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My hairy cell leukemia blog 2016 part 1 

Kelsey Coneboy
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Hi everyone. I was diagnosed with hairy cell leukemia on 5th July 2016, and I made these videos to help anyone who may find themselves in my position, to see what my process has been and to give some more info of what to expect through diagnosis and treatment xx

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22 авг 2024

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Комментарии : 27   
@docal_7069
@docal_7069 7 лет назад
Great job with this Kelsey. I was 35 Female my first time and 41 my second time. You have a great attitude. Love the accent, very cute. Old man's disease?? yeah that's what they told me too. Not anymore huh!
@kelseyconeboy2703
@kelseyconeboy2703 7 лет назад
Hi Alyson, yes I was told old man's disease also! Clearly this isn't true, and thank you. I'm from Liverpool, England . We have a funny accent 😂 I always forget to try and slow down when I'm speaking as Scousers talk do fast lol. Hope your well xx
@docal_7069
@docal_7069 7 лет назад
If you are interested here is the facebook support page I like. facebook.com/groups/1579397668957629/ There are a few out there, I like this one the best, more relaxed. Hope you stay well my dear. Need anyone to talk to you let me know cause I been there done that, twice LOL!!! - Alyson
@CMeaganMichael
@CMeaganMichael 7 лет назад
I just had that Bone Marrow Biopsy done yesterday. OUCH! I lived through it though. They suspect that I have HCL. The results will be back on Thursday.
@kelseyconeboy2703
@kelseyconeboy2703 7 лет назад
Hi Meagan, I'm sorry I've taken so long to comment back! I hadon't no idea how to reply back on RU-vid but I've figured it out lol. There not nice are they. I've had 4 now, I hate them! Did you get your results back? Hope your well x
@blackpoolacer
@blackpoolacer 6 лет назад
never have i experienced pain so much! even with a local anasthetic!
@jannette2526
@jannette2526 5 лет назад
Hi , i have hairy cell leukemia for second time ,monday will be my chemo ,but i fell ok for now .
@kev03103
@kev03103 5 лет назад
We're u exposed to farms or golf courses? Also we're u a teacher using duplicating fluid?
@feritclk7592
@feritclk7592 4 года назад
Hello. now, how are you?I have the same disease, but she's not in remission.
@Kyle1996lcf
@Kyle1996lcf 3 года назад
She’s absolutely doing well she’s cured
@josueangeles89
@josueangeles89 5 лет назад
How are you doing now? I was recently diagnosed with CML and I’m pretty scared.
@Kyle1996lcf
@Kyle1996lcf 3 года назад
She was cured
@josueangeles89
@josueangeles89 3 года назад
Kylexrate D how do you know she was cured?
@Kyle1996lcf
@Kyle1996lcf 3 года назад
josue angeles shes my sister I just came across her RU-vid channel seconds ago
@josueangeles89
@josueangeles89 3 года назад
Kylexrate D oh okay wow I’m glad she is doing good but if I may ask what cured her ?
@Kyle1996lcf
@Kyle1996lcf 3 года назад
josue angeles from my memory am not to sure what it was but am sure it was chemotherapy after taking blood from her bone marrow
@blackpoolacer
@blackpoolacer 6 лет назад
just been told i have hairy cell. scared. wanna be friends
@kelseyconeboy2703
@kelseyconeboy2703 6 лет назад
Hi Lee, sorry to hear you have been diagnosed. Its really scary i know, needed that please take peace in the knowledge that there are so many treatments for us, It's a tough road but try and stay positive. When do you start treatment?
@blackpoolacer
@blackpoolacer 6 лет назад
my treatment will start sometime next week, just waiting on my medication to be delivered to the hospital x
@kelseyconeboy2703
@kelseyconeboy2703 5 лет назад
Hey Lee. How are you doing?
@blackpoolacer
@blackpoolacer 5 лет назад
well after 5 months of Interferon my blood is back to normal and i can go back to work! Just another injection every 2 weeks for 2 months and i'm done!!
@kev03103
@kev03103 5 лет назад
@@blackpoolacer I didn't think they used Alfa Interferon anymore. I thought 2cda ( Cladribine) was the one used or Pentostatin...
@vijigowda5712
@vijigowda5712 5 лет назад
hcl leukaemia complete cuirbl tel......
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