I talk about my life expectancy with cystic fibrosis. Follow me / clairityproject / clairityproject / clairityproject / clairityproject clairityproject.com
"So, I'm dying", *drinks tea*. That made me laugh so hard, which is funny because I am still utterly terrified to die. I'm almost 27 and the fact that I won't be alive one day to continue to see the beauty of this world. I'm trying through. I see it in a different light. Thanks for being you.
Hanna M Do you have scientific proof for your claim? Because there is actual scientific evidence that consciousness survives the death of a "physical" body. 99,999999999999% of an atom is empty space, and the rest is energy. So everything that exists is just vibrating fields of energy - including your body and the computer/smartphone you're looking at right now. And due to laws of physics, energy cannot die, it only changes form. Please, never state your opinions as if they're facts, because that just makes you look dumb. You can't say something isn't real or it doesn't exist, because it's impossible to prove the non-existence of something. Understood?
Energy is not the same thing as consciousness. Consciousness is the product of our brain, and when the brain dies- no more consiousness. Honestly it's pretty funny you're the one talking about scientific proof, since making the sort of statement that you just did requires actual scientific evidence. And no, the laws of thermodynamics is not going to cut it. And just to make something very clear, I didn't feel dumb stating that opinion as fact, why you might ask? Well maybe because your "opinion" (also stated as fact) is even dumber. Understood?
Yes I would indeed call myself an atheist, I also don't believe we have souls. The concept of a soul is just a social construction to explain our feeling of consciousness. Everything that is me is my body, nothing else. The question is though, how can you be so dead certain these "open minded" scientists (quackers if you ask me) are looking for answers in the right places. I get the feeling that you wish very strongly there was something more after death, and that wish is so strong it makes you believe in these fantasy explanations. If Victor Zammit had written anything worth knowing, then real scientists would pick it up and make it general consensus. Therefore I don't need to read it.
I was born with a progressive eye disease that slowly makes you go blind and just today I turned to my mom and said, "it's so weird knowing I have this disease living in my body that's slowly just destroying things" - when you live with it everyday, you just forget! This disease is my normal, I'm 23 and have been living with it my entire life. I've already lost the majority of my vision to the disease, but I could still lose the little I have left and I've just learned to accept it. It is what it is, can't change it, gotta accept it!
Most people with cf die in their 20's sadly.. But a lot of cf folks pack a lot in. I have very severe crohns and colitis with other complications. Its very very exhausting to be ill all of the time and to know it will get worse. All the hospital trips, medication, surgery can really take a toll. Hugs to all those with chronic and terminal illness.
i have a chronic rare lung illness that scars my lungs and i agree its so hard living with pain all the time. its nice to know though that we are not alone and people everywhere are fighting with their own issues too
I have Crohn's too and luckily I've been in remission for a few years. Started having problems and got diagnosed in 2011 and I take remicade (only thing that works). My health was so bad when I was being diagnosed that I couldn't walk or barely get out of bed in the hospital. I thought going to get an infusion and blood work every 2 months was an inconvenience and then I see what other people have to go through and it changes my perspective.
so many comments asking "why do the good ones have to die young?" well think of it like flowers. People pick the pretty fresh ones, not the old rotten ones.
I think that people die when they are at their utmost best, even if it is only one minute of mindful perfection. They leave us when they are the best they can be.
This really woke me up. And I'm very thankful. I'm a really paranoid, anxious, person. I get distressed over the smallest things. I go through times when I get so depressed about the state of our planet, my life and the mentalities of people who do bad things. I fear death, and so many other negative "what if"s that I'm barely holding on to my sanity at this point. This though...this outlook.. this is beautiful. This is what light and love looks like. This is hope. Thank you so much for making these videos.I'm so glad I found your channel and though I know you are used to your situation, I will add you to my prayers every night. You deserve every wonderful moment on this planet that you can get.
My dad had 2 weeks to go through his search history before he passed, but he sadly didn't do us the favor. He also didn't get rid of the pillowcase full of sex toys that he kept in his van. Because of it we laughed SO MUCH at his funeral (and that might well have been his plan all along, who knows. haha)
I don't care how upbeat you seem. And I understand why you are, it still is bloody unfair that you and other young people have to go through this. In any illness.
+Jazmin Cook Not true, at all, was probably a false diagnosis, or a misdiagnosis. She could've easily had a different disease that had similar symptoms but wasn't terminal, especially when diagnosed in the early 1900s.
rdizzy1 Never heard of anyone living past 30 without a lung transplant. Someone in my family died before age two. Lexi are you certain it was Cystic Fibrosis or perhaps some other condition?
