My Myasthenia Gravis Diagnosis 

I can definitely relate with the driving with double vision my vision became a problem in 2012 which lasted for a month I was seeing things horizontally but I wasn't diagnosed until 2015. In 2014 my whole life changed I had to be spoon fed bathed wiped and dressed I was completely disabled with no explanation why for a year I remained like this. But when my vision became affected in 2012 after that I had been experiencing unexplained symptoms that would occur but I was just blowing it off. When I was dx'd in 2015 I was numb with no emotion I truly didn't know what to say because I couldn't believe I had such a debilitating disease such as MG a name I had never heard of. It's been 9 years and still counting I've been in remission twice once for 7 months and for 4 years with no signs or symptoms of MG and last December my symptoms returned from the pits of hell due to an intense and heated argument with a sibling and an over exerted 3 day move. I'm now back at square one 😢 but they're mild symptoms here and there MG shows it's face that's when I know I'm doing too much. Otherwise I'm okay with MG just dealing with my other health issues. Sorry this is so long my apologies. Thanks for sharing your story as well ❤ more awareness is so crucial.

Omgggggg......you sweet girl ♥️🙏🏻♥️🙏🏻♥️🙏🏻 I’m praying for you. My Mom was just diagnosed. Thank you for your video ♥️♥️♥️♥️♥️♥️♥️♥️

Thanks for sharing your story!

I'm so sorry you were alone & had such an awful experience with your diagnosis. I just want to hug you after watching your video! Today, I'm going to the lab for MG antibody tests. My previous neurologist was dragging his feet & my optometrist only diagnosed me with convergence insufficiency & said an autoimmune issue is causing it. I'll see a new neurologist on 11/25 & I'll have the results for him! Grateful my primary care doc has written the lab order for me! Wishing you all the best!

My diagnosis with MG was I was really tried and feeling weak. I was thinking that a was having depression or diabetes because my Dr said I was boarder line diabetic. So over past couple months my symptoms was getting worse. My weakness increased and my voice change. Sound so crazy everyone noticed my voice. My right eye started drooping. So I went to PCP Dr he notice it and ran test. And then in form me that I have MG and need to see a Neurologist. It was hard for me to get an appt so I just went to ER because I was so weak I couldn’t hardly get around. So going to ER I was able to see a Neurologist and he test me and informed me that it’s medication that could help with my symptoms. He put me on mestinon and I start to feel better. I was in admitted to hospital for 3 days of monitoring and testing. After all the medication is helping me and I still early in my diagnosis. So this is my journey so far. Thank you for sharing your story. It really helps to know that I’m not alone in this journey. 🙏🏾💜💪🏾 Stay strong and blessed

Oh my gosh, my diagnosis stories are crazy! I have fibromyalgia and hashimoto's disease (amongst others). I can totally relate to where you say how you felt about it. It is devestating to get a diagnosis and you need to process it. But you know what, you are amazing and you can live a great life despite your MG! - Natalie

I wish the doctors and be truthful when you're diagnosed with mg I've never treated anybody with mg I don't know anything about in it never tell you you can have crisis's and quit breathing and be put on ventilators are you can't chew and swallow your food I wish you could find one doctor that would just be truthful and tell you good truth about this illness I was diagnosed in 2020 hospitalized six times power port put in my chest IVIG plasmapheresis and now they just took out my thymus gland

Hi! I was diagnosed late august of 2020. I noticed the eyelid droop after a 17 mile back packing trip I went on. In june of 2020 I had a pulmonary embolism or blood clot in the lung, and I was concerned I had another clot that traveled to my brain and was causing a stroke. I went to the ER, and luckily, I am a nursing student and JUST learned about MG. They falsely diagnosed me with Bells Palsy, however, I mentioned the possibility of MG and the ER doc decided it was a good idea to get a referral into a neurologist just to make sure. A week later I saw the neurologist, got blood work done for MG, and 2 days later, I had a positive diagnosis... I am 23 in the middle of nursing school (which is already stressful) it was quite hard news, but fortunately, I have been on Mestinon and it has helped with my double vision and ptosis greatly. I tried prednisone, but it gave me insomnia which my doctor and I decided was not good for my condition and I got taken off of that. Just recently, I had a referral in for a cardio thoracic surgeon to get my thymus gland removed. Although I do not have a tumor on it, they said the prognosis of removing it anyways was really positive! Reach out to me if you'd like! I would love to have someone to talk to that also is an MG warrior :)

I have had it since I was 14. I died from it & went thru hell & back.

Well done video. Have had weakness, loss of balance, crushing fatigue, difficulty breathing, trouble focusing eyes, face feeling like concrete mask on it ,feeling like water turns into a cube when swallowing, trouble holding up my head or keeping hands on steering wheel but don't have antibodies and am RN who asked is this MS or MG. Fast forward 4 yrs through 2 EMGs, 2 muscle biopsies and 5 neuros, getting diagnosed with inclusion body myositis which has no treatment, no cure and is progressive. Real downer. Went to support group and everyone there said I didn't look like someone with myositis and some of those people with myositis are also MDs.My neuro hasn't done neuro exam in 2yrs, just records complains of fatigue,never did icepack test which was positive when I did it.He did a trial of prednisone which at 60 mg made me near homicidal, at 20mg made face feel better but not much else as he wanted me to wean down to 10. convinced him to let me do trial of Mestinon, first day noticed muscles responded so well, breath count went from 15 to 31, steady on my feet. His response is he doesn't think this is MG because of the path reports from biopsy. Making me feel invisible and discarded. So while haven't gotten diagnosis , I have the treatment and it is helping though am massively deconditioned and working my way back.This has been a horrible, lonely, exhausting, demoralizing journey. Keep wondering if men get this treatment.

Hi I hope you’re doing much better 🤞🏻🤞🏻🤞🏻 question: did your blood tests or EMG ever come back positive?

How are you doing I'm sorry you had myasthenia gravis condition muscle spasms and muscle weakness, I have myasthenia gravis condition muscle spasms and muscle weakness disease

I'm going Neurologist appt next Thursday I have to go back to the throat doctor they did nothing but check my bumps under my tongue which could not be removed because of the bone I was so angry 😢 I i thought it was stones its something else

I mean I did over work out too much which cost myasthenia gravis condition but but my the heat in my house wasn't on in September and October I got sick it hot in my house I had the windows s d fan on,

I was diagnosed at 10 by my eye dr. I went in for a eye exam & rushed to hospital mid way thru the exam.

hey your facebook and instagram didnt work, did you delete it? i like storys about myasthenia gravis... i hope you are fine in 2024 ^^

Do you like beef, butter, bacon, lamb, fish, or eggs? Humans don't need to eat plants, and we are much happier and healthier when we don't. If you live near a source of fresh, unprocessed milk, a quart of that, a day works as well. Allergies are also auto-immune.