Another step of my CSID journey: I got my medicine, now what?! I am not a dietitian whatsoever, just a gal with stomach issues trying to figure out how to eat.
Thank you for sharing your journey with me. I am on the same long, challenging journey and it's comforting to see someone else with whom I can relate. Most people who do not have these issues really don't understand the complexities of food intolerances and how damaging it can be to your health and lifestyle.
I look forward to checking out all your videos on GI issues. By the way, I have Sucrose Intolerance, Fructose Malabsorption, Pancreatic Insufficiency, and probably SIBO, I totally understand where you are coming from!
Thanks, I have both SIBO and Sucrose intolerance. I was unaware that folks who have beat SIBO can also get rid of Sucrose Intolerance. This gives me something to look forward to!
My 13 year old daughter was diagnosed with csid last year. Been on Sucraid for about 10 months. She hates the med- complains it makes her feel “weird” high, loopy, and confused. She is a kid so she sneaks sugar a lot- and pays for it…. She is frustrated and feels like she can’t eat anything
I talk about this in an update video coming soon, but I tried Intoleran Starchway and found it worked better for me than Sucraid! It's so tough, I'm sorry you both are going through this. If you have any questions please let me know!
Fwiw, I still occasionally screw up medication instructions. With one that expensive, I’d imagine they’d ask about it more often, as annoying as it is.
Hi Jenny, I was diagnosed yesterday with the CSID. I’m an old lady and I have been sick for 2 years. I’m trying to figure out what to eat and get some sucraid. I am doing research on line about natural alternatives. On Amazon there are many natural digestive enzymes. What kind of test did you take for SIBO? Were you positive? Wondering if I too have SIBO. I hope you are finding answers as this is very frustrating.
Hi! I hope your new diagnosis gives you some answers as it did me! I've found a low sucrose diet works best for me long-term, and if I do want to eat something with higher sucrose I recently found Starchway by Intoleran on Amazon to be a great alternative to Sucraid, which still doesn't work well for me. I was positive for SIBO, twice, and was treated both times. It provided some relief but not as much as I had hoped. This is all very frustrating, and I wish you all the best too! If you have any more questions don't hesitate to ask :)
It’s interesting that onions are okay, but not garlic. They’re both alliums, and so are chives & leeks & scallions. Does raw vs. cooked make a difference?
