My Lupus Diagnosis Story (Symptoms, Testing, Treatment)

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#autoimmunewellness #worldlupusday #styledunderlupus
My Lupus Diagnosis Story (Symptoms, Testing, Treatment)
In this emotional and inspiring video, I share my personal story of being diagnosed with lupus. From the initial symptoms to the diagnosis and the challenges that followed, I opened up about my journey with this chronic autoimmune disease. If you or someone you know has been diagnosed with lupus, this video is for you. Get ready for an honest and uplifting conversation about living with lupus and how I've learned to manage my symptoms and thrive despite the diagnosis.
Check out other videos:
Top 10 Inspiring Celebrities With Chronic Illnesses | Lupus: • Top 10 Inspiring ... Celebs Battling a Chronic Disease: • Top 10 Inspiring ... Inspiring Celebrities with Mental Illnesses: • Inspiring Celebri...
Resources:
Lupus Foundation of America: www.lupus.org/...
Free Online Therapy for Depression: cimhs.com/ 24 hrs National Suicide
Prevention Lifeline: 800-273-8255
Find a Lupus support group near you: www.lupus.org/....
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Hello, my name is Nathalie. I'm a Sagittarius and an Intuitive Astrologer who lives with lupus. I was diagnosed at the start of the global pandemic. I'm also a mother and a wife. With over 20 years of experience in psychology and mental health, I am an expert in cognitive and emotional well-being. I graduated with a master's Degree from Syracuse University and have been self-taught in astrology for 25 years. Based on your life journey, I aim to teach you how to use astrology for self-improvement and success. Feel free to subscribe and engage with me in the comment section!
💖 Learn how to manifest your dreams by using astrology!
You may also purchase a confidential natal chart reading by joining our Patreon group: / ntuitivehealing
🎬 Learn your Astrology love compatibility: / @styledunder
🎬 Learn your Horoscope: / @astrologyweekly
🎙️ Listen to our Astrology Weekly Podcast on Spotify for horoscope: spotifyanchor-....
🛍️ Purchase energy healing crystals and sustainable fashion accessories: www.styledunde...
🎬 Learn about my Lupus healing journey: / @styledunderlupus
PR & General Enquiries
Email: StyledUnder25@gmail.com.
Links: linktr.ee/ntui...
Nathalie Dadjé is a licensed and formally practicing mental health therapist. She left the field of mental health to become a full-time astrologer after she became severely ill and later diagnosed with lupus. All information in this video is opinions from her experience with lupus disease.
Please remember that all information about lupus and autoimmune diseases shared by Styled Under Lupus is based on personal opinions, knowledge, and experiences. Nathalie Dadjé is not a medical doctor and does not claim to be one. Always review information collected from the internet with your doctor to ensure that it is medically sound, appropriate, and the best course of action for your specific health needs.
Copyright Disclaimer: Under section 107 of the Copyright Act 1976, allowance is made for FAIR USE for purposes such as criticism, comment, news reporting, teaching, scholarship, and research. Fair use is permitted by copyright statutes that might otherwise be infringing. Non-profit, educational, or personal use tips favor FAIR USE.
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world lupus day, slow living, cfs recovery, lupus research, lupus research alliance, patient advocacy, chronic fatigue, systemic lupus erythematosus, lupus awareness, lupus, sle, wellness tips, autoimmune disease, living with lupus, lupus care, Lupus diagnosis, Lupus symptoms, health education, chronic illness, Lupus treatment

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21 окт 2024

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Комментарии : 425

@Styledunderlupus 3 года назад

My name is Nathalie. I am a sustainable fashion reseller and blogger. The video today is about my lupus story. I was diagnosed with Lupus almost a year ago and have been slowly adjusting to my new life. For people of color, lupus often presents much earlier and with worse than average symptoms as well as a higher death rate. Specifically, the death rate of people with lupus is nearly three times higher for African Americans than whites. I am making this video to share my story in hopes that it helps someone who might be experiencing similar Lupus symptoms get assessed, diagnosed and treated.

@lauralupusandsupport5802 2 года назад

Take care of yourself!! Rest when needed... Take it one day at a time!! Stay blessed and encouraged on this journey!

@Styledunderlupus 2 года назад

@@lauralupusandsupport5802 Thank you Laura!!! I wish you the same. 💕

@khazimafurqan7990 2 года назад

How long did you take plaquenil? pls reply

@janissquirell5072 7 месяцев назад

Do you have a bipolar syndrome as well?

@AYANKHAN-q8t4s 5 месяцев назад

I would like to hear more stories from people with Lupus. It makes me stronger knowing that I am not alone.

@Styledunderlupus 5 месяцев назад

Sharing stories and experiences can definitely be empowering. You're not alone in this journey.

@basetsanamokoka5462 Год назад

My psychiatrist is the one who is the one that actually holds my hand through it all cause he has an auto immune disease. So everytime I see him he gives me good tips

@mildredstubblefield4231 Год назад

I love your spirit; your positivity and your honesty. I was diagnosed with lupus in 1996, 10 years following my hyperthyroidism diagnosis! Now I'm dealing with 6 autoimmune diseases and 70 years old. Yes. I do remember 2 of my meds being taken away from me to "treat" COVID patients...stressed me into a flare up. I pray a lot these days... God knows our struggles ❤️💗.

@Styledunderlupus 6 месяцев назад

Your strength and resilience are truly inspiring. Keep fighting the good fight!

@jeetbhoirvlog1783 5 месяцев назад

You’re helping a lot of people with ur videos, you’re a gem

@Styledunderlupus 4 месяца назад

I'm truly grateful for your support and glad that my videos are making a difference.

