BTW I found the antibiotic you said that helped you pass the manometry test. It's called erythromycin and studies ranging back to around 20I0 show that it could be used as a prokinetic. a prokinetic is a type of drug that causes the muscle contractions to be stronger. May i ask did you continue the medication during the 2nd manometry and did you continue taking it during the surgery? I can't imagine long term antibiotic use can be good but i wonder why it was used instead of maybe other non antibiotic prokinetic drugs?
Hey, I was given Azithromycin - A subclass of macrolide antibiotic derived from erythromycin. Azithromycin is assumed to have prokinetic characteristics (improved gastric emptying) similar to those of erythromycin. I only took it for 6 weeks, prior to the manometry.
Thank you for this video, I too suffer from GERD and I’m based in the UK and it’s good to know you can get Linx via NHS which I hope happens at some point
Thank you so much for creating this content Lilac! This is so important because it provides so much comfort and hope for potential patients. I really appreciate the details, especially the one about azithromycin. I'm suffering from daily heart burn despite maxing out on PPI and H2 blockers. I think surgical intervention is in the near future for me. I'm 32 years old. Your content have provided so much relief for me. I'm sure i'll come back and ask you more questions in the future. Keep up the good work. Thanks again and I wish you and your family the best during this time
Thank you for the great video! I am in the USA. I was misdiagnosed with “sinus and allergy” problems 12 years ago and have been treated for those issues as such til about a years ago with no relief. I have started seeing a gastroenterologist that has referred me to a surgeon, my pre-op next Wednesday. The Linx is the procedure the GI doctor has recommended and I am very nervous about it. Thank you for easing my mind a bit!
Of course, it's my pleasure - Thank you for considering my videos. Feel free to checkout the entire LINX series I have uploaded, I wish you the best of luck with your procedure. If you'd like to support my channel & subscribe that'd be awesome 🙌🏻
Aww bless Susan, must not be easy, sending my prayers over 🙌🏻 let me know how you get on. Would be great if you could support my channel and subscribe 🙏🏻
Hi. and thank you for the video. my biggest problem with lpr is that i have difficulty speaking and singing. and it stresses me out. Do you think after 3 years that LINX surgery is effective for the treatment of LPR-related voice problems?
Hy thanks for sharing your story am 25 year old suffering from GERD and u have me hope am not sure this available in my country Sri Lanka but u gave me hope
Hi Janine, truly sorry to hear that. I hope you find relief soon 🙌🏻 Please feel free to sign up to my channel for more info, let me know if you have any questions
Thank you so much for this video. I have been on/off PPI's (lansoprozole) for approx 4/5 years now. I had LPR significantly bad when it first reared its head about 5 years ago, I couldn't eat anything as it always felt like I was choking/something stuck and excessive mucus/throat clearing. I had numerous tests, endoscopies and gastroscopies, and was told I have inflammation and a 'faulty valve'. Then I didn't hear anything back. I had made drastic changes to my diet, was wearing loose clothing so no pressure around the stomach, taking my meds every single day without fail, taking gaviscon advance also, nothing seemed to make it go away! My doctor put me on fluoxetine as I was getting that depressed and my anxiety was through the roof, because I was getting so down about it and that wasn't exactly helping my LPR. It was just a nightmare. So fast forward, the anxiety meds helping, I was beginning to eat and felt like my throat was healing but only masked the problem. I still to this day get excessive mucus, dry mouth, coughing ect. I have recently had a really bad flare up and has made me go through the whole research process all over again! I'm so glad I found your video and your channel! Especially as you live in the UK (same as me) because before all I found were US links to LPR! I don't think people understand how much LPR has an impact on your life and finding this video really makes me feel like I'm not alone! I hopefully in the near future will be able to be referred down the surgery route🤞 Thank you for your information, hope you're well! (sorry for the long essay just needed to get it out there🙈)
I can’t relate more to the tight clothing thing. I can’t even wear underwear because of the tight elastic band, nor jeans with a button, belts etc. i literally have to wear sweats 24/7 with a drawstring, and loosen the string every time I sit down, or I feel sick to my stomach. I already don’t eat spicy foods because of it, but I get pain and nausea on a very consistent basis. I also have developed a body temp regulation issue. I wake up in the night once every few months super sick/hot/clammy and have to strip down, lay on my shower floor while my wife douses me in freezing cold water briefly until the episode passes. It’s the only way to avoid violently vomiting. It only seems to happen on nights that I’ve slipped up on my careful diet, and allowed myself a bit too much fat. It will subside and I’ll spend the morning in bed almost dead. The past couple months my food has stopped fully digesting, and the temperature thing is getting worse. If my house is over 73 degrees I feel sick. In other peoples homes or outdoors in hotter weather, I have to soak myself etc. to stay cool, calm, and not extremely I’ll. I am starting to freak out pretty bad. I’ve exhausted myself stressing this stuff, and I just want my life back. I have 2 beautiful children 10 and 7 y/o. My life took a 180 degree turn when this hernia came about. Before that I was young, happy, free. I feel like I’ve aged 30-40 years in the past 12.
