Thanks for this presentation. Very informative in my understanding of the disease. So much to learn in own disease management both now and ultimately in the future - feel like I’ll never know enough or full picture of disease. Knowledge is definitely empowering when this disease and its unpredictable associates can remove the ‘good health’ we once took for granted.
I have lupus rheumatoid arthritis and fibromyalgia. I don’t like to bring fibromyalgia up with my dr. I can see her getting upset then I have to deal with everything is fibromyalgia. It is sad that rheumatology only like to see red hot joint.
I have secondary sjogren's syndrome I'm almost positive I have Lupus type 2. I don't know if my rheumatologist is aware of it I will show him your video and maybe he'll learn something
I completed a full formal neuropsych eval after a non dominant hemorrhage and my "goofiness" post. I have been unable to find out exactly what i was or was not doing. My SLUMS was like 22 or 24. I am assuming I was off the fentanyl and any benzodiazepine long enough that it should not have been interfering. During Cognitive therapy post, I mentioned concern since much younger re possible ADD-Inattentive. The neuropsych was consistent with ADD but the neuropsychologist mentioned that the Executive Function issues are noted with Lupus as well. Unfortunately I am not certain I can understand how SLE activity interferes with neuronal function or possibly neurotransmitter specific. (I do have some improvement with atomoxetine which acts more at NE synapses (and presumably where amphetamines also work.) Pred helps too, and together ... But I still cant figure out hoe pred makes a difference. Since I have Rufus, I'm not certain how much MSK issues are RA v SLE.
Very informative. Thank you. My Gran passed at 61 undiagnosed from SLE. my mom passed last year after 64th birthday undiagnosed both SLE and Ms as well as diagnosed Hereditary Alpha Tryptasemia. The Uni Coroner said we all need to be tested. My ana was negative in fall, but dealing with alot aches and fatigue lately when im very energetic and want to be retested at the Uni. I felt i was dismissed at the Rheumatologist. Is it too early stage for positive results or im not as severe as them (at 45yrs old)?
I'm not a doctor. But you need to be a severe flare for some antibodies tests to show up as positive. I've suffered undiagnosed for so long (similar age) and let me tell you, pain is not normal. I knew before I was diagnosed whilst still under investigation. When confirmed I thought I was prepared. But nothing really prepares you. Wishing you luck, I hope its not lupus though x its awful x
Doctor, please answer my question. Is Drug Induced Lupus a type 1 or 2? How many drugs are known to induce Lupus, at this time? 63 F with RA x 30yr. Also, Hashi, Sjodren's, Cushing's, Lupus and who knows what else.