@sherrysims7767 3 месяца назад

I’m doing a lot of research about lupus and I ran across your video , I have all the sign and symptoms of someone who has lupus, I was diagnosed with Autoimmune RA , I haven’t had any treatment yet, this video was very helpful it’s been since last year . I see a specialist next month

@Styledunderlupus 3 месяца назад

I'm glad you found the video helpful! It's great that you're seeking specialist help next month. Stay positive and keep us updated on your journey.

@zoehargreaves8442 3 года назад

She was not feeling well and yet continued to make videos for us. I love this woman!

@Styledunderlupus 3 года назад

Giving up is not an option so here we are lol

@Styledunderlupus 3 года назад

Aww you are too kind

@leedralarry4571 3 года назад

I was diagnosed with discoid lupus in 95. In 99 I was diagnosed with SLE. Only meds I take is plaquenil. If I am having a bad flare, I would take prednisone.

@Styledunderlupus 3 года назад

Thank you for sharing! We are on the same meds :)

@rayito1172 5 месяцев назад

I was also diagnosed with systemic lupus only take plaqueni and I took control of my life.

@ankitpoul6652 5 месяцев назад

Thank you very much for these videos. You’re making it easier dealing with Lupus.

@Styledunderlupus 5 месяцев назад

I'm glad my videos are helping you in your journey with Lupus.

@Larisa_Baker 8 месяцев назад

Appreciate this, I am going to see the doctor today to talk about my symptoms.

@Styledunderlupus 8 месяцев назад

I am happy to hear that. Good luck!

@mr_b4544 2 года назад

Been having issues for almost 3 years and currently its at its worst. Heres a list of what ive been going through lately if anyone would care to read. Going for blood tests and a MRI soon but just worried if everything will come back ‘fine’ since my dad also has lupus and has almost died from it and my day to day life being so painfully crap Generally everyday •cant concentrate •common memory loss •achey •tired •short breath •lightheaded •loss of appetite •weight is going quickly •lots of hair falls out a lot •mind feels numb •patches on my tung What i get a lot at least per week •chest pain •mouth ulcers/blisters especially •weak legs •high heart rate •vision sometimes flicks or narrows • some small rashes on my face and lips •veins pop out When i do my normal things •my heart works more than often and it gets worse •i get dizzy sometimes •tired •joints feel like being drilled What ive had before •extreme high heart rate when im doing nothing (120-160bpm) •passed out due to high heart rate •complete numbness in the legs •tingly fingers •painful chest and spread around the area to the jaws and shoulders •have had eyes roll back whilst constantly passing out

@kellyedavis7785 2 года назад

This was extremely helpful thank you for sharing, prayers to you for healing 🙏🏾

@Tcray430 Год назад

Hope you find the proper meds to make you feel better. I'm being diagnosed now. It's super scary

@jadedoptimist6364 5 месяцев назад

Look into ozone therapy. Dr Howard Liebowitz videos are good.

@Ju3je9eyhe 5 месяцев назад

Never heard of it as well until I got diagnosed. Now I have to live with it every day.

@Styledunderlupus 5 месяцев назад

Life has a way of throwing surprises at us, doesn't it? We'll face this challenge head-on!

@ShamekaCheek78 3 года назад

OMG, I have most of the same symptoms! Thanks for sharing your story.

@Styledunderlupus 3 года назад

Thanks for checking it out!

@lisarichard5051 3 года назад

Hi my name is Lisa, I'm a warrior as well, I'm totally with you on that, every word u said that was me, u are beautiful, I came across ur vlog it came up on my feed, loved it and will continue to watch, Thank you for it, plzzz take it easy and God bless💪🏾🙏🏿👏🏽

@Styledunderlupus 3 года назад

Thank you for watching and for the compliment Lisa! You are not alone. We are all in this together. I appreciate you watching. Stay blessed and may God watch over us both!

@lifewithloismarie 3 года назад

Raynaud's syndrome causes your hands and feet to turn blue. Sjorgen's has to do with dry eyes. I also have Lupus and these two as well. Hang in there! I was diagnosed in 2013. Listen to your body and rest when you need to. Eating healthy and exercising when possible helps me a lot! Plaquenil is the only medication I take along with vitamins and energy supplements.

@Styledunderlupus 3 года назад

You are absolutely correct! 💕 Thank you for making that distinction! I am on the same regiment as you. What are some diet changes you've made that you found to be helpful? I am still learning in that area...

@annikacoleman 6 месяцев назад

You are fantastic, Nathalie! I so appreciate your authenticity, honesty and humor. Thank you for sharing your story and advice.

@Styledunderlupus 6 месяцев назад

Thank you so much for your kind words! I'm glad you enjoy my content.

@soundsrelaxing888 2 года назад

My entire life right now... I saw a hematologist. My doctor did a full panel and now my dermatologist is sending me for blood work again and he's 99% I have it. So now im researching and it leads me to your video. Wow, you are explaining my entire life. I was a gym rat and I can't do anything anymore

@Styledunderlupus 2 года назад

Thank you for watching. I hate that for you but glad you can relate.

@NepaliMamata-m3s 5 месяцев назад

You’re so positive for someone who has to deal with this every day

@Styledunderlupus 5 месяцев назад

Well, what can I say? Laughter is the best medicine, even for daily struggles!

@darwinishere 3 года назад

You're very brave! Thanks for finding the time to make this video

@Styledunderlupus 3 года назад

I don't think of myself as "very brave" lol. Just another human trying to stay alive and healthy. Thanks for watching!