Letter Head I know, it was most likely a misdiagnosis that allowed someone to live to 98 years old. Especially since they had to have been diagnosed in the early 1900s, where MANY people with many diseases were misdiagnosed,
+Letter Head my neighbor died at 45 and wasn't even diagnosed until 12, when he was tested because his baby sister was sick right from birth. it's crazy - she died at 31, him at 45, and they had the EXACT same treatment! guess part of it isn't just how you care for yourself, it's just how your body handles it. i don't know if he ever had a transplant, but i DO know that as of 38 he had NOT had a transplant!
You remind me that I don't have real problems. You know and accept that you're not going to be on Earth for as long as most, yet you're one of the most optimistic, most beautiful, hilarious people I've ever seen. Thank you for letting everyone realize that we should appreciate everything we have before it's taken from us...and reminding us to delete our search history in advance 😄❤️
Well people with short amounts of life embrace carpe diem more than others and live life to the fullest and are more genuine unlike someone who knows they got almost a century of living.
So my great grandparents don't deserve to be old? They are both very sweet people and my great grandpa fought in a war. This is truly the stupidest comment ever.
+Freddy Krueger Wow, how anybody is up voting this or thinking its deep is beyond me. You literally told a person who is constantly being told she is going to die in a year or two that "yeah, we're all gonna die, no big deal" followed by a stupid banal platitude. T_T
She's soooo sweet and just have so much respect for her! I'm in a similar situation and I don't go but maybe one/two weeks before i'm in the hospital for about 10 days. I'm 24 yrs old and try to be positive but I just cant get ahold of myself. I would love to be half of the woman she is and hold that much joy and composure as she does! She's a huge inspiration. God bless her!
You are such an amazingly positive person and it is such an honor to even get to watch your videos. If anyone can AT LEAST kick CF's ass for another 5 years, it is you!
I just found your channel by accident ... You're so positive and I feel so bad that someone like you will be taken from this world sooner than you should... How do you stay so positive??? Jeez :(
I once read something, a true story actually. A vet put someone's dog down. Afterwards, he and the dog's family sat around wondering why animal's lives were so short. Then, their 4 year old son says this- "It's because everyone is on Earth to learn how to love. Dogs already know how to, so they don't have to stay as long. We need to learn it, so we stay longer." Wonderful people like Claire don't have to stay as long because they know how to love.
i have a friend with CF she is now 26 and works full time and does dance and cheers! she works very hard, but she is kicking its ass! her last PFT was at 96! keep on kicking ass! you got this! 💜
My first boyfriend has CF as well as diabetes and I never actually knew CF was terminal, I just knew it was something he lived with. I haven't spoken to him in three years, we fell out of contact, but now I can't help but wonder how he's doing, if he's still here even....
+Drawing Freak not to be dark..but yes she can..even if she couldn't your comment is stupid. Stay Awesome Claire, you should come back to Alaska some time.
Not trying to start anything either, I know what you mean to say, "she can't choose how long she lives." Anyone can choose if they die, because of suicide. Anyway I wasn't trying to be mean, I actually thought you were trying to argue with the first comment :P sorry!
+Rebecca Blue Actually you'd be surprised - to some extent she can choose (she has proved this). She can fight like a trooper or she can give in. Fighting is by no means the easy choice when the odds are stacked against you - but the sign of heart of fire - is they will fight even if the odds are impossible. I wouldn't be surprised if she lived far far beyond even her doctors expectations.
I adore you. I got extreamly ill when I was 14 and almost died. Since then I've had chronic illnesses. Your outlook on how your life even if it is going to end sooner then it should is amazing. I had a kidney transplant and every year I get scared that I'm going to get sick again, go on dialysis and then have to have another's kidney transplant. I know it will happen eventually but not knowing when kills me. I will be watching all your videos and trying to learn a thing or two from you. Through the years of being sick I've met many children with CF.Good luck and I hope your treatments are going well!
I love love love your videos. I knew nothing about CF before and have now become obsessed with learning about this world you live in. And I love that you are so light hearted about it, since it can make people nervous. Thank you for sharing with us!!