I have suffered from reflex and now LPR for years , can’t eat what I want and can’t sleep much, my bed is raised and uncomfortable and still problems, I’ve thought about this for a while and I’ve decided to go for it, I’m calling mass general in Boston today to make an appointment, thank you for all the information, I really appreciated it.
Bless you John! I truly hope you find relief soon. Checkout more info here: ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-wxUa5qQ0H3Y.html Feel free to join our community in subscribe 🙌🏻 best of luck 🤞🏻
I’m very excited about this whole thing but hope it doesn’t take forever to get it done, I thought I heard you say from when you started looking into this until your surgery was about a year, is that correct? If so I’m hoping maybe Mass General in Boston isn’t that long a wait, but I’m extremely excited about this, I’ve had reflux for about 25 years, the thing I’ve been through in those years was unreal, I could write a book. Anyway, down the road I will let you know my outcome, I watched the rest of your videos and really appreciate your insight on everything. Extremely nice thing to do. Thank you God Bless, John
Ahh appreciate your kind words, so sorry to hear of your long struggle. The reason it took a year was because of the process being done in 2 different places and 2 separate surgeons involved, which wasn't necessary, so I'm sure it can be done quicker! 🙌🏻🤞🏻
@@lilacsheer hi lilac, I have the ball rolling and there going to start some of the testing soon, but I do have a question for you, I’m wondering if you know what size Linx they used and what size your esophagus was ? I watched another video on someone that said he was a 13 and his surgeon went with a 14 to give him a little bit of room, thoughts , this is one of my biggest concerns.
Thank you so much for sharing your journey. I will be having the Linx procedure in November. Your story has made me feel comfortable with my decision to have the surgery.
Ahhh bless you Rosemary 💖 So excited for you, best of luck with your journey 🙌🏻 Let me know if you have any questions, and please subscribe to support my channel, thank you 🙏🏻
Hi. and thank you for the video. my biggest problem with lpr is that i have difficulty speaking and singing. and it stresses me out. Do you think after 3 years that LINX surgery is effective for the treatment of LPR-related voice problems?
yup, watching ur video second time and gave a like.This LPR sucks to be honest I have terrible shortness of breath chest pain chest tightneing so many things. I am looking for stretta procedure as LINX is available in few countries. Anyway, thanks for taking out time and guiding people.
I am not in favor of the LINX procedure. There are not enough long term studies regarding the LINX device eroding through the esophagus. Finding the best surgeon to do the Nissen fundoplication is truly the best decision.
Glad I found your page. I was wondering if you had the pepsin coming up to your throat and burning? Also any problems with your ears?That’s the main problem I’m having haven’t been officially diagnosed with lpr (still waiting to see an ent) but after doing a lot of research people say linx is the best way to go just curious if you had that as well. Thanks!