@orellz877 7 месяцев назад

Thank you so much. I am waiting for rheumatologist visit. No medication yet, i already have hashimotos and chronic gastritis so im a bit afraid if taking stomach ruff meds but im tired of feeling ill. I have lost a lot of weight and have gerd so im am pissed that i have this now. Im 61 so getting older makes it harder. Thank you for sharing and stay well.❤

@Styledunderlupus 6 месяцев назад

I hope your rheumatologist visit goes well and you find the right treatment for your health issues.

@jacqueljones6387 2 года назад

Hi , Thanks for sharing your story. I have lupus as well. I had it for 22 years I just want to let your know it get better and easy as times goes on in my experience. My first year I was just like you I wanted to give up and I let it control my live. Then one day I got up and said I'm not going to let this control me I'm going to control it and as time went on things got better. I did have some set back but I push thought them all and over come everything I have been thought and still going thought. I always say you will have your good and bad days but if I stay active I will over come it.

@casperinsight3524 7 месяцев назад

Thank you for sharing your positive outlook 😎 your optimism is much appreciated 😘

@Styledunderlupus 5 месяцев назад

I'm glad you found the video inspiring!

@Styledunderlupus 5 месяцев назад

Thank you for sharing your experience! It's inspiring to hear how you've overcome the challenges of lupus over the years.

@luisaalvarado1299 Год назад

Thank you for sharing your experiences, my prayers and respect for you 💕. My daughter is 12 years old and was diagnosed with lupus in December 2021. I totally understand about the denial you went through, my daughter is so resilient and I thank God for her, if she wasn't like she is, I'd just die. I am the one that went through denial, I still have a hard time dealing and processing it all, I thank God and my daughter because they are my strength. I don't show her my weakness because she has too much on her plate and I am the one who needs to be strong for both of us with God's help I am able to do it one day at a time. I love her so much, we consider each other best friends💕 She's sweet, smart, beautiful inside and out, creative,artistic. I am so blessed to be her mother, not for what she does but for who she is 🤍Thank you again for sharing. God bless you very much in Jesus name 🙏🕊️🤍

@Styledunderlupus 5 месяцев назад

Your strength and love for your daughter shine through in your words. Sending positive thoughts your way.

@luisaalvarado1299 5 месяцев назад

@@Styledunderlupus Thank you 🕊️🤍🙏

@Styledunderlupus Месяц назад

You are very welcome

@fadzairuthkwenda3083 2 года назад

You are a strong woman and thank you for sharing your story and bringing that awareness. God bless you!!

@Styledunderlupus 5 месяцев назад

Thank you so much for your kind words!

@mercedescolon1927 2 года назад

So it’s been a little over a year now that you filmed this video and I JUST came across it! I’m so glad I did… Not only does your story feel so parallel to mine but we’re around the same age, both have kids, we were diagnosed around the same time (from what I understood) and the list goes on. I feel as if I was meant to hear your story because truthfully at times I feel as if no one believe how’s intense this disease feels. Bring that I also was full of energy and never even knew what anxiety felt like, to ending up in a hospital constantly due to severe anxiety causing panic attacks randomly while driving (with my kids in the car) to feeling tired and in extreme amount of pain every-single-day ITS EXHAUSTING!!!! I know it’s hard for anyone that doesn’t have it to understand you but when you come across someone who is also feeling the exact same way, it kinda feels like a relief. I want to thank you for sharing your story as I’m sure I’m not the only one who felt some type of relief knowing that we’re not alone. I wish you and everyone dealing with this desease all the best in the midst of it all 🙏♥️

@Styledunderlupus 2 года назад

Thank you for sharing! You are not alone. I hope we all continue to talk about it so we can normalize our experiences. It's a lot more tough than it looks. 💜

@cynshaemitchell5420 2 года назад

So glad to hear your story. I got diagnosed at 19 after I had a stillborn. I noticed symptoms starting at 14.

@helleluyahatanda5886 2 года назад

Use dr Omo herbal medicine very good and active it will help you get rid of them naturally okay his RU-vid channel ru-vid.com/show-UCZJJR-LpB1SVD09hQkt1-GA

@helleluyahatanda5886 2 года назад

Order dr Omo Herbs very good and active and his RU-vid channel ru-vid.com/show-UCZJJR-LpB1SVD09hQkt1-GA

@Styledunderlupus 2 года назад

Sorry to hear that. Glad you were finally diagnosed. Hope your symptoms are under control.

@kpremkunchu649 5 месяцев назад

Your story is very motivational. I love it how you always smiling despite of dealing with this every day.

@Styledunderlupus 5 месяцев назад

Smiling is my secret weapon against the chaos of everyday life. It's either smile or cry, right?

@Love_cake77 2 года назад

Loved this video! So relatable 💜 I was diagnosed in 2019 after 2 years of "having the flu" I get it, GET ALL of it!...thank you for sharing💜

@Styledunderlupus 2 года назад

You are so welcome! thank you so much for watching and being a part of the community. I am so glad you were finally diagnosed💜💜💜

@bluestar..109 5 месяцев назад

People like you really help me deal with it.

@Styledunderlupus 5 месяцев назад

That's awesome to hear, glad I could help out!