You're a true inspiration to so many people. It just blows my mind why so many people, including me, don't realize how precious life really is if tomorrow is not granted. You make me want to do more with my life, for myself, my family, friends, loved ones and others in need. Thank you so much
her energy is so bright and up lifting. i respect you so much. ive suffered from depression, as many have, and seeing you so positive about your life and life in general reminds us all how precious life is. god bless❤️
claire, i really really admire you. ive lived with depression and other mental ilnesses for years and ive found it so hard but seeing you live with this physical illness and see you constantly looking on the bright side, really encourages me to do the same and i think you are so gorgeous and inspirational. stay strong and keep doin what youre doin girl, you rockin it xxx
You're an incredibly optimistic and beautifully minded human being. I have so so much respect for you. Good things will come your way, because of the good energy you're putting out to the universe. Much love
Claire, you're such an inspiration! ❤️ You live life at its fullest. Regardless of how long or short your life is going to be, it will be richer than most people's lives. I am older than you but I've never enjoyed life as much as you do, and so many people look up to you! You're a pro at life! 💪🏻
Love your videos. A very close friend of mine has cf. When he was early 20's he got super super fit. He is now 35 and still going strong. His health, like you said very well, directly affects his lifespan.
You probably hear this all the time but I think you are so amazin! You take something awful thats happening to you and you turn it around in order to inspire others and make them appreciate life more!! Good luck with everything! xx
I love you so much. You're such a trooper. Stay strong. I love your attitude about life. It truly is precious and the more you work for it the more you'll get from it. My prayers go to you and your family.
I am so sorry you have to go through that. You are such a beautiful, mysterious, wonderful and amazing person. Your intelligence and outlook is so honest and you can see the positivity in your eyes is inspiring.
I have cystic fibrosis too (delta F508) I feel you ❤ you are a inspiration to me. I love how after doing all these treatments and medicines you still have a sense of humor and laugh. I think it's important to have that even after we have all these meds and stuff to do. Don't ever listen about your life expectancy, cause as long as your fighting as hard as you can, we will make it 💜
Hey, so i just like randomly found your channel (procrastinating summer homework) and you have an amazing personality. Like AMAZING. You are just so energetic, and funny, and positive, and I couldn't help but try to find a way to research you or communicate with you somehow. Your personality seems like one that would be of a character in a movie or tv show. Its completely one of a kind and I love it. So hey, I just wanted to say hi, and to say that you are pretty coo. Keep being you, dude.
I actually didn't find this depressing at all, I find your videos to be very life affirming, your positive demeanor is very soothing and I wish you all the best in your "now" life. Have a great day (:
I can tell you are such a special soul. I just discovered your channel now & my heart is so deeply touched on a whole new level after watching how strong your mindset is. You already taught me so much about what a powerful tool your mind is.. Whenever I am struggling next, I will definitely be keeping you in mind. I am so sorry for your inconveniences in your life, clearly you don't deserve. My thoughts & prayers will forever be with you & your family. Please get better.
if she passes i and many others will be devastated, you are such a gift to the youtube community and deserve all the best. no matter what your life expectancy is we will always love you. your humour, bravery and happiness is absolutely amazing, keep going we are here for you love xxx
I'm always complaining about how terrible my life is, but I'm healthy, have a good family and a roof over my head. Yet you have this illness and you're happy to live another day.
God bless you ♡ I love the strength you've been given, and that are willing to share your life with us. I am completely moved hearing you speak, you have a beautiful spirit.
my mom has been a nurse at the hospital for sick kids in ontario canada for 35 years. she worked on the respiratory floor (also called 7C) and she looked after a lot of cystic fibrosis patients. Iv'e learned a lot about the illness over the years. I feel for you. but its amazing how open you are about it
I really only think a sort of drug to thin down the mucus or lower production Mayby lower the required minerals and salts for mucus through limiting drugs and special diets????
She causes me incredible happiness and good vibes every time I watch her videos, she does not deserve this at all but I am so glad that she chooses to share her little slice of life with us. I wish her the best in everything she does. Thank you angel x
I've been having very bad anxiety attacks about death, dying, existence etc. Your videos are one of the only things that can calm me down and make everything seem so simple. Thank you so much for making these and talking about hard topics.
hi claire, i am 36 and was diagnosed with CF when i were 2 months old. i just want you to know that i really like your videos and happen to show some to my co-workers to make them understand what CF is actually about. you're very straight to the point and how you chose to spread the world and go online with this, exposing to criticism (mostly from CF patients and/or relatives and kins) as well as to praise. i wish you all the best and i bet your life expectancy will raise ;) we know it's so unpredictable, right? hugs from italy.
My best friend has CF, but she got a double lung transplant in 2013 when she was 14 years old. Two years later in the summer of 2015 she was doing great until she got diagnosed with stage 4 lymphoma. After three months in the hospital she kicked cancers ass! She's over a year in remission now! Her PFT's are 98 now too! She just had sinus surgery but that went smoothly. They had to do an exploratory on her brain because she has a brain leak, but there is no doubt in my mind she will be fine. If you want to learn her story, her page on FB is Kenedy's Hope. Love you Claire!