Hi Paul, thank you for your message. I'm sorry to hear you're struggling. I've had lots of ear itching before the surgery, and sometimes I'd have tiny bit of the acidic liquid come up and burn in my throat, which never happens anymore. It would be great if you wanted to support my channel and subscribe 🙌🏻
Hi Lilac, Thanks for the video, You had bad breath 24/7 before LINX surgery?? Was it even worse in the morning and bedtime. I am also suffering from same problem from 8 years now.
Hi Lilac, Thanks for this information! Am interested in finding out what natural methods you tried before considering surgery. Did you try massage?, chiropractor?, the heel drop technique? Thanks
Hiya', I did theta healing, NAET, Kinesiology therapy, guided meditation, acupuncture, Ayurveda, fast tract diet & more, I believe it was all helpful as part of my journey and sometimeswe need to try lots of different things as means to finding what's right for us, but it didn't completely resolve, that's why the surgery I felt was right for me.
I’m about to get this surgery and I was wondering did you ever have a burning or gnawing sensation in the lower chest/solar plexus area?? That’s where most of my burning is and I put on a lot of weight because eating makes the symptoms temporarily better
Yes, same. Burning sensation which goes away when eating. I believe the surgery should sort the symptoms. However, since the body isn't independent - It's controlled by your brain, it is important to also check what mental hardship may be contributing to the problem, why is the brain stressing out, causing the esophagus to flare up. Stress, food allergies or hidden past issues may be affecting. Otherwise the surgery can end up being a plaster on a deep open wound - The problem may persist beneath the surface, and end up in other complications if the source of the issue isn't resolved.
Hello Lilac, You mentioned that Dr Nic Boyle put you on antibiotics to strengthen your swallowing. you also mentioned that the antibiotics strengthened your LES but did you mean to say that the antibiotics strengthened your swallowing muscles? because if the side effects of the antibiotics strengthens the LES then maybe the treatment alone could have helped your silent reflux and GERD as a stronger LES wont allow acid to go into your esophagus?
Hi I've had acid reflux for 10 years. My teeth are being ruined. Is the lynx better than the partial Nissan ? How is your linx devise currently. My last specialist doctor. , said there removing sum lynx. And he's no longer doing them. Plus my family doctor. Said stay on my ppi. I don't know what to think. I was thinking lynx
I feel my tonsils swollen Tightness in throat Trouble breathing Feel like if my ear was clogged Swollen nasal like sinus (dry) Red nose and throat I and a endoscopy been diagnosed with a medium size sliding hiatal hernia, gastritis, esophagitis Does this sounds like LPR?
Dr. Boyle may be a better doctor and so therefore charges more than the NHS is willing to provide. That's why they referred you to the other doctor for surgery sounds lik. Even the fact that Boyle knew about azithromycin and the new one didn't
Thank you! Yes he's definitely very experienced with this specific procedure. Thank you so much for your input. It would be great if you wanted to support my channel and subscribe 🙌🏻
@@lilacsheer Okay will do! But just curious how long had you had to take the azithromycin for? And considering the fact that it enhanced your swallowing muscles did you experience any improvement immediately after taking them but before the surgery?
Hiya, I didn't intend on using the swallowing improvement as a final solution, I was determined to fix my hiatal hernia and have the magnetic ring put on regardless, as I felt like this is the right and most substantial solution for me to prevent any recurrence in the long run 🙌🏻
Just seen all this video very interested in these drugs you were given to help get the linx because I’m wanting linx too but dunno if i will be eligible until get manometry done soon.
Hi Lilac! I was diagnosed with GERD and it's been like 4 months. Just want to ask how are you feeling now after the surgery? I badly need this operation but I think it's not yet available in my country Philippines and that is sad🙁. By the way, are you literally going back to your normal breathing? Are you now free to eat foods you used to avoid? No more reflux issues? I'm happy you've overcame GERD. Hoping for your response ❤
Hi Zanayaaa, so sorry to hear about your suffering. Yes I am fully healed and can eat normally. If you don't have links in your country you can still try my Nissen fundoplication surgery. It would be great if you can can support my channel and subscribe 🙌🏻
Hi. and thank you for the video. my biggest problem with lpr is that i have difficulty speaking and singing. and it stresses me out. Do you think after 3 years that LINX surgery is effective for the treatment of LPR-related voice problems?