@LaShumbraBatesAuDHD 9 месяцев назад

I would like to personally thank you for making this video. I believe I have Lupus. Since 2016 my health has gone insane. What was already going on got worse, and new things started to happen. Things were somewhat "minor" at that point. But these past 4 or so years haven't been so minor. Google kept pointing to Lupus but I didn't believe it. With each new symptom or worsening of a symptom, same Google result. My tests were normal, but everything said Lupus. 🤷🏾‍♀️ Every single RU-vid video, weather it was a doctor listing possible symptoms, or a RU-vidr telling their journey, I matched 95% of what you all mentioned. With each new video, I am more and more convinced that it's Lupus. My rheumatologist doesn't believe I have ANY autoimmune disease. She got personally offended when I asked her what details makes her believe that, because I was curious and wanted to research. 🤦🏾‍♀️ With each new symptom she has this "uh oh" looking response on her face. She diagnosed me with Reynaud's and other conditions that many times happen with Lupus, but still won't diagnose Lupus. My test results were negative but my SED Rate was very high, so I don't know what to do at this point. Got new symptoms since before Thanksgiving. Got another appointment in a few weeks, so I'll see what happens from there. Maybe she doesn't have the full picture, I guess. I'm going to write some things down for her to help out. Hopefully it helps. 🤞🏾 Sorry for the novel.

@judyholden9439 8 месяцев назад

Get another opinion

@LaShumbraBatesAuDHD 8 месяцев назад

@@judyholden9439 That's what I've been thinking I have to do at this point. 😕

@Styledunderlupus 8 месяцев назад

I hope you finally got some answers from that last visit.

@LaShumbraBatesAuDHD 8 месяцев назад

@@Styledunderlupus So far, not yet. My new primary sent me to a few different specialists. After going over many of my issues & symptoms, each made a similar comment that it sounds like some autoimmune condition, and they each ordered a few tests. To me, that's a positive change. 😊

@Styledunderlupus Месяц назад

Absolutely! Different perspectives can really help clarify things. What other opinions do you think would be valuable?

@nanina1337 6 месяцев назад

Thank you for sharing your story. Been dealing with it myself for a couple of years now.

@Styledunderlupus 6 месяцев назад

It means a lot to hear that, thank you for opening up.

@babybaby5893 3 года назад

Thanks for your sharing. You are brave and strong honest and beautiful. I can relate to the grief period, it is hard physically and mentally.

@Styledunderlupus 3 года назад

Thank you for watching! I am glad this video made you feel seen 💕

@pascalegrauwels4094 2 года назад

Thank you i am from belgium and i just have been diagnosticated lupus victim hadded to sjogren, raynaud and polyarthritis quite hard ! As you....i love your smile and your positive way of thinking it helps me alot What helps me too is to hear your symptomes and than to be able to relate it to thé lupus ex: température fluctuations i also though it Was menopause... thank you keep smiling you are beautyfull !!!! Hope my english is not too bad Pascale

@Styledunderlupus 2 года назад

Thank you for watching and sharing.

@graceford909 2 года назад

Thank you for filming this! I just got my diagnosis today - it took 3 weeks to get my results back because of Thanksgiving, but my doctor just casually called and told me I had Lupus. I started crying and he was like "OK! Sending you the referral to a specialist, bye!"

@Styledunderlupus 2 года назад

Thank you for watching! Hope your treatment is going well!

@Regina.Michelle 3 года назад

Thank you for sharing your incredible story. I’m glad you are talking about it so that someone can be helped. I’m glad that you have grown a lot with processing your feelings. You look beautiful. Keep inspiring 💕💕

@Styledunderlupus 3 года назад

Thank you Regina michelle for watching! 💕If my video can encourage one woman to get check out and get help than I would feel like it was worth it. I appreciate so much💕

@makijoy 3 месяца назад

I’ve been sick on and off for weeks at a time for a couple of months now. Most people in my immediate life are waving it off and telling me that I’m faking it, but I am physically have fatigue and chills, and my throat is so mucousy. Now I woke up today and my lower back by my right kidney is hurting. I’ve had kidney infections 3×2 out of three times I was sober completely. I got my blood drawn in. My prolactin levels are abnormal but other hormones are fine. My vitamins and minerals are fine, but I am so stiff and physically in pain and feel sick. Almost all the time. It’s very disheartening when people around me. Say things like “oh yeah sure you look sick. get back to work” trying to sarcastically put me down about feeling bad. I don’t know what it is, but I’m finally getting an MRI for my brain and starting to get medical help after being gaslit almost my entire life . I am really scared but I am excited to figure out what it is. I have many symptoms “flareups “ all the time but I have no diagnosis. So those who are supposed to be supporting me the most when I am in need make me feel even worse because they don’t believe me, and then the load physically and mentally is increased.

@Styledunderlupus 3 месяца назад

Hey, hang in there! It's tough when people don't understand, but you're taking the right steps by getting the MRI. Keep us updated, and remember, your health comes first.

@spoiled1950 Год назад

Hi I loved your video. Thank you so much for doing this. Your story is so inspiring, your inspirational. Your story is similar to mine except I was misdiagnosed with multiple sclerosis for years before they figured out it was lupus. It was hard and been a long journey. I look forward to seeing more of your channel.

@Styledunderlupus 5 месяцев назад

Thank you for sharing your story! I'm glad you found the video inspiring.

@floeticlove1989 Год назад

You’re symptoms are the first that I’ve really identified with mostly because other stories I’ve watched on lupus don’t talk about the coordination feeling lightheaded or like I’m about to pass out or the tremors…because I didn’t have the rash on my face i thought perhaps it must be something else I was diagnosed with rosecea as a teen and then again as a young adult but mines comes and goes …but the dry scalp patches on my head scaly itchy patches but I haven’t heard anyone mention that as often and the feeling of having the flu consistently like an out of body experience you’re symptoms resonate with mine …although a lot of my blood work confirm both rheumatoid arthritis and lupus my doc is still not making a definitive diagnosis yet and wants to rule out other things but I’m so happy I found you’re story…I’ve been thinking that my major hair loss was from my pregnancies but the babies got older and my hair is still falling in clumps they are now 2 and 3 so thanks again

@Styledunderlupus Год назад

Thank you for sharing 💜

@asthree6452 5 месяцев назад

Thank you very much for sharing your story with us. Appreciate this.

