My Multiple Sclerosis Diagnosis

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My First Multiple Sclerosis Diagnosis
After experiencing symptoms for several months I was finally put forward for neurological testing. Several months after these tests started I was finally diagnosed in May, 2016. This video covers how I was informed of my diagnosis and how it impacted upon my life.
If you are feeling generous please donate to my Patreon. It helps me to continue making these videos.
www.patreon.com/MyJourneyWithMS
For further information about Multiple Sclerosis please contact The MS Trust or the MS Society.
www.mstrust.or...
www.mssociety....
This video could not have been made without the help of Martyn Greswolde at Fresh Mint Films.
Thank you Martyn.
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Опубликовано:

19 сен 2024

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Комментарии : 29

@ecb1979 3 года назад

Wondering how you're doing now. I appreciate you sharing. I imagine a lot of us watching have an idea they may also have MS, have just been diagnosed, or are waiting on testing- so your info is invaluable

@evalisa00 6 месяцев назад

Yeah me too

@AnaboliKitchen 4 года назад

I was kind of happy as well when it was official. I finally had my answer.

@Bubberts79 4 года назад

I am literally the same, keeping my fingers crossed for MS. I never thought I’d say something like that.

@teeniewheeze8051 3 года назад

Me too x

@noryie4242 5 лет назад

you are so fortunate to have such a good and caring doctor. unfortunately I did not have the same experience.

@colleenpeters9374 7 лет назад

twelve years ago, almost to the day, following inconclusive CT scans and MRi, I had a brain biopsy followed by a 2 month period post-op waiting for pathology results (during which time a brain tumour couldn't be ruled out and I was on steroids) followed by another couple of M RI's, a spinal tap (the results of which allowed my neurologist to make a diagnosis of MS) and then a visit to the Rochester Mayo clinic (my parents' loving idea, to make certain that what had taken so long to diagnose was in fact MS) where I heard the final diagnosis of PRMS (progressive, relapsing MS) And since then my journey's found its expression in my book that was published in March of this year.

@Louleelou645 6 лет назад

I'm going through testing at the moment but I KNOW it's MS. I'm enjoying your videos because you are so nice to listen to. Thank you for making these

@EmmaSunshineUnicorn 5 лет назад

How did you tests go Kristy?

@aproblem3503 3 года назад

How did it go?

@Wabbelpaddel Год назад

Could also be dopamine deficiency. Tried bupropione or levodopa?

@b4sakenproductions416 4 года назад

As of this message I am in hospital suffering my first MS attack....5 days of steroid infusions behind me and 14 days or so of physical therapy to help strengthen my legs.I understand your point about it not being something more serious,but at this moment in time I am in hell.

@greenthumbwashington8931 3 года назад

Much love to you. I appreciate you taking the time to film and upload these videos. It is helpful for those of us whose lives are impacted indirectly or directly from the disease. I wish you well in your struggle. I can tell you have a strength in you that many lack. Good on you sir.

@lesliep9574 7 лет назад

I love your positive attitude.

@allysophia756 7 лет назад

Hello, I have been following your story. You are quite informed, and seem to be taking control of your own health in a way that is truly refreshing. You are very inspiring, I'm impressed that you took the plunge to go vegan! good for you! I don't have MS, but I know I will benefit from giving up meat, I just haven't been able to convert completely. I was curious if your family and friends noticed any symptoms along the way? Were the symptoms only noticeable to you? Also have you had any sleep issues at all because of the MS?

@havefuny968 3 года назад

I was just diagnosed with Ms I have no idea what to do it just put me on

@zerdda 7 лет назад

thank you

@paddymcmullan 4 года назад

Please help me , im ready for the hills , from oct last year ive had weakness in both arms wrists legs etc , ive tingling in both hands , burning in inner elbows , i feel like im smiling at times one side , my feet are started to tingle , i cant cope with any thing any more , cant plan , cant organise anything , i go to get something and forget ( happening more and more ) im worried and could be 3 years before im seen :( i have got to the stage i have to swap arms driving , talking on the phone ive to change arms its got to the stage i lay down and just keep the phone to my ear with hands down , im sick of this what ever it is !

@cyberpunk4622 6 лет назад

I recently started getting tests for M.S and they also mentioned Lupus. My stage is at the MRI and CT scans and have visited neurologist then the rheumatologist and also a endocrinologist. I'm not sure what happens now, I'm just waiting for results...

@megd7593 6 лет назад

Doom Punk - Hopefully the MRI (make sure they get images with and without contrast) will give you a definitive diagnosis. My experience in the USA has been that though they do MRI’s on the spine to help explain some of the physical symptoms, the BRAIN MRI is the one my neurologist uses the most to compare between scans to measure progression or remitting of the disease over time. I’ve not had a spinal tap, but did have all the rudimentary in-office tests (follow my finger, timed walking of a certain distance, etc.) as well as Evoked Potential Tests (shocking muscles with little probes to assess nerve conduction- ouch!) to provide additional information that help make the clinical diagnosis. Best of luck to you!

@tracyr54 5 лет назад

How old were you when diagnosed?

@amethystfire3076 3 года назад

Did you feel that your wife may leave you for someone else being you have the illness? I kind of feel this way right now. I don't know if I have it yet.