in 2021 I underwent a stem cell transplant for lymphoma. (lots of Chemo) in 2022 I got Covid and could not shake the active infection for 4 months. I am now just recently understanding that my symptoms when I try to bike or work are probably not the recovery from cancer but the recovery from long covid.
It's interesting to see such a conversation. It really brings me back in time in regards to topics going on in my mind when I was 2-3 years into my journey of CFS. I'm glad that there is more content than ever about these things. But also it's more confusing than ever. No official guidelines that would help and so people are on their own. I've been out of work (and life for that matter) for 7 years. At some point you have no idea about your future or if it even exists. At that 2 year mark, I was still pretty driven about being back in life very soon. That hasn't been the case. I totally subscribe to the fact that more research is needed on all fronts. Yet it almost seems like we don't fully get the functioning of the ANS and therefore a 'cure' is unlikely. I believe though that there could be a set of strategies how to get significantly better. Good luck to you both and keep going on your public or private journeys!
I'm not tired. 21 mths now. In a recent flare up. Had had a good 2-3 mths. Took on too much work and was committed, couldn't stop. Went over major thresholds 5 or 6 times, moments where it was critcal for me to pull back but 'couldn't,' due to work. For 3-4 weeks now been suffering with breathlessness, cognitive brain function, chest pains etc. The lungs and brain feel like concrete. Anyway, only 42 secs in. If I don't sleep, it all compounds. This has been quite a setback, another lesson learnt. Thanks for your content H. *the first year was hell.
Thanks guys I got a lot from this. I don't know how it works. I can watch youtube for hous on end but when I do a few hours of graphic design I get symptoms the next day. How does that make sense? I'm not stressing whe n I'm doing it. Is it just because I'm using my mind more?