@Styledunderlupus 5 месяцев назад

My pleasure!

@joannajohnson2669 2 года назад

Hi !!! New Sub!! Love you!! Literally felt like I was watching myself explain ..❤So MY ANA Came out positive so Doc just referred me over to Rheumatology so Just playing the waiting game..I have all the symptoms of Lupus and more! Thank you for explaining 🙏🖤🖤🖤🖤

@Styledunderlupus 2 года назад

Thank you for watching! Sending you good vibes on your treatment and recovery 💕

@Premsagar__ 5 месяцев назад

Thanks, stay strong and keep inspiring people

@Styledunderlupus 5 месяцев назад

I appreciate your kind words, thank you!

@Toxic_gaming_6.20 5 месяцев назад

Appreciate your videos, you have no idea how helpful these videos are.

@Styledunderlupus 5 месяцев назад

Glad you like them!

@Styledunderlupus 5 месяцев назад

Unfortunately, some things just don't come with an "undo" button lol

@cerysatkins8812 3 года назад

Get well soon love.

@Styledunderlupus 3 года назад

Thank you!

@abdullahakyol8365 6 месяцев назад

We need to talk more about it and hopefully we’ll spread awareness.

@Styledunderlupus 6 месяцев назад

That's a great initiative! Let's keep the conversation going.

@emredemirkol7510 6 месяцев назад

I just got diagnosed. Your videos have helped me a lot. Appreciate you!

@Styledunderlupus 6 месяцев назад

I'm so glad!

@zinarhone7642 4 месяца назад

I got diagnosed in March of 2024 at 58. I retited at the beginning of 2023 and was making quite a few changes in my personal and home life. My new health insurance wasn't processed properly because my autopilot brain was having problems adjusting to new things and dealing with long covid. Anyway, I was forced to get on Obama care. This meant having a new doctor. The new patient checklist allowed a collective synopsis and was instrumental in helping her diagnose me. My primary doctor of 25 years didn’t connect the dots and was treating me for various issues separately. My new doctor was a woman of color like me and reconized the discoids on my arms, legs, neck and back suspected lupus. Suspecting lupus, she ordered blood tests and 2 weeks later, confirmed the results via video appointment. Finally, after many years of frustration from what seemed to be random symptoms, I knew what was wrong with me. New doctor to I agree, based on my health history, that I have probably been suffering from lupus related symptoms for 10 to 12 years.

@Styledunderlupus 4 месяца назад

Thank you for sharing your story. It's essential to have the right healthcare provider who can connect the dots and provide a proper diagnosis.

@wychoo4889 2 месяца назад

look up goodbye lupus dr brooke goldner

@Styledunderlupus Месяц назад

Thank you for sharing!

@CeliaCavalli 2 года назад

At my doctors visit today he grabbed my hands and talked about how cold they were. The dizziness and feeling like the world is spinning is the worst. Definitely feels like the flu X5000 Btw you look so beautiful despite feeling awful you look so stunning 🤍 The hair falling out was very hard for me back in 2018 it was one of the symptoms what made the whole thing just feel like a slap in the face. I’m still waiting on my official diagnosis. Heading to endocrinologist next.

@Styledunderlupus 2 года назад

Thank you for sharing your experience with me Celia! I agree hair loss was the hardest for me too. It was the constant visual reminder that things were changing and there was nothing I could do. I like your flu x5000 description that's more accurate lol. Thank you for the compliment and good luck with the endo 💕💕💕

@cynthiaanderson2715 Год назад

Girl I found out about my Lupus 2019 even now am feeling cold so sick God bless u thank for sharing

@Styledunderlupus 4 дня назад

I'm really sorry to hear that you're feeling this way. It's tough living with Lupus, but sharing our experiences can definitely help us all feel less alone. Take care of yourself!

@Jaydipyadav-l3c 5 месяцев назад

Great video, thank you so much.

@Styledunderlupus 5 месяцев назад

Glad it was helpful!

@rathodvikram725 5 месяцев назад

You explained everything perfectly. Thank you very much for sharing your story.

@Styledunderlupus 5 месяцев назад

I'm glad you found the video helpful! Thank you for watching.

@RajaKumar-tl5hr 5 месяцев назад

Such a great video, thanks for sharing.

@Styledunderlupus 5 месяцев назад

Thank you so much for your kind words, it means a lot!

@SonuSingh-wi4bj 5 месяцев назад

You’re an inspiration to me. Thank you.

@Styledunderlupus 5 месяцев назад

Wow, thank you

@toniakeen1899 Месяц назад

Thank You

@Styledunderlupus 23 дня назад

You're very welcome! I'm glad you enjoyed it!

@Narebika 7 месяцев назад

I love your humor!

@Styledunderlupus 7 месяцев назад

It's dark for sure lol. That's what happens after working in mental health for almost 20 years.

@beberexhafan6812 3 года назад

I really hope you're well now ❤

@Styledunderlupus 3 года назад

Most days I feel fine but some days throw things upside down. Thank you for watching!

