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My experience with Corneal Cross Linking Procedure, here’s what to expect.

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Hello World,
I just had my cornea cross linking procedure, due to Keratoconus, and I’m making a series of videos to talk about this experience. This is the very first video in the series about my procedure, the upcoming follow up visits, and the overall long term outcomes of this procedure. I filmed this about 30 minutes after the procedure ended.
I do have extreme Keratoconus and my vision currently can only be (at best) corrected with lenses to 20/70, and even then, the lenses do not correct the triple/blurry/ghosting vision I have. This procedure, along with a Scleral Lens, is supposed to correct all this.
Remember, I’m not a medical doctor, and this is all just a retelling of my experience. Consult your own doctor about your own specific set of circumstances, and I imagine it is possible your results might be different.
Don’t forget to like and subscribe this video in order to see all future videos, and thank you for watching.
For more original content check out the following:
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Опубликовано:

6 сен 2024

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Комментарии : 79

@laubreyhorowitzpp7548 3 года назад

Optometric tech here- love that you shared this experience. The videos we see are helpful but it's always best to get an actual account from a patient. This is a frightening experience for people, having first hand experience detailed to them is so reassuring. Keratoconus is wild.

@bionic_band_director 3 года назад

You are welcome, and I am happy that these videos seem to help others! Thank you for the comment! :)

@bionic_band_director Год назад

@@schastiev3895 I have several videos from right around the time it happened, please do watch those, it’s been several years since I went through it! If you have more questions, I’ll do my best to help.

@schastiev3895 Год назад

@@bionic_band_director ok . I ll watch it

@christiangirgenti527 Год назад

Just had my cross linking yesterday. It s now been 24h exactly since the procedure. The pain was almost unbearable last night as I struggled to sleep even though I had been prescribed with sleeping pills. From this morning the pain was a lot less though which was good. One of the main issue I had was the eye being so watery which I think was also causing irritation. This is now a lot better though. At the moment the only real pain is the constant feeling of having something like a foreign body in your eye. This feeling gets better for 10 mins only when I use the anesthetics drops. . Hopefully this will go soon. Thanks for you video 😊

@gforce3750 Год назад

how you feeling now? hope your doing better.

@christiangirgenti527 Год назад

@gforce3750 it has been a week now since the surgery and feel a lot better. The foreign body sensation only last the first two or three days thankfully. Now I have still got blurred vision but it was expected and also still high sensitivity to the light. Not a major issue though. Thanks for the support :)

2 месяца назад

just had mine done day 2 1st day i was in extreme pain and was still getting around how to do medicaton. i was crying day 2 today all medication works very well and i feel a little discomfort when opening my eye so i keep it closed day 3-4 is when the pain should go so im excited for it

@TRE4RAISEDME 3 месяца назад

I just got my second eye done. Sleep is key. Took 3 naps the next day. It totally killed the pain. The hospital billed my insurance for 2 eyes, 171K. My out of pocket added up to 1.3K total. broken down 1150 for my premium, 53$ visit free than a 75$ for initial testing.

2 месяца назад

lol imagine having 2 pay

@TRE4RAISEDME 2 месяца назад

It won’t be done lol. Nobody has that. Not even some doctors it’s too much

@derjaxxer 2 месяца назад

Sleep?!?!? How the heck do you sleep with that pain? I was just laying in bed with my eyes closed and waited for the pain to go away, but sleeping was impossible for me. What did you get for the pain?

@TRE4RAISEDME 2 месяца назад

@@derjaxxer I didn’t sleep the night off. I slept the next day. I don’t take anything to sleep, lol eventually your body will need sleep.

2 месяца назад

@@derjaxxer they usually give hella medicine to help soothe the pain

@blanketperson3544 7 месяцев назад

Might need to get this procedure done in some months, was very worried but this along with a video of the surgery itself has quelled my anxiety a lot. Thanks brother!

@TRE4RAISEDME 2 месяца назад

@@blanketperson3544 I just got my second eye done. You’re fine. The night of the procedure, is the worse pain. Just take as many naps as you can, it knocks the pain down. There is nothing to be worried about

@amandam1969 11 месяцев назад

Seems like it would be an easy fix to keep the eye numb for the first 1-2 days so you dont feel the pain. Why dont they do this??

@TRE4RAISEDME 2 месяца назад

@@amandam1969 they can’t give out numbing drops

@GeeklyNerd627 6 месяцев назад

Thank you so much for sharing. My mom has to have it done

@user-jc6vd9uu2x 3 месяца назад

bout to have mine in a few weeks 🙏

@cliffordleonard4598 Год назад

For me they gave me a bunch of eye drops thank god gotta go back for my other eye on the 27th

@Shraiya24 6 месяцев назад

I hve to get this done m terrified

@derjaxxer 2 месяца назад

Trust me, you‘d rather have this pain, than the pain of your cornea bursting apart

@fernhausluv44 День назад

Having crosslinking is far preferable to your cornea falling apart, blindness or a crippling lifelong senstivity to light.