It sounds successful for you . I have the same thing . My doctor said that people that had the surgery still have problems . Does that happen down the road?because I heard they remove sum of the devices . And the specialists don't tell you our about it . I'm really scared of surgery. I've suffered 10 years now .
Hi Mark, so sorry to hear you are suffering. Best not to hear testimonials from Drs but from actual patients. That's why I recommend to join the FB group and search real people's reviews by yourself. It would be great if you could support my channel and subscribe 🙌🏻☺️
thanks for the information. From my understanding you can get private consultations done but then if you want you can get your private consultant to refer you back to the NHS for surgery if they see it as a solution you? is this correct or do you have to get the whole process either privately or through the NHS
The private consultation I received was also initiated by NHS, as I had to first book an appointment with my GP consultant - Who then did the tests, after which they refered me back to an NHS surgeon 😂
Hi Lilac, thanks for sharing. Question: When you mentioned that your swallowing improved after the antibiotic treatment, did you mean that you were previously having difficulty in swallowing and that difficulty improved after treatment? Or did the antibiotic regimen tighten your LES, and therefore your reflux improved? Can you please list the antibiotics used? Thanks
What did you eat all the time to exercise the LINX? Did you make sure your bite was big enough to make sure you “felt it,” to ensure it was opening up enough? Like pudding or apple sauce is too soften and won’t do anything. Like a no pain, no gain situation. I’m in the USA and my doc recommended a fig newton. Sometimes I wonder if I’m opening mine up enough as if you aren’t a good patient, you will pay the consequences forever once scar tissue forms. Do you have any restrictions now, like do you still have to take smaller bites than you normally would or eat slower? Or you can go to town, chug water if you want etc, as if it wasn’t ever there?
Hi Curtis - I ate totally normally from the get go, only had to avoid starting the meal with something really dry (bread, chicken, hard boiled egg, rice, fries) but otherwise ate 100% normal. Make sure to subscribe to my channel for upcoming LINX videos.
@@lilacsheer Hey Lilac, after the linx surgery, are you able to start your meal with anything you want or you have to still avoid starting your meal with anything hard like, rice, chicken, meat e.t.c?
Thank you so much for your video. I have seen the doctor for LINX on the NHS (yay). I have all of my pre surgical tests in two weeks. I was wondering, if the tests show that I'm a candidate (strong peristalsis etc.) How long does it take from that point to get booked into surgery? You might not know the answer but I thought I'd check just in case : )
Just to let you know I just had my manometry and I passed : ) so no need for antibiotics etc. Next step is LINX surgery. Thanks again for your videos. They were very helpful!
@@lilacsheer Just had the LINX with Mr Nehra. It went well and my reflux has gone! Yay. The bloating has been quite tough though but this is passing too. No issues swallowing so far so I just plan to keep eating regularly and hopefully I will have a similar experience to you. Thanks again for the videos as they were super helpful : )
How would you say your LPR is now? I know you said the surgery is meant for acid reflux but would you say your LPR is better now after surgery compared to prior?
Yes it definitely is 😊 I don't suffer from the dryness in my mouth, no sticky saliva, no hoarse voice. It's been so life changing 🙌🏻 it would be amazing if you could support my channel and subscribe!
Hi lilac I had my consultation with mr Boyle today and he is also going to give me the antibiotics for the swallowing, I had my test mine came back extremely weak also so depressing so I’m hoping they will help me too. He didn’t mention how many times a day did u had to take the antibiotics and for how long.
Hi. Can you sing better now and is your voice more free? Is your range a higher and with less tension as compared to when you had reflux and pre surgery?
I always had good range because I studied classical technique. It was mostly less dryness, so less struggle in vocalising, and less throat clearing, so easier to reach certain notes.
