I used to make teas with some lemon and honey. Main thing is to be good to yourself 🙏🏻🧡
@kendregab7328
@kendregab7328 Год назад
@@LifeofSebMS Thank you for your advice! Much appreciated!! I'm trying to de-stress, eat a bit better, relaxing more, and I do take vitamins including Tumeric with black pepper, but it's hard when you don't live alone. It's also hard as you know, because you don't know how you're going to feel when you wake up or what symptoms you'll feel that day.
@LifeofSebMS
@LifeofSebMS Год назад
One day at a time is the secret 🤫🧡
@sandhya431
@sandhya431 Год назад
Hi do we need mri with or without contrast to find MS
@LifeofSebMS
@LifeofSebMS Год назад
I think both help determine the diagnosis 🙂🧡
@escape2064
@escape2064 Год назад
Do you ever struggle with daily activities of living like bathing, grooming, laundry, cleaning, etc?
@LifeofSebMS
@LifeofSebMS Год назад
Very much. I have to plan carefully my activities 🙏🏻🧡
@ramazan9857
@ramazan9857 Год назад
how are you? Is your illness getting better or worse?
@LifeofSebMS
@LifeofSebMS Год назад
It’s not getting better unfortunately… 🙏🏻🧡
@desertnights72
@desertnights72 Год назад
You are leaning on your arm in the film, and apparently there is a mark there, could this be buffered with a softer surface? Might that be something? IDK.
@LifeofSebMS
@LifeofSebMS Год назад
I probably should huh? 😆🧡
@AHMEDShOaib12RA
@AHMEDShOaib12RA 2 года назад
Try Homeopathy once.. May your walking issues can be reversed.. & Rest of all symptomps also you will see difference soon....
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