@AleLGB Год назад

I am going to do this procedure in october of this year and I wanted to ask: what happens if you accidentally move the eye while the laser is operating or even worse, when the surgeon is doing the thing with the scraper? Because I always struggle with keeping the eye still

@bionic_band_director Год назад

The med they give you to relax takes care of that, I was worried about that too, but I was very chill and almost fell asleep, really

@dramatymerealworld 4 месяца назад

Thanks for the video ...did you mention you had the transplant done also or just cr9ss linking?

@smiggling Год назад

Thanks for this video! I've been refusing to get this done because I'm terrified of anything to do with around my face, and they won't put me to sleep cause my bmi is too high. Might allow it to happen , but idk.

@bionic_band_director Год назад

You’re welcome, it is a scary experience, that’s for sure.

@victorimmanuel787 7 месяцев назад

Im nervous as I will get my procedure done soon and I was just diagnosed with Kerotoconus today

@yunuenmartinez5193 7 месяцев назад

Same :(

@bankyrshannongrum9748 4 месяца назад

Is your vision improve?

@_inspiringcreativity Год назад

Thanks for the video, going to have the procedure tomorrow, do you have any advice on what to do before or after the procedure. Thanks

@bionic_band_director Год назад

Relax, first. It will be okay. If you are prescribed pain pills, try to get them ahead of time so that you don’t have the moment wear the numbing drops wear off before you get paid meds.

@_inspiringcreativity Год назад

@@bionic_band_director okay, thanks for your advice

@bionic_band_director Год назад

@@_inspiringcreativity you’re welcome. Also, clean, sterile cold compresses can help take the “burn” off in the hours after the recovery, I used ice but probably wasn’t the safest

@_inspiringcreativity Год назад

@@bionic_band_director ok thanks

@alonzo4164 5 месяцев назад

Eat something before!!!!! EAT. You may not want to after.

@jamesleejr1626 11 месяцев назад

I have had transplant already

@githmihasinika 9 месяцев назад

Is it okey to have little double vision after crosslinking ?i did the surgery before 8 weeks

@GOLMAAL- 8 месяцев назад

Bro did your double vision got better

@kampallyroja5960 5 месяцев назад

I have double post 6 months surgery is it cured@@GOLMAAL-

@zionne2716 Год назад

damn that sounds scary tbh. i have triple vision in both eyes now and looking for a good eye doctor. since i have generalized anxiety disorder i really dont know how to go through this.

@bionic_band_director Год назад

I understand, and I’m sorry to hear that. Best to start with any eye doctors you might normally see, and see if they can handle it

@Lonemehtab 22 дня назад

Ive to go in 3 days

@user-yd9zy4fq4j 4 месяца назад

I think my surgeon is on some bullshit he told it'll take three months to recover

@averycochran4965 Год назад

Hey did it work successfully?? Like did it ever progress more? Did it make you see better what all went down ?

@TRE4RAISEDME 2 месяца назад

@@averycochran4965 as long as you don’t rub your eye. I’ll never progress after the surgery

@yourgaljamie Месяц назад

i just got my scleral lenses but my doctor says i'm a good candidate for this but i'm scared lmao :(

@chouaibchouaibgm6644 Год назад

They dont brush it now

@bionic_band_director Год назад

No kidding, eh? That would have been nice

@chouaibchouaibgm6644 Год назад

@@bionic_band_director yeah i just had the surgery a week ago

@bionic_band_director Год назад

@@chouaibchouaibgm6644 I know others have had epi-on, which is the non-brush, if I understand. I’m not sure why I had to have the epi-off

@averycochran4965 Год назад

@@bionic_band_director epi-on isn’t FDA approved in the US so it isn’t covered on insurance. But I’m gonna have the epi off here soon 😭

@bruggieboo5973 3 года назад

Thank you for this video I’m scared help

@bionic_band_director 3 года назад

You are welcome, and I hope that your procedure goes well if you should have it.

@retrovirus6445 Год назад

did ur eyelids swell after a day cxl

@bionic_band_director Год назад

I don’t think they did, but I had a bandage on for 24 hours

@duallehersi6338 Год назад

Mine are swelled up a bit right now and it day 2 after crosslinking

@KarenThomas-ny8ij 2 месяца назад

Omg I go on 24th

@user-fb7uy7kz1k 27 дней назад

I am so scared am getting mine in 3days time 😭

@RohitSharma-gn8rs 19 дней назад

I hope u r fine now buddy.. Just relax

@jugg2283 4 дня назад

How was it

@souvikdas5146 Год назад

Which age u did ur c3r linking??

@gourry47 2 месяца назад

Ah man this is going to suck

@fernhausluv44 День назад

Don't worry friend, I'm also having the procedure tomorrow. I hope you've recovered from your procedure well.

@JessehPlaysGames 5 месяцев назад

i had both my eyes same day worst thing ever

@LeugimBusram 5 месяцев назад

Did it help you see better??

@JessehPlaysGames 5 месяцев назад

@@LeugimBusram no just stopped eyes from drgrading

@derjaxxer 2 месяца назад

@@LeugimBusramit won‘t let you see better, but it will prevent your cornea from bursting apart. So do it if you need to

@reynoso38mr Месяц назад

nice no needles thank god lol

@KanoKaiji Месяц назад

Can't believe they give valium for this. No wonder thete is an opioid pandemic

@nachospopthe3rd564 10 дней назад

They give u one 5mg pill dude calm down lmao