@luciacarralarmella2666 6 месяцев назад

Hi Nat, OMG apart from telling you how brave you are, such a light you are, I want to congratúlate you for opening up yourself as you did, bc look at how many people who did respond just helped. I am one of them too. I have Lupus 20 years ago, unfortunately mine is a little bit more agressive. but I don´t know if that has to do with time. My idea is to make a Channel in Spanish, to have people from the Hispanic Community who don't speak English or other languages get an idea of what others experience as well, so just what you did when you found out, but in Spanish. There´s not much, so, there's a lot to do, but I do Believe that needs to be done....So THANK YOU FOR REINFORCING THE IDEA!!!!! you really rock, I know how you feel daily, and eventhough you sometimes feel like staying in bed, you record your RU-vid Channel. I am already subscribes and you have a new fan!!!!! xoxo Lu Mexican fan

@Styledunderlupus 6 месяцев назад

Thank you so much for your kind words and support, Lu! It means a lot to me.

@basmabouresly9766 3 года назад

Thank you for sharing your story it helped me a lot💐 i am on plaquenil for two weeks now how long does it take to stop feeling the side effects?

@Styledunderlupus 3 года назад

You are very welcome! It took me a couple of months. It does get better but it requires patience. I’m now a year out and don’t feel anything anymore. Hang in there!💚

@leedralarry4571 3 года назад

Even though you are plaquenil, you could still get the joint pain, stiff joints and fatigue. I would take a prednisone when it is bad. I have 5mg prednisone and take as needed. Some times I would take one, two or three depending on my pain. If it is really bad I would take 6 one day, 5 the next and keep reducing by 1 until I am back to 1. By that tone I am usually good. I try not take press because it can elevate you glucose levels.

@mollyisshe 3 года назад

Thank you for sharing this story

@Styledunderlupus 3 года назад

Thank you for watching!

@vinodgamer5355 5 месяцев назад

I learned a lot of things from this video, thank you

@Styledunderlupus 5 месяцев назад

Thank you for watching and I'm happy to hear that you learned something!

@skdanes9705 5 месяцев назад

I have experienced everything that you have said in this video

@Styledunderlupus 5 месяцев назад

It's great to hear that you can relate to the experiences shared in the video!

@meltemkara567 6 месяцев назад

You’re very brave Nathalie, my sister is also dealing with this and I know how it feels like

@Styledunderlupus 6 месяцев назад

Thank you for your kind words, it means a lot.

@jacobhillanbrand7988 Год назад

They really should tell you in person about a life changing disease. My lung doctor tells me over the phone i have a spot on my lung. Thankfully it was nothing. Im still feeling alot of symptoms you have bin and ive had a comprised immune system my whole life with asthma. We just gotta keep on fighting one day at a time. I love my family during the holidays and birthdays better now then i did before because you never know when you time can be over. The fatigue is bad rite now im exhausted all day and like today its raining all day so i dont even feel like getting out of bed. God bless you

@Styledunderlupus Год назад

I couldn't agree more..I still cant believe that is how I found out my life would be changed forever. Not even a phone call but an electronic message. smh.

@melissawalker7705 2 года назад

Hi! Thank you so much for posting this video, I love that there are people in the YT community who are willing to share their stories. For the past two months, I've been having symptoms similar to what you've described. I've always been sickly, and get recurrent infections, colds, flu, bronchitis, pneumonia, etc easily. I also have Hashimotos and hypothyroidism. The symptoms I'm having are pretty debilitating right now. I keep getting facial rashes, severe fatigue, throbbing headaches, throbbing, dull aches and pains in fingers, toes, knees, ankles, etc, and the biggest is a constant low-grade fever. My normal temperature is 97.0-97.5, and I've been between 98-100 for the past month nonstop. It sucks so bad. I'm seeing a rheumatologist soon and hope to get some answers. Wishing you the best of health!

@sandrascott3152 2 года назад

Have you ever tried out natural healing herbs it totally works perfectly with no side effects whatsoever with the help of DR MABOSA HERBAL on RU-vid he can help you I’m a living testimony

@Styledunderlupus 2 года назад

Thank you for watching and sharing.

@Purpur23 2 года назад

I am so happy your videos popped up. I HAVE EVERY symptom you described. I had the Dermatologist diagnose me with Lupus through a finger Biospy but my Rheumatologist won't rule it as Lupus because my ANA hasn't come back positive but my test for inflammation comes back elevated. Life has been hard but I am trying to stay optimistic. Unfortunately I have alopecia but been taking care of my scalp alot and the one area has grown back very slowly!

@maryrhino9952 Год назад

Hi I’ve been living with Fibromyalgia 😰…for more than 5years now but I got rid of it naturally after using dr Omo herbal medicine his channel dromocure

@Styledunderlupus 5 месяцев назад

Thank you for sharing your experience. It's important to stay optimistic and keep taking care of yourself.

@Styledunderlupus 5 месяцев назад

That's amazing to hear! So happy for you!

@VinodKumarpajapti 5 месяцев назад

I really needed some motivation dealing with Lupus and this video gave me a great boost.

@Styledunderlupus 5 месяцев назад

Lupus picked the wrong person to mess with, you're a warrior!

@svrooyen Месяц назад

Lying here with barley enough energy to hold the phone. Diagnosed last week. Tired of being sick and tired. Mentally its taking a toll.

@Styledunderlupus Месяц назад

I'm really sorry to hear that you're feeling this way. It's tough to deal with health challenges, but take it one day at a time. Your strength will shine through! Rest 💛

@MugadasureshSuresh 5 месяцев назад

Thank you very much for sharing this video

@Styledunderlupus 5 месяцев назад

I'm glad you found the video helpful!

@helenfoote7108 2 года назад

Than you so much! I was diagnosed with SLE 4 months ago and trying to come to terms with the diagnosis. I had the same symptoms as you, especially with the hair falling out. I don't know anyone else with lupus so it was good to see your vlog. Thank you for being so open about lupus.