I have lpr, sore throat etc, but you say this procedure is not for lpr, is that correct? I don’t really get heartburn, but I find it difficult to swallow. I can’t tolerate PPIs so I’m so uncertain what to do. I’m frightened that I’m going to end up with throat cancer.
So sorry Angela, I'm not entirely sure because I had both GERD & LPR and it's improved both, but I my lpr symptoms were different and I didn't have a swallowing problem
Another question Lilac, hope you don't mind. Do you remember when the doctor measured the size of your oesophagus did he use a LINX device that was exact to that size of your body part or did he go one size up?
I don't recall a size discussion. They see the size when they do the laparoscopy, I never asked, but think it was just a standard size 🤷🏼♀️ hope this helps.
Hey, they say surgery won't necessarily help LPR but it did for me. I thought it should at least help as when the passage is properly closed even if some gas passes through it should be significantly less. Thanks for your input! 🙏🏻 It would be great if you'd like to support our community and subscribe 🙌🏻
I took Omeprazole, Esomeprazole, Naproxen, at different stages. The Esophagitis I can't tell if healed or when because I can't see it, but not needed to check since surgery so I'm assuming it's fine 😊
@@lilacsheer you are awesome ! : 3 After the operation, how long did you suffer from the effects of the operation? (discomfort, inflammation) and for how long did you have reflux?
@@lilacsheer THANKS! I already finished seeing it, one last question, haven't you had problems with magnets, microwaves or something like that? PD if I have any more questions, can I keep asking? : ")
Hi M'dear, no problems at all, but wait for Saturday - I'm uploading the long awaited massive Q&A which will likely answer any questions you may have ^_^
Is it safe to undergo MRI after LINX? What happens if an iron object comes close to your belly? How does magnets react? Sorry for my silly question. I'm 28 Male, having severe reflux since 1 year 🥺
Hi Lilac, i just came across your video a while ago and had to subscribe after listening to your heart! Thanks so much for educating us on this issue. Much needed! Hey, could you please tell us the full name/info of the surgeon? Thanks so much and God bless!🙏🏽
I found your video From having an EDG I found out that I have a small Hiatal hernia. I have constant burning in my throat like acid breath., some belching, & sometimes I can hear my stomach gurgle. I occasionally have heartburn. I have to sometimes clear my throat. I don't have a constant cough though, I can eat & swallow fine & I don't have post nasal drip. I have tried ppi & they really dont work that well. I had surgery in Nov to remove a huge ovarian fibroid that was a 25 cm ovarian fibroid & thank goodness it is gone however, it left me with a loss of a kidney & I think this hernia because the mass was & I don't want any more surgery to fix this. I am going to my chiropractor to help with the hernia. Any advice would be grateful. laying on my stomach. Thanks
Thanks. I tried correcting the hernia with ongoing chiropractic treatment but with no luck. Re underlying cause have you done emotional / mental investigation as to the reasons your body's stability may be jeopardized?
Hi. Ive had rhe problem over 2 years and just now the GPs a are giving me the option as I'm pressing very hard. As you know the lack of sleep is awful and in terms of relationships silent reflux is awful. My question Is my stomach often feels very full as is its just full of acid. Have you experienced this? I think my body has a super sensitivity to acidic foods and alcohol. Etc
This sounds like early satiety. You feel full quickly. I get this when my reflux is particularly bad. My PPI Omeprazole isn't working, so I'm really greatful for people like Lilac who share their experiences with Surgery. Maybe once Coronovirus lockdown has ended, i can actually get tested to see the size of my Hernia.
Hello hope ur doing well . My question is which dr perform ur linex? im searchng Dr fr my self .can u help ? how is Dr boyle? Is he based in uk kr US? how cn we contact .
Hi Lilac, thank you so much for this video as its really helpful! Since you are a very holistic person where you opt for less surgery, no medications etc which I am as well did you ever come across the Stretta procedure and would be interesting to get your thoughts on why you didn't opt for it? I'm still learning about all of this and would like to fix my reflux without any medication and any help with your feedback would be greatly appreciated. Thank you.