Clair I've watched almost all of your videos and I've got to say you are one of the most amazing human spirits I have ever seen! Your energy and your outlook on life are truly amazing! Watching your videos helped me deal with my own health issues and my outlook on them, although they are no where as serious as yours and not terminal. I'm sure so many people have told you this already but, your videos and speeches are truly inspirational. I wish you all the strength and happiness in the world but it looks like you already have that covered and are a strong independent smart and funny person!
I think you're amazing and what you're explaining makes so much sense to me! I feel it is of such high value that you educate people on what your situation is like for you which gives others so much insight and widens their horizon. This is why I love youtube so much! Thank you for your channel x
I had a really "bad" day today and somehow I stumbled across your video and it totally woke me up. Like here I am feeling sorry for myself over the smallest of things and here you are fighting to live just another year. Thank you for your positivity. I'm no where near your struggles but you inspire me so much. Just subscribed
You are literally, let me emphasize, LITERALLY an Angel straight from heaven that was sent here to brighten sooooo many people's lives. That's why God wants you back so soon, you're too wonderful He & all the other Angels miss you too much. Earth doesn't deserve you ❤️
You have such a beautiful soul. The amount of sheer bravery you possess is incredibly admirable. I hope and pray that you will live a long, prosperous life. The world needs more people like you, people who appreciate every moment. God bless you. Xx
Hey just found you here. I'm so glad your still alive. I love your videos. You make me smile and feel and have hope . You are very inspiring thank you for sharing your life journey without and making all the difficult topics so filled with joy and positive energy . Sending a hug.
She's so lighthearted and I love her! She's so upbeat given her situation! She's living life how she wants and she's not letting it control her. She's so beautiful and we need more people with her personality . She makes jokes about it and makes it seem normal and not depressing !
The truth is... We all have the same chance of dying tomorrow... I feel that deep down, this is something we all share. Thank you for sharing this... You're so strong. Be proud of how far you have come. Keep fighting my friend. God bless.
MyUploadedLife Yes, but that is very unlikely. It is much more likely that she dies young than I do. That's just how odds work. Of course anyone could die at any time, but her chances of dying young are much higher than mine.
I want to hug you and say to you that you've done a great job fighting this disease and to keep going and remain positive . You're a ray of sunshine and I know sometimes it's difficult to joke about it but do your best because it's your optimism that will save you from the moments of darkness.
I love this video! I completely understand how it can be even scarier to become an adult, when you never expected to live beyond your teen years. You're so strong. A true individual.
when I was born I had a life expectancy of 2 years, because of how small and underdeveloped I was. I also had a hole in my upper colon. they did a risky surgery then gave me the 2 years. I have breathing problems and eating anything at all makes me sick so i can only eat small amounts of food and soda, even water sometimes makes me sick. But I have a full life expectancy now I just will never be able to enter an eating or drinking contest, good buy dream of having the world recorded for eating the most cookies.
My high school did a huge fundraiser every year for CF. It's rewarding to think we may have helped pay for treatments so you can be with us as long as possible. 😀 God bless!
You are so strong and inspirational chick!!! Thank you for making me stop and think about how much I complain about frivolous petty things that just aren't the end of the world at all. You are amazing much love from me and my family!!!
i have a fear of dying and everyday i think theres something medically. wrong with me leading to my death but this gave me a different perspective that im fortunate and should be grateful that i have nothing serious wrong with me. but you are truely inspiring to have this positive energy despite everything.
I totally feel for you on this, my grandmother had 11 kids in her time, and 9 of them had CF, this was back in like 50s/60s i believe and so they only lived for about 3-5 years at most, the 2 that survived were my mom and uncle, this destroyed my grandmother as she was always scared to grow attached to her children because there was a possibility they would die, even after being told they didnt have CF she still found it hard to attach herself to them. Im so glad that now we live in a time where kids born with cystic fibrosis can live relatively long lives as compared to back then and be happy with it. Im happy that you accept yourself and make the best with the life that you have, spreading happiness and sunshine as much as you can! I have so much respect for you! If I ever have children with CF(Which is a possibility as my mom is a carrier for it and i might be, never tested) I will be glad knowing they could turn out to live a happy life like yourself! Best of luck!
So beautiful and inspirational. I was just diagnosed with a chronic illness about three weeks ago and it's tough but I know what I'm fighting against. Your good spirit is one to model after :)