@Styledunderlupus 2 года назад

Thanks for watching! Glad it was helpful.

@jaitrinidad 3 года назад

this is so nice. stay safe and see you around!

@Styledunderlupus 3 года назад

Thank you for watching Jai! I appreciate it 💕

@ritalewis2790 2 года назад

Hi my Name is Rita I was diagnosed with Lupus in 2019 and I must say I have my day’s having a Lupus flare at this very moment enjoy watching your Channel

@helleluyahatanda5886 2 года назад

Am finally a mother today , because of fibroids my tubes was block for 6years I and my husband was having issue because of my situation no child when I was Searching online on RU-vid about fibroids I saw a testimony about dr Omo so I write him and place order for his herbal today I have 2weeks old baby now he can help you too Herb's work like magic. Both on Lupus x

@helleluyahatanda5886 2 года назад

Order dr Omo herbs 🌿 ru-vid.com/show-UCZJJR-LpB1SVD09hQkt1-GA

@helleluyahatanda5886 2 года назад

His RU-vid channel ru-vid.com/show-UCZJJR-LpB1SVD09hQkt1-GA

@helleluyahatanda5886 2 года назад

Use dr Omo herbal medicine very good and active it will help you get rid of them naturally okay his RU-vid channel ru-vid.com/show-UCZJJR-LpB1SVD09hQkt1-GA

@Styledunderlupus 2 года назад

Best of luck! Hope you feel better soon

@GadgetGal_ Год назад

I appreciate you sharing your experiences. ❤

@Styledunderlupus Год назад

Thanks for watching!

@CeliaCavalli 2 года назад

It’s always so wild listening to other peoples story and relating so closely with it. Thank you for sharing your story beautiful.

@granitpower9722 3 года назад

this is something new to me, will google it

@Styledunderlupus 3 года назад

Thank you for watching!

@SunilGamingFF-se3bb 5 месяцев назад

Incredible. We have such a similar story.

@Styledunderlupus 5 месяцев назад

Wow, that's crazy! It's cool to find someone with a similar story.

@LivingDead53 Год назад

I'm sorry to hear about your pain. That happened to me during the pandemic, but they changed my anti-depressant to cymbalta, which numbs all the pain. I don't have lupus, but I know my body is often inflammed partly due to my diet. I hope you have enough for good, fresh foods. I fiinished this video and see that you do. I hurt because I'm fat, especially my hips. My body has been beyond abused, and my head injuries, too. I never know if the headaches are from that or the screen. I'm also diabetic. I like how the way you solve bad eating habits, toxic food, injuries, and pain with a lobotomy or destroying it more to laugh at. My body is too busy being pissed at myself. I have the butterfly rash, a nodule on my thyroid, one sign of a kidney issue, cysts, raynauds. I have some sort of autoimmune disease, I guess, or just my life. I do have the butterfly rash today, but I had fruit loops for breakfast. They make me sick, but I love them. Story of my life. i hope you feel better. I'm not giving advice, but cymbalta is a great pain reliever.

@Styledunderlupus 6 месяцев назад

Thank you for sharing your experience and kind words. I appreciate your support.

@queeneyl2852 2 года назад

I thank u so much because we went thur almost da exact same situation. I watched diz video while I waz awaiting for my first rheumatologist apt and I promise after watching diz I felt like diz waz my whole situation all da way dwn to dem bout 2 diagnose me wit cancer smh it waz so krazy but I thank God dat waznt cancer but I just wanted 2 thank u for ur story

@Styledunderlupus 2 года назад

Thank you for watching! You are welcome!

@Ashokdharme-lo9ty 5 месяцев назад

You’re great 👏🏻

@Styledunderlupus 5 месяцев назад

I appreciate your support, it means a lot to me.

@casperinsight3524 7 месяцев назад

I came across your video by happenstance and listening to your experience was an eye opener. Thank you for sharing how auto immune diseases can completely readjust your life in every way. It's true that the person you once were no longer exists and you are quickly introduced to the person you suddenly are now. It's a life altering experience that most people are unable to fully comprehend . You mentioned you previously were diagnosed with graves disease, thankfully the name is not as terrifying as it sounds, but still. My question is were you misdiagnosed or do you have both Graves & Lupus ? I recently read that one diagnosed autoimmune diseases increases the likelihood of splitting into 3 which surprised me. Such as chronic fatigue, hashimoto's and Crohns disease. I am currently reading an interesting book of a female Doctor who shares her experience firsthand and developed a health protocol to manage autoimmune with minimal medication which sounds amazing. The book is called The autoimmune solution by Amy Myers MD and is quite an eye opening read. You have a fabulous spirit, sense of humor and outlook and are Beautiful person. I pray you receive Abundant Blessings on your health journey 🙏🏼💗🕊️ God Bless

@Styledunderlupus 6 месяцев назад

Thank you so much for your kind words and for sharing your thoughts. Autoimmune diseases can indeed be life-altering, and it means a lot to have your support.

@NIRODKUMARSAHUNIRODKUMARSAHU 5 месяцев назад

Sometimes I feel better and sometimes I feel terrible. It’s become a normal thing in my life

@Styledunderlupus 5 месяцев назад

It's okay to have ups and downs, just take it one day at a time.