Hi Mase, yes at the time I decided to do the surgery was after years of trying alternatives, it was a that point that Stretta was the timely and costly option, so LINX was the right way to go for me personally. I wish you the best of luck with your journey. It would be great if you could support my channel and subscribe 🙌🏻💐🥰
@@lilacsheer so I made a mistake... I should have taken the medicine Nick Boyle recommended, I didn't take it because I had severe gastrointestinal symptoms. So I took it again today and for 4 weeks I will be treated... My stupidity for not taking azithromycin ehh , I hope my next manometry test is good otherwise I will not qualify. And I will take a probiotic when there are these gastric problems, thanks for your answer, because I thought that there might be some contraindication to take azithromycin and this second drug reducing acid secretion in the stomach at the same time
Thank you for your video. This is really helpful. My reflux improved a lot recently but interestingly this morning it was really bad and then I saw your message about the video! I'm trying to persevere with a natural treatment (called iqoro). It seems to be helping but if the iqoro fails I will ask to see Dr Nehra. Thank you : )
It is a device that improves reflux symptoms apparently. I've got a large hiatal hernia but I spent the last 6 months losing weight. I lost 20kg and my symptoms are much much better.
I have bad lpr and it has caused severe asthma for me. Every time I eat I get an asthma attack from the acid coming into my throat. Did you happen to deal with the same thing? Do you think Linx would be adequate for me? Thanks for this video!
Hi Gaia, thank you for this message, sorry to hear you're struggling 😔 I'm not entirely sure, I also had breathing problems which are now gone, but it wasn't severe asthma, so you'd be better off asking a professional. See more info here: ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-wxUa5qQ0H3Y.html
@@lilacsheer gracias señorita y claro que por supuesto que me voy a suscribir en su canal. Lo que quiero preguntar es como le ha ido con su cirugia anti reflujo con el dispositivo LINX. Todos los detalles...
@@lilacsheer gracias. Podria decirme hace Que tiempo se ha operado y algunos detalles mas por favor. Le comento que yo sufro mucho de reflujo y pienso en hacerme dicha cirugia LINX.
mis disculpas, hay demasiada información para poner en un solo comentario. Hay mucha información en línea, espero que puedas encontrar más en español o usar el traductor de Google. Saludos, Lila
I had linx nearly 5 weeks ago and unfortunately I've had a return of heartburn after week 3. There are improvements during the day for sure, but I'm struggling with bad heartburn in the evenings again and sometimes during the day after eating sugary sweets etc. I had a 4.5centimetre hiatus hernia repaired and the linx done. My consultant is stumped, so I'm going in for a Barium swallow test. One strange thing I've noticed is that when I swallow liquid I can hear it gurgling as it passes through the l I mx into the stomach. Needless to say I'm very disappointed. I thought this was the end of being up at night and going through half a pack of gaviscon. Has anyone suffered from a recurrance of heartburn like me?
Hi Ben, this is so disheartening to hear, it seems you will have to change your diet to avoid those symptoms. I'm just working on something to help prevent LPR & IBS, once I am done experimenting with it and have some more concrete facts I will upload a video about it.
@@lilacsheer hi Lilac. So I went back to the hospital (I'm UK based, so it was the Spire in Manchester) and had a barium swallow. What’s happened (according to my consultant) is the scar tissue has healed too quickly around the linx and the capsule is too tight. On the X-ray it was ok when I was stood up, but laying down the area was too tight for the linx to open so I am getting ‘pooling’ where saliva and liquid etc is accumulating in the throat before the linx and creating a feeling of reflux. This is not acid reflux but the sensation is the same. I have to go back in on the 26th and they are going to do a gastroscopy and dilate the capsule to stretch out the linx and capsule scar tissue. Apparently this has been done to 5 out of 55 patients that the consultant has operated on and it’s successfully resolved the issue. We will wait to see if this is the case with me (touchwood).
@@jimmythedog2882 still struggling with dysphagia over 4 months on. Not as bad as before though. They found a fungal infection in my throat as well which didn’t help