This video is about how I was diagnosed with Myopic Macular Degeneration (MMD), a sight-threatening condition resulting from high or pathological myopia. It is sometimes called degenerative myopia It is the second most common cause of blindness in the developed world, after age-related macular degeneration (AMD). Patients are typically diagnosed between the ages of 20 to 50, directly affecting their ability to contribute to society.
It is all too often considered a rare disease and is therefore woefully under-researched and often under-diagnosed. Its incidence is nonetheless rapidly increasing around the world, with an estimated 40 million people currently suffering from it, a figure that is predicted to rise to 100 million within the next 25 years.
Patients are often mis- or partially diagnosed, left-as I was-to fill the gaps online at the risk of finding inaccurate or misleading information.
There needs to be a drastic change in how patients with MMD are diagnosed and treated. And needless to say, there needs to be active research for a cure. I hope to raise awareness about this by sharing my story.
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www.myopicmaculardegeneration.com
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21 авг 2024