@cskiles318 10 месяцев назад

Thanks for sharing I’m in the midst of figure things out now. I have hashimoto flare ups. This week I start b 12 shots in hopes to build up My reds. My body is not absorbing normal Nutrients or vitamins and Hugs to you

@Styledunderlupus 8 месяцев назад

Best of luck! Sending you good vibes. 💜

@KimberlyKling 5 месяцев назад

Hi Nathalie. Thanks so much for sharing your story! Oh my gosh, I can relate so much to your story. I recently got diagnosed after searching for answers for 8 years and the doctor literally told me as he was walking out the door. I wanted that moment too! It would be nice to have more care and time taken to help us work through the emotions, right? Also, the feet thing. That's been one of my odd symptoms too. I could not understand why my feet felt like they couldn't hold me up. Thanks for being such a bright light. 🩷

@Styledunderlupus 4 месяца назад

You are such a kind soul! Thank you for taking the time to leave me a comment. This entire experience can be difficult to process. I am sorry I has taken you so long to be diagnosed. But, I am grateful it finally happened.Welcome to the Lupus journey. It's not easy but it's possible to have a joyful and passionate life with Lupus. 💜

@harriettjackson4436 3 года назад

Thanks for sharing this.

@Styledunderlupus 3 года назад

Thanks for watching!

@natalyhuaylla2611 2 года назад

Thanks for sharing this video 🙏🤍 hope you’re feeling way better now after your diagnose 🙏 About your chest pain, feeling pressure, would they come for weeks then go and then come back again? 🥺 was it worse when lying down?

@Styledunderlupus 2 года назад

Thank you 🙌

@glsn8811 6 месяцев назад

Thanks for sharing your story.

@Styledunderlupus 6 месяцев назад

I appreciate you taking the time to watch and comment!

@little_miss_vintage Год назад

I was diagnosed with cutaneous lupus last year. I had constant itchy rashes everywhere that resembled hives. But I have a lot of the other symptoms you were talking about especially the feeling sweaty but cold thing and feeling like menopause is starting. That’s exactly how I feel. I’m 37 so I suppose early menopause could be a thing? But I’ve had this for many years now. Also am constantly fatigued and tired and always feel as if I’m coming down with something. The list really goes on. I also have other autoimmune diseases

@maryrhino9952 Год назад

Hi I’ve been living with Fibromyalgia 😰…for more than 5years now but I got rid of it naturally after using dr Omo herbal medicine his channel dromocure

@Styledunderlupus 5 месяцев назад

I'm sorry to hear about your diagnosis. It sounds like you've been dealing with a lot. Stay strong!

@annemacomber9736 3 года назад

I have never been to the doctor in my life lol

@Styledunderlupus 3 года назад

Wow lol how lucky are you?

@AnupPradhan-bs8eg 5 месяцев назад

Thanks a lot

@Styledunderlupus 5 месяцев назад

Most welcome

@josephineustewfrey5639 3 года назад

Can you make an update video on how you have been feeling?

@Styledunderlupus 3 года назад

Sure! I can do that :-)

@ericamiller3585 2 года назад

My name is Erica and I'm awaiting for my official Lupus Diagnosis in approximately 5 days.

@helleluyahatanda5886 2 года назад

Order Lupus herbs 🌿 from dr Omo ru-vid.com/show-UCZJJR-LpB1SVD09hQkt1-GA

@helleluyahatanda5886 2 года назад

His channel ru-vid.com/show-UCZJJR-LpB1SVD09hQkt1-GA

@Tcray430 Год назад

Hope your test came back negative

@ericamiller3585 Год назад

@Tcray430 I was negative for Lupus, but I was diagnosed with Lupus' Fraternal Twin, Sjogrens. I take 400 mg of Plaquenil a day and due to continuous pain, I was started on Leflunomide once a day. Thank God for Zofran and Dramamine daily for n/v. We must stay in the fight and persevere. Most days are better than my worst days.

@odetemartins1103 2 года назад

I’m a beauty therapist diagnosed with lupus but went on working not lost 10 years like you I love beautiful perfumes and body and face care but I can’t afford much I love my country so much South Africa 🇿🇦 even being from Portugal but I have been here for 61 years God bless and stay safe🙏🧎‍♀️🧎‍♀️🧎‍♀️🧎‍♀️🌺🌺🌺🌺🌺👼🏻👼🏻👼🏻🇿🇦🇿🇦🧎‍♀️

@Styledunderlupus 2 года назад

Thank you

@tnmkiller6939 5 месяцев назад

What do you do daily to keep the symptoms away or manage them?

@Styledunderlupus 5 месяцев назад

I make sure to stick to my routine, take my medication, and practice self-care to manage my symptoms.

@purcellcalvin8309 2 года назад

Thank you for sharing.. i am in the process seeing the specilaist..its been yeare to finally to get to this point after i kept telling the dr i dont feel well..hoping for answers soon so i can move forward n manage.

@Styledunderlupus 2 года назад

I wish the same for you. Good luck on your lupus journey!

@thisisnotericmays Год назад

My Name Is Monet (yes my name is French) I’m 30 I Just Found Out Today & Thank You So Much For Sharing This 😫

@Styledunderlupus Год назад

Thank you for watching and connecting! It was hard to believe when I was at the very beginning but it does get better with time. 💜

@thisisnotericmays Год назад

@@Styledunderlupus thank you so much for that 💕🖤❤️

@Styledunderlupus Месяц назад

💛

@kelleyschaal7005 Год назад

I have those symptoms that you have and I can't get a diagnosis I still go through you have this and you get a pill how did you get past that? Right now I have real high blood pressure and a UTI kidney infection

@Styledunderlupus 6 месяцев назад

I'm sorry to hear that you're going through this. It can be really frustrating when you're struggling to get a diagnosis and treatment. Hang